Something interesting about Bartonella....

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nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 7/24/2010 1:37 PM (GMT -6)   
I just found this article on Bart and how it triggered MS in a veterinarian. You can see my post about it on the MS forum here: www.healingwell.com/community/default.aspx?f=32&m=1857879#m1857879

The article about the vet is here: www.uvaldeleadernews.com/articles/2008/11/17/news/news1.txt
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, EBV, CMV, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


lylaso
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Date Joined Jan 2010
Total Posts : 57
   Posted 7/24/2010 6:18 PM (GMT -6)   
What a great article. Thanks for that. I wonder what abx were used.

nasalady
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Date Joined Sep 2009
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   Posted 7/24/2010 6:39 PM (GMT -6)   
lylaso said...
What a great article. Thanks for that. I wonder what abx were used.


Good question! I did a quick Google search with "Dr. E. B. Breitschwerdt bartonella study" and came up with the following PowerPoint file:

www.secebt.org/uploads/documents/Breitschwerdt.ppt

Looks as though Dr. B used it to give a talk about the study in question. He doesn't mention what abx were used in the actual study, but previously (in 2004?) it seems that he was prescribing combos of either amoxicillin and ceftriaxone or amox and levofloxacin....
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, EBV, CMV, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


nasalady
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Date Joined Sep 2009
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   Posted 7/24/2010 7:17 PM (GMT -6)   
OMGosh! Dr. B's own father apparently died from a Bart infection! So tragic, even though he was 86 or 87:

www.cdc.gov/eid/content/15/12/2080.htm

The article discusses various abx that were given to his father....ultimately his conclusions are that if his father had just been given abx LONGER, the infection would have been completely eradicated.
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, EBV, CMV, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


3whiteroses
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Date Joined Jun 2009
Total Posts : 184
   Posted 7/24/2010 8:03 PM (GMT -6)   
Thanks for sharing! Great articles.

nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 7/24/2010 9:39 PM (GMT -6)   
Of course eventually I figured out why Dr. B's slides had nothing about the abx taken by study participants! He's a professor of VETERINARY medicine! So he was just interested in getting a handle on which Bart species were being transmitted from animals to their human handlers! Each participant in the study doubtless had his or her own doctor to prescribe meds....

I'm really being a Lyme-brain today!
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, EBV, CMV, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


CajunGrl
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Date Joined Mar 2009
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   Posted 7/24/2010 9:47 PM (GMT -6)   
nasalady,

I don't mean to change the subject but I was wondering how you were doing on the Plaquenil? I had a weird reaction on it. I felt like I had the flu and it made me real tired. Have you experienced this?

Thanks hun.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 7/24/2010 10:18 PM (GMT -6)   
CajunGrl said...

I don't mean to change the subject but I was wondering how you were doing on the Plaquenil? I had a weird reaction on it. I felt like I had the flu and it made me real tired. Have you experienced this?


Hi CajunGrl,

Well, I have felt that way from time to time. And it seems as though it has gotten worse since I started taking the abx that are working on the Babesia (zith and Alinia). The "flu" and exhaustion to the point of narcolepsy got worse at the same time I began to have problems with air hunger and sweats so maybe these are part of a Babesia "herx"? Do you have Babesia? Plaquenil is somewhat effective against Babs so might cause that sort of reaction.......?

How long have you been on plaquenil now?

JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, EBV, CMV, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


CajunGrl
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Date Joined Mar 2009
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   Posted 7/24/2010 10:39 PM (GMT -6)   
Hey thanks for replying. about two years ago, I had all of the symptoms of babesia but never had a positive test for it. I was put on Mepron and Clindomyacin and had the same kind of reaction on the Mepron. All of my symptoms changed though and my new LLMD didn't think I had so I didn't continue treatment. My Rheumatologist said this could happen but never explained why, and lowered my dose to 200mg to take right before bedtime. I'm telling you, it knocks me out and I dream really weird dreams too. I've only been taking it for about a month now.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 7/24/2010 11:02 PM (GMT -6)   
CajunGrl, that kind of worries me because the tests for Babesia have a lot of false negatives, from what I've heard. As you know, plaquenil started out as an anti-malarial drug and Babesia is related to malaria.

However, I was just reading up on the possible side effects associated with Plaquenil from www.rxlist.com/plaquenil-drug.htm: "mild and transient headache, dizziness, and gastrointestinal complaints (diarrhea, anorexia, nausea, abdominal cramps and, on rare occasions, vomiting).....irritability, nervousness, emotional changes, nightmares, psychosis, headache, dizziness, vertigo, tinnitus, nystagmus, nerve deafness, convulsions, ataxia....weight loss, lassitude, exacerbation or precipitation of porphyria and nonlight-sensitive psoriasis."

There's more, but most of it is about the effects on the eyes....

It does say "nightmares" are a possible side effect, so maybe some of what you're experiencing is a reaction to the plaquenil itself....I hope this starts to get better for you soon! You probably should tell your rheumy that these things are still happening even on the lower dose.

Saying a prayer that you DON'T have Babesia and that your symptoms improve very soon!
Take care,
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, EBV, CMV, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 7/24/2010 11:30 PM (GMT -6)   
Thanks for the side effect list. Yeah, it's a terrible list but I think I'd rather be on Plaquenil then the ones that suppress the immune system. It doesn't give me the flu-like reaction everytime though. I think I had it maybe three times since being on it and it only lasted a few hours.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


nefferdun
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Date Joined Feb 2008
Total Posts : 900
   Posted 7/25/2010 8:15 AM (GMT -6)   
I know of a local vet diagnosed with MS and I have always wanted to tell her about lyme and coinfections being here so she is aware - the medical community insists this state is lyme free.
I hesitate but this story might be a good reference.
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