Starting IV Rocephin next week, how does this dosing sound?

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InfectedinFL
Regular Member


Date Joined May 2010
Total Posts : 59
   Posted 7/21/2010 5:28 PM (GMT -6)   
Scheduled to start my IV Rocephin treatments on Monday. My doc is not a LLMD, so I wanted to run the frequency and doseage by you all to see if it is simular to what you've seen. I will start with 1 gram the first week and 2 grams twice a week for five weeks if I tolerate it. What do you think?
Acute/Chronic Lyme
 
200mg Doxy twice daily
IV Rocephin Once weekly
Diflucan twice weekly
Cod Liver oil daily


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 7/21/2010 5:35 PM (GMT -6)   
Hi Infected,

I'm on IV Rocephin but I do 2 grams per day 7 days a week.....I have never heard of anyone doing it only twice a week before, but then I'm still fairly new to Lyme (just dx in January).

Please let us know how it goes for you!

Best wishes,
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


3whiteroses
Regular Member


Date Joined Jun 2009
Total Posts : 184
   Posted 7/21/2010 8:27 PM (GMT -6)   
I had my first dose tonight and I will be getting 2grams for 7 days a week for a month. And I had an anxiety attack while getting my first dose.

motox1027
Regular Member


Date Joined Jun 2009
Total Posts : 132
   Posted 7/21/2010 8:47 PM (GMT -6)   
3whiteroses


How long have you had Lyme?

I guess you tested postive then?

Why do they want to do the IV just wondering?

Have you failed on oral anitbiotics?

3whiteroses
Regular Member


Date Joined Jun 2009
Total Posts : 184
   Posted 7/21/2010 9:06 PM (GMT -6)   
Hi motox1027 - I was diagnosed with Lyme last year after many exhausting months of trying to figure out what is wrong with me. I had an array of symptoms that did not make sense. I never found a tick or had a rash...that is what makes it scary. So needless to say I never suspected Lyme...and it was a shock to discover I had this disease.

Finally my husband had me write down all my symptoms and when I was done I had 65 different symptoms. I was afraid to take my list to the dr. for fear that he would think I was a hypochondriact (not spelled right - sorry). Well he did not and he sent me to see a neurologist. I gave the same list to the neuro doc and he ran a bunch of tests including an mri.

When my results came back I had a equivocal ELISA - I had 1.02 and to be considered positive you need to 1.09...Well the doc said that I was positive for Lyme...A week later my WB confirmed that I had Lyme.

I went on doxcy which made me feel alot better the first month. Then I ran out and symptoms came back...I went to a llmd and she kept me on the doxcy...she does not do IV meds. She tried me on Cipro but my stomach could not handle it.

The doxcy was like putting a bandaid on a festering wound. So I went back to see neuro...he gave me another WB and a spinal tap.

Spinal tap only showed IgG bands 39 and 58, no IgM bands

Blood work showed I was IgM positivie with bands 41 and 39

He felt that I should do 30 days on the IV meds, which he hopes will make me feel better.

I do have a new llmd that I will be seeing the end of August...so hopefully I'm on the right track finally. I don't want to be on IV meds forever, or on antibiotics. I'm hoping in time I can go with a natural approach.

I want my body to do what it is meant to do...I need to work on a lot of things....diet, exercise...I have a long road.

My first dose of antibiotics made me sweat profusely...and afterwards my left leg is tingling and weak.
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