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Melissa J
New Member


Date Joined Sep 2010
Total Posts : 2
   Posted 9/6/2010 5:15 PM (GMT -6)   
My 20 year old daughter had several blood test ran recently, one being Western Blot. She had all negative IgM and positive IgG band 18 and 23 (Quest Labs) of course results say negative for Lyme using CDC criteria. She also tested postive IgG Mycoplasma levels of 2.09 with reference range of >.90 is positive. She has been diagnosed with PANDAS pediatric autoimmune nueropsychiatric disorder assoc with strep.
She has OCD, motor and vocal tics, ADD, impulse control, asthma, along with other things since she was two years old when she started getting strep throat quite often. She definitely fits the PANDAS diagnoses well but now i,m concerned about Lyme results. Does these two bands show cause for concern? We live in Virginia. She has never had bull eye rash that we know of but we have found ticks on her a couple of times over the years.
Thanks in advance for any thoughts.

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/6/2010 5:28 PM (GMT -6)   
Melissa, well, it sure looks like her Mycoplasma levels are a problem, but I don't know much about Mycoplasma. AS for her WB bands, 23-25 are outer surface protein C (OspC), specific for Bb, so I believe that is significant. From everything I have read and based on what my Dr has said, just one species specific band indicates Lyme. There are no false positives on WB bands. (ie; one can get a false positive TEST, simply because the CDC counts so many bands that are NOT lyme specific, but the bands themselves do not falsely show positive)

Now, it is possible that it indicates a past Lyme infection and not an active infection, so diagnosis depends on all other clinical data, plus other lab work that can support an active infection diagnosis.

I am sorry but I do not know anything about her other issues.

I have a daughter as well, so I sympathize with you and your concerns. I hope you have a good Dr, and even if you do, perhaps getting more opinions in this would be in order, because her issues sound severe.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 9/7/2010 5:30 PM (GMT -6)   
Hi Melissa!!
Welcome to our forum!! I am really sorry that your daughter has been so ill, but you have come to a good place for support, understanding & information!!! It would really benefit you to read the thread at the top of the forum titled "New to Lyme?...Start here" There is a bunch of reliable info contained in there.

It is possible that most if, not all, of her symptoms could be caused by Lyme & co-infections. I would suggest you get her in to be seen by a qualified Lyme Literate MD (LLMD) as soon as possible. The fact that she didn't get the typical E.M. rash really doesn't mean much. I have had many rashes since being infected, but none that looked like an EM rash. Although if the tick had lodged in her scalp & if she had an EM rash at the site of the bite, it's quite likely that it would go undetected.

Please don't wait on getting her treatment, because the longer she has a tick-borne infection, the deeper into the tissues it will go. She sounds a little like the way things happened with me. At the age of 5 I had been infected with RMSF, only there was no known treatments or testing waaaaaayyyy back then. So I have gone under treated & untreated for any tick-borne illnesses practically my whole life. I started noticing than no one else around my age didn't have the kinds of issues I was having trying to live a 'normal' life. So when I started really looking at Lyme & other co-infection and saw the "extensive" list of symptoms - my life suddenly made sense!!

I hope this bit of rambling helps someone out there!!!! :)
May each of us find peace along our journey to health.
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav
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