Tendonitis that NEVER leaves.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 9/8/2010 10:37 AM (GMT -6)   
The tendons in my feet, ankles, and legs have been really bad, especially my feet. I wore air casts for 6 weeks and they got a little better. The minute I stopped wearing them, the problem is back. My SED is really high, which means I have an inflammatory process going on. what do I do???? please tell me what you know, I am in pain. thanks.

stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 9/8/2010 10:41 AM (GMT -6)   
Does a high SED rate CAUSE the inflammation, or is it just an indicator that the body is inflammed???

Caldonia Sun
Regular Member


Date Joined Aug 2009
Total Posts : 310
   Posted 9/8/2010 11:55 AM (GMT -6)   
SED rate is an indicator of inflammation.

I have had tendon problems in several tendons for the last ten years. Ankle, foot, hip, shoulder, elbow, hand. I've had PT for all of them, some multiple times and it really helped. I have to keep everything stretched and make sure I get some exercise, but not too much as to overdo and cause more pain.

I did read that lyme can get into tendons, but also some abx are known to cause tendon pain, such as the quinolone family - cipro, levaquin, avelox. I notice more tendon pain when I'm on any abx which makes the doc scratch his head and say, "I've never seen that." Yeah, I make this up :-(

stutterbug
Regular Member


Date Joined Jul 2007
Total Posts : 478
   Posted 9/8/2010 1:26 PM (GMT -6)   
thanks CALDONIA SUN!!! I need to get back to my PT , I guess. thanks so much.

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 9/8/2010 3:11 PM (GMT -6)   
I found this from a link that someone posted here from lymenet:

28: Arthritis Rheum. 1993 Nov;36,11:1621 6. Persistence of Borrelia burgdorferi in ligamentous tissue from a patient with chronic Lyme borreliosis. Häupl T, Hahn G, Rittig M, Krause A, Schoerner C, Schönherr U, Kalden JR, Burmester GR.

Department of Medicine III, University of Erlangen-Nuremberg, Germany.

OBJECTIVE. To document the persistence of Borrelia burgdorferi in ligamentous tissue samples obtained from a woman with chronic Lyme borreliosis. METHODS. Spirochetes were isolated from samples of ligamentous tissue, and the spirochetes were characterized antigenetically and by molecular biology techniques. The ligamentous tissue was examined by electron microscopy. Humoral and cellular immune responses were analyzed. RESULTS. Choroiditis was the first recognized manifestation of Lyme disease in this patient. Despite antibiotic therapy, there was progression to a chronic stage, with multisystem manifestations. The initially significant immune system activation was followed by a loss of the specific humoral immune response and a decrease in the cellular immune response to B burgdorferi over the course of the disease. "Trigger finger" developed, and a portion of the flexor retinaculum obtained at surgery was cultured. Viable spirochetes were identified. Ultramorphologically, the spirochetes were situated between collagen fibers and along fibroblasts, some of which were deeply invaginated by these organisms. The cultured bacteria were identified as B burgdorferi by reactions with specific immune sera and monoclonal antibodies, and by polymerase chain reaction amplification and Southern blot hybridization techniques. CONCLUSION. To our knowledge, this is the first report of the isolation of B burgdorferi from ligamentous tissue. This suggests that tendon tissues serve as a specific site of spirochete residence in human hosts.

Yuck!

I get the pain too, in my hands and my legs and feet, as well as joints (this last one is sort of new for me)

Post Edited (Simela) : 9/8/2010 3:25:25 PM (GMT-6)


Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 9/8/2010 3:27 PM (GMT -6)   
https://acrobat.com/#d=sbb-EmpQrQTgrPoezLGreg

This is the link where I found the post above this one. you have to wait a few seconds to download it, but it does work if you wait. Someone posted the link here already!

madrivergirl30
Regular Member


Date Joined Aug 2010
Total Posts : 205
   Posted 9/8/2010 8:27 PM (GMT -6)   
High EPA fish oil tablets - great for inflammation! I, too, have indicators of very bad inflammation in my test results and doctor says it's crucial to get control of this...he insisted on Pharmax brand fish oil tablets...I think it helps, but haven't really been consistent in taking it...

nefferdun
Veteran Member


Date Joined Feb 2008
Total Posts : 900
   Posted 9/9/2010 8:01 PM (GMT -6)   
I got tendonitis from levaquin and was in pain for 8 months. When I started a supplement with a lot of amino acids the pain went away almost over night. I found out lysine and DL methionine help heal damaged tendons. I take it every day and have no problems. I take 500mg of each. I have also heard that whey protein helps with this kind of pain. It is probably a lot of amino acids as well.

Google DL Methionine. Dr. B recommends taking a lot of magnesium and vitamin C prior to starting levaquin and while on them to prevent tendon damage so I believe it is also necessary to help heal damage.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 9/9/2010 8:20 PM (GMT -6)   
Thanks nefferdun,
Now I know what I did to reduce my pain!!!
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

Tala3
Regular Member


Date Joined Sep 2009
Total Posts : 233
   Posted 9/10/2010 5:52 PM (GMT -6)   
My problems started with severe tendonitis in my elbow. I was still having pretty bad pain 9 months after it started. Has improved over the last 5 years, but it's still there...hope you have better luck than me!

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 9/11/2010 9:59 AM (GMT -6)   
if you have high SED rate there is something called LYME ENDUCED POLYMYALGIA RHUMATICA.

my aunt had it but they didn't say it was lyme enduced but she had high SED rate and couldn't put feet on floor. the hip joints and the pain in shoulder and back of neck. They told her she would have to go on prednisone for almost 2 yrs.

she did adn when she tried to get away from the prednisone once the SED came down ..it all came back withing a few monthe. then they found she had big cell artery disease and was put back on the prednisone. It has been a nightmare and I think it is really lyme and no one of coursce will check.
I also had all those same symptoms and could not get my chest off the mattress in the morning or put my feet on the floor. I started taking prednisone to and it really in the end made things drastically worse but there was nothing else to get me to function.

nw I am on cortizone and no prednisone but my roxy pain med intake has gone from 5 mg a day to over 50 mg.

ask about poly myalgia
hep c , lyme
Dad has lyme

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 9/11/2010 10:15 AM (GMT -6)   
Just a warning here - please be careful with taking steroids. Steroids will push tick-borne infections deeper into the tissues & bones. Sometimes it is the lesser of two evils, but look closely at the other alternatives - please.
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 9/11/2010 5:19 PM (GMT -6)   
it is so far gone at this point for me with the steroids...what do people do who have addisons?

I was told that the cortisone is not to worry about so much as the prednisone,

it seems like an endless dead end situation. if you had lyme for 15 to 25 yrs and didn't know it what kind of chance of getting rid of it even with the antibiotics is there.
hep c , lyme
Dad has lyme

cbrcrx
New Member


Date Joined May 2013
Total Posts : 1
   Posted 5/19/2013 1:06 PM (GMT -6)   
nefferdun said...
 When I started a supplement with a lot of amino acids the pain went away almost over night.
 
Nefferdun, what supplement with did you take that you believe helped with the tendonitis?
 
Thanks in advance.

alaPAMa
New Member


Date Joined Apr 2015
Total Posts : 1
   Posted 4/28/2015 9:53 AM (GMT -6)   
Magnesium can reduce the effectiveness of abx. Also, read warnings about fish oil and Doxycycline. Doxy is the most effective abx for Lyme Disease.

DaveNJ41
Veteran Member


Date Joined Feb 2015
Total Posts : 618
   Posted 4/28/2015 10:54 AM (GMT -6)   
alaPAMA- can you please provide research where you found magnesium to be reducing the effectiveness of abx? If anything, abx are supressing your immune system and can cause mayhem on the gut if one has leaky gut, C. Diff, etc. and not taking the proper probiotics, l-glutamine, etc. Magnesium is one of the most critical and widely deficient minerals in just about everybody. Magensium is responsible for over 700 different critical body processes, and is not readily absorbed by the body veryl well, especially through the GI tract...sorry I'm going on a tangent. I think it depends a lot on how each individual responds to abx. While doxy may be the best for one person, it may not work for another. Unfortunately it is a trial and error process with trying a different cocktail of meds with Lyme.

sarahm620
Veteran Member


Date Joined Feb 2014
Total Posts : 1808
   Posted 4/28/2015 12:06 PM (GMT -6)   
Yeah, alaPAMa, that's not true at all...
Sarah
-positive IGM Western Blot- 39, 41 in January 2014// Igenex & CDC positive 11/14
-positive ANA and very low CD57
Chronic daily headaches since 2005

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1344
   Posted 4/28/2015 12:32 PM (GMT -6)   
DaveNJ

I had also read to take Magnesium away from ABX because it binds with them and they are then flushed from the body.

Lymie Girl
Veteran Member


Date Joined Jan 2015
Total Posts : 1332
   Posted 4/28/2015 6:54 PM (GMT -6)   
I take magnesium at least 2 hours (on both sides) away from doxycycline. Magnesium interferes with absorption of doxy and some other antibiotics and meds.

I usually take it at night before I go to sleep because I take meds throughout the day.

http://www.rxlist.com/magnesium-page3/supplements.htm

LindaLew
Regular Member


Date Joined Sep 2012
Total Posts : 343
   Posted 5/1/2015 8:05 AM (GMT -6)   
I'm with Lymie Girl, best to take it separate. It decreases the acid in the stomach so the meds aren't absorbed as well. I don't know about the bacterium feeding on it, but I do know it is dangerous to have a low magnesium level, it is difficult to get enough with the food we eat. Low magnesium can have a detrimental and serious effect on the heart and nervous system. Many years ago, maybe 35, I was having a real problem with insomnia. Lots going on in my life at the time. I happened to read something about magnesium, started taking it and the insomnia went away, plus some of the anxiety I was experiencing.
I don't need it every day, just 2-3 days a week seem to be enough. If I go too long without it I get really wicked charley horses in my legs, and the magnesium is the only thing that helps.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 3704
   Posted 9/25/2015 11:11 AM (GMT -6)   
Interesting old thread. I tried Lysine for hard tendons 500mg a day. It did nothing, think I'll try a higher dose.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 8905
   Posted 9/25/2015 12:06 PM (GMT -6)   
I have had many tendon injuries prior to lyme. They take a darn long time to heal. I got tennis elbow, not from tennis but from a repetitive motion and it took almost 6 months to heal. Anti-inflammatories and a band around my forearm. Tendon pain hurts! I cannot imagine the pain when a spirochete gets in there. *Owie*
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, October 17, 2017 11:16 AM (GMT -6)
There are a total of 2,883,230 posts in 316,366 threads.
View Active Threads


Who's Online
This forum has 157493 registered members. Please welcome our newest member, Rusty123456.
442 Guest(s), 28 Registered Member(s) are currently online.  Details
john wright, Froggy88, Tagier, Lapis_29, 07kr5, Dahlias, Rikky1, Casa11, Pirouette, Loutucky, pine88, Tudpock18, emotions, TxBart, Octobrsky13, SaraOnThisSite, lovefishing, enginerd, RobLee, quincy, gordee09, superhenderson13, Union98, Inky07, jackinthebox, Traneboy, blueflame, lab626


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer