Lyrica for pain?

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georgiagirl
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Date Joined Oct 2007
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   Posted 8/20/2010 8:44 AM (GMT -6)   
Has anyone tried lyrica for pain? I'm suppose to start this soon but i'm worried about side effects.
I'm already trying to tolerate new abx. and having alot of dizziness with them....
The pain that I have is like an all over body ache, bone pain and neuropothy.
I do alot of detoxing but the pain is still very bad.
Any ideas?  

Mamyou
Regular Member


Date Joined Aug 2010
Total Posts : 317
   Posted 8/20/2010 10:44 AM (GMT -6)   
Are you sure the new abx you're trying to tolerate isn't also increasing the pain? I'm new to all this, but the word "new" in the context of adding new drugs to me means "more and worse"!!! I will leave the Lyrica side effects for somebody else to address since I've never taken them. Seems to me a friend of mine takes it and says it makes her sleepy?????

Willowrose
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   Posted 8/20/2010 12:01 PM (GMT -6)   
Are you concerned it may make the dizziness worse? I don't know about other side effects, but have a friend who tried Lyrica for fibromyalgia. She says she gained 50 pounds in two months and was taken off of it by her physician for that reason. She said she did not have any other side effect from the medication, and that it did help with her pain. If you can afford to gain some weight, or if weight gain isn't generally an issue for you, this may not be a problem. My friend has struggled with her weight for many years, so maybe she was susceptible to the weight gain side effect. I'm really sorry you are having so much pain. Minus the dizziness, it sounds like what happens to me. I hope you find a good solution soon.

Rose
I have Lyme; it doesn't have me.

CajunGrl
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   Posted 8/20/2010 1:26 PM (GMT -6)   
You will probably be better of trying Savella. You will not gain weight on it. It worked for me in the beginning, but somehow, my stomach starting acting up and I cannot take it anymore. Savella is alot safer than Lyrica.
, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Cymbalta, Darvon-N, Hydrocortisone, Plaquenil

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CajunGrl
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   Posted 8/20/2010 7:46 PM (GMT -6)   
Savella is not considered an anti-depressant but does work on the serotonin and norephenephrine inhibitors. If I'm not mistaken, I think Lyrica does the same thing but has more side effects. Don't quote me on that though. I just refused to take it because of all of the side effects it had. My nurse told me that there was a possibility of edema(swelling), suicidal thoughts and fatigue. Savella has something in it that helps with energy. Everyone reacts different to different medications though. You should do what your doctor says.

Why are you considering Lyrica? Do you have fibro?

lynniecat
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Date Joined Nov 2008
Total Posts : 51
   Posted 8/20/2010 10:26 PM (GMT -6)   
I am on savella, 10 days now and my pain is worse than ever. HOPING it kicks in soon. Its only marketed for fibro in US, but yes, its an antidepressant and very similar to cymbalta...

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 8/20/2010 11:48 PM (GMT -6)   
lynniecat,

Where are you from? Here, it is not used as an anti-depressant and I didn't find it worked like one either. It never changed my emotions or made me feel any different at all. All it did for me was lessened my pain and gave me a little energy. By the way, it takes up to 4 weeks for it to get into your system.

madrivergirl30
Regular Member


Date Joined Aug 2010
Total Posts : 205
   Posted 8/21/2010 2:41 AM (GMT -6)   
When I first got sick, I had been taking Neurontin (sister-drug to Lyrica) for several years for migraines. Because no doctor could initially figure out what was wrong with me, I suddenly found myself on a variety of additional drugs, one being Lyrica (I switched from Neurontin to see if it would help any more)... I don't remember having any side effects, other than pretty severe "dizziness" in the mornings, which went away after a while, and tingling in my fingers (also in the mornings), a common side effect of anti-seizure medications (I had also been on Topamax and Zonagran for migraines, so these probably also contributed to the tingling).

The dizziness I experienced was nothing like I have had from treating Lyme with antibiotics and Herxing...hardly even comparable. The Neurontin would make me literally clumsy and have to hold on to things when I first woke up...but the Herx reaction causes severe, actually sickening dizziness in my eyes and head...enough to cause nausea and a very uncomfortable feeling.

One day I just looked down at my pill organizer, full of all different shapes, sizes, and colors, and thought about how terrible I was still feeling, despite taking all the medications. It wasn't worth it to me (and I hate taking pills)...so I stopped everything but the antibiotic and the pain medication. Stopping medications abruptly is definitely not something that doctors advise, but for me it was a way to put an end to any additional insanity!

I have actually recently been thinking about and considering trying Lyrica (or Neurontin) again, without all the other stuff I was taking at the same time (prescription anti-inflammatories, anti-depressants, sleep medications, anti-anxiety medication, etc.)...to see if it might help. Every medication has a chance for side effects, but I would never put it on my "bad list." Neurontin can also really help with sleep... I think they're great drugs, but that's just my own personal opinion!

I hope you feel better - I've been in the same boat for almost three years now. It's gotten a LOT better but I still feel awful...just not spending my waking hours screaming and pacing and pleading with God! Please follow up and let us know how it goes if you decide to try it... One more thing - Lyrica is a LOT more expensive than Neurontin, so you may want to consider that, too!

Rachel

Deejavu
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Date Joined Aug 2005
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   Posted 8/21/2010 5:48 AM (GMT -6)   
Hi all,
 
I feel bad for those who have pain...  As far as Savella, it does act like an antidepressant as like Cymbalta, increases levels of the neurotransmitters serotonin and norepinephrine, which can be low in people with fibromyalgia. Savella, however, is the first drug reported to increase norepinephrine more than serotonin.   
 
The above is a quote from this article:
 
 
In any case, there is much talk going on about recalling Savella due to side effects, here is one article:
 
 
Hope everyone feels better,
Denise
It's all about Detoxing Daily, strengthening the Immune System mixed with a dose of Positive Thinking!
 
This song is about my years with chronic lyme since 1995 and being symptom free for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 
Currently taking Estrovera, ProgX (progesterone), Adrenotone Plus, CoQ10, Vitamin B Total, C, Green Vibrance, CALM (Magnesium/Calcium)

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 8/21/2010 1:25 PM (GMT -6)   
georgiagirl,

Just do what your doctor thinks is best for you. You may have to try different medications before you find the right one. That's what many of us with Fibro have to do. One may have side effects on Lyrica and another will not. This goes for every medication.

As for as the recall, I did really well on Savella until my stomach acted up, so don't be scared to take it if your doctor wants you to later on. Good luck with whatever you choose.

Deejavu- The only side effects I had was nausea and a fast heartbeat which was very tolerable. So for them to recall this medication when it actually helps people, makes me very upset. Savella got me up and moving around. I was bedridden for a year and a half. With Savella, I was up cleaning, washing clothes and cooking. I was doing things I hadn't done in a while. I wish I could still take it because it was a life saver. NOW, I'm back in bed again waiting to see how cymbalta works.
]Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis]
Prescription Meds: Cymbalta, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, CMK, Folic Acid, Fish Oil, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement


Co-Moderator Lyme Disease Forum

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/21/2010 3:17 PM (GMT -6)   
And...Lyrica has lawsuits and recalls too. And this is not the only one. There are plenty.

www.siskiyoudaily.com/news/x665158280/Local-woman-feels-effects-of-Pfizer-lawsuit


Since Deejavu posted the links for Savella, I wanted everyone to see that alot of these drugs have complaints. This lady 's vision deteriorated from taking Lyrica. Everyone needs to understand though, that these side effects are rare. Just like Levaquin causes tendon damage to some. I've been on it many times and it never hurt me in any way. If you have Fibro, the pain is horrendous. Supplements or herbs usually do not help this kind of pain. I tried it all before I ever thought about taking pain medicine or any prescription medication. When you are in so much pain, you weigh your options. Will the benefit outweigh the risk? Sometimes, you have to do what you have to do to function.

I don't know why, but on a forum, you will get more comments on how a medicine didn't work for someone then you will get good comments. I like to hear the negative too though about a medicine just in cause I experience that side effect, but when I first asked about Savella, there was ONE person, only one, that posted how it had helped them. I was very nervous to start it but glad that I did.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis
Prescription Meds: Cymbalta, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, CMK, Folic Acid, Fish Oil, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement


Co-Moderator Lyme Disease Forum

Post Edited (CajunGrl) : 8/21/2010 3:34:57 PM (GMT-6)


CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 8/21/2010 6:44 PM (GMT -6)   
Mepron made me feel really bad. I felt like I had the flu and it made me really tired. It could be the medicine making you feel that way. If it were me, I'd wait until i got off some meds and if you still have the pain, then find something to help. The antibiotics could be causing the pain as well. Are you detoxing?
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis
Prescription Meds: Cymbalta, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, CMK, Folic Acid, Fish Oil, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement


Co-Moderator Lyme Disease Forum

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 8/22/2010 2:43 PM (GMT -6)   
Acupuncture is proven to reduce pain levels - maybe you should give it a try!!

I am a little biased here, as I am finally getting the type of treatment I have needed for years, but a person could 'google' acupuncture & pain management.

Here is one link to ' WebMD' on the subject, although I do not agree with this statement that is made about chronic or serious illnesses, as I am finally getting some improvement with this type of therapy combined with Chinese & Western herbals :

""Importantly, don't rely on acupuncture for treatment of chronic or serious illness unless you see a doctor first. Acupuncture may not be the only way to improve your condition."" Bullarkey!!!

Here is the link;
www.webmd.com/rheumatoid-arthritis/guide/arthritis-acupuncture
Even the mightiest oak tree was once a little nut who held it's ground!!!
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

Deejavu
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Date Joined Aug 2005
Total Posts : 4296
   Posted 8/22/2010 4:58 PM (GMT -6)   
I always wanted to try acupuncture as I know people who swear by it..  One of these months I am going to try it, after things get more settled just out of sheer curiousity. idea
 
Traveler, I heard one does not feel the tiny needles, do you feel anything? 
 
Denise
It's all about Detoxing Daily, strengthening the Immune System mixed with a dose of Positive Thinking!
 
This song is about my years with chronic lyme since 1995 and being symptom free for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 
Currently taking Estrovera, ProgX (progesterone), Adrenotone Plus, CoQ10, Vitamin B Total, C, Green Vibrance, CALM (Magnesium/Calcium)

madrivergirl30
Regular Member


Date Joined Aug 2010
Total Posts : 205
   Posted 8/23/2010 3:11 AM (GMT -6)   
I did several sessions of acupuncture when I first got sick and was desperate for anything that might help (I even went to an alternative healer, which was basically a joke - I believed more in Reiki and energy before I got sick...at this point, it's hard to believe that anything other than good old Western medicine is going to help!).

The acupuncture did nothing to alleviate any pain - I think most of the time it was actually more painful to go to the office and lay on the table for the amount of time needed, and get back home to bed. If anything it may have helped relax me for the brief time I was there, and possible afterward, too. The needles didn't hurt at all - I hardly even noticed them. They're so tiny and really don't penetrate very far. I think it's worth giving it a try to see if it might help you - my father quit a heavy smoking addiction through acupuncture about 25 years ago, and I don't think alternative medicine is really his style, so it was pretty amazing. My mom and sister have also used it throughout their lives for neck, shoulder, and back pain - fairly successfully. I know they can also use heat (and possibly cold?) through the needles, too.

Good luck! I hope it helps!!!

Rachel

Deejavu
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Date Joined Aug 2005
Total Posts : 4296
   Posted 8/23/2010 4:25 AM (GMT -6)   
Hi Rachel,
 
Thanks for explaining!  I don't have any pain, I am just curious..  I could use help in the relaxation department as I am in the process of moving though my portable sauna helps with that..  very relaxing..
 
I'm just a very curious person (sometimes too curious!)..  The only thing I could think of that I am NOT curious about is bungee jumping!  LOL!  No way would I ever try that as well as rock climbing..  I'm scared of heights!
 
Denise
It's all about Detoxing Daily, strengthening the Immune System mixed with a dose of Positive Thinking!
 
This song is about my years with chronic lyme since 1995 and being symptom free for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 
Currently taking Estrovera, ProgX (progesterone), Adrenotone Plus, CoQ10, Vitamin B Total, C, Green Vibrance, CALM (Magnesium/Calcium)

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 8/23/2010 8:19 AM (GMT -6)   
LOL, Deejavu!!! There are actually quite a few things that I won't even consider doing - bungee jumping (I have no desire to find out just how many times that big rubber band can actually return me safely!!

I also don't see the reason for things like skydiving - why jump out of perfectly good airplane??? confused Giggle!!! smilewinkgrin

Okay, I'll get a little more serious!

Deejavu- As Madrivergirl said, the needles are very small & thin. Every once in a while, if the acu doc is being aggressive in my treatment (which is, of course what I'm after) they can sometimes set a needle right down on top of a nerve , which can be a little painful, but they are NOT supposed to hurt!!! So a good acu doc will either re-set the needle or remove it completely. Unfortunately, a lot of docs want to just "help a
little with the symptoms", rather than actually dig in deep to help correct malfunctioning systems. These kinds of acu docs are giving the rest a bad reputation. Acupuncture & Traditional Chinese Medicine has bee the only things can help me to get to a healthy & active lifestyle! I was under the care of one back in 2005 - when we were in Ca.- and I quite literally have never felt better in my whole life & at that time I hadn't realized that I was carrying around a bunch of tick-borne infections!

After going through a whole bunch of them trying to find someone who is serious about helping their patients get back to being healthy - I found one in a quaint little town about an hour away from my house! I have experienced more help from this acu doc that I am now under the care of, than any of the 'Western Medicine' docs I have seen in the last 5 years.

I'm not trying to convince anyone to go to an acu doc - I'm just relating my experiences. Please forgive me if I stepped on anyones toes!

Here's a website for those who are curious;
www.acupuncture.com/index.html

On the left side, near the top of the page, click on the 'button' that says "Patients".
Even the mightiest oak tree was once a little nut who held it's ground!!!
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav
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