Question about neurological lyme

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LizW
Regular Member


Date Joined May 2010
Total Posts : 27
   Posted 7/23/2010 5:45 PM (GMT -6)   
Was wondering if severe anxiety on a daily basis would be considered neurological lyme? I am being treated for Lyme, will find out if I have any co-infections tomorrow. Meaning, nothing seems to help the anxiety. Does that mean it is in my brain, and the medication is not passing through the blood barrier? Any insight would help.

Liz

IH8Ticks
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Date Joined Jan 2009
Total Posts : 296
   Posted 7/23/2010 5:50 PM (GMT -6)   
Anxiety can definitely be Lyme related. Bartonella, one of the common co-infections of Lyme, is also a big cause of anxiety. Hopefully, you'll know more tomorrow. Are you getting back tests results? Unfortunately, the test results aren't very accurate, but at least if something comes back positive, you'll know to treat that.

nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 7/23/2010 6:25 PM (GMT -6)   
Hi LizW,

Yes, as IH8Ticks has said, both Lyme and Bartonella can cause anxiety.....so can certain medications. I recently found out the hard way that an antibiotic, clindamycin, can actually cause severe anxiety attacks, along with insomnia, and feelings of "doom". You might want to review any medications you're on just in case.....

Good luck!
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, EBV, CMV, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

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lylaso
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   Posted 7/23/2010 7:24 PM (GMT -6)   
Liz,

I'm wondering this myself. I would think that if you are treated for lyme and bartonella orally and do not experience any relief from the anxiety then it would seem likely that not enough antibiotic is entering the brain. Anxiety is my primary symptom. My LLMD just recently started to treat the bartonella co-infection. Today was the first day in a long time I did not wake up with anxiety. However as the day progressed it came back. I'm really hoping that in a couple of months it will be gone.

Did you experience anxiety/panic attack prior to treatment? Have you been prescribed anything for the anxiety or are you toughing it out?

stutterbug
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Date Joined Jul 2007
Total Posts : 478
   Posted 7/23/2010 7:42 PM (GMT -6)   
Oral ABX actually made me anxious. My nervous system was on over drive.

CajunGrl
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Date Joined Mar 2009
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   Posted 7/23/2010 7:45 PM (GMT -6)   
LizW,

Make sure you are detoxing. That is extremely important when you are on treatment. The die off of toxins can also cause severe anxiety or raise your anxiety levels to the extreme. I had it really bad when I was on treatment. I also agree with the others here that Lyme itself can cause anxiety. So can Bartonella. I have that also.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


+Lyme
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Date Joined Apr 2009
Total Posts : 1304
   Posted 7/23/2010 11:00 PM (GMT -6)   
Liz,

A major 'presentation' of my illness (before I knew what it was) was severe anxiety and a depression like no other. The anxiety grabbed hold of me at the beginning of my infection, during my infection as it worsened, during my oral Amox treatment (emotional herx?), and finally, again, as I begin another round of abx (augmentin) It's so bad that now, the anxiety causes the depression to come on!

Just wanted to tell you that you are definitely not alone, and knowing what it's like, I am very very sorry. Please take care!
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


LizW
Regular Member


Date Joined May 2010
Total Posts : 27
   Posted 7/23/2010 11:19 PM (GMT -6)   
Thanks everyone! My anxiety and depression came on 7 years ago. I started having panic attacks out of the blue and it started after I had a partial hysterectomy. I contributed it to being hormonal, and even though I had went on biodentical hormones it still didnt go away. As the years went by the symptoms got way worse. I started having hearts palps, sometimes racing, and skipped beats, dizziness, especially if I went into a store. It was bad to the point where I thought I was going to pass out. My vision got blurry and distorted, and I couldn't take the light it hurt my eyes. Noise also bothers me ....I use to love loud music, now I hate it. I cant even watch fireworks as it makes me anxious and nervous. I became agoraphobic, and was afraid to drive and to be home alone. My neck and shoulders are so painful, my head is full of pressure, and i get the worst muscle spasms. I started being treated 5 weeks ago, tested positive for Lyme through igenix. I am from NJ but out here is Arizona for treatment. I get EDTA, zithromax, vitamin C, ozone sauna foot detox, and just had oxy bosh, which gave me some decent energy. I take ativan for the anxiety and sometimes that doesnt work. I hate this, and just want my life back. I am trying to keep my faith and hope that I will get my life back, but sometimes it doesnt feel that way, if it makes sense. It is nice to know I am not alone. :)

Jeminij
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Date Joined Dec 2005
Total Posts : 1336
   Posted 7/24/2010 9:15 PM (GMT -6)   
Here's my experience. I started having panic attacks and daily anxiety from lyme, but before my diagnosis and didn't know what it was at that time. I would say it was my very first symptom. After my diagnosis and starting treatment my anxiety got extremely worse. It was always my worst symptom and horrible at times. I couldn't leave the house and for months couldn't leave my bed. Well, after 2 1/2 years of treatment and as the lyme got better the anxiety too got better. When I was well and off meds completely and feeling good, I still had to deal with some of the anxiety. It remained as a result of what I went through with the lyme, but after 6 months with a therapist, I was fine.

I also stopped driving at that time for over 3 years. I had to basically start over, but you can get through it. Lyme and anxiety can go hand and hand and it can be so awful. I would have anxiety attacks when the phone rang or I heard a siren or any loud noise. Even now, many years later, I was on my 3rd floor during a thunderstorm last week. The thunder hit so hard, I jumped up and my heart rate must have been through the roof. It took a few minutes to calm myself down. I think we remain sensitive to some of these things in life, but you do eventually learn how to calm yourself, but there is no way I could do that when I was sick and on treatment. I just had to get through it and luckily at that time I was only 23-26 and single and living at home so I had the luxury of just waiting it out. I also stopped going to stores, etc.. Wait until you are feeling better and you can start to try to do these things again. Right now, just focus on getting better.

I actually made a little list when I was at my worst of what I wanted to do when I was well and one of them was simply go get an ice-cream cone. I never thought I would be "normal" again and be able to go get an ice-cream cone. You will get there. I know exactly how hard this is. I have been through it and thensome. But I also know it gets better and if you asked me this 10 years ago I never would have believed it myself.

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/24/2010 10:02 PM (GMT -6)   
LizW,

As for me, in ways I feel like the depression and anxiety are the worst symptoms, in that you are not able to get a grip on things. The disease is bad enough as it is, but when your emotions are all screwed up, because of something PHYSICAL, it is so difficult to try to deal w/ the disease and the issues you face in the workplace and elsewhere.

Again, I have dealt w/ depression before, along w/ abnormal anxiety, which was caused by something in me -- genes, imbalance, my personality, whatever. And I always responded well to antidepressants, which I was able to scale down shortly after starting them. HOwever, since that tick bite, I had to double my antidepressant and quadrupled my anxiety meds (xanax)

I feel that the neurological aspects are the worst, and that includes the above, along w/ wild mood swings, cognitive problems, and possibly about 3 frontal lobe partial seizures.

It feels like you can't get a grip on stuff and can't make the decision to pick yourself up and move forward, positively. For me, these symptoms are now so obviously physically caused and so they feel impossible to battle.

I do also admit that it is entirely possible that my incompetencies (physical + emotional) that have caused depression and anxiety, left me vulnerable to diseases like Lyme, or possibly cancer --- diseases which my body would normally have attacked and resolved if I did not have the personality and other issues that I have.

And so, it is too difficult to know which caused which. Contracting LYme and Babesia are enough to throw a person into a whirlwind of mental and emotional troubles. Yet I also believe that having a predisposition to the vulnerabilities of depression and/or anxiety causes many of us to contract the Lyme without the defenses that many other people have. Does this make sense?

My newest Dr was absolutely emphatic, when I complained of the more than serious mental issues -- disabling depression, and physically painful anxiety, that yes, Lyme can do this, as may the herx experienced while on abx.

I do hope you receive relief soon! And just wanted to let you know that yeah, Lyme can cause what you are feeling
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 7/25/2010 7:37 PM (GMT -6)   
Wow have you hit the nail on the head.  I have been struggling with severe anxiety with resulting headaches, tight jaw, etc. for the past 5 years from lyme and bartonella (but just tested positive for bart).  I get a little reprieve from each new treatment but it always comes back.  Xanax really helps as does keeping busy but I continue to lose faith in both myself and my treatment which makes my life more miserable.  I am starting luckily to start to recognize the signs and take a step back instead of raging and getting myself in more trouble with my moods and depression.  I have alienated myself and hurt alot of people when I am really just struggling beyond belief to fit in and feel be normal.  I remind myself daily that I have to be strong,  that this too shall pass as I have gotten relief from certain symptoms and know that so many other struggle with worse than me.  However, there are some really really tough days that no one understands under you have been there. 

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 7/25/2010 8:20 PM (GMT -6)   
WEll, just in case this helps anyone, I had a whopper of one today. It almost always starts late afternoon, going into very early evening. I tell you it's unbearable. It is like a combination anxiety/depression. I cannot even describe it, but it's a living nightmare!

Today, for the first time, I felt I was losing all control -- I started rocking in my chair and kept rocking and rocking hard. I felt like I wanted to bash my head thru something. I was hyperventilating and felt like I might explode. I cannot even describe it except it is horrifying and unbearable.

At these times, I feel so desperate for help, but then realize it is not possible. There is no one in my family that could handle this. I can't even expect them to, because it would only hurt them and they would have no idea what to do. I can't find any positive reason to reach out to any of them. I have latched onto my daughter before, but can't do that anymore -- it hurts her too bad when I feel suicidal and when she sees me in such desperate shape.

I will often feel so desperate that I want to go to a hospital. However, in reality, I can't. I have 2 dogs and a job that must be done, that simple. It all feels so unfair.

Also, I work VERY closely w/ 3 total *****ES. I know that I am not sane, and also know that ALL of them have their own issues and in 2 of them, insantiy is a part.

This sounds so petty and I know the answer is to ignore them and keep doing my job. The issue is that they have decided that they hate me. Yes, I am SICK and am not constantly totally 'up' and positive, altho I try hard everday, at least until they shut me down. Yet I have never done anything to any of them. They over react on everything, play stupid games, like '3 against 1' ha ha ha.

When I walk into work and tell everyone good morning, they do not even acknowledge me. Often when I ask a work related question, they ignore me, or answer in a very put down, snotty manner. If I approach an area in the office where one of them is doing someting, for example, using the copy machine -- couple of them will throw up their hands, make a horrifying face as if I am a monster coming to eat them up, act totally flustered and then act pissed at me the rest of the day, because I did God Knows What.

Anyhow, this sounds so minor and petty, but it is seriously interfering w/ my desire to go to work, plus, often now the depression and anxiety come on earlier. I do not care about these ladies or whether they like me, but it is very difficult to go to work when your co-workers behave as if you are a monster or total B.

I know how I SHOULD work this and I try anew each day to be positive and helpful at work. I know we are supposed to pray for our enemies and turn the other cheek, but I am too appalled at their audacity to behave like this at work.

Anyway, just to say that at one point in time, I would have been able to put them in their place. But right now, because of my depression, it hurts, and I DO NOT wish to act like any one of them. And I will not. I zip my mouth.

Oh, shoot, enough of all that, sorry.....
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.


lylaso
Regular Member


Date Joined Jan 2010
Total Posts : 57
   Posted 7/25/2010 8:43 PM (GMT -6)   
My Goodness, we really need to help each other! It is horrible to have no control over your emotions. I have to say after doing research I do the following four things:

1. Drink tons of Chammomile tea. when I steep it I put a plate over the cup so the water absorbs more.

2. I light Frankinscence. It smells wonderful and is supposed to be very good at treating anxiety and depression. http://personalitymooddisorders.suite101.com/article.cfm/frankincense_may_ease_depression

3. I take OM3. A recent study showed that it was more effective than the leading anti-depressant for treating depression http://www.sciencedaily.com/releases/2010/06/100621111238.htm

4. I warm up some heat packs in the microwave put some socks over them and put them on my shoulders.

My anxiety has gotten better, but it is still there. I'm hoping with time this as well as the bartonella abx help.

Anybody else have any suggestions?

LizW
Regular Member


Date Joined May 2010
Total Posts : 27
   Posted 7/25/2010 11:17 PM (GMT -6)   
Well. I have found out that I dont have any co-infections, praise god! But it baffles me with all this anxiety, before treatment for 7 years and still now with treatment. I thought for sure I had bartonella as I heard that causes anxiety, but what about just Lyme??

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 7/26/2010 1:31 AM (GMT -6)   
Liz,

My symptoms also started with panic attacks out of nowhere. One day I was fine, the next I was in full blown panic. I thought I was going to die....literally. I felt like something bad was happening in my body. They lasted all day. I was admitted into the hospital and my doctor ran all kinds of tests. Everything came back normal so they pegged it as anxiety and panic attacks. I had NEVER been anxious or panicky EVER in my life. I just couldn't understand what was going on. I was put on klonopin and Lexapro. After the Lexapro finally kicked in, the panic attacks settled down a bit but I still had them every month. I had them in my sleep too. Those were the worse ones. My doctor at the time even said he didn't understand why I was still having them. After two years of Lexapro, I got off and never had a bad panic attack, that I couldn't control, again. I still have a little anxiety that comes on sometimes for no reason at all, but I can deal with that. After two years of dealing with panic and anxiety, I started having flu-like symptoms every few months. My primary would tell me that it was a viral flu, but he would give me antibiotics. Go figure. Every single time I took antibiotics, I felt so much better. I think this was when the infection had reactivated. I went on and on with this flu-like feeling for two years, then the chronic fatigue started. It was like every year, I had something new. I was put on antibiotics for a bladder infection and that's when I had my first herx. I had no clue what was going on. Everything got worse. The anxiety was terrible, I had floaters, noise bothered me, lights bothered me....I had a list of symptoms. That's when I finally looked up the symptoms and found an LLMD. Anyway, I'm cutting it kind of short because my RA is acting up tonight but I just wanted to tell you that you are not alone. Please do some detox baths. They will help you out so much. Magnesium is also good at helping calm the body down and helping with sleep.


Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 7/26/2010 1:34:28 AM (GMT-6)


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 7/26/2010 1:12 PM (GMT -6)   
+Lyme - I really feel for you about the work situation you're in. I used to work somewhere like that and it was a nightmare. Those women lived to gossip and weren't above fabricating things if there was no factual gossip to be had. During that time I kept myself awake much of the night just so that morning would not come so soon. All weekend I'd dread Monday, and every morning I would dread walking in the door to what felt like my prison. Maybe your coworkers are fearful of illness and this is their way of distancing themselves from it. If so, how sad. I hope you will be able to work something out there; can you transfer somewhere else or to a different department? Those people sound awful.

lylaso - Thanks for your list. Those things sound good to me and I look forward to trying them.

Rose
I have Lyme; it doesn't have me.


Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 7/26/2010 2:10 PM (GMT -6)   
You surely aren't alone! The anxiety and depression have been horrible. I have had other neuro symptoms such as photosensitivity, noise sensitivity, garbled speech, vertigo as well as joint pain and very tight muscles. I had rocephin and ceftin which supposedly do pass the brain/blood barrier and I got somewhat better. But I still have symptoms come and go and am now on homeopathic treatment.

It is frightening, but just keep moving forward with treatment. You will see improvement.
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