My journey to healing*Starting ax today*wish me luck!

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Simela
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Date Joined Aug 2010
Total Posts : 552
   Posted 8/10/2010 11:19 AM (GMT -6)   
I saw my new PCP today.  She took one look at the previous tests and she said: "You have Lyme disease"
She knew what I've suspected all along, the previous PCP was clueless, he said the reason I was testing + is bec. I have had the disease in the past!  Happy with her so far!  All I can say is if you are new, make sure you do your own research, including interpretation of the tests: here is a good link:

http://redirectingat.com/?id=3040X598038&xs=1&url=http%3A%2F%2Fflash.lymenet.org%2Fubb%2Fultimatebb.php%3Fubb%3Dget_topic%3Bf%3D1%3Bt%3D042077&sref=http%3A%2F%2Fwww.mdjunction.com%2Fforums%2Flyme-disease-support-forums%2Fmedicine-treatments%2F781282-lyme-with-positive-western-igm

Wish me luck!  I can't detox bec. I am breastfeeding, so I am excited to start and terrified how my body will react to it.  I have been infected for at least 2 years, possibly more!

Make sure you click on the link, yes it is a long article, but at the end you will learn how to read your own tests!  It has helped me and I have realized from the info that my previous PCP was clueless!  I will print it out for refference, and I don't print anything, it is that good (or at least I have thought so)!  If you are new, please make sure you don't listen to your PCP, discover yourself what the best path for you is!  If I would have been properly treated with a longer dose of abx (I was given ONLY 3 weeks when I was at least infected for 6 mo), I may have never relapsed!

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35705
   Posted 8/10/2010 11:26 AM (GMT -6)   
Hi Simela!!!
A hearty CONGRATS!!!! to you for starting your treatment!!! turn

Since detoxing is not an option for you, I would suggest you be prepared to take it as easy as a new mother can!!!
And, good advice given in your post!
Even the mightiest oak tree was once a little nut who held it's ground!!!
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 8/10/2010 1:19 PM (GMT -6)   
Hope all goes well with your treatment and you are well very soon.

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 8/10/2010 2:15 PM (GMT -6)   
I hope you are much better soon. So glad you know what the problem is now and can begin on a treatment and on the journey back to health.

Rose
I have Lyme; it doesn't have me.

daisyrlb
Regular Member


Date Joined Jan 2010
Total Posts : 277
   Posted 8/10/2010 5:03 PM (GMT -6)   
Simela, I pray your body responds positively to abx and that you are on your path to ultimate healing. May your little one continue to thrive and be healthy.

Think happy thoughts.

God give you strength and peace,
Rhonda

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/10/2010 5:45 PM (GMT -6)   
Well, I have had a good day so far, baby seems fine, I took only one pill, so I am not going to get too exited, but hoping for the best! I am getting tired, it is only 7:30! I've slept almost 12 hours last night. Little pain, just a regular good day, except for a few minutes when the pain got pretty bad here and there.

Anyone can give me some advice on herx? I don't really know if I've experienced herx before, it sounds pretty ugly LOL What can I do to minimize herx without detoxing? I have cut back on sweets and carbs for the past few days and it seems I feel better--or maybe it is just a coincidence--my good and bad days seem to go in cycles. I am going for a walk with the baby, I feel like I am about to fall asleep!

Thanks for your prayers and good wishes--it helps me get through this!

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/11/2010 3:05 PM (GMT -6)   
Day 2:
Took pill # 3 of abx. Feeling tired! I slept 8 hrs last night! I am going to take a nap. Baby is sleeping, so perfect timing! I am not doing worse or better with the abx, we will see as time goes by. But my left wrist is hurting and I wrapped it with an elastic band to be able to pick up the baby--I was afraid I would drop her. A bit clumsier than the last few days. My sister is off from school and took kid#1 and kid#2 at her house, to ease my duties around here. I am home only with the baby until husband comes back from work. Also, my injuries from my car accident are back into full spin, on and off. Not sure if the steroids wear off if on abx

I have had some major balance problems last night--I could not walk straight! It is sort of funny and scarry all at once.

Baby is doing OK, she will soon be 9 mo. She didn't eat that well today, wondering if it is her teeth or the abx

I am reeeeeeeeeeeeeealy tired!

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/12/2010 12:53 AM (GMT -6)   
Took pill#4! I felt a little worse late afternoon. I did take a nap and then took baby in the stroller for a walk. My LEFT wrist still hurts; my LEFT hip hurts, and my LEFT knee started to move (bend) by itself! LEFT eye also hurt very badly! Does anyone know why left side would be worse than right side? They knee sympton is new!

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/12/2010 8:05 AM (GMT -6)   
Well, I am going to keep posting, it seems like many people peaked at this thread!
Day 3:
Nausea, more pain in musles and joints. headaches as well. I kept seeing things in my house in the corner of my eye, there were scaring me, and then I realized is nothing there and nothing to be scared about. Back pain;

It took me 5 minutes to find a glass to drink some water. I looked in the LR, DR, and then the kitchen. I forgot I keep them in the kitchen cabinets. Then, I poored myself a glass of warm water and took my abx.

I just have to laugh all of it out and keep faith--what else I can do?

I am asking again in case someone can answer:
Does anyone know why left side would be in worse pain than right side?

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/12/2010 4:24 PM (GMT -6)   
ok, my thread must be pretty boring--no one is saying anything  LOL

I will stop after this and just keep track of this little things in a notebook.

So far, I feel more tired--I am going to take nap # 2--baby is asleep now.  I can't stay awake!  Stomach is upsetting me;  i am also getting a little foggy, which didn't happen in about 4 or 5 days. 

I ordered Igenex kits today from me and baby.  Lady asked me to spell my first name and I stumbled in the middle of it--I could not remember the next letter.  Then she asked me for my phone nr and I blocked out, I could not remember it!  She must think I am really dumb!  I have been writing stuff down bec. it is imp. and I keep forgetting about it.

Numbness, more pain than previous days, still have a band around my left wrist that seems to help the pain. 

New symptoms: Weeziness, heart palpitations, sharp chest pain that lasts only a few seconds, my left foot had curled toes, I had to use my hand to make them stay straight.  That was very painful but lasted only a minute or so...

Time to write all this in a notebook, I guess it is pretty boring stuff for you to read!

I have an appointment with an LLMD on aug 23!  I can't wait to see what he'll say.   
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