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scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 9/2/2010 11:25 PM (GMT -6)   
Hi All, 
 
Has anyone ever had high levels of lead or lead toxicity?  I just received the results from a heavy metals test that indicate high levels of lead.  I'm just so confused and beyond the point of being able to deal with this right now.  I have absolutely no idea how or where this would come from because I only drink filtered water that supposedly removes 98-99% of lead. 
 
The reference level on the testing was <2 and mine came back 7.7.  Of course many of the symptoms of Lyme overlap.  To name just a few of the many symptoms I have:  loss of IQ, loss of appetite, constipation, anemia, neuropathy and encephalopathy.  Also want to mention that I did the urine test after provocation with DMSA. 
 
Anyone have any experience with this sort of thing?  It took every bit of strength just to write this post and I'm beyond the point of researching and investigating....for now anyway.
 

Mamyou
Regular Member


Date Joined Aug 2010
Total Posts : 317
   Posted 9/3/2010 7:47 AM (GMT -6)   
Is lead your highest? What about the other heavy metals: mercury, cadmium, aluminum, etc. Not sure what your age is but I'm from the era of lead based paint and leaded gasoline.

mainegirl
Regular Member


Date Joined Aug 2010
Total Posts : 61
   Posted 9/3/2010 12:22 PM (GMT -6)   
scopio1960,

Amazing u ask this question 4 weeks ago I got my heavy metal test back and I was off the chart with lead toxcity. I will get my result paper and tell you what my level was later on.

I to had other things I had thallium? what on earth or where could I have got that. or the lead?
would be interested in hearing what else you had that showed up.


Marlene

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 9/3/2010 3:58 PM (GMT -6)   
Mamyou, I'm 49 years old but don't believe I was around much paint when I was child although maybe I'm just not remembering....highly doubt I ever ate any paint chips...lol! We lived in my great aunt's house and all rooms were wall-papered which probably added to toxicity in other ways. Tungsten was only slightly elevated so I'm not too concerned about this.

Marlene, What did you doctor advise you to do about the Lead? All metals, other than Tungsten, fell within the reference range. Tungsten was only slightly elevated at 0.7 (reference range of <0.4).

I do want to mention that my internist said that when provocation is used prior to testing, she rarely sees anyone who has all levels fall within the normal reference range so I'm not too concerned about the Tungsten but the Lead exceeds three times the upper expected limit...ugh!


What the heck is going on with us? I had to specifically ask for this test to be done so I wonder how many of us are dealing with heavy metal toxicity and don't even know it. I think my llmd said the urine tests for heavy metals are more sensitive than the blood tests but again I'm not sure if I'm remembering correctly.

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 9/3/2010 4:18 PM (GMT -6)   
I just read an article that said children exposed to second-hand smoke tend to have higher lead levels than children who are not exposed to second-hand smoke. I grew up in a house surrounded by a large extended family, all who were chain smokers. Believe it or not I never even tried smoking once but was constantly surrounded by people up until around the age of 29 when I divorced and turned my home into a non-smoking one. Then again, I frequently hung out with friends, once again all who smoked...ugh!

I couldn't find too much on second-hand smoke and lead levels but this one article has me thinking it could be a possibility.

Do you think it's feasible that this could be the cause?

mainegirl
Regular Member


Date Joined Aug 2010
Total Posts : 61
   Posted 9/4/2010 8:32 AM (GMT -6)   
scorpio, thats interesting about the smoking article I also grew up with alot of chain smokers but I also do NOT allow smoking in my house.

My lyme Dr always does heavy metal testing on all patients which is a good thing.
he gave me dmsa and some vit and minerals.

but I heard online here that getting lead out of your system should be done with something so now I'm scared to do it?

I don't meaan to sound stupid but what does provacation mean before testing I don't understand ?

what did your Dr tell you to use to detox lead? my Dr also does cortisol and adrenals testing with salvia waiting on those results have no Idea what that would show?

Hope your having a good day today. marlene/mainegirl

mainegirl
Regular Member


Date Joined Aug 2010
Total Posts : 61
   Posted 9/4/2010 8:32 AM (GMT -6)   
scorpio, thats interesting about the smoking article I also grew up with alot of chain smokers but I also do NOT allow smoking in my house.

My lyme Dr always does heavy metal testing on all patients which is a good thing.
he gave me dmsa and some vit and minerals.

but I heard online here that getting lead out of your system should be done with something so now I'm scared to do it?

I don't meaan to sound stupid but what does provacation mean before testing I don't understand ?

what did your Dr tell you to use to detox lead? my Dr also does cortisol and adrenals testing with salvia waiting on those results have no Idea what that would show?

Hope your having a good day today. marlene/mainegirl

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 9/4/2010 1:07 PM (GMT -6)   
Hey Marlene, Provocation refers to taking DMSA before taking the first urine sample. It seems as if you did this also.

I'm pretty sure my llmd did blood work for heavy metals last year that came back negative but I was the one who wanted to pursue it further...that's when he suggested the urine testing that was arranged through the internist.

I also had the saliva cortisol testing done. It came back slightly low but not nearly as bad as the llmd and internist expected....strange!

The internist mentioned chelation for the elevated levels of lead and said we would discuss it further at my next appointment. The thing that's really bugging me is how, when and where the exposure came from. If I don't know how can I eliminate it.

If you remember, I'm interested in the results from your testing and also what your doctor recommends for the lead toxicity.

Hope you're having a good day too.

Valerie

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 9/4/2010 1:14 PM (GMT -6)   
P.S. No questions sound stupid. That's what we're all here for...to learn from each other and there's certainly a lot to learn when it comes to this darn disease and all that goes along with it and then add in the brain fog and forget about it...lol. The problem I have is that I quickly forget anything I do learn so tend to ask the same questions over and over...ugh! I would be lost without this forum and all the great members so willing to share.

mainegirl
Regular Member


Date Joined Aug 2010
Total Posts : 61
   Posted 9/5/2010 9:29 AM (GMT -6)   
valerie,

sorry it took forever but here's my results. lead -11 mercury6.8 suppose to be 4

gadolium1.2 suppose to be 0.4 I guess to me thats not bad?
creatinine suppose to be 35-225 mine was 18.7? don't even know what that is ? theres also others. barium not to bad but is elevated 9.1 suppose to be 7 the lasttime I had test for heavy metals was about 10 yrs ago and had arsenic off the chart the dr thought it might be our well water. we had it checked sure enough it was in our water.

my Dr gave me DMSA FOR CHELATION ONLY WEEKENDS the pharmacy gave me something called chemet?

I am so sick of pills and IV's I have a hard time with anything new always have to push myself when it comes to taking another pill.

so there u go where on earth do we get these heavy metals from?

marlene

scorpio1960
Veteran Member


Date Joined Jan 2009
Total Posts : 914
   Posted 9/5/2010 8:02 PM (GMT -6)   
Thanks for responding again Marlene. I wish we knew where all of this is coming from so we could avoid it. I guess I should get my water tested and not trust that the water filter I have filters out lead as advertised.

I'm also so sick of pills. I counted this morning and I think I take about 24 every morning, approximately 15 every aftrnoon and 24 again at night.

It's good to know that you only need to take the DMSA on the weekends. Do you have any idea how long you'll need to take it?

The internist did ask me if I had a reaction to the DMSA when I took it for the testing but I don't remember feeling any worse than usual...not exactly sure what type of reaction she was referring to.

Good luck Marlene!
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