Anyone familiar with sarcoidosis

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allieann
Regular Member


Date Joined May 2010
Total Posts : 116
   Posted 7/25/2010 11:30 PM (GMT -6)   
Anyone familiar with sarcoidosis and what the symptoms are? It is supposed to be a tick borne disease.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4396
   Posted 7/26/2010 12:39 AM (GMT -6)   
I think I remember reading that it could be caused by mycoplasma or other infections... One of my doctors was once considering this as a diagnosis for me, but then he changed his mind after some additional testing (I don't know what test result caused him to change his mind...like everyone else, they all tell me I have autoimmune diseases but the tx for that - immune suppression - just makes me sicker)

Anyway, for sarcoidosis info, see http://emedicine.medscape.com/article/1123970-overview
Yes, this link talks about an association possible between Bb (amongst a lengthy list of other infections) & Sarcoidosis.
-Razzle
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle & other liver support herbs, Magnesium, homeopathy.


nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 7/26/2010 11:35 AM (GMT -6)   
As Razzle pointed out, doctors don't actually know what causes sarcoidosis, but it can be a nasty disease. There are also skin-only versions, such as lupus pernio (which is not related to lupus, so I don't know where the name came from).

Here's a great blog by a wonderful writer who happens to have sarcoidosis:

chronicville.wordpress.com/
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, EBV, CMV, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


Dowa
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Date Joined Sep 2008
Total Posts : 1120
   Posted 7/26/2010 2:29 PM (GMT -6)   
I just read this womans blog and I would put money on the fact that I bet her beautiful old house has a mold issue. I have a cousin with sarcoidosis of the lungs that started after moving to a moldy house. I hope her new home will make her health better. I have never heard that sarcoidosis is tick related...only that is has to do with toxins, so I supposed Lyme would fit that description as well.  D

allieann
Regular Member


Date Joined May 2010
Total Posts : 116
   Posted 7/27/2010 12:01 AM (GMT -6)   
Thanks all for your input, I appreciate it.
 
Allieann
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