does anybody have to play catch up after a "spell?

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rosesinjanuary
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Date Joined Oct 2007
Total Posts : 748
   Posted 8/26/2010 10:03 AM (GMT -6)   
I have had a few very bad days, legs feel like tree trunks knees ache  pins and needles in my neck as well as a lump and NO energy,  Idon't know how long this one has lasted but  am trying to pull out of it the problems with pulling out of it is its overwhelming the things I have to catch up on..  I try to do as much as I can when sick to avoid this but its sometimes its inevitable. I fall behind.  Got my hair washed last night scrubbed my whole body to clear off the sweat did a load of laundr  y,  What a way of life this is. I am also positive stress can make these down periods worse as  we board our horses at my fathers, and he or my brother do not believe they are obese so they were letting them out, and making it look like they got out. (into very rich pasture)  Just what we need more problems. Two of them are so heavy my vet and farrier can't believe they haven't foundered.  Once they founder its pretty much over. but the thought that my family would do this and the extra work it put on hubby did not help me get bettter. college is starting also so there is money to figure out and disperse, college is not cheap and I feel like crap iI can't bring money in to help.  but this semester looks like its going to be paid for so one semester at a time. but its stressful.  thank god for god and for places like this to vent I do not talk to my regular friends about this stuff they just know I am a little limited depending on the day.  thanks for letting me vent  I have togo to the bank today, darvicot should be getting in pretty soon to make moving and getting dressed easier.

Mamyou
Regular Member


Date Joined Aug 2010
Total Posts : 317
   Posted 8/26/2010 5:39 PM (GMT -6)   
It's stories like yours that make me grateful to be as well as I am. Whenever I have a day that I feel like being up I try to do all I can because I know down days are coming. As for your horses...If they're causing that much grief at your father's house, can't you find a neighbor that will board them? Your father's place might be cheap or free, but is it really???? I think all the folks here in the forum are used to hearing people vent...and offer encouragement. I hope you have some up days pretty soon....

rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 8/26/2010 8:39 PM (GMT -6)   
thank u, I am better and the horse problem is resolved!! You are very smart in doing when you can "do" I try to do the same.

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/27/2010 10:20 PM (GMT -6)   
I can't do anything lately, I actually felt ok the first few days while on abx. Now I feel like I literally carry the whole world on my shoulders, my legs, my sholders, my fingers and arms hurt. I hope this will resolve soon. I started painting before I went on abx and I have the roller sitting in the paint for ohhhhh I forgot how many days now! Husband is not doing much, he helps a little with the cleaning and doing the dishes. His job is quite stressful, they are laying off a lot of people.  THis is round 4 of layoffs.  I am still cooking, but watching my children is taking my whole day. Baby is being v. fussy since I started abx. I am still BF, I don't know if I should stop.  I called her doc and she said if I am on abx is ok to bf, but who knows?  I am so exausted, I can't get anything done except cooking and laundry, and even that is a challenge! I am here on the forum because I learned a lot, I wish I came here 2 yrs ago, when I first got the symptoms!

I feel so overwhelmed by the things I should be doing, but I need to concentrate on my health, so that is my top concern right now.  Hoping that I will get better is what gets me going.

Post Edited (Simela) : 8/27/2010 10:24:03 PM (GMT-6)


rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 8/28/2010 12:58 PM (GMT -6)   
you poor thing. the abx is probably causing a herx from hell. Is it just one child, a baby u have? I would do only necessary things and rest whenever possible, Maybe iconsider letting up on abx iif its too bad. I had too a couple of times it was just too much dieoff.
the stress of possible unemploument is probably killing you, remember there is unemployment and I am going to pray he doesn't get laid off. When I was first sick I had a baby and a 2 year old and my husband lost his job as an airline pilot I cried and I cried and I cried and guess what it all worked out. Actually he helped more being home. And I am not good at much but I can budget and I think I got some govt help although i don't remember what, Hang in there priorotize what HAS to be done give the rest to God. Remember hon hubby is worrried about u and his job its hard for him too. I have probably asked before (memory gone) do u have relatives that can helP?
do u have enough money to hire someone to do laundrry and clean? Don't worry if u don't I didn't and we made it. I did journal a lot though I had so much confusuion and fear and worry putting it down on paper (hide it) helped get it it out of me. Im thinkin and praying for u.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35705
   Posted 8/28/2010 3:32 PM (GMT -6)   
Please don't stop abx on your own. Talk to your doc. Rest whenever you can. Try to get your 'sleep hygiene' as good as you can.
Here is a little tidbit I copied from here;
http://www.naturaworld.com/blog/index.php/sleeping-with-lyme-disease-2403

Sleep hygiene and lyme disease

For Lyme patients, ‘sleep hygiene’ plays a vital role in the maintenance of everyday health and well-being. Supporting the internal clock with healthy sleep habits and a sleep-inducing environment helps.

* Tuck-in at the same time every night and wake-up at the same time every morning. Maintaining a regular sleep routine goes a long way to signaling when it’s time to nod off.
* Skip the coffee, tea, chocolate and any other stimulants that challenge drifting-off. If coffee is a must in the morning, opt for decaf or switch to herbal tea.
* Draw the blinds. Make your bedroom as dark as you possibly can for sleeping. The sleep-inducing hormone, melatonin, increases in darkness. Boosting melatonin levels equals more shut-eye.
* Shhhh! Keep it quiet. Take the TV to the den and keep the computer out of your bedroom. Clear your room of electronic gadgets to minimize sleep disruption.
* Practice calming, stress-relieving behaviors before bed. Lyme sufferers often struggle with related anxiety and depression. Calming behaviors like prayer, meditation, and gentle stretching (not cardio) can relax the body before lights out.

----------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------
Another thing that helped me was using lavender oil. Every night I would put a few drops of lavender oil on a piece of fabric, put that piece of fabric into a sandwich baggie - leaving it open, I would then slide the baggie under my pillow at night. I also take melatonin & magnesium oxide at night , just before bed.
A good herbal tea is Celestial Seasonings "Sleepytime tea". (I in no way receive any type of compensation from this company).

Hope this helps a little.
(((Hugs)))

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/28/2010 3:47 PM (GMT -6)   
Ok, I am much better today, so maybe it was herx. A bit tired because Sat is my catch up day, but thank God, no more feeling horrible! So, I am having a pretty good day, I do have pain but is manageable and NO brain fog! The brain fog is the worst for me!

rosesinjanuary
I answered that ? in a previous post, I do have a mom and sister (father passed away), but I live in PA and they are in NY. They work FT. My sister was here for a whole week helping me. Mom comes once a month for 4 days. She is burning her days off to come here for 4 days, because it takes about 5 hours from her house to mine. Anyway, as long as I don't get worse, I can manage. It is the fear that I may become unable to walk that scares me to death! Oh, my kids are: 9 mo, 5 yrs and 6 yrs. The 6 yrs old is starting school on Monday and he will be there until 3 pm.

Trav:
I won't stop abx, as long as I feel it is doing something, I will keep taking it. I have an appointment with my PCP on Tuesday and I am hoping she will give me at least another week. I will be seing my LLMD for the first time on the 16th and I will let you know how that goes. I got confused earlier about the days, so I told you the wrong day, but I will let you know how it goes. Thanks for all your suggestions. I am enjoying the kefir smooties. I didn't buy any yet to make my own.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35705
   Posted 8/28/2010 4:01 PM (GMT -6)   
When you are ready to make kefir at home, shoot me an email please. You don't have to purchase a 'kit' to make kefir.

I am so glad to hear that you are feeling better today!!! turn

How wonderful your family has been!! Driving down to help you out like that!!!

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/28/2010 4:10 PM (GMT -6)   
Trav:
I posted this on a different topic: My sis is going to nursing school. She "STUDIED" infectious diseases last semester. I asked her what she knows about lyme and she said "you get it from an infected tick". I said, how about co-infections? She said she didn't learn that part. She is graduating next fall. She said there were only 2 rows about LD in her text book! No wonder the med. community is so clueless in treating it!

I am going to start making some waves around here to try to wake people up, as soon as I feel better!

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35705
   Posted 8/28/2010 4:26 PM (GMT -6)   
Go get 'em!!!! giggle!!
Even the mightiest oak tree was once a little nut who held it's ground!!!
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 8/28/2010 4:46 PM (GMT -6)   
I will do my best, Trav! LOL You know, it really worries me, bec. my son has trips at school and they go to farms, and no one in school is warning the parents about how easy you can get LD!

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35705
   Posted 8/28/2010 5:28 PM (GMT -6)   
Most have no clue they need to worry about LD!! There are programs for schools that will educate not only the teachers, but the students as well.

Here is a link for LDA to the section on Lyme education
www.lymediseaseassociation.org/index.php?option=com_content&view=category&layout=blog&id=12&Itemid=49
Even the mightiest oak tree was once a little nut who held it's ground!!!
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 8/28/2010 7:37 PM (GMT -6)   
I too was afraid I would wake up one morning and not be able to walk, I had totally forgot that. It was in the begnning that I held those fears and also mostly in the beginning when the herx was so bad doc said for god's sake stop them. Looking back it was hell now I just live around my limitations but If i had not been aspleenic I think I'd be better. my vet cousin got it and does a lot better than me, he c/o his wrists but functions and worksm as a large anmal vet!! Glad u are better isn't this disease insane? It is no wonder people have trouble believing it, For those with hubbies who doubt they wont doubt for too long. I felt fine at noon then a few hours ago back started to hurt went to sleep now knees and legs are singing took a pill. I'd love to do the sleep thing described but have never been able to.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35705
   Posted 8/29/2010 9:59 AM (GMT -6)   
I went through a period (twice now) where I couldn't hardly walk. My legs would just freeze up. The harder I tried to get them to move the more 'locked' they became. Once I would relax though, sometimes it would allow me to move - VERY slowly, but I could get my legs to move a slight bit at a time. Talk about frustrating!!!! I do still have momentary bouts of this, but it usually only lasts 10 - 15 minutes at a time now.

The rapid changing of symptoms is one of the reasons my hubby (& me too!) had trouble understanding. That is also something that seems to make it hard for a lot of people to believe that we aren't making this stuff up! When I first started seeing my gp (a couple of years ago now), he would - of course- ask me how could one person be experiencing all of these symptoms, being slightly skeptic. I would tell him - every time - Believe me, I feel bad enough that I don't have to make up ANY symptoms, I'm here to hopefully get rid of some!! He's generally a good doc & he has learned a lot about chronic LD, & Lyme arthritis among many other 'Lymie" things through me.
Even the mightiest oak tree was once a little nut who held it's ground!!!
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav
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