GOOD NEWS- Was Flare/Relapse

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Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 8/8/2010 8:55 PM (GMT -6)   
Just need to vent. Symptoms have been gradually coming back, despite using Dr. J's products and doing more detoxing. I saw my LLMD Wednesday and he felt what I was doing was not working for me and that I was in a flare. He ordered a CD57 test to determine whether this is an active infection or chronic. He thought I may need abx but wanted me to wait for the test results.

In the meantime the pain got so bad I could no longer function. It was in my eyes, teeth/gums and the temples on both sides of my head. The worst part was my face, left side only. I had so much nerve inflammation that my face started to swell. I was so afraid that if I did nothing, Bell's palsy would set in, so I started the abx. Ceftin is the only one I can take due to allergy or bad side effects.

I hate that I am back on abx, so disappointed. I feel like I'm falling down the rabbit hole again. And just like the first time, I'm getting sciatica and tendon pain in my feet. My hearing is beginning to sharpen, too; I'm hearing everything magnified.

I can only pray this is of short duration.

Post Edited (Caldonia Sun) : 8/9/2010 2:12:07 PM (GMT-6)


Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 8/9/2010 12:21 AM (GMT -6)   
Calidonia, I'm sorry to hear you are having so many symptoms right now. I was wondering if you have noticed, in general, any cycle to your disease? Mine cycles about every two weeks or so. The down time can be mild if I'm doing well, or pretty extreme if I'm not, but it seems like wherever I am with the whole thing, the cycles continue. I'm wondering if you are in a bad cycle right now. I hope your test comes out well and that you will be feeling better soon.

Rose
I have Lyme; it doesn't have me.

achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 8/9/2010 1:00 AM (GMT -6)   
Hope you feel better soon, Caledonia.

Jeminij
Veteran Member


Date Joined Dec 2005
Total Posts : 1336
   Posted 8/9/2010 2:04 PM (GMT -6)   
I feel for you and understand. I too have had some relapses/flare-ups. I alway think they are going to be long term and last forever, but they don't. After 3+ years of complete recovery, I relapsed after a very stressful event in my life. I was sick for about 6 months which was a long time to me then. I got better and then found out I was pregnant about a year later. After I had my daughter, I relapsed 6 months later. That lasted a little while (I never took abx again. I feared I would get worse if I didn't, but I just don't have it in me to take them anymore). I got better again and recently had a miscarriage back in May and boy did I have a flare-up. I was sick sick sick, but it lasted about a month and got better again. I am now doing well and exercising every other day which for me is better than any abx I could take in terms of healing and keeping me well.
 
Who knows what tomorrow will bring, but it seems to be a normal way of life for me now to know that these flare-ups are going to happen here and there, but they do always pass. It's good you are back on treatment and hopefully you can nip it in the bud before you feel any worse.
 
I never had "pain" like you describe with lyme, mine is more neuro, but it sounds like you have a good dr. and I  hope you start feeling better soon.

georgiagirl
Veteran Member


Date Joined Oct 2007
Total Posts : 1172
   Posted 8/9/2010 2:13 PM (GMT -6)   
caldonia,
I'm praying with you. I hope you feel better soon.
I'm also having a very bad flare right now. Your not alone...

Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 8/9/2010 2:14 PM (GMT -6)   
Thank you all for encouragement.

Doc just called. My CD57 was 234, so he feels this is NOT a relapse. Suggested I see a dentist since pain is in the teeth, especially around an old root canal, and on one side. As much as I hate having dental work, this would be welcome news.

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 4284
   Posted 8/9/2010 5:12 PM (GMT -6)   
Hi Caldonia Sun,
 
From what I have been learning (and I used to hear this from other people with lyme), that toxins love to live in the teeth and to have your mercury fillings removed.  Also, if you are having root canal work done, let me know, okay?
 
Hope you feel better,
Denise
It's all about Detoxing Daily, strengthening the Immune System mixed with a dose of Positive Thinking!
 
This song is about my years with chronic lyme since 1995 and being symptom free for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 
Currently taking Estrovera, ProgX (progesterone), Adrenotone Plus, CoQ10, Vitamin B Total, C, Green Vibrance, CALM (Magnesium/Calcium)

Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 8/10/2010 7:34 AM (GMT -6)   
Denise,

I've thought for quite a while about removing the mercury. Since I have seven filled teeth and an old root canal, it would be a very long, expensive endeavor. Today I will go have the teeth checked and see if anything is actually wrong there, but something is very wrong. The facial pain is narcotic-worthy and there is slight swelling. Last night was almost unbearable. If it's not teeth, I don't know where to turn next. Maybe a neurologist? But I never hear anything good about neuros and lyme. Sigh.

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 8/10/2010 12:22 PM (GMT -6)   
Hi. Facial pain can be excrutiating. I've been there and understand what you are talking about. For many years I've had intermittant painful episodes much like you describe, mine on the right from the nape of the neck across my head (jaw to temple) to my sinus and in the teeth on that side of my mouth. I wish I understood it better, but I can tell you in my case TMJ was the cause of a lot of it. But I also think Lyme and coinfections play a part. And I think neck problems also play a part. I've had a lot of PT to help with this and thought I'd pass along some of what I do with the hope that it will help you, too.

It sounds unpleasant, but rubbing ice alternating with a warm washcloth on where it hurts can help with the pain. Applying pressure and releasing it can also help. If your pain is in part from TMJ, there are some pressure points inside the mouth that can help alleviate your symptoms. One is at the interior of the jaw joint, and the other is lower than that but in about the same position, under the tongue in the back. Same technique of applying pressure and then releasing it, repeated several times.

The therapist also had me hold warm water in my mouth on that side. To me, that was soothing.

Another thing that might help is vibration. If you have a massager with a low setting and it seems at all tolerable sometimes that can break up the pain.

When I get the pain in my teeth, biting down on something hard seems to help, or when it is mostly in my front teeth on the right, pushing out on the teeth can help.

Finally, I really do get relief by seeing an upper cervical chiropractor, too.

I hope you find a solution. I do agree that removing metal fillings would help with mouth health. I had that done a couple of years ago and have not regretted it.

Rose
I have Lyme; it doesn't have me.
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