Hi Knight 33!!!
Welcome to our forum!! I am really very sorry that you have had so much trouble with your health, but it does sound like some of our members stories. I'm sure you will find that we are compassionate, caring, & understanding. We really do understand what you have been through, as many of us are dealing with, or have dealt with the same situation or symptom. Also, may I heartily suggest that you read the 1st thread at the top of the forum entitled "New to Lyme?...Start here"? It has a whole bunch of info that would be beneficial to know.
Lyme Disease in Europe is a different strain that what is normally found here in the states & so it takes a different test to detect it & a different abx to treat it. Also, there are many, many different strains of tick-borne bacteria that have yet to be identified! As a general rule, Infectious Disease docs won't diagnose anyone they don't absolutely have to. They are on the 'other side' of a large battle about
taking long-term abx, basically.
I believe that there is enough evidence to say that each and every person will need a treatment that is as unique as they are. We all have our own set of health issues & weaknesses in our bodies. So your not being helped by the combo's of abx that you have already been on isn't terribly surprising. If you were diagnosed with Hashimoto's Thyroiditis, there are several people here - including me- that have had that diagnosis. I take Synthroid, but there are others here who take Armour though.
Another thing - a lot of us have very high titers with Epstein-Barr Virus. I was diagnosed as Chronic/ Acute & told that I would have a life-long problem with this. This will complicate most any other issue, as fatigue & sore throats are commons symptoms of EBV.
It can take as short as 2 weeks for Lyme to go chronic. At this point it is not very likely that enough of the bacteria is left in your blood stream, as the infection has moved to your tissues. I didn't test positive until I had been on heavy abx for a full year!!! Also LD is now the "New Great Imitator" - it used to be syphilis. It mimics many, many other diseases/conditions.
If you have seen a Lyme Literate MD & that person has told you that you do have tick-borne infections even though you test negative - you have just been clinically diagnosed!! That's what the CC guidelines actually tell docs they should do!! In my opinion, I would say yes to IV abx and as soon as you can be started, the longer you wait, the more opportunity these infections have to dig a little deeper & create even more misery. You don't have to have issues with your joints in order to have Lyme or any other tick-born infections. Yes, it can go straight into Neurological Lyme.
I think you would benefit from reading this article about
Neurological Lyme Disease www.psychologytoday.com/blog/emerging-diseases/200812/shadowland-the-mind-neurological-lyme-disease-part-one
I'm sure that others will be along soon to offer their opinions.
I wish you peace along your journey to health.
Even the mightiest oak tree was once a little nut who held it's ground!!!
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP