Insurance, IV treatement vs pills--what is your experience?

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Simela
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Date Joined Aug 2010
Total Posts : 552
   Posted 9/6/2010 11:48 AM (GMT -6)   
I know most LLMDs don't accept insurance.  How about the IV treatement?  Did your insurance pay for it if it was done by a dr that doesn't accept your insurance?  How long (how many months) did your insurance pay for IV and how much does your IV costs?  Please share your experience with others and specify what kind of insurance you have.  I have Keystone Health Plan East.

Also, I see that some people have been on abx for several years.  What kind of abx did you take, IV or pills? 

Thanks!

Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 9/6/2010 2:19 PM (GMT -6)   
Did your insurance pay for it if it was done by a dr that doesn't accept your insurance? -- My office visits were covered, but not the IV treatment.

How long (how many months) did your insurance pay for IV and how much does your IV costs? -- I did outpatient IV rocephin treatment, 2x per week at $125.00/treatment for six weeks. I paid cash at each treatment.

Please share your experience with others and specify what kind of insurance you have. -- I have Keystone Health Plan East. I have Blue Cross/Blue Shield.

Also, I see that some people have been on abx for several years. What kind of abx did you take, IV or pills? -- I was also on oral ceftin for about seven months.

Simela
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Date Joined Aug 2010
Total Posts : 552
   Posted 9/6/2010 3:30 PM (GMT -6)   
 I was also on oral ceftin for about seven months.
 
 Did your insurance pay for the 7 months of oral treatement?
 
Thanks, Caldonia.

Post Edited (Simela) : 9/6/2010 3:35:10 PM (GMT-6)


+Lyme
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Date Joined Apr 2009
Total Posts : 1304
   Posted 9/6/2010 4:44 PM (GMT -6)   
All I know to chip in here is what my LLMD said. He is an ID Dr and said he has no problem keeping someone on abx for life, if necessary. I asked how he managed to keep out of trouble, like other LLMDs. He said it was because of oral abx as opposed to IV. He said he can't get anyone any more than 4 (I think) weeks of IV abx, regardless of what they have!
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 9/6/2010 5:47 PM (GMT -6)   
+Lyme:

That answers my question, thanks so much! If not detrimental to my health (I will talk to my LLMD about it), I would like to stay on orals and milder abx for at least 3 more mo to nurse the baby.  She is 9 mo old.  I am scared she may be sick and my antibodies may help her get better. She is pale and she has dropped in weight from the 25th percentile to the 5th.  I got sick with lyme and then while I was taking the 3 week abx (that was supposed to cure me), I got pregnant with her. My lyme never went away and I had mild symptoms during pregnancy, got tested on 4 different occassions--only my GP did not know how to read the tests and he did not treat me at all throughout the pregnancy. When I realized I am getting worse and worse, a couple of mo ago, I changed PCPs. A little late for my baby... I did not know about LLMDs until I started posting here about 1 mo ago!

May I ask what oral abx did your llmd give you and for how long?  Are you still on treatement?  Did your insurance pay for all your orals?  How about Dr. visits?  What insurance do you have?

 Thanks!

Post Edited (Simela) : 9/6/2010 6:08:17 PM (GMT-6)


Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 9/6/2010 5:56 PM (GMT -6)   
Yes, insurance paid for orals, I only paid a small co-pay.

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 9/6/2010 6:27 PM (GMT -6)   
Thanks Caldonia! 

I have my first appointment with my LLMD on the 16th and I will see what the best approach is for my situation.  I am breastfeeding and I see that Rocephin crosses in breast milk. 

Did you find it more beneficial to do the IV vs Orals?  Was the Rocephin prescribed to you because it is safer on your stomach or because it is absorbed better or both?  What are the benefits of it?

Thanks!

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/6/2010 8:17 PM (GMT -6)   
Simela, I am on augmentin, 875, 125, twice daily. Late last year I took 3500 mg/day of Amox without the part that makes it augmentin. Augmentin is supposed to fight resistent bacterias.

My last LLMD said he often treats w/ a shot of penicillin every week and said he would train me how to do it. He believed this could be a very effective, in treating LYme. And it is cheap. He said he could give whalloping doses by injection and by-pass all the stomach problems.

Just something think about and consider.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.

Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 9/6/2010 8:37 PM (GMT -6)   
My LLMD suggested IV rocephin because I was having intense neuro symptoms, couldn't tolerate doxy (intracranial hypertension) or biaxin (GI troubles) and am allergic to penicillin. He thought (and was right) that the IV would help me get better faster. IV delivery is easier on the stomach. I was ok throughout the treatments. Towards the end, I started feeling some intestinal discomfort, but it went away when we stopped. A year later, I am glad I went that route.

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 9/6/2010 9:07 PM (GMT -6)   
+Lyme:
I feel like I am on a sugar pill or something. I took amox for one month now and I don't see any improvement. My GP gave me 1500mg/day--no augmenting. A shot of penicillin I could do--I have done it before.

Caldonia:
Have you been symptom free for one year? I do have some neurological problems (in my worst days more than in my good ones). On one hand, I am concerned that if I stay on light oral abx I may get worse, on the other hand, I must think about the baby also, and try to come up with the best decission for both of us.

Thanks!
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