My test results: WHAT do they mean?

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Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/1/2010 10:12 PM (GMT -6)   
Hello everyone,
I am new here, this is my first post.  I have been reading some of your posts I will post my lyme tests here at the end, but first I would like to talk about a few other things.  I was diagnosed with lyme last summer.  How long did I have it?  I have no idea!  I have been heathy and strong most of my life untill...

I lost my grandfather and I got very ill.  That was over 10 years ago.  I was in my 20's.   Could it have been a coincidence that I got so sick at the same time my grandfather died?  NOW I believe it was a coincidence, but at the time, I thought losing him made me sick.
Here were my symptoms back then: Troubles breathing, sore throat, swellen throat--almost completely shut, I could not even get a few drops of water down my throat.  Sweelen feet--I could not walk, the bottom of my feet had some liquid in them.  I got really depressed, I thought I was dying.  Made my funeral arrangements (not kidding!).  I was scaring my fiance and my mom, because I was very serious about it.  Then I could not talk, i lost my vision for a few days, while in Graduate School for Statistics--could not see the numbers, had to postpone my finals (I was an A student).  Severe caughing, I remember I went into my Adviser's office and I started caughing, I had to go to the bathroom and get some water; he was just looking at me, because I could not stop to tell him I'll be back, so I just left and then went back.  Aches all over, unbeareable neck pain--maybe my nodes?  It felt like it!  I was walking on the side of my feet to get around.

It was the scariest episode of my life, I really did not think I will come out of it.  I was on antibiotics for 2 weeks, and I got a bit better, I had a good dr. and he gave me another week.  I survived and recovered 100%--or did I?  I do believe NOW that I got sick from lyme around that time, not last year!

Since then, I had a few bronchitis, sinus problems, heavy breathing, heart palpitations and every time it seems they were worse and last longer.  Anyway, I was not too worried because they were not as bad as the first time.  Then, a few years ago, I had severe chest pains when breathing and went to ER.  I knew I had a scar on my lungs and I ask the ER dr about it, and he said it resolved--He did not see it on the chest Xr (only to find out several yrs later that it is still there, through another chest X-ray)!  He told me is just a mucle that is hurting, and send me home and told me to take motrin.  A few days later the pain went away.

A few months ago, I started to have symptoms similar to those the first time I was diagnosed with Lyme: Pain in my fingers, headaches, pain in my legs, could not walk right, neck pains, twitchin in my eye and tumb, poor vision, foggy memory and head, and maybe others that I can't remember.  I asked my new dr to test me for lyme and the first test came +.  Then he sent me for a second test that came --.  His conclusion was the first test was + because I had it in the past.  I got so upset, I kept asking myself: How about my symthoms?  But I just decided to go to another dr, I will see her on the 10th and I pray that she will give me a referal to a LLMD.  I have 3 children, one of which is 9 mo old and I am breasfeeding her.  I asked her dr if she could have it, since I was diagnosed around the time I got pregnant with her, but her dr said if she doesn't have any red rashes AND if I am cure, then she didn't get it!  I am still scared about that, I hope I am not poisining her, through BF.  So, I called my OBgyn and asked if it is possible to get her Lyme through BF and she said it was not.  THere is evidence out there that it can get into the milk, though, so I don't know what to think.

Thanks for reading my long email ( I hope some of you will read it).  I will not post so much at once, but I thought we can all learn from each other and I did learn a lot from some of you by reading your posts here.  I will let you know how everything goes.  Oh, on top of all the above: I have hyperthyroidism and I am taking Levothyroxine, which has been adjusted several times, because it goes up and down (someone posted on a website that both her son and herself have thyroid problems and the lady thought it was caused by her Lyme)  I just remember something else: I am cold, sometimes I shiver and shake, my hands are trembling, and for a few days a few months ago before the last round of tests were done on Lyme, my thumb was moving by itself back and forward, and was not able to control it to stop.  Sometimes my hands and feet become curled in and I get cramps in my feet.  I can only make them uncurl by using one of hand and manually uncurl my fingers and toes and keep them straight for a few seconds.  Very painful, too.  I hope this may help you, if you are new to lyme, to see what another soul is going through... 

And here are my test results:




05/01/2010
TSH 3rt generation:  18.11  (this should by between .4-4.5!  That's my thyroid, while I was on medication!
Now my Lyme test:
everything was -- or non-reactive, EXCEPT:
Lyme Disease AB (IGM) WB:  POSITIVE
23 KD (IGM)Band: REACTIVE
41 KD (IGM) Band: REACTIVE

That's the last test I had, what do you guys think?  Thanks and I hope you'll have some time to read and reply to this!

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 3992
   Posted 8/1/2010 10:58 PM (GMT -6)   
Your symptoms are possibly from Lyme and your Lyme test is positive on the IgM, which is significant, but I can't diagnose you (i'm not a doctor). So I recommend that you go see a Lyme-Literate MD or Naturopath and get a proper diagnosis (& treatment).

Take care,
-Razzle
Chronic Lyme & Bartonella, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle & other liver support herbs, Magnesium, Progessence+ (wild yam + essential oils), Moducare, homeopathy.

IH8Ticks
Regular Member


Date Joined Jan 2009
Total Posts : 296
   Posted 8/1/2010 11:16 PM (GMT -6)   
It's possible that your symptoms are from Lyme, but they could also be from other illnesses, including co-infections that go along with Lyme. You would need an evaluation from an LLMD to be sure. Lyme and its co-infections are very tricky because they mimic so many other illnesses, including each other.

I'm not sure that your getting sick after your grandfather passed was a coincidence. It could have been a factor. Physical and mental stress weakens us and makes us more susceptible to infections. It could be an infection you were exposed to at the time, or it could have been an infection that you already had. Your body could have been fighting it adequately on its own, but the stress weakened you to the point that the infection took over. I believe that something similar happened to me. I have symptoms going back over more than 10 years, but my illness did not become severe until a few years ago, after a period of very high stress. I was very busy, stressed out, and losing a ton of sleep, not to mention eating very poorly.

Some of your symptoms could relate to your hypothyroidism (I assume you meant hypo- not hyper-). There is evidence that Lyme can cause hypothyroidism, but it could also be just a coincidence. I have hypothyroidism as well. It's impossible to tell what the root cause is, but it may get better if you treat the underlying infection.

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/2/2010 1:24 AM (GMT -6)   
Thanks, IH8Ticks and Razzle. Did any of you tried or heard here or somewhere else of Rife Machines? I am not in bad shape like many of the people here, but I am trying to learn as much as possible about different treatements before I see my LLMD and be armed with questions. I saw some really disturbing videos on youtube of people leaving with LD. I cried listening to their stories.

I don't know an LLMD. I searched on the internet and can't find one labeled LLMD. My husband works with someone that knows a researcher and I am hoping that he can recommand a good LLMD for me because he has it, too. I have 3 kids (one of which is a 9m old that I am BF, so I am really terrified that I may pass it to her or that she may have got it; I started the AX for lyme after testing positive and she was conceived around the same time or shortly before I went on AX). Yes, it may be Lyme or something else, I will see my new MD on the 10th and I am praying she will give me a referal for an LLMD. I have really foggy days ( in my head ) at times and I am trying to take notes and learn in case I do get worse. I have until the 10th to find an LLMD, I can't see one without a referal. Next week will be the longest of my life.
Thanks for your help!

hopefulinGA
New Member


Date Joined Jul 2010
Total Posts : 13
   Posted 8/3/2010 6:52 PM (GMT -6)   
Welcome to the site! Since I'm new here too, I'll share some of what I've found out so far, in hope that it will be of help.
I was just diagnosesd last week with Lyme----same results as yours on the WB. Also Hashimoto's thyroiditis for over 10 years (auto immune (low) thyroid disease) and Meniere's symdrome---both are on the list of diseases that can occur as a result of infection with Lyme.
I believe I've had this for years, but because I was on cortisone for six weeks in late Dec and all of Jan, and then having shingles in March and a VERY stressful month of May, the Lyme bacteria reared its ugly head.
What state are you in? Anywhere near GA?
I have a great doctor here---Internal Med doc who branched out into alternative medicine years ago. Another doctor, who works with her, has treated LOTS of Lyme patients over the years--using IV therapy. She also has a Nutritionist there, who is a Lyme sufferer, that has helped dozens and dozens of patients "get well" over the years. I now believe the Lord led me there through some "Divine" circumstances, just to get treated for this disease!
A friend in south GA bought a Rife machine. She has had Lyme for many years and does not have access to a Lyme doctor either. My doctor and the other two who are treating me, do not feel the Rife machine works for everyone. I don't really know---might depend upon the patient---I've heard some people swear by them.
I am going the IV H2O2 and Doxycycline route. It has worked very well for the patients that my IV doctor has treated and also for the nutritionist there, who has actually done the treatment 18 times so far. She said she noticed a big difference after the 2nd treatment and she had been sick for 20 years at that point and could not walk for two years. She now works full time and only does them about once a month now.
I am also following many of the detox procedures that I found on this site, as well as some that I have already used in the past.
I hope this has been helpful. This is a great site, full of wonderful and caring people! :)
Blessings and prayers for a quick recovery!

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1295
   Posted 8/3/2010 9:10 PM (GMT -6)   
If this helps any, I was also going thru an extremely stressful (to me) situation shortly after my tick bite. At the time, I blamed all my problems on anxiety and stress. I now realize that if I had been healthy, the anxiety (and a little later, the depression) would not have been that bad if I hadn't been ill w/ something. Or vice versa, who knows?

I do believe that our bodies normally fight Lyme as hard as they can. But if we have any kind of immune incompetency along with/ or stress triggers, we are more suseptible to a chronic infection that's difficult to eradicate. This seems to also be the case w/ other diseases like CFS and MS.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/5/2010 2:11 PM (GMT -6)   
Hi Hopeful:

I am in PA, Philadelphia area.  I have heard that some like the Rife machine.  It suppossed to desintegrate into pieces the bacteria--not sure what it does to the rest of the body! 
 
I am glad that I found this forum also, I don't post that much bec. I don't have much to say except of the above, I did not start treatement yet.  I will post more when I start.  I am still trying to wrap my mind around everything and find a doc.  I will see my new PCP next week and get a referal and take it from there.

Thanks for the info and good luck to you!

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/5/2010 2:25 PM (GMT -6)   
+Lyme:

I feel so bad for you, it seems you got them all!  Bit for Mother's day--yuck!  I've been on antidepressants for 5 months.  I feel they helped but decided to stop to try and figure the Lyme out first.  I had been diagnosed with Lyme, then I got pregnant while doing the ax, then I was  in a car accident, while pregnant, my legs and lowered back were injured.  ALL this put me over the edge. 

I have had hypothyroidism for 5 years--I was diagnosed with it after I gave birth to my second child. 
First pregnancy: OK
Second pregnancy: Went into labor at 6 mo and was put on treatment.  I delivered 2 weeks early. 
Third pregnancy: OK, but treated with ax for lyme while pregnant

Not sure what to think...  Still not sure when I got it.

Thanks for your response!


 
 

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1295
   Posted 8/7/2010 10:39 AM (GMT -6)   
Simela -- Whoa, I would say so -- that it all put you over the edge! I am so sorry -- you really took some whammies. Just your injuries alone would be enough to impact a person deeply. If the anti-depress were helping you, maybe you should consider going back on them awhile? Maybe could possibly help you focus on the LYme?

just a thought....
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 3776
   Posted 8/7/2010 4:02 PM (GMT -6)   
Hi Simela,
 
So sorry that I missed this post!  I suggested that you start your own thread and you did!  Duh! 
 
As far as your Grandfather dying, yes, that could most definitely cause your immune system to weaken which makes your body a target to get sick... Coincidence?  I don't think so..   
 
Sounds to me like you have many lyme symptoms..  I know you can't detox now because you are nursing so I hope you get some sort of treatment soon.
 
Hang in there, okay?
Denise
It's all about Detoxing Daily, strengthening the Immune System mixed with a dose of Positive Thinking!
 
This song is about my years with chronic lyme since 1995 and being symptom free for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 
Currently taking Estrovera, ProgX (progesterone), Adrenotone Plus, CoQ10, Vitamin B Total, C, Green Vibrance, CALM (Magnesium/Calcium)

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/7/2010 5:59 PM (GMT -6)   
+Lyme:
I have had an ok day yesterday and a great day today. A few pretty bad days before that, kids were helping me find things because I forgot where I put them, broke a few things, too. One was a collectable, probably worth a few hundred $$. I will stay away from the expensive stuff on my bad days, now LOL

I think I am now strong because I am trying to face this, at times I am still in denial, I won't even call it by its name, I call it "this, that, the disease" etc.

I think the antidepressants help me feel better, but also kept me in a state of desillusion, so I decided to stop, I did order a new prescription, so if I will feel I absolutelly need them, I have them.

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/7/2010 6:16 PM (GMT -6)   
Denise:

Please read the post above that I just wrote to +Lyme, so I won't repeat myself. I was actually thinking to start a new post. I think it would be interesting to see everyone's jorney here, and maybe, someday, someone can write a book including our stories and struggles to help others.

So, if my grandfather dying wasn't a coincidence, that means I have had it for at least 10 years. I was in grad school, before I had kids. I did have a miscarriage a couple of years after that--not sure if it was caused by Lyme. THe same year I got pregnant with my son and he seems ok. He is starting school this year and he is 6 yrs old.

THANK YOU for telling me I can't detox bec I am BF! I was considering to try it while I start antibiotics--hopefully next week.

Thanks for your kind words everyone, I wish husband was more supportive, he seems to not be dealing well with this and not accept it. Perhaps he is in denial, as I was, and still am once in a while.

I asked him "what are you going to do if I won't be able to walk around, cook, etc?" He said "I will buy you a wheel chair and a lower stove" He still things the whole thing is a joke. I hope he is right and I am worried for nothing!

Thanks for your help, here and on the other thread! I am glad you are much better than four years ago!

May I ask, were you on AX? For how long? Do you think the ax do a lot but herbal protocol is also needed OR if you were to do it all over, you'd stick to herbs only?

Thanks!

allieann
Regular Member


Date Joined May 2010
Total Posts : 115
   Posted 8/23/2010 9:35 PM (GMT -6)   
If a member of my family is ever bit by a lyme tick again, I would suggest they go on antibiotics for several months and if that did not do it would definitely go to the rife/coil machine as a second line of defense. Need to kill the newly hatched cysts before they start spreading throughout the body and deep into the tissues.

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 8/23/2010 9:54 PM (GMT -6)   
Hi Simela,

As you've been told, your WB results (IgM) are positive by IGeneX standards. A little info on the bands, from LymeMD:

Bands 23,31,34,39, and 93 are considered very specific by most. The significance of the 18 and 41 bands is open to more controversy.

So band 23 is specific for Lyme. Your body will not just make this antibody on its own, you must have been exposed to the Lyme bacteria. So tell that one to hubby! Also I have Hashimoto's thyroiditis, my TSH was over 90 when I was diagnosed. Your test results sure look like Hashi's, although I can't diagnose because I'm not a doctor.

Just so you know, Lyme can both mimic AND trigger autoimmune diseases. I have SIX AI diseases, although I can't blame them all on Lyme. My family has a genetic tendency to develop them, and Lyme just made it worse in my case.

I'm on both abx and herbal/homeopathic meds. I see a naturopath and an MD and they work together, so it all works out.

Best wishes to you! You're in my thoughts and prayers....
((((((hugs)))))))
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, EBV, CMV, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com
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