anyone with muscle twitching as their only symptom?

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josh1983
New Member


Date Joined Jul 2010
Total Posts : 19
   Posted 9/3/2010 10:21 AM (GMT -6)   
I've been dealing with muscle twitching as really my only major symptom since shortly after noticing my bulls eye rash in May. 
 
Other than the frequent twitching (have twitching once every 2 or 3 minutes on average) that happens just about anywhere in my body, I can honestly say I feel great and for the most part always have.  I did recently see a LLMD and am taking minocycline as an antibiotic, but have yet to notice any difference at all.  It been 3 months and I feel like I haven't herxed at all, just twitched.
 
Anyone else having or had similar experiences in the past?  Hopefully my LLMD can get to the bottom of this. 

rasputin26
Regular Member


Date Joined Aug 2010
Total Posts : 30
   Posted 9/3/2010 4:46 PM (GMT -6)   
I have alot of twitching all over including my eye. Since starting Doxy, it has gotten better. I do have other symptoms though!

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/3/2010 7:12 PM (GMT -6)   
Hi josh,

Welcome to the forum:) Muscle twitching is a symptoms of Lyme. In fact, I had this for years before I started getting worse. It looks like you are laready on antibiotics though, so you seem to be on the right track. Also, your immune system may be strong enough to fight this infection off thus only giving you muscle twitching. if I were you, I'd just keep an eye on everything and consult with an LLMD if it gets any worse.

Since you did have the bulls eye, how long were you put on antibiotics?
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis
Prescription Meds: Cymbalta, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, CMK, Folic Acid, Fish Oil, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement


Co-Moderator Lyme Disease Forum

josh1983
New Member


Date Joined Jul 2010
Total Posts : 19
   Posted 9/3/2010 7:48 PM (GMT -6)   
I got the bulls eye rash in early May and I immediately went to the ER. The ER doctor prescribed me 21 days of doxycycline which I took. Twitching started shortly after I began doxy and has yet to stop. I had my 1st appointment with my LLMD a few weeks ago, and have been on minocycline for 2 weeks.

So I was on 21 days of doxycycline in May, and just began taking Minocycline a few weeks ago. I do feel like I'm in good hands now with a LLMD.

I'm currently a physical therapy student, and the twitching is really bothersome when I'm trying to concentrate in class and keeps me up at night.

I know lyme can be a lot worse than I have it at this point, but I just want to be proactive and beat this early.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 9/4/2010 3:30 PM (GMT -6)   
Hi Josh,
It sound like you are definitely on the right track!! You should ask your LLMD for something that will help either control or at least slow done the muscle twitching.
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 9/7/2010 4:36 PM (GMT -6)   
Muscle twitching was my first symptom. At the time I didn't know I had Lyme. Thought it was MS starting or something. It used to freak me out. It wasn't till after 3 months of twitching I got really sick. So stay on treatment so you can nip it before it gets worse. I wouldn't just "live with" a symptom because it's not that bad. As it can get bad fairly quickly. Hope you are on the road to better health!

josh1983
New Member


Date Joined Jul 2010
Total Posts : 19
   Posted 9/7/2010 6:39 PM (GMT -6)   
thank you for the replies and insight.  This muscle twitching is really freaky.  I'm really hoping it goes away soon.  Those of you with muscle twitching, did it eventually go away with treatment?

Lovelabs
Regular Member


Date Joined Jun 2009
Total Posts : 367
   Posted 9/7/2010 7:07 PM (GMT -6)   
Has improved, but I still get it. Usually when I am herxing, and yes it is pretty freaky.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 9/8/2010 11:20 AM (GMT -6)   
I have just started into treatment, but I have every confidence that not only this, but most of my symptoms will fade into the background.
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

josh1983
New Member


Date Joined Jul 2010
Total Posts : 19
   Posted 9/10/2010 12:54 PM (GMT -6)   
just a follow up here. I had several blood tests a few weeks back ordered from my initial appointment with my LLMD. I received a letter in the mail today from my lyme doctor saying my Vitamin D3 levels were very low. He wants me to begin taking 10,000 iu of Vitamin D3 daily, and follow up with more bloodwork in 6 weeks. So hopefully I'm on the right track.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 9/10/2010 5:26 PM (GMT -6)   
There are quite a few Lymies that are low on Vitamin D. Since I have some pretty serious issues with getting overheated too easily, I'm not usually out in the sun enough, so I have started supplementing with Vit D as well.
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav
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