How to get a test?

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rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 7/9/2010 12:34 PM (GMT -6)   
I have a son who I would like to have tested for babesiosis and lyme.  Do I have to have a dr's prescription to do this?   How would I go about getting his blood to Igenex?  thank u

-Rita-
Regular Member


Date Joined Jun 2006
Total Posts : 60
   Posted 7/9/2010 2:21 PM (GMT -6)   
You can order a free test kit from Igenex. Take that to your doctor and he has to sign and provide a diagnosis code on the form that you send in with the blood. The office can draw the blood for you, you then send it and the form in the FedEx bag that is provided with the test kit to Igenenx.
DX in 1994 - SLE, myositis, firomyalgia, sjorgens, raynaud's, elevated ANA, lymphadenopathy.
Postive IgG and IgM 2009.  Daughter and son also have Lyme. 
 
 


motox1027
Regular Member


Date Joined Jun 2009
Total Posts : 132
   Posted 7/9/2010 2:41 PM (GMT -6)   
Marika's answer sounds good to me.

I would do the regular local lyme test 1st, if that is negative then procede to Igenex

rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 7/9/2010 3:04 PM (GMT -6)   
what is the normal local lyme test? If i went the igenix route what n earth would PA put for diagnosis code? Lyme ? I guess but i do not think she believes in it as i have Fibromylagia according to her, but thank u guys this can get me started I can call igenix for list of prices!!

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 7/9/2010 8:34 PM (GMT -6)   
"normal local lyme test" is a Lyme ELISA and Western Blot test through any local lab. We know these labs aren't great, but if you get a positive out of one of them, then non-LLMD's may sit up and take notice more...

I don't know what to put as a dx code - maybe joint pain, or fatigue, or flu-like symptoms? I think my doctor used the flu-like stuff or something like that...
-Razzle
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle & other liver support herbs, Magnesium, homeopathy.


rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 7/9/2010 8:49 PM (GMT -6)   
Thank u Ilikethe fatigue (she is going to say of course he is tired he has mono) I just wonder how many people like us would test positive for the epstein bar virus, I read MS patients do.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 7/10/2010 2:16 AM (GMT -6)   
I don't test positive for EBV or CMV or any other stuff, including the usual coinfections (Babesia, Bartonella, Ehrlichia/Anaplasma, Mycoplasma), I only test positive for Lyme. Clinically, I have Bartonella - per LLMD. And I personally think I also have Anaplasma (low WBC's, low lymphocytes (both B & T cells), low rbc's (anemia - non-responsive to iron, B12, folate), low platelets, sensitive liver) despite negative test results from both Fry & IGeneX.
-Razzle
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle & other liver support herbs, Magnesium, homeopathy.

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