Long Term Antibiotics

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brsweet
New Member


Date Joined Jul 2010
Total Posts : 2
   Posted 7/21/2010 1:22 PM (GMT -6)   
Hello,

I've had Lyme for over a year, possibly longer.

22 years old, and it's truly starting to drive me insane and slowly destroy my life.

Will someone please tell me what they know about the success of long term antibiotic use.

I also desperately need to know the costs. I cannot find information about it anywhere and to my understanding, insurance will not cover / doctors will not prescribe it.

Are long term antibiotics paid out of pocket, or is there a way to get insurance to cover it?

I have tried so many things and really feel like it's my only option but so far doctors are no help.


Also, I live between MA and NY. Can anyone refer me to a great Lyme specialist who treats with long term antibiotics?


Thank you.

motox1027
Regular Member


Date Joined Jun 2009
Total Posts : 132
   Posted 7/21/2010 4:44 PM (GMT -6)   
Oral minocycline can be an option that works very well (3 months) makes you dizzy though

Insurace will pay for this

There has been no study done to show IV anitbiotics are better than oral

This is my opinion

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/21/2010 4:52 PM (GMT -6)   
Just so you know, some IV antibiotics pass through the blood brain barrier if indeed the Lyme bacteria has entered the brain. This is when you would need IV antibiotics or if your stomach cannot tolerate oral antibiotics. Normally, an LLMD will start you off on oral antibiotics. IV antibiotics is a last resort.

As for as insurance covering your visit, treatment, etc. It depends on which LLMD you see. The ones I've seen have taken my insurance and my antibiotics were covered.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 7/21/2010 4:54 PM (GMT -6)   
brsweet said...


Also, I live between MA and NY. Can anyone refer me to a great Lyme specialist who treats with long term antibiotics?


If you email me privately, I can give you the name of one in NYC.
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/21/2010 9:08 PM (GMT -6)   
Brsweet,

Strangely enough, as my new LLMD is an Infectious Disease Dr, he prescribes oral abx. I am on Augmentin, mainly because I got some relief from high doses of Amox for 2 months.

Just as CG said about her doc, he told me he has no problem w/ long term abx. He said some people are on them for a year, some for 2 years, and some, for life. I asked him how he gets away w/ prescribing the long term abx, he said that the IVs are the problem, not oral pills. We will see. He wrote me a 6 mo script for augmentin (and I will see him before refilling that)

He told me he has patients who would offer up their first born child for Abx!

And, word on the 'street' is that his patients get well.
 
So, in answer to one of your questions, Amox and/or Augmentin are supposed to be effective against Lyme, but not co-infections.  And this is not an expensive drug.
 
And if you can find a Dr to give you weekly injections of penicillin (and or show you how to), this is also cheap. Again, maybe not for co-infections, but for Lyme.


Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.

Post Edited (+Lyme) : 7/21/2010 9:15:21 PM (GMT-6)


3whiteroses
Regular Member


Date Joined Jun 2009
Total Posts : 184
   Posted 7/21/2010 9:17 PM (GMT -6)   
Insurance has paid for my meds to date...and I feel extremely lucky that my 30 days of IV is covered at 100%. I feel so grateful, especially knowing that some people don't have insurance.

brsweet
New Member


Date Joined Jul 2010
Total Posts : 2
   Posted 7/22/2010 7:45 AM (GMT -6)   
Thank you everyone for your comments, they are extremely helpful.

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/22/2010 7:51 AM (GMT -6)   
brsweet, if you are lucky enough to find an LLMD covered by your insurance, then they should pay for all abx that the Dr orders. I hope you can find one!

Also, do you know if you happen to have a local Lyme Association/Board? If you can find one, they may offer Dr referrals. btw, I was on my new Dr's list for over a year. That's really crappy, but sure as heck better than nothing!
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35706
   Posted 7/22/2010 1:23 PM (GMT -6)   
Welcome to the forum Brsweet!
Sorry that you are ill with tick-born infections, but you have come to a good place to give & receive support & ideas.

If you haven't already, one of the best things you can do for yourself is to read the sticky at the top of this forum titled "New to Lyme? Start here", as this is packed full of a lot of good & vital info that all Lymies need.

Another thing I would like to suggest is to read, read, read!!! Read as much as your brain can handle about the different tick infections, treatments, and experiences. We need to understand as much as possible - we have to be our own advocates, as these illnesses are not well understood as of yet - even by the experts!!
Even the mightiest oak tree was once a little nut who held it's ground!!! May we all find peace along the journey to find healing.
Trav

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