Can Lyme stay dorment in a body for over 60 years???

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Dazeoff
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Date Joined Jul 2010
Total Posts : 10
   Posted 7/2/2010 7:49 PM (GMT -6)   
First let me say this is a fantastic forum, however without a medical background, I must confess that I don't understand most of the listed data on the "New to Lyme" forum. 
 
Just one question of probably many, can LD stay dorment in a body for over 60 years before surfacing?
 
I'm almost 71 y/o and just haven't been feeling well for the past 2 years, i.e. cronic fatigue, loss of

appetite, no physical energy, cold and or burning of the soles of my feet and it would take 2-3 months to shake a head cold instead of the former 5-7 days. 

 

 

 

 

 

 

 

 

 

I've been referred to an infectious disease doctor for a complete blood workup and was diagnosed with LD as a result of a tick bite(s) during my pre-teens.  I've been on a daily IV drip for 3 1/2 months of Rochepherin (sic) for the first 30 day and the last 2 1/2 months a daily IV drip of Aziithromycin.  My recenty blood work shows a low SED and no traces of LD, however I don't feel any better now than when I first began the IV treatment.  I've been off the IV drip for 1 week now but continue with Doxycycline 100 mg tabs 2X a day, Olive leaf extract tabs, B complex and B-12 injections but I just don't feel any improvement.

 

 

I'm having a difficult time in understanding if LD can remain dorment for so many years or as an "A" type personality am I expecting to much to soon.  

 

 

Any input would be most appreciated.

 

 

 

 

 

 

 

CajunGrl
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   Posted 7/6/2010 1:18 AM (GMT -6)   
I was told by my LLMD that yes, Lyme disease can lay dormant for over a decade and come back out when we are stressed, have been through something traumatic, etc.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

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Dazeoff
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Date Joined Jul 2010
Total Posts : 10
   Posted 7/6/2010 8:00 AM (GMT -6)   
CajunGrl, thanks for your update. Being an "A" type personality and very analytical, perhaps I could believe that LD could be in a dormant state for a decade, but for 60 years is a bit difficult for me to comprehend. As I haven't been feeling well for almost 2 years my primary physician referred me to an infectious disease doctor for blood tests. During the initial consultation I was asked if I had EVER been bitten by a tick. I had bites during my pre-teens and I'm soon to be 71 y/o. The diagnosis was LD. After 3 1/2 months of daily IV antibiotics I don't feel any better now then when I first started treatment. For 30 days I was on an IV of Rocpherin and then my meds were changed to azithromycin for 2 1/2 months. My treatment also included daily Doxcyclyn 100mg tabs 2 x a day. I'm currently on probiotics, B1, B complex and get B12 shots 2x a week and I don't see any improvement to my energy levels.

As that 60 year time frame seems somewhat unrealistic to me I sincerely believe that there is something else going on beside the potential of LD. I'm seriously wondering if I may be infected with some parasite that possibly could have been picked up from a European cruise of the Mediterranean 2 years ago. But then question wouldn't all of the antibiotics that I had eradicate an infestation of parasites?

I've gone back to my primary physician to a follow up evaluation of not feeling well and being lethargic for such a long time that I'll soon be going for an abdominal CAT scan.

I do appreciate your input and I'm absolutely amazed at the information content of HealingWell.com. I just wish that I understood more of the information responses.

IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 7/6/2010 9:06 AM (GMT -6)   
It's completely possible. Your body may have kept the infection(s) in check without completely eradicating it. A period of stress, or even the natural aging process, could open the door for the infection to overwhelm your immune system. I believe that something similar happened to me. I think that I've had bartonella for over 10 years. I also have Lyme and babesia, but I'm not sure when I was infected with those. After about 3 months of high stress (losing a lot of sleep, eating fast food because of a lack of time, etc.), I became extremely ill.

Have you been tested for any of the co-infections of Lyme? It can be hard to get rid of Lyme if you have other tick-borne infections as well.

Dazeoff
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Date Joined Jul 2010
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   Posted 7/6/2010 10:13 AM (GMT -6)   
I've been told that I have Erlickia (sic) and as it was explained to me that this was "a first cousin to Lyme." I can understand a flare up from a stress related incident, but before I retired I was in 40 years of stress related occupations, i.e. NYC Firefighter and later a State Investigator involved with law enforcement. If stress is or should be a catalyst shouldn't the symptoms surfaced many years sooner? I've been retired for 2 years, am financially solvent and I don't think there is much stress in my life right now.

IH8Ticks
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Date Joined Jan 2009
Total Posts : 296
   Posted 7/6/2010 10:37 AM (GMT -6)   
Stress can be physical or mental in nature. For me, the big problem is losing sleep. If I'm busy and lose sleep, I will become more ill, even if I'm not feeling "stressed out" or unhappy.

Age is also a factor with our immune systems. As our bodies age, our immune systems decline. It may be helpful for you to look into ways to boost your immune system naturally. I'm on Transfer Factor Multi-Immune from Researched Nutritionals. (I have no association with the company.) It is supposed to boost my immune system. Proper exercise and diet will help boost the immune system as well. Green and black tea are also supposed to help. I'd recommend real tea leaves rather than the bagged tea. Proper antioxidants, like Vitamin C, will help. Lyme itself attacks the immune system. Anything that you can do to boost your immune system should help, not only with Lyme, but with any other infections you may be exposed to.

Razzle
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Date Joined Aug 2007
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   Posted 7/6/2010 11:50 AM (GMT -6)   
Not all parasites can be eradicated with antibiotics...you may need medication that deals specifically with the parasite(s) you may have... Example is malarial parasites require anti-malarial meds, giardia requires Flagyl/related meds, etc.

Genova is a lab that has a good reputation for more accurate parasite testing - might be good to ask your doctor about getting tested through this lab. Might take a couple of tries to detect the parasites, also.

Another thing is that Lyme is entirely capable of hiding deep in tissues, biding its time before it comes out of hiding and starts causing problems (it is closely related to Syphilis, which has been known to do this). It is possible you picked up some other infection on your trip 2 years ago, which then weakened or side-tracked your immune system enough to enable the Lyme to come out of hiding and thus be detected on the test.

If you have had Lyme dormant for so long, it is possible you may not find help from antibiotics until you've been on them for a longer time. Also, if another parasitic/other infection that doesn't respond to antibiotics (such as certain parasites, fungal or viral infections) is dominating right now, this may be overshadowing the effects of the antibiotics such that you don't feel any better...

It is also thought by some MD's that sometimes other infections (viruses, other bacteria) can cause cross-reactions with some of the Lyme Western Blot test bands and result in a positive result on those bands when you may or may not actually have Lyme. I don't know that I fully agree with this, but since it is reported in various research articles, I'm bringing it up here.

Also, if there is some environmental exposure (toxic mold, chemical outgassing, water contamination, etc.) you are getting more of since retirement, this may also be something you need to consider looking in to as a possible cause or contributing factor to your symptoms. One way to test this is to go on a trip somewhere for a week or so and see if you feel different/better during that week than when you are at home.

You might also consider consulting a Naturopathic physician about your symptoms and see what their take is on all of this.

I hope this gives you some ideas of things to discuss with your doctors.

Take care,
-Razzle
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle & other liver support herbs, Magnesium, homeopathy.


achievinggrace
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Date Joined Nov 2009
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   Posted 7/6/2010 7:23 PM (GMT -6)   
Another thing to consider is your comparative lack of stress as a trigger. I have read about something called something like Warrior's Immune syndrome, in that while the pressure is on, you feel good, because your immune system is in hyper drive, and once things calm down, you get laid low. I had Lyme for 25 year before it completely got the better of me, and it needed the help of Ehrlichia to do it.

Consider consulting a lyme literate doctor.

Dazeoff
New Member


Date Joined Jul 2010
Total Posts : 10
   Posted 7/6/2010 8:32 PM (GMT -6)   
I want to thank everyone for their very valuable input, which did in fact provide me with a different direction of my own thought process regarding my stress levels. The more I think about it, I probably an undergoing more stress than I initially realized. As everything in life is relevent to one's experiences I'm now realizing that stress can come in many forms. I'm now starting to realize that I'm probably stressed as a result of not feeling well for almost two years.

Does anyone have an idea how long it takes for antibiotics to flush from the system? And are there any withdrawal issues that the body experiences during the flush period or from withdrawal? After 3 1/2 months of IV's I've been off all antibiotics for about 10 days however I'm currently experiences elevated neverous levels where my body now goes through involuntary tremors or shakes. These intermittent episodes of tremors come out of no where and last for 3-5 seconds then subside for a minute or two then more shakes. These incidents occur until I take a small piece of Zannax to calm down. The little helper lasts for a little more than an hour then the shakes come back. I'm sure hoping that this experience is a result of antibiotic withdrawal. Anyone care to confirm or deny my thought? Or perhaps there are other some other issues going on. Getting old is not for sissy's.

allieann
Regular Member


Date Joined May 2010
Total Posts : 116
   Posted 7/7/2010 11:12 AM (GMT -6)   
I believe burning or pains in the feet are caused by one of Lyme disease's co-infections "bartonella" as was the case with my son.

IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 7/7/2010 4:14 PM (GMT -6)   
Dazeoff,

I'm not sure if your tremors are related to the antibiotics, the infection, or a "herx" reaction. Are you having anxiety when the tremors hit? It may be difficult to tell if the anxiety is coming first and causing the tremors or if the tremors are causing you to be anxious. Lyme can cause both tremors and anxiety. It can also cause insomnia. The combination will increase the stress on your body, making you more susceptible to the infection. It's a vicious cycle.

I'm not familiar with IV antibiotics. I have only taken oral antibiotics. You might want to look up the potential side effects of the drugs you were given.

It could be that you are experiencing a "herx" reaction (also called a Herxheimer or Jarisch-Herxheimer reaction). If you don't know what that is, it would be a good thing to look up. The short description is that when the antibiotics (or to a lesser degree, your own immune system) kills off the bacteria, the die-off causes toxic substances to be released into your body. These toxins can cause your old symptoms to resurface even worse than before, or they can cause completely new symptoms.

There isn't exactly a cure for herx reactions, but you can lessen the effects by getting the toxins out of your body quicker. Different things work for different people. For me, the best things are drinking plenty of fluids (tea works great) and exercise (increasing circulation and sweating out the toxins). Some people find herbal remedies helpful, but the names escape me at the moment. Other people like saunas to sweat out the toxins. Infrared saunas seem to be popular, but I haven't tried one of those.

I hope this helps.

Dazeoff
New Member


Date Joined Jul 2010
Total Posts : 10
   Posted 12/16/2010 8:01 AM (GMT -6)   
I want to thank every one for sharing their information with me. It's been awhile since I've posted on this forum and thought I'd offer an update. I'm feeling lousy and perhaps the Lyme has come back with a vengeance. My initial body shakes or tremors that I posted earlier is getting progressively worse. I truly felt that the mega doses of IV antibiotics while taking Lexapro and Doxocyclyn was the cause of my shakes. Research of Lexapro indicated a rather extensive list of negative side effects including body tremors. I weaned off the Lexapro over a six week period, however the shakes did not ease up and still continue on a daily basis.

These shakes are now at the point where it effects my speech with slurred words, stuttering and impaired walking where I appear to have a palsy effect. I've been to one doctor after another and had CAT scans of my abdomen, chest and brain. Fortunately all these results were good. Medical diagnosis was there is nothing wrong with me. I've been to a Neurologist was again was told nothing wrong. It was suggested that I see a Psychiatrist for evaluation. Again I was told there is nothing physiologically wrong with me. He prescribed Xanax to control my shakes. I'm now developing a dependency on Xanax where my daily dose has increased to up to 3mg a day by taking .5mg pieces at a time. The Zannax does control the shakes, but puts me into a mental fog and I sleep for 2 - 3 hours in the afternoon. The Xanax is also causing a wide range of mood swings going from anger over nothing to depression. Not a psychotic depression but depressed as to not being able to get any relief from the shakes. I'm not one to abuse drugs, but I feel like a dog chasing his tail. I wouldn't need the Xanax if I could control the shakes and I need the Xanax to keep the shakes in check. The .5mg Xanax only lasts for approx. 2 hours before it wears off and the shakes are back again.

Two weeks ago my primary doc suggested that I go back on the Lexapro 10mg a day, which I did. Still no relief from the shakes. I had also visited another physician who is an internist and prescribed Amitriptyline 10mg 2X a day to be taken with the Lexapro. I don't see one iota of improvement as the shakes are getting worse and I have no apatite or energy. My short term memory is getting to the point where I'm having difficulty in remembering a thought. I now carry a pad in my pocket to write things down before I forget it. I'm becoming very concerned. As much as I was under the impression that the large doses of IV antibiotics had caused a possible short circuit in my nervous system I feel that I have to see the infectious disease doctor for a follow up evaluation.

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 12/16/2010 8:26 AM (GMT -6)   
Dazeoff,

I am so sorry that you are still going through this. Lyme Disease is already hard to erradicate if it is not treated right, in the beginning, but adding a co-infection to the mix is worse. I have two suggestions for you...one, ask for Klonopin. Klonopin has a longer half life and lasts approximately 8-12 hours in the body. I don't understand why doctor's give xanex first everytime when it only lasts 2-4 hours. They did the same thing to me when I had panic attacks. It got to the point that the xanex was barely lasting 4 hours and I was in another attack before it was time for my next dose. It was awful! The second thing I suggest is detox baths. You may have toxins in your body which happens when bacteria are being killed off too fast. If you look in the New to Lyme?....Start Here post, there is a post there that explains everything you need to do. One more thing...there is also a neuro antitox that Dr. Jernigan has that helps get the toxins out of the brain. Here is the link to his page. I think you can call and order it if I'm not mistaken.

www.hansacenter.com/index.php
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis
Prescription Meds: Tramadol, Axid
Supplements: Fibro AMJ, Thyro-complex, CMK, Folic Acid, Fish Oil, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement


Co-Moderator- Lyme Disease Forum

Dazeoff
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Date Joined Jul 2010
Total Posts : 10
   Posted 12/16/2010 10:02 AM (GMT -6)   
Thanks again CajunGrl for your input. I thought it was just me that I'm somewhat freaking out between the shakes and being in a mental stupor. What dose of Klonopin were you prescribed? And do you know how long it take for Klonopin to calm the shakes down. From what I understand it takes 4 - 5 weeks before the Lexapro can become effective.

I use the .5mb Xanax under my tongue and it works within 15 minutes. I haven't done any research on Klonopin but at this point I'll try just about anything. A question comes to mind if Klonopin can be used with Xanax until the shakes can be brought under control?

I have an appointment with the infectious disease doctor for next Tues. as so far I'm having a very difficult time in getting into the Christmas spirit.

CajunGrl
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Date Joined Mar 2009
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   Posted 12/16/2010 11:01 AM (GMT -6)   
I have the 2mg pills but I only take 1/4 of it now. At first, I needed 2mg. Klonopin is also used for epilepsy, so I'm sure it would help with your shakes. I used to get really bad body shakes when my thyroid went real low and it helped calmed them down for me. Yes, Lexapro does take a while to get in the system. I was on it for two years. What doctors normally do, is give something like Klonopin first to settle everything down, then they put you on Lexapro too until the Lexapro gets into your system, then you can start weaning yourself off of the Klonopin. Your doctor may just let you take Klonopin by itself.

You can also put Klonopin under your tongue to get it in your system faster. It usually takes about 15 minutes for it to start working for me and lasts 8-12 hours. You may get a little sleepy when you first start taking it though. I do not think you can take xanex and klonopin together. You would have to ask your doctor that.
Co-Moderator- Lyme Disease Forum

Lyme Disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis
Prescription Meds:Tramadol, Axid(Was on Plaquenil)
Supplements: Thyro-complex, CMK, Folic Acid, Fish Oil, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Post Edited (CajunGrl) : 12/16/2010 10:31:30 AM (GMT-7)


Dazeoff
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Date Joined Jul 2010
Total Posts : 10
   Posted 12/16/2010 12:35 PM (GMT -6)   
Thanks so much for your very quick reply and input. I can't tell you how much I appreciate your information. I live in SW Florida and the seasonal residents (Snow Birds) are down from the North and I can only assume that the local doctor's office is swamped with patients. I'm not a chronic complainer where I call a doctor for a cold or sniffles but as I had these shakes now for over 8 months, the doctor's don't return my call. If I said I was totally frustrated that would be an understatement. I can only make an assumption that the doctors just don't have an answer for me as to the cause of the shakes. I feel like I've been walking a razor blade for the past couple of weeks as the shakes are getting progressively worse. I will definitely look into the Klonopin for some relief.

After re-reading the previous posts I feel that the Lyme has come back in full fury. My appointment with the infectious disease doctor is scheduled for next Tuesday and he probably will get a full blood workup.

Traveler
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Date Joined May 2007
Total Posts : 35853
   Posted 12/16/2010 1:12 PM (GMT -6)   
Hi Dazed!
I haven't been able to read all of this thread (my eyes are playing around today), bu I did scan it & it doesn't seem as if anyone has asked you about your European trip. Is there any way you could have been bitten by a tick, a mosquito, or any other bug?

There are other ways to contract LD besides having a tick attach. If a bug can bite an infected host & then live to "bite" again, it can transfer these infections.

On top of that Europe has different strains of LD than we do here in the States.

Just some thoughts, hope it helps some...
Co-Moderator, Lyme Disease ;)
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Treating with Acupuncture, Traditional & Modern Chinese Herbs & Western Herbs.

springsjean
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   Posted 12/16/2010 2:49 PM (GMT -6)   
Dazed, it sounds to me like your nervous system is out of whack caused by the lyme/coinfections. I too was shaking and trembling, inside and out, with a tight jaw, tight neck, etc. Every doctor told me it was anxiety. Well yeah but why now? At this point in my life. It turned out as I got diagnosed but treated improperly, the lyme got worse and caused neuropathies, burning and tingling of different parts of my body. The more research I have done it appears to me anyway that the more damage the disease does before being treated properly the more damage you will have. I have lesions on my brain which I believe to be the cause of the neuropathies. While Xanax does help with the anxiety, I am using neurontin to calm the burning feeling in my face etc. Perhaps they will order further testing on you. Are you having headaches, vision problems, numbness in fingers, face, etc? Best of luck to you.
Lyme, erlichosis, bartonella. 4 years undiagnosed despite 10 drs.
Current meds: roxythyroxine, bactrim, amanatadine, neurontin, xanax, valtrex, cymbalta
Prior meds: amoxicillin, probenecid, minocycline, tetracycline, doxy. IV refused by insurance. Supplements: boluke, alpha lipoic acid, ag immune, magnesium, milk thistle

Dazeoff
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Date Joined Jul 2010
Total Posts : 10
   Posted 12/16/2010 3:00 PM (GMT -6)   
Humm, now that's an interesting thought. I don't remember any bug bites while in Europe, BUT back in 2008 while I was still working a full time job as a County Investigator, I was in the field and had been stung by a bee. I think it might have been a hornet or a wasp. The sting was right on top of my head at the balding spot. It really was a painful sting. I sprayed it with Benadryl to ease the discomfort. To date I still have a small scab where I was stung. I guess I felt that there might have been part of the stinger still under my skin. I mention this to the infectious doctor and he just brushed off the whole concept of a bee sting and only concentrated on the tick bite 60 years ago. From your words of wisdom do you think that there might be a possibility that a bee sting could cause a lethargic run down feeling or mimic Lyme type symptoms? I'm know that I'm not allergic to bee stings but you bring up a very good point. Have you heard of any one that had lasting side effects from bee stings? I can't thank you enough for this online chat. It's been most informative. Bill

CajunGrl
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Date Joined Mar 2009
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   Posted 12/16/2010 3:27 PM (GMT -6)   
Dazeoff,

Another thing that came to mind was your thyroid. Lyme Disease can affect your entire endocrine system as well. You may want to have it checked. When mine was low, I had whole body shakes.
Co-Moderator- Lyme Disease Forum

Lyme Disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis
Prescription Meds:Tramadol, Axid(Was on Plaquenil)
Supplements: Thyro-complex, CMK, Folic Acid, Fish Oil, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Traveler
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Date Joined May 2007
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   Posted 12/17/2010 1:22 PM (GMT -6)   
Hi Bill,
There are only a small handful of Infectious Disease docs that will even acknowledge Lyme Disease - so congrats on finding one!!!

As far as other insects, pests, and animal bites passing LD - it makes sense to me and I think I actually found material supporting this - only that was on another computer that crashed.

Anything that feeds on blood can pass all kinds of nasty bacterias & such. So why not tick-borne pathogens as well?

Although, don't pass by the fact that ticks can be as small as the period at the end of this sentence. It would be quite easy to miss one attached to your scalp or any other place that might be hard to see easily or clearly.

Please do keep posting as you are surrounded by people who not only care, but can understand like no others what you are going through!

The suggestions of getting in to see a Lyme-Literate Medical Doc is worth heading though. They will have a much better understanding of these insidious infections and what they can do to the body.

I hope this is of some help...
Co-Moderator, Lyme Disease ;)
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Treating with Acupuncture, Traditional & Modern Chinese Herbs & Western Herbs.

Dazeoff
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Date Joined Jul 2010
Total Posts : 10
   Posted 12/17/2010 8:32 PM (GMT -6)   
I'm totally amazed at the support this forum provides and for this I'm truly grateful. For the past week and a half I've been going through unbelivable body changes as a result of the continued shakes that had have excallated to the point of being exdtremely debilitating. Needless to say each day has been a new experience with my attempt to cope. I've come to the point to recognize that my daily dosing of Xanax is not helping and that I've developed a dependancy on this drug, which has only been a band aid and keeping me in a mental fog that's also created 180 degrees of mood swings which is very much out of character for my personality. For the past 8 months since the shakes began I've done what ever my medical professionals have suggested, i.e. CAT scans, medical tests, neurological consultation and even a visit to physhcrisist, who only prescribed more Xanax. Three days ago I attempted to contact my primary as the shakes were so bad that I could just about function. I've been seeing this doctor for over 16 years and was told "There is nothing more that I can do for you, go see a different psysharisist." Well I might have been born at night, but it wasn't last night. His reaction to my issues totally took me back to absolute disbelief. I know as a general rule people don't change doctor's if they are dissatisfied, however I refuse to accept his lack of understanding and pathetic approach to patient care. Within 24 hours I had an appointment with an internest to actually gave me the impression of compasion to his patients needs. Ergo, I will be changing doctors. This new doctor spent over 45 minutes with the initial consultation and also indicated the dangers of continued use of Xanax. CagunGrl had suggested the possibility of sub

Dazeoff
New Member


Date Joined Jul 2010
Total Posts : 10
   Posted 12/17/2010 8:49 PM (GMT -6)   
substituting the Xanax with Klonopin, which I have been on for only 3 days at 0.5mg 3 x a day and I'm also taking the 10mg of Lexapro. It's my understanding that it may take weeks for this medication to get into the body system. I know it may be to early to expect major changes, but so far I still fell totally out of sorts and the shakes have not subsided. This new doctor also ordered blood work, which I haven't had done in the past 6 months. I'm also in the process of getting an appointment with a different infectious disease doctor, reason being that being an A+ personality I keep a personal blog of what meds I've been on and the results either positive or negative. My comon demonitator for the begining of the shakes began when I was getting the daily IV antibiotics for 3 1/2 months. I'm now looking for another opinion that if I did in fact have Lyme. An interesting note that I found was that most of the Azithromycin is manufactured in China which sure waved a major flag as to quality control of the product that was being injected into my body. Hopefully the next time I post will be with some positive information. Thanks to all for your input. Bill

Traveler
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   Posted 12/17/2010 11:07 PM (GMT -6)   
Hang in there, Bill. It's a bumpy road, but we are here to help.

I would strongly suggest that you find a good LLMD to treat you. They understand the complexities that almost always come with Lyme, as well as all of the co-infections - Babasia, Bartonella, Rocky Mountain Spotted Fever, Ehrlichia & others - as well as viruses that seem to pray on some of us Lymies, like EBV, cytomegalovirus and others.

The fact that these shakes started when you started daily IV therapy means that the abx were working & that you had a overload of toxins in your body. This most likely was what is known as a Jarisch-Herxheimer reaction, or a herx.

Have you ever detoxed? Detoxing is covered in the thread at the top of the forum titled "New to Lyme? Start here". Dry skin brushing is incredibly helpful to help your skin to eliminate more toxins. I personally like the Epsom salt and hydrogen peroxide soaks as well.

Keep on posting here as you work through all of this ,we know how mixed up things can get when you first find out you have Lyme.

Hope this helps some.
Co-Moderator, Lyme Disease ;)
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

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Deejavu
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   Posted 12/20/2010 5:07 PM (GMT -6)   
Hi Dazed,
 
Welcome!  I am an old timer here and come back once in a blue moon..  I didn't read all the responses just your original post so forgive me everybody..
 
Yes, lyme can lay dormant..  When you mentioned your age my first thought was about my Dad and when he retired..  Retirement caused him more stress compared to when he was working which makes lots of sense..  My Dad didn't know what to do with himself especially during the winter months as in the summer he would go fishing all the time..    Thus I believe stress can trigger those dormant and very smart lyme bacteria's...  
 
I suggest really looking into detoxing..  I remember years ago when I first heard the word "detox" I thought people were nuts!  I said to myself what in the world does detoxing have to do with a bacterial infection?  Made no sense to me..  Until later on..  I started researching and learned about toxins and how they poison us, lyme or no lyme..  We live in a very toxic world, the foods we eat, the air we breathe, and the list goes on...
 
It's up to you.. Never too late to learn about detoxing..
 
Wishing you the best!
Denise
It's all about Detoxing Daily, strengthening the Immune System mixed with a dose of Positive Thinking!
 
This song is about my years with chronic lyme since 1995 and being symptom free for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 
Currently taking Estrovera, ProgX (progesterone), Adrenotone Plus, CoQ10, Vitamin B Total, C, Green Vibrance, CALM (Magnesium/Calcium)
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