Thanks so much for your replies!
I actually made a mistake--the + lyme tests were throughout 2009 AND 2010.
The MRI will cost me $80 or more out of pocket. Then I will have to go to a neurologist, which will cost me another $40 out of pocket (my co-pay). My PCP costs me $20 out of pocket. Problem for me right now, is the expenses (especially if they are not necessary), but also the fact that the MRI may work against me with the insurance
if it doesn't show anything? They may deny me treatement or may even say its all "in my head" or help the infectious disease doc diagnose me with MS and call it quits--this will not solve my lyme+coinfections diseases, so I am thorn on getting it or not. If the LLMD finds it necessary, than I don't mind going to have it done, I just don't like wasting $$$.
Exactly my point: why have the mri if the tests are +? I think he said something about
treating with Rocephin for the CNS IF neurologist sees it fit to do so. How long should I wait until I get some treatement? Waste of time and $$! I don't even blame ONLY the docs--I think they are covering themselves and those tests are probably required by the Ins
. companies, so that they find a reason NOT to pay for treatement.
What you are pointing out is what I am afraid I will run into. The testing probably won't stop here, the neurologist will ask for something, than they will go back and forward, instead of treating me. Yes, Spinal tap is not very accurate for lyme --that is my understanding also and I don't know why anyone would bother to do tests that are useless, but I think IF you get lucky and you get a + test, it is a big win
over. What a shame this whole think is!
I will ask my PCP for more abx and to check my
thyroid and adrenals.
Thanks so much!
Post Edited (Simela) : 9/2/2010 8:32:10 PM (GMT-6)