Lyme disease and high blood calcium levels?

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Wasdrs
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/8/2010 7:18 PM (GMT -6)   
I just found out today that I have Lyme disease. In addition,the blood work also shows I have elevated calcium levels which can be hyperparathyroidism-many of the symptoms mimic lyme disease too. Just wondering if anyone else has this too. Very stressful day-i started taking doxycycline and will be on it for the next 3 weeks. Wondering what if any side effects it will have and when symptoms of lyme disease will start to go away.

Traveler
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Date Joined May 2007
Total Posts : 35853
   Posted 9/9/2010 12:10 PM (GMT -6)   
Hi Wasdrs!!
Welcome to our forum!!! I am so sorry that you have a need to be here, but I am sure glad you found us!!! I'm sure that you will find that we are a caring and helpful bunch of people, and we really can understand what you are living with - because almost always, you will find someone else here trying to deal with the same symptoms.

I actually have had the opposite problem - until a recent bone density test told me that my ostoepenia had actually reversed. I do deal with adrenal fatigue & have started a Homeopathic treatment for it just a few weeks ago.

Doxy is actually a good abx to start on if your tick bite was recent. Here is a link for info about Doxy from the thread at the top of this forum "New to Lyme? Start here" - www.ehow.com/how_2165217_avoid-doxycycline-side-effects.html

It would be very beneficial for you to read through that thread I mentioned - it's stuffed full of some good info!!

Are you seeing a Lyme Literate MD (LLMD)??? This will be the biggest help you can give yourself! Trying to educate a doc (especially an unwilling doc) is not something that is easy to do while you yourself need treatment.

The next thing I would heartily suggest is to read all that you can get your hands on about these tick-borne illnesses. As many have found out, we need to be our own health advocates!!

Oop- also be sure to get a copy of all of your tests for your own records!! Take pictures of all rashes -include something like a penny or a dime so that whoever looks at those photos will have an understanding of the size of the rash.

I do hope this helps some!
Hang in there!!
May you find peace along your journey to health.
~Trav
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

Mamyou
Regular Member


Date Joined Aug 2010
Total Posts : 317
   Posted 9/9/2010 2:40 PM (GMT -6)   
Listen to Traveler and start reading everything you can get your hands (and eyes) on. If you've had lyme for any length of time the three weeks of doxy won't do it. Unless you have a true LLMD, you're on your own for survival. There are people on here that have been treating for YEARS and some have good outcomes and some haven't. I personally haven't taken doxy yet, so it will take somebody else to tell you the side effects. You'll also need to know about herxing (Herxheimer Reaction) so that if you become terribly flu-like, you aren't surprised.

There are intelligent and knowledgeable folks on this forum, so you should get lots of good advice... The best of luck to you in recovering your health.

Wasdrs
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/9/2010 5:54 PM (GMT -6)   
Thank you both for your responses. I originally went to the doctors because of headaches, body aches, and fatigue. When they ran my blood they tested me for Lyme disease. I was completely shocked to find out I have this disease. I don't recall any rash, etc, but my symptoms started about two to three months ago. I called to verify these test results and doc said two of three bands were there so def positive. I really hope meeds take away body aches and headaches.

Mamyou
Regular Member


Date Joined Aug 2010
Total Posts : 317
   Posted 9/9/2010 6:14 PM (GMT -6)   
You're one of the lucky ones to have found a doctor smart enough to run the lyme test. I do hope you got the lyme when your symptoms started. You have a fighting chance of winning having been diagnosed early on. Most people don't recall a rash...I sure don't. Keep reading and asking questions....!

Wasdrs
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/13/2010 10:38 AM (GMT -6)   
The more I read the more I understand just how serious this disease is. What is incomprehensible to me is the lack of definitive treatment-curability-testing etc. Aftertaking the recommended antibiotics how do you know if the treatment worked-why isn't there more information?

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 9/13/2010 12:27 PM (GMT -6)   
Since there are so many people that have their heads in the sand about just how serious & widespread tick-borne diseases are, there are not many research $$ going to Lyme & other tick-borne illnesses.

As far as treatments for these illnesses, they must be unique to each person's situation. We all have a slightly different weak areas in our bodies, and since that is exactly what these 'bugs' are looking for, each treatment must be tailored to each person. It also depends on which type of treatment the body will respond to best, that's why the abx treatment alone was not the way for me to go, and yet it may be the only treatment someone else will respond to. There is no "one size fits all" kind of treatment available.

just my opinion based on what I have read...
Trav
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

Wasdrs
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/13/2010 1:43 PM (GMT -6)   
Thanks traveler-just frustrated!

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 9/13/2010 1:51 PM (GMT -6)   
Hang in there!!!
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

Wasdrs
New Member


Date Joined Sep 2010
Total Posts : 5
   Posted 9/14/2010 6:01 PM (GMT -6)   
Am looking over blood tests. Tested positive for igm band 23 and 41-Lyme ab screen 2.07. I have an appointment with an infectious disease doctor for more testing etc. Am looking for some more clarity in these test results-any help would be greatly appreciated.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 9/14/2010 6:45 PM (GMT -6)   
If it was a Western blot, here is the breakdown:

Quoting ticker:

Western Blot Bands description:

9 cross-reactive for Borrellia
12 specific for Bb
18 unknown
20 cross-reactive for Borrellia
21 unknown
22 specific for Bb, probably really the 23/25 band
23-25 outer surface protein C (OspC), specific for Bb
28 unknown
30 unknown; probably an outer surface protein; common in European and
one California strain
31 outer surface protein A (OspA), specific for Bb
34 outer surface protein B (OspB); specific for Bb
35 specific for Bb
37 specific for Bb
38 cross-reactive for Bb
39 is a major protein of Bb flagellin; specific for Bb
41 flagellin protein of all spirochetes; this is usually the first to appear after a Bb infection and is specific for all Borrellia
45 cross-reactive for all Borellia (sometimes people with Lyme who have
this band positive also have the co-infection Ehrlichiosis)
50 cross-reactive for all Borrellia
55 cross-reactive for all Borrellia
57 cross-reactive for all Borrellia
58 unknown but may be a heat-shock Bb protein
60 cross reactive for all Borrellia
66 cross-reactive for all Borrelia, common in all bacteria
83 specific antigen for the Lyme bacterium, probably a cytoplasmic membrane
93 unknown, probably the same protein in band 83, just migrates differently in some patients

Best of luck with your appt.
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav
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