HAVE I GOT LYME?

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JPK
New Member


Date Joined Jul 2010
Total Posts : 6
   Posted 7/4/2010 1:56 AM (GMT -6)   
I would really appreciate comments on this from the people who have personal experience and are willing to share it.
For nine weeks I have had...constant neck ache, swollen or lumpy throat, lumpy neck around glands, superficial aches and pains on my upper chest [little sore feelings that moved about but no bruise visible]. For about two weeks I had memory problems, was clumsy and unco-ordinated [but was not so bad that I was off work but other people noticed and I just said I had a few worries]. I also had pressure in one ear [doctor looked in my ear] and had tinnitus. I had sore eyes and at times a twitchy eye.
I was tired all the time and panicky and anxious and wondered about whether I was depressed but could find no reason for me to be. I had a few days of diarrohea.
I did not really feel very feverish and never had a rash. For the last few weeks I have had funny 'butterflies' in my heart for a few minutes a few times each day which have worried me but I try to keep calm through them.
All these symptoms have improved in the last week. Mentally I feel 95% now. Energy is 95%. The 'palpitations' seem to be less.
I visited the doctor who was not interested. I wondered about shingles and also worried about other horrible diseases. All the time I am trying to be positive and keep going, but also feeling very worried and having no-one to talk to about it.
Suddenly yesterday I remembered I had trodden on a nasty thorn nine weeks ago and started wondering about that and then was led through the internet to Lyme disease websites. Nine weeks ago I was out in the Welsh countryside in known Lyme areas [but did not realise this at the time]. I would really like to know whether this needs to be treated?
Should I take Doxycylin as a precaution just in case?
Many thanks, in advance, for your time and consideration.
JPK

betterhealth
Regular Member


Date Joined Mar 2010
Total Posts : 230
   Posted 7/4/2010 6:58 AM (GMT -6)   
Hi JPK,

Welcome to the Lyme forum, sorry to hear that you are not feeling well. The symptoms that you describe are all symptoms that I have experienced this past year with Lyme Disease. You really need to see a LLMD (Lyme Literate Medical Doctor) for a proper diagnosis. You might want to start a journal to document your symptoms. If you do in fact have lyme, the sooner you start treatment the better. Please keep us posted on your progress.


Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Amoxicillin, Azithromycin, Ceftin.
 
 


JPK
New Member


Date Joined Jul 2010
Total Posts : 6
   Posted 7/5/2010 10:14 AM (GMT -6)   
Thanks for that, Betterhealth, and I am sorry you have had the same - it is not nice.
I will take your advice.
Can you confirm that symptoms may come and go? From general reading no-one has mentioned this but today [after 7 weeks] I feel really normal and fine so perhaps it has passed?
JPK

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/5/2010 11:25 AM (GMT -6)   
Yes, JPK, symptoms can come and go. That is exactly what prevents many people from seeking a Dr in the early stage. Problem is, they can do this for a while, and then later settle in for the long haul.

One thing is certain: IF you DID in fact contract lyme, the sooner you get a diagnosis and treatment the better! My LLMD told me that the longer you have had Lyme, the longer it takes to kick it.

If you were hiking over there during the nymph season, you could very well have had a teeny tiny bite from a teeny tiny bug you never noticed. They can feed on you and drop off without you ever knowing.

Agreeing w/ Better health: seems you have enough questions to visit an LLMD w/ your questions.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


JPK
New Member


Date Joined Jul 2010
Total Posts : 6
   Posted 7/6/2010 1:21 PM (GMT -6)   
+ Lyme
I like your name - 'positive about Lyme?' and thank you for your advice. It is a big help.

JPK
New Member


Date Joined Jul 2010
Total Posts : 6
   Posted 7/16/2010 1:08 AM (GMT -6)   

UPDATE... ON TREATMENT....SUCCESSFUL

I thought I would let you know what has happened. I read alot on this forum and THANK you to everyone who has contributed generally to the body of knowledge available to worried people and thanks to you +lyme for replying to my posting too, it helped.

So I bought Doxycycline on the internet via an organisation that is UK based [like me] and sells this drug as an anti malarial for people travelling abroad. I paid about £40 and got 27 days supply in the post. It was very easy but I was careful to read up and check the drug would be OK for me.

I read the drug information sheet very carefully and started taking the tablets [100 mg 2x per day]. My symptoms improved remarkably and very quickly. After two or three days I was much better. The horrible palpitations stopped and my neck stopped hurting. After two weeks I feel really good and back to normal and am very relieved and pleased about that. The last symptom to improve was a odds pains like bruises with no colour that moved around my upper chest. It has been a frightening and horrible experience, this whole thing has been terrible and I have hardly ever felt worse in my life. I was very anxious and depressed and that is not surprising given the symptoms I had for 7-9 weeks.

I would say ;

  • I have not been medically tested for Lyme nor diagnosed obviously so there is no evidence for Lyme other than my self diagnosis
  • I do not think that the improvement from taking Doxycucline is a placebo effect because I expected it either not to work or to take many weeks to have an improvement. 
  • In fact , I took Doxycycline because I thought at least it would be a process of elimination and if it did not work at least I could exclude Lyme disease.
  • The only other illness that I thought I might have was shingles without the rash [which does exist] and the symptoms matched that closely. There is a posssiblilty that I actually had shingles and it spontaneously healed coinciding with my starting the Doxycycline [but I think that is unlikely]

I think and hope I am lucky because I have caught this early and that is partly, even mainly, due to the Lyme forum and reading comments on it. THANK YOU.  I am optimistic that this is now over, I will be careful to watch for symptoms in the future just in case it recurs. I feel a little worried because I had the memory problem symptom and co-ordination problem symptom which [I read] means this has crossed the blood/brain barrier and that is not good. For people who are living with chronic Lyme disease I think life could be very difficult at times and I feel very sympathetic to them. So, try to carry on, being positive and aiming for solutions and happiness in your life.

JPK

 

 


mikazmat
Regular Member


Date Joined Sep 2009
Total Posts : 133
   Posted 7/16/2010 6:47 AM (GMT -6)   
JPK hi.........please be very vigilent in the future regarding further symptoms, it was 7 months before my LD symptom return after taking three months of Doxy initially, by this time I had forgotten about LD. I thought that three months of ABX would clear any bactierial infection. WRONG! Be sure to remember that LD could hi-jack you again at some point in the future, hopefully though you have caught it in time to clear it.....I hope so and good luck.

ineisa
Regular Member


Date Joined Dec 2009
Total Posts : 72
   Posted 7/27/2010 4:41 PM (GMT -6)   
Hi JPK, good to hear you are feeling better. But just in case there is a very good lyme doc in wales. Just to give you the heads up in case you need one!
On way to recovery...


LupnerRN
Regular Member


Date Joined Sep 2008
Total Posts : 350
   Posted 7/27/2010 10:20 PM (GMT -6)   
JPK,
 
the dose of doxy that you took was not an adequate daily dose.  And your symptoms may be an advanced stage of Lyme which requires a longer treatment than what you took.  I can not stress enough how important it is for you to see an LLMD!!!!   . Please find one.  If you have Lyme,  you are not cured by that dose.  The symptoms will come back.  I gaurintee it.
 
Please keep us informed,
 
your concerned friend in California
Lisa
11/07 symptoms start
7/4/08 IGenX LD positive,gluten sensitivity,low magn, low WBC's,+yeast/bacteria/tapeworm/roundworm, EBV,HHV,CMV,Parvo,

7/25/08 started on Biaxin

9/08 IGenX co-infections neg, but probable Bart, Bab, Erhl

11/08 Biaxin,Plaquenil,Cipro, Artemisinin,3 probiotics,Transfer Immune, Bcomplex,MultiVit,omega3,magnesium,

1/29/09 Added: Rifampin 600mg- Ehrl, Lomatium 15dropsBID-parvo, andrographis 15dropsBID (super yuck!)-LD, Alinia-cryptosporidium.
12/2009 stopped pharma abx. Using mostly Nutramedix herbs. Having Neurobiofeedback for chronic brain inflammation.

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