Do I have lymes disease?

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lymabean
New Member


Date Joined Sep 2010
Total Posts : 10
   Posted 9/11/2010 3:26 PM (GMT -6)   
OKay heres a list of my symptoms. Im nervous I have lymes or a brain anyuryms (SP?). Got hit on the head with a rock 9 years ago. Doctor hasnt tested for lymes yet, basically called me crazy and said to goto a therapist. Gotten CT Scan on chest for chest pain and squeezing came up normal.

1. Head pressure (feels like one side of my head is going to explode)
2. Headaches
3. Sharp-head pain (not headaches but sharp pain in the head lasts for 1-2 seconds)
4.Twitching muscles (everywhere)
5.Brain fog
6.Stiff back (feels like im really old like arthritis)
7. Stiff left wrist (also feels like im really old im only 18)
8 Stiff fingers left hand
9. Chest pains
10. Chest squeezing sensation (like my heart is being squeezed)
11. Popping sound in my head
12. Ears pop everytime I swallow
13. Rining in ears
14. some times low grade fever (99degrees)
15. General feelings of sickness (achey,tired)
16. Muscle stiffness.

Please some one help me out / :

josh1983
New Member


Date Joined Jul 2010
Total Posts : 19
   Posted 9/11/2010 3:38 PM (GMT -6)   
I have a lot of muscle twitching and am positive for lyme. I haven't had the other symptoms but I do believe they are symptoms. I think everyone here will tell you to see a LLMD (Lyme Literate Medical Doctor). Where do you live? Let us know and somebody will likely send you an email with information about LLMD's in your area

madrivergirl30
Regular Member


Date Joined Aug 2010
Total Posts : 205
   Posted 9/11/2010 9:25 PM (GMT -6)   
Lymabean,

I have all the symptoms on your list...and my doctor also told me to see a therapist (which was absolutely ridiculous - I was in the prime of my life, and had it made, when I got sick). 30 doctors and specialists (and a LOT of invasive tests) later, I was finally diagnosed (by two different doctors). You may have Lyme - I would get to a Lyme Literate MD as soon as you can!

Good luck,

Rachel

lymabean
New Member


Date Joined Sep 2010
Total Posts : 10
   Posted 9/11/2010 9:31 PM (GMT -6)   
Thank You soo much for your response! im glad im not the only one! also Im in new york, im going to request a lymes disease test to make sure. Once again thanks for any responses.

madrivergirl30
Regular Member


Date Joined Aug 2010
Total Posts : 205
   Posted 9/11/2010 9:34 PM (GMT -6)   
Lymabean,

FYI - the current tests available are only 50% accurate at best...and can be expensive... If you're really sick and it's effecting your life, you will want to find an LLMD who can give you a clinical diagnosis and get you started on treatment - the longer you wait, the worse your prognosis may be.

lymabean
New Member


Date Joined Sep 2010
Total Posts : 10
   Posted 9/11/2010 9:37 PM (GMT -6)   
Ok, thank you. Right now its affecting my life so much, like I cant take it anymore, I thought I had a tumor , and anyurysm. I've been going crazy, but it all makes sense with the twitching muscles and arthritis feelings. Also I've had really weird feelings of being light headed and unbalanced.

lymabean
New Member


Date Joined Sep 2010
Total Posts : 10
   Posted 9/12/2010 1:03 AM (GMT -6)   
Also does anyone ever feel who has lymes like there going crazy or getting really depressed?

achievinggrace
Forum Moderator


Date Joined Nov 2009
Total Posts : 3266
   Posted 9/12/2010 5:38 AM (GMT -6)   
Yes, lyme disease brings depression and other psychological problems. Many people are diagnosed with lyme by the psychiatrist they are sent to by other doctors who can't figure out what's going on.

You will be fine when you get some treatment. Hold on, and keep talking to us.

So go get a lyme literate doctor. You also might want to read the "New to Lyme ..." posting at the top of this forum. It has a lot of good info on how to cope.

Take care

lymabean
New Member


Date Joined Sep 2010
Total Posts : 10
   Posted 9/15/2010 1:26 AM (GMT -6)   
alright thank you so much, I also have this pain in the back of my head, and this pressure is this normal, the pressure is really unbearable like my heads going to explode, and it has this weird vibrating quality to it if that makes any sense.

gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 9/15/2010 2:00 AM (GMT -6)   
Have you had a cervical MRI scan - problems in the upper spine/neck can cause some 'odd' feelings. Best Wishes

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 9/15/2010 11:26 AM (GMT -6)   
I have had all kinds of sensations, not just in my head, but all over my body!! Unfortunately a lot of us Lymies have bouts of depression, some, like me, need anti-depressants.

There are a whole lot of Lymies (including me) that have been sent to see psychiatrist by uneducated docs. As the others have said, please get in to see a LLMD, as this infection is supposed to be diagnosed by symptoms (according to the U.S. CDC) & it sounds like you have more than enough symptoms to expect a diagnosis of tick-borne infections.

How long have you been ill?
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 9/15/2010 7:17 PM (GMT -6)   
I have resorted to antidepressants myself after battling for 5 long years. I wish i had done it earlier. I think a positive attitude is necessary to beat this thing and I don't think I was physically able to achieve that with the imbalances caused by the lyme/bartonella/erhlichosis bacteria. I am hopeful that my brighter outlook will enable me to exercise and focus on getting well instead of dwelling on the illness and possible consequences. Ya gotta enjoy the ride to make it worthwhile.
Lyme, erlichosis, bartonella, herpes, EBV. 4 years undiagnosed despite 10 drs.
Current meds: tetracycline, amanatadine, neurontin, xanax, valtrex
Prior meds: amoxicillin, probenecid, doxy. IV refused by insurance.
THERE ARE ROUGH DAYS, TOUGH DAYS BUT ALSO GOOD DAYS. MY BOYS GET ME THROUGH THE BAD AND I SO ENJOY THE GOOD DAYS WITH THEM!

lymabean
New Member


Date Joined Sep 2010
Total Posts : 10
   Posted 9/15/2010 7:40 PM (GMT -6)   
I know the depression is really bad for me, like crying, andI never cry /: . I just got a blood test today for lymes and the other bacteria's to confirm if I indeed do have it,wont know until next week. I've been sick for about a 2 months it started with chest pain, then dizzyness\lightheadedness, then sinus infection like symptoms, then really bad anxiety and my muscles would twitcch out, along with brain fog, and messed up blurry vision. Im having a MRI on my brain tommorow just to make sure everything is okay up there.

Willowrose
Veteran Member


Date Joined Oct 2009
Total Posts : 699
   Posted 9/15/2010 11:31 PM (GMT -6)   
Good luck with your blood test results, but please be aware that blood tests for Lyme disease are not very accurate. I had a negative ELISA blood test for Lyme disease in 2005. I wish I'd known then what I found out four years (and magnitudes of suffering) later. A negative test does not necessarily mean you are free of Lyme. You can find a lot of information in the first thread of this forum about testing, labs, and doctors and how that affects the quality and accuracy of your test results. In 2009 I had a Western Blot blood test for Lyme disease, processed by IgenX lab and interpreted by a Lyme Literate doctor and the result was positive. Subsequent tests revealed that I have other tick-borne infections as well. I am a lot sicker now than I was in 2005. I wish those years hadn't been wasted getting one test after another, seeing one specialist after another, and as I said, suffering so much, when all along it was Lyme and coinfections that was making me so sick.

You have enough symptoms of Lyme and the most prevelant coinfections to justify looking into it thoroughly.

Rose
I have Lyme; it doesn't have me.

lymabean
New Member


Date Joined Sep 2010
Total Posts : 10
   Posted 9/18/2010 10:35 PM (GMT -6)   
Well I went to get the MRI, and the test results cameback, doctor said everything was normal, so thats a relief in one sense, but this head pressure is really bad, any remedies?

madrivergirl30
Regular Member


Date Joined Aug 2010
Total Posts : 205
   Posted 9/18/2010 11:19 PM (GMT -6)   
I've suffered from migraines for 15 years, taken almost every kind of drug or combination of drugs, and I will say the best thing for me is always...ASPIRIN! You could also try taking a high dose of vitamin C (I usually take 1000 IUs several times throughout the day)...also an ice pack helps...and they make cold pads (similar to heat pads) now - they stick right to your forehead (or wherever).

3whiteroses
Regular Member


Date Joined Jun 2009
Total Posts : 184
   Posted 9/19/2010 5:51 AM (GMT -6)   
springsjean

What treatment(s) have you done for Bartonella. My llmd says I have this coinfection based on my symptoms. Is your Bartonella gone?

+Lyme
Veteran Member


Date Joined Apr 2009
Total Posts : 1304
   Posted 9/19/2010 8:17 AM (GMT -6)   
Lymabean, Please make sure to request copies of ALL of your lab work. We are not lab experts (well.... I take that back. We sorta are...) What the lab may interpret as negative, might be considered a positive by an LLMD. If you suspect Lyme and the lab or Dr say no, there are some things you/we can look at and see if there is a certain direction you should look.

On 2 different occasions, I noted that the lab did not run a couple of the tests that the Dr ordered. The Dr didn't even notice, but I did.
Bit 1972: Acute and chronic tonsillitis, UTI, miscarraige, appendicitis, hypoglycemia,  chronic neck pain w/ crushed vertibrae, chronic severe back pain, mitral valve prolapse, depression, resolution?
 
Bit Mother's Day 2007: Lyme, Babesia microti, hypothyroidism, EBV, HHV6, Parvovirus B19, low adrenals &misc other hormones, depression, anxiety, more of the above.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 9/19/2010 10:06 AM (GMT -6)   
I agree with +Lyme!! You definitely need to get your test results from here on. Since there are so many of us here on HW that have been going through this for many, many months & many years for some of us - we have become fairly good at deciphering test results!!! I also have 'caught' lab tech's not running tests the doc ordered - so watch them as much as you can, because like +Lyme said - the doc most likely won't notice.

It's a really good thing that your MRI doesn't show anything!!! My Mri's have all come back clean as well. It was a SPECT scan that came back all wonky.

I use a number of different OTC pain meds to help me from using nothing but prescription pain meds. Naproxen Sodium is one that helps me out a lot. I will use aspirin if there is a possibility of swelling with the pain (like in a joint). I also will use Ibuprophen. I am VERY careful though to not mix them!!! I will only take 1 type of pain med for any one day - that way I can't get into any bleeding issues simply because I used the wrong two meds in the same day.

Have you made any progress on getting in to see a Lyme Literate Doc yet?
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav
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