SELF TREATING - MEDICATIONS

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JPK
New Member


Date Joined Jul 2010
Total Posts : 6
   Posted 7/6/2010 1:30 PM (GMT -6)   
I suspected I had Lyme contracted possibly 7 weeks ago and researched the topic on the internet, always aware that this is not the most reliable source of information but is a great way to hear from real people about their experiences.
I have bought Doxycycline by posing as someone buying an anti malaria treatment and going on holiday to India for three weeks. Coincidentally, a few years ago I really went to India and used this anti malaria drug so I know I can tolerate it.
Enough for 100 mg 2x per day for 23 days cost about £40 and I will see what happens.
The reason for this decision is that it seems to be the cheapest and simplest way to self treat very early on. I might still try to see a LLMD later on but if I want early treatment this seems to be the easiest and quickest thing to do, in fact it has arrived in the post today 48 hours after buying it.
This might be controversial but I feel happy to give this a try.!

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35723
   Posted 7/9/2010 3:06 PM (GMT -6)   
I do have to agree with you that it is controversial(!!), and although I do understand your decision, I sure wouldn't encourage anyone else to do the same. I, myself, have been fortunate enough to not be put into that corner.
-Live simply- Love generously- Care deeply- Speak kindly. May we all find peace along the journey to find healing.
Trav


JPK
New Member


Date Joined Jul 2010
Total Posts : 6
   Posted 7/16/2010 1:11 AM (GMT -6)   

UPDATE... ON TREATMENT....SUCCESSFUL

I thought I would let you know what has happened. I read alot on this forum and THANK you to everyone who has contributed generally to the body of knowledge available to worried people and thanks to you +lyme for replying to my posting too, it helped.

So I bought Doxycycline on the internet via an organisation that is UK based [like me] and sells this drug as an anti malarial for people travelling abroad. I paid about £40 and got 27 days supply in the post. It was very easy but I was careful to read up and check the drug would be OK for me.

I read the drug information sheet very carefully and started taking the tablets [100 mg 2x per day]. My symptoms improved remarkably and very quickly. After two or three days I was much better. The horrible palpitations stopped and my neck stopped hurting. After two weeks I feel really good and back to normal and am very relieved and pleased about that. The last symptom to improve was a odds pains like bruises with no colour that moved around my upper chest. It has been a frightening and horrible experience, this whole thing has been terrible and I have hardly ever felt worse in my life. I was very anxious and depressed and that is not surprising given the symptoms I had for 7-9 weeks.

I would say ;

  • I have not been medically tested for Lyme nor diagnosed obviously so there is no evidence for Lyme other than my self diagnosis
  • I do not think that the improvement from taking Doxycucline is a placebo effect because I expected it either not to work or to take many weeks to have an improvement. 
  • In fact , I took Doxycycline because I thought at least it would be a process of elimination and if it did not work at least I could exclude Lyme disease.
  • The only other illness that I thought I might have was shingles without the rash [which does exist] and the symptoms matched that closely. There is a posssiblilty that I actually had shingles and it spontaneously healed coinciding with my starting the Doxycycline [but I think that is unlikely]

I think and hope I am lucky because I have caught this early and that is partly, even mainly, due to the Lyme forum and reading comments on it. THANK YOU.  I am optimistic that this is now over, I will be careful to watch for symptoms in the future just in case it recurs. I feel a little worried because I had the memory problem symptom and co-ordination problem symptom which [I read] means this has crossed the blood/brain barrier and that is not good. For people who are living with chronic Lyme disease I think life could be very difficult at times and I feel very sympathetic to them. So, try to carry on, being positive and aiming for solutions and happiness in your life.

JPK


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/16/2010 4:05 AM (GMT -6)   
JPK,

I understand your frustration and am very glad that you are feeling better, but I will have to ask you to continue this conversation via email as we do not condone self treating and it can sometimes be very dangerous.

Thank you for understanding.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum

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