??? Post gone again "Lyme Lab Warnings"

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motox1027
Regular Member


Date Joined Jun 2009
Total Posts : 132
   Posted 7/21/2010 6:35 PM (GMT -6)   
???
 
It got deleted
 
Whats the issue with just putting up a non editable verison of the earlier post of mine.
 
I have my right to keep asking.
 
 
This fourm is supposed to be fair to everyone on here, not just people who you agree with.
 
yeah
 

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/21/2010 6:40 PM (GMT -6)   
Motox,

I made it very clear that if you continued with the arguing and negativity that your posts would be deleted. You have not contributed any positive posts to this forum. If this continues, you may lose your privileges to post here.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


motox1027
Regular Member


Date Joined Jun 2009
Total Posts : 132
   Posted 7/21/2010 6:58 PM (GMT -6)   
CajunGrl, Many people wanted to talk about this issue. And yes, if they didnt want to, they could just not read it, there is a button for that, that blocks peoples posts. If you re-read the post, you were actually putting down everything I had to say, which is fine thats my opinion. I was not trying to upset anyone and I clearly started that........

Its not fair, that it gets closed because someone did not like it.

And then it gets shut down because, people argued others opinon, well you clearly did that too to me and Shutterbug.

Here some quotes to show it was a positve thread...

Heathersdad quoted


"I just read the Moderator's blog. My blog definitely is not directed towards her. She has bent over backwards in allowing me to speak my peace. She is a great moderator and has a lot of common sense. I have stated on other blogs that I am not attacking anyone in particular, but my statement was ignored. I was accused of attacking a person that I specifically said that I was not attacking! Everything that I say is ONLY my opinion. "

1hunter quoted

"I agree stutterbug,
I think this is a good topic"



Shutterbug quoted

"Many credible LLMD do not use IGENEX because they feel the lab is self serving.--- There is nothing wrong with questioning the status quo. --How many times have I read on this forum that uncertainty is like a symptom with this disease.--- I dont know what the answer is with the diagnosis of this disease, crack everyone out on abx for years?--- so I have been CLINICALLY diagnosed, never had an IGENEX test...What if I tested negative?? Does that mean I DONT have Lyme??
Everyone keeps telling motox to "Educate" himself, to do "research" for the truth, but the ONLY information I can find on the validity of IGENEX is on the Igenex websites and Lyme forums.-So IGENEX tells us their tests are reliable and valid??? thats all??? This is being "educated" and having done "research"???-- Where is this information that is being discussed????


lylaso quoted

"I appreciate this thread topic. It's ok to question. I don't think motox is trying to hurt anyone personally. It just stinks to have this disease and have everyone question whether you really have it or not. And then to discover that the most nagging doubter is yourself! "

+Lyme quoted

Motox, I am very interested in your study. If, there in fact were 5 different results on 5 specimens from the same people, then that is definitely worth questioning.

motox1027
Regular Member


Date Joined Jun 2009
Total Posts : 132
   Posted 7/21/2010 6:59 PM (GMT -6)   
I am done posting on here, until I will be treated like all other memebers

Thanks for the posts everyone

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/21/2010 7:06 PM (GMT -6)   
Motox,

Again, I will not continue to argue and go round and round with you. I stated what I wanted to say already. If you read the rules, you will see that bashing is not alowed whether it be a lab, doctor, member or Moderator. I let that thread go on until it got ugly at the end and you were warned. If you need help with treatment, we are here to help you, but we will not continue putting down a lab. It makes no sense and drains the energy out of everyone here.

We just had a very dear member pass away recently. Besides helping others, that is where my focus is now. Why don't you show your condolences to the member that passed away. JelaineP was her member name here.

By the way, this is my last post on this subject. It has been explained and any future posts regarding this subject will be deleted.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


ineisa
Regular Member


Date Joined Dec 2009
Total Posts : 72
   Posted 7/22/2010 5:30 AM (GMT -6)   
Well, I really liked the post from Motox, I do not think he was offensive, instead everyone else was defensive. I think its great that opinions get challenged and questioned, he did not insult anyone, he was just questioning, analysing and trying to get more info on a subject he and all of us actually question ourselves constantly. Its people like him who will most probably get things done!
On way to recovery...


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4296
   Posted 7/22/2010 5:52 AM (GMT -6)   
The problem I see is that people are not looking at the facts which is:
 
Fact:
 
IgeneX does 3 things that enable them to get better tests.
 
1.  They used Human specimens from early, middle and late stage lyme to make their probes.
 
2.  They used specimens from 3 different locations to get a good sampling of all lyme strains.
 
3.  They use a stronger solution to separate the bands so they get better results.
 
IgeneX has been under so much scrutiny by the FDA, state of California, and state of New York and they passed all the audits. They are a good lab trying to help people.
 
Fact:
 
When Quest, Labcorp, etc. make their lyme probes they used Rabbit antigens from 2 strains of Lyme compared to IgeneX who uses samples from Human lyme patients from all over the United States and Europe and from patients who had early, middle and late stage lyme.
 
Also, when a western blot is done there is an acidic gel that is used to separate out the bands. Most labs use a 10% gel. IgeneX uses a 12.5% gel so they get better separation of the bands.
 
More information:
 
 
Thus this is not about opinions, this is about why IgeneX is more accurate in their testing.   Why do people have a problem with this?   This is what I don't understand. 
 
When I was given the choice to have my blood sent to IgeneX by my doctor back in 2000, I said yes.  I'm happy I did because I didn't want Rabbit antigens being used.
 
Thus, I feel there is a difference between opinions and facts.  I would rather have the facts, but that's me.
 
Denise

It's all about the Immune System mixed with a large dose of Positive Thinking and Detoxing Daily!
 
This song is about my years with chronic lyme since 1995 and being symptom free for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA


motox1027
Regular Member


Date Joined Jun 2009
Total Posts : 132
   Posted 7/22/2010 11:49 AM (GMT -6)   
Denise, your post is not facts, its someone writing that. Show me that written on Igenex's site and then its a fact.

The fact would be that they do that. But here is the reality, until Igenex decides to prove there side.....

You read that link but that doesnt mean anything, you have to understand lab testing in detail.


The link posted above. It was written by some radom person. In the link it says

"Quest testing leaves out the 2 most specific bands: #31 & #34. These bands are SO SPECIFIC to Lyme, the first human Lyme vaccine was made from #31, and the 2nd from #34!! These very important bands are NOT REPORTED in standard commercial Lyme tests"

The above is someone just saying this.

Well here is a fact about 31 and 34 until proven un-true by on of these Lyme labs.
_______________________________________________________________

The presence of antibody vs p31(OspA)is of no diagnostic value for Lyme disease and should not be used as such.

It is true that OspA 31 and 34 is found in abundance on Borrelia grown on laboratory media or in the midgut of infected ticks. However, its expression is down-regulated in mammalian hosts (humans) so that very little -- if any -- is produced after infection. Hence, during active infection, antibody vs other Borrelia cell surface antigens are much more likely to be produced in abundance and thus would be of greater diagnostic value. Most microbiologist/immunologist would be skeptical of the detection of antibodies vs p31 in the absence of antibodies against the more abundant cell surface antigens expressed by Borrelia, especially late after infection.

The issue is not whether p31 is specific for Borrelia or not. It is indeed found on Borrelia grown on artificial laboratory media and on Borrelia when found in the midgut of ticks. However, it is not indicative of human infection since it is down-regulated or not expressed in humans. That is why the CDC does not use it as part of its diagnostic criteria for Lyme disease.

stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 7/22/2010 11:53 AM (GMT -6)   
I thought the same thing when directed to "Bunny's" site, this is not research.

stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 7/22/2010 11:56 AM (GMT -6)   
LITERALLY stunned.

needshelp
Regular Member


Date Joined Aug 2008
Total Posts : 227
   Posted 7/22/2010 1:08 PM (GMT -6)   
motox,

A discussion about the validity of various testing methods, labs, etc. is perfectly fine but you continue to handle it the wrong way. Give it a rest already....

vicparis
Regular Member


Date Joined Jul 2009
Total Posts : 113
   Posted 7/22/2010 3:16 PM (GMT -6)   
I'm sorry but it was starting to look like a post that would never end - it just kept saying the same things over and over and over. I read it just to see if I could learn anything and it just kept going on.
 
Victoria
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