Critters living in my feet?

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+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/10/2010 9:26 AM (GMT -6)   
Awhile back, I started having very subtle  little twitches INSIDE my feet -- not visable from the outside.  I thought, great, now I am going to start twitchng and end up w/ Parkinson's or something.
 
Well, this has progressed and is becoming pretty constant.  It literally feel like little things are crawling around inside my feet, bumping and poking around. And now it has started on the lowest part of my leg, just above the ankles.
 
Does anyone recognize anything about this?  It does not seem like muscle twitching, but like some little party going on in there.  Like things are living and moving around in there.
 
My veins -- spider, and now it appears I'm getting varicose veins, in my ankles and feet are getting worse too -- so bad that I'm getting sores on my legs. (found that attributed to the veins). But I don't see anything like this associated w/ the vein issues. Do you think it is possible that it's from my veins?  Even tho, a lot of 'partying' is going on in my toes and near the toes and there are not yet vein problems there?  And a lot is going on inside the bottom of my feet.  Oops, just saw my toe twitch when I looked down there....
 
I think it's like.....  like...... sorta like miniature raccoons rummaging around or something....
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


allieann
Regular Member


Date Joined May 2010
Total Posts : 116
   Posted 7/10/2010 12:01 PM (GMT -6)   
Sounds very similar to what my son has described, who has had lyme disease for 17 years except he has never had any sores. He has been told that a co-infection of Lyme, Bartonella, causes the foot symptom.

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4296
   Posted 7/10/2010 1:40 PM (GMT -6)   
Hi +Lyme,
 
It's meeee that's partying under your feet and even doing some dancing (tap)!  Yeah!
 
Seriously, I don't know what that is..  Are you getting enough magnesium and potassium?
 
Hope you feel better,
Denise
It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being symptom free for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 7/10/2010 2:13 PM (GMT -6)   
Sounds like Peripheral Neuropathy... Make sure you are getting enough magnesium, Vitamin B12, Folic Acid, and other B-Complex vitamins. Yes, I agree it is Lyme and/or Bartonella. Anything that increases circulation in the feet/ankles is good for this. Mine gets better with abx, walking (daily), B12, magnesium... Homeopathic Hypericum Perf. may help (remedy is made from St. John's Wort, but the herb won't fix this...homeopathic form of it may or may not help)...

Take care,
-Razzle
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle & other liver support herbs, Magnesium, homeopathy.


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/10/2010 9:55 PM (GMT -6)   
Thank you to everyone who responded, I truly appreciate it. Razzle, I've been looking up varicose and spider veins, vascular disease (which I obviously have) and so far, nothing mentioned about parties in one's feet. Sheesh, tonite, I had a couple in my arms!

Looked up Peripheral Neuropathy, and so far that has best described what I feel, and what do you know -- Lyme is listed as one cause, along w/ many other things. So THIS part is gonna suck, looks like.

Yes, I take plenty of supps: Super B complex, all minerals, amino acid, beta carotene, selenium, Amino Acid, D3, E, Garlic, and megadoses of C.

My feet seem to look like they are almost shriveling. I should probably get the veins and the 'parties' checked out -- w/ a regular DR, since my new LLMD did not seem to be concerned about how my feet and ankles look.

Again, thanks everybody! I just hope to God there aren't freaking nematodes or some such gross things wiggling down there!


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 7/11/2010 1:38 AM (GMT -6)   
Use of a ReBuilder unit may help. The microcurrent can retrain the nerves to resolve the peripheral neuropathy. More info can be found here: http://www.rebuildermedical.com/
-Razzle
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle & other liver support herbs, Magnesium, homeopathy.


lymebabbartmom
New Member


Date Joined Jul 2010
Total Posts : 2
   Posted 7/11/2010 3:13 AM (GMT -6)   
My sister had very similar tingling sensations in her feet and hands. Several neurologists diagnosed her with MS. Then at my recommendation she went to a LLMD, where she tested positive for Lyme and bartonella. She's been on antibiotics for both now for several months and her symptoms have greatly improved.

Bartonella is associated with high VEGF (vascular endothilial growth factor) levels in your blood. This increases blood vessel production and could account for the extra blood vessels that you are seeing. Testing for bartonella can be problematic because there are many different strains and bartonella is a massive immune system supressor. While my sisters antibody-based tests were positive, my daughter who also has bartonella tested negative repeatly on antibody and PCR tests. She recently was tested positive using a special Fry labs blood stain which showed numerous small round bacteria around her blood cells. Several immune factors that are often suppressed by bartonella were also extremely low. These tests are described by Dr. James Schaller is his book "Babesia 2009 Update."

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/11/2010 9:51 AM (GMT -6)   
Well, I'm just a bit upset that my new LLMD did not consider testing for co-infections, except for Babs, which was very high in my labs from last year (and he's testing for a 2nd strain). When I asked about the other co's, he said he was not concerned because they did not show in my test from last year, which was Quest -- and these were just 'screening' tests. Each of these said, 'screening test negative, titer not performed.'  Aren't these as bad as Elisas?
 
This LLMD is an infectious disease Dr specializing in ALL kinds of diseases, esp AIDS, MS, Chronic fatigue, and Lyme.  My local lyme board say he is very good and that his patients get well. He has an excellent reputation.
 
Do I need to question this? If I do have Bart, does Bart respond to abx? or would I need another abx?
 
I was good enough to give him my written history and symtom list, however forgot a lot of the questions I needed to ask. I did ask him to look at my ankles and feet and he said, 'oh do you mean these varicose veins?' And I don't think he commented. I showed him the sores on my legs (which I have found due to the vein problem) and he just asked if I had them before the tick bite and I told him 'no', and that I always had spider veins, but nothing like the crap going on in my ankles, which is spreading down into my feet.
 
I am awaiting word on the labwork he ordered for babs, thryoid, and I asked him if he could test my adrenals, but I don't know what test that is.  I'm not even sure he ordered a WBC, which I'd really like to see because my white blood count was high last year, as well as MCH and neutrophils.
 
I have another lab question to post, will do that separately.
 
Again, this 'party in my feet' is really really strange -- it is not exactly like twitching and it is not tingling. It is exactly as if something is moving and bumping around down there. Starting to give me the creeps.
 
Thanks, everyone for your help and suggestions. Please do let me know about the Bart questions -- I highlighted them.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/11/2010 12:38 PM (GMT -6)   
Agreed, Patti. I do not know all of this Dr's beliefs yet, there was no time for this discussion, but he has been treating Lyme and chronic lyme for over 20 years. I was referred to him by my local lyme board, who told me that his patients get well. (and he is covered by my insurance) I feel that the fact that he is an ID Dr who believes in lyme lends a lot to his credentials. I believe the fact that he specializes in AIDS, along w/ a lot of other autoimmune diseases, and also treats Lyme, tells me he's the guy to see right now.

There is such a thing: Drs who have either contracted Lyme themselves, or had a family member who did.

I will do some more studying on Bart and decide if I need to bring this up w/ him again. I am on abx right now. 875 mg Augmentin 2 X day. He based this on the fact that I experienced a lot of improvement after 60 days of 3500 mg Amox per day. Told him I was not symptom free, but experienced a pain free period of time. He was all over that. And he started w/ a lower dose in the hopes that I would not herx as bad. I was as crazy and suicidal while on the Amox as I am now and he hoped we wouldn't need to go that far in order to improve.

I will try to find out, but perhaps being an ID Dr, he places too much faith in the lab work? Dont' know.

What do others of you recommend for figuring out Bart? I will have a phone conference w/ his nurse in 5 weeks. I could bring this up at that time. Esp if the parties in my feet increase as rapidly as they have this week. Hey -- anyway the increase in these could be due to the abx??


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


lymebabbartmom
New Member


Date Joined Jul 2010
Total Posts : 2
   Posted 7/11/2010 9:52 PM (GMT -6)   
Bartonella does respond to antibiotics, but not to amoxicillin. I am not a doctor so I am not talking out of professional experience, but I know of several LLMDs who treat bartonella with doxycycline and rifampin, or minocycline and rifampin. Rifampin is problematic because it reduces the effectiveness of Mepron which is the most common treatment for babesiosis. Levaquin is mentioned by Dr. Burrescano in his treatment guidelines. I would be cautious about using Leviquin because it can cause permanent damage to your ligaments. Dr. James Schaller writes that higher doses of the Dr. Zhang's HH which contains houttuynia are effective.

Honestly I don't think that there is a widely accepted standardized antibiotic dose and treatment duration for bartonella at this time.

Dr. Joseph Burrascano writes in his 2008 treatment guidelines that diagnosing bartonella is problematic because the standard screening tests are insensitive for tick-born bartonella. Because of this he refers to a bartonella like organism or BLO. My daughter tested negative numerous times on bartonella antibody tests as well as the Igenex PCR tests. Then she tested positive on the Fry labs blood stain with numerous small round bacteria around her red blood cells and several Labcorps tests demonstrated very low levels of immune system compounds that bartonella is known to supress. Dr Schaller writes about these alternative ways of testing for bartonella in his free "2009 Babesia Update" which is available online and in his book about bartonella. Igenex just came out with a new FISH assay for bartonella though it is not known at this time how sensitive this new test is.

In the process of getting my daughter diagnosed and treated for Lyme/babesia/bartonella/possible mycoplasma, I have learned that patients often need to do their own research and actively advocate for quality care. Tick-born diseases are an emerging field and most doctors don't have the time to keep up with recent developments in diagnosis and treatment.

Post Edited (lymebabbartmom) : 7/11/2010 10:08:34 PM (GMT-6)


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/12/2010 8:44 PM (GMT -6)   
Thank you, Lymebabbartmom --- you have given me a lot of info here so that I do not feel the immediate need to go research Bart myself. Still, you have indicated to me that this is something I need to bring up w/ my Dr -- either w/ the nurse consultation or my next visit w/ the DR. Thank you.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


momoftres
Regular Member


Date Joined Jan 2012
Total Posts : 33
   Posted 10/23/2012 9:47 PM (GMT -6)   
You might actually have worms and/or nematodes. These were actually found in the ticks mid-guts when Willy Burgdorfer disected them looking for the causative agent of Lyme Disease.

Get some Ivermectin from your doctor.

Good luck!

summer16
Veteran Member


Date Joined Jul 2012
Total Posts : 1257
   Posted 10/24/2012 7:48 AM (GMT -6)   
I am pretty sure the small, local, involuntary muscle contractions are known as fasciculations.  Look under wikipedia for more info.  I have been dealing with this for 4 years now and probably should try a magnesium supplement.
 
Patty  xo

Carrie48
Veteran Member


Date Joined Mar 2010
Total Posts : 638
   Posted 10/24/2012 12:55 PM (GMT -6)   
I have parties in my feet too. Before treatment, it was constant and was really scary when I had my foot on the brake pedal in my car!

Now, I usually only notice that when I am herxing. It used to cause me major anxiety when it was happening but now, I can pretty much ignore it.
DX with Lyme and Erlichosis in January 2010. January-August: Biaxin and Amoxicillian. September 2011 - ? on Rifampin and Zithromax. Symtpoms mostly neuro and have 20 small lesions on brain.
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