Flu shot and Lyme Disease?

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rasputin26
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Date Joined Aug 2010
Total Posts : 30
   Posted 9/11/2010 6:31 PM (GMT -6)   
I had went and recieved a flu shot Friday. Today I feel really bad. My legs are aching and feel really weak. After researching online, many lyme patients said their LLMD advised not to get it (wished I had done this before I got the shot).

Does anyone have an info on this subject?

Thanks,
Kayla

madrivergirl30
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Date Joined Aug 2010
Total Posts : 205
   Posted 9/11/2010 9:28 PM (GMT -6)   
I think it's normal to feel a little crumby after getting a flu shot - my best guess is you might feel even worse if you've had Lyme and have been taking antibiotics... because your immune system is compromised.

rasputin26
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Total Posts : 30
   Posted 9/11/2010 9:49 PM (GMT -6)   
Thank you. I am on Ceftin, Rifampin, Zithromax, and Tindamax right now. I am on 3 weeks with first three and three weeks with Tindamax. I think my immune system is overwhelmed.

madrivergirl30
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Date Joined Aug 2010
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   Posted 9/11/2010 9:50 PM (GMT -6)   
If you're really feeling like you're not getting better and so sick you can't stand it, I would call the doctor and ask if you might be able to take a quick break from the medications...

+Lyme
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Date Joined Apr 2009
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   Posted 9/11/2010 10:06 PM (GMT -6)   
rasputin26:  I am not a Dr and cannot dispense medical advice.  HOwever, I can tell you a bit of the things that I do know.
Approved by the FDA does not make a drug or vaccine safe.  We have this idea in our heads that studies including thousands of people have concluded that the drug or vaccine is effective and safe.  Not so.
 
It is a fact that current flu shots have not been proven to be safe and/or effective.  They couldn't be, because they were not even used or tested on the generation before us ---  ie; long term testing effects.
 
I think the most important info that I've come across regarding vaccines (flu shots, as well as including standard vaccines for chicken pox, measles, etc) is that, to date, there have been NO studies on how these immunizations --- even the most basic --- have affected our immune systems. 
 
And there has been NO follow up on how ANY of these vaccines affect or will affect our immune systems when something new comes around.
 
Example:  A swine flu shot last year MAY affect your body's immune system, rendering you more suseptible to various flus next year, and so on.
 
I would never dare to advise a person not to take the flu shots. But I will tell you that I will never take one.  There are just too many unknowns. 
 
And I am not sure at all that these vaccines have EVER been tested on people w/ immune disorders like Lyme.

CajunGrl
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Date Joined Mar 2009
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   Posted 9/12/2010 3:24 AM (GMT -6)   
I have been getting the flu shot for for many years now and never had a problem with it. In my opinion, I think it is best that I get the flu shot because my immune system is so terribly low right now that I don't think my body could handle getting a full blown flu. Just so everyone knows, my oldest daughter does not have Lyme disease and she had the same symptoms as posted above for about three days. Some people get these symptoms and they are very healthy. It just depends how your body responds to the shot. It makes sense to have symptoms because your body is trying to fight off the bug that has been put into your body.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis
Prescription Meds: Cymbalta, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, CMK, Folic Acid, Fish Oil, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement


Co-Moderator Lyme Disease Forum

achievinggrace
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Date Joined Nov 2009
Total Posts : 2250
   Posted 9/12/2010 5:26 AM (GMT -6)   
When I asked my llmd if I should take the flu shot, he told me that it was up to me. It had nothing to do with my lyme disease or being on antibiotics.

knuks
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Date Joined Sep 2010
Total Posts : 45
   Posted 9/12/2010 6:08 AM (GMT -6)   
New member...but here is what my llmd told me. He said not to get the flu shot. He does not believe in any immunizaions, tho. Not believing is putting it mild...he is PASSIONATE about not getting vaccinations. I got a tetanus shot 2 weeks before all of my symptoms began. We'll never know for sure...but did the tetanus shot trigger the lyme?

Mamyou
Regular Member


Date Joined Aug 2010
Total Posts : 317
   Posted 9/12/2010 8:09 AM (GMT -6)   
Here's my 2-cents and personal opinion. 20 years ago when I was in chemo, the oncologist recommended I get the flu shot. I refused because of the mercury content...never mind what else was in it. Have never gotten one because I am also leary of any immunization and what may be sneaked in...and where it might have been produced. This year, from my understanding, they incorporated the H1N1 vaccine into the regular flu shot....a vaccine that was terribly controversial last year. My agreement lies with +Lyme. My 81-year-old mother-in-law, however, has been getting them for years and the fact she's 81 should say something.

Rasputin26, just note your symptoms before shot and wait a few days for the acute symptoms to blow over, and see if you have any new chronic ones. It's all we can do when we add something to our bodies.

Traveler
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Date Joined May 2007
Total Posts : 12558
   Posted 9/12/2010 8:55 AM (GMT -6)   
Unfortunately, knuks, it is quite possible that the flu shot was the 'last straw' for your body, as it all has to do with stress - and it is stressful for your body to receive a vaccine.

I have been refusing flu shots for some time now. I got one once - just once- and let me tell you!!!! Ohhhhh, how I was ill!!! ICK!! I do have to say though, that it really is up to how each of our bodies handle the vaccine & -of course - what we believe about vaccines in general.

Okay, two cents left!! Giggle!!
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

Tala3
Regular Member


Date Joined Sep 2009
Total Posts : 233
   Posted 9/12/2010 10:16 AM (GMT -6)   
I get the flu shot because I never used to and several years ago I got influenza (before my Lyme symptoms started - not sure when I actually got Lyme). I have NEVER been so sick in my life as I was for two full weeks with influenza. If you have never gotten it of course you think your body can handle it and it won't be such a big deal. WRONG - I was very healthy at the time and I honestly felt like I could understand why so many actually die from it. Influenza is NASTY. If your immune system is compromised you will have a really hard time fighting it. Everyone does have to make their own decision, but influenza is not like a cold or stomach virus.

Razzle
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Date Joined Aug 2007
Total Posts : 3775
   Posted 9/12/2010 10:18 AM (GMT -6)   
Vitamin D3 intake in the adequate range (was told by 2 Endocrinologists that the body uses 4-6000 IU/day) as determined by blood tests (25-D, not the 1,25 D) is more effective than a flu shot at preventing flu.  There are multiple studies showing the effectiveness of Vitamin D at improving one's immune system response to acute infection.
 
I will never ever get another vaccination if I can at all in any way avoid it.  The last one I had was a tetanus shot and I broke out in a rash and spiked a fever from it...  Doctors (more than one) told me it is likely an allergic reaction to the inactive ingredients (and who knows what those are - with labeling requirements so relaxed on prescription products/pharmaceuticals...food labeling laws are more strict than pharmaceutical labeling laws), and that I should not have vaccinations of any kind because of this.  Immune deficiency issues are another reason to not get vaccinations...the immune system may not be able to respond adequately, and then the person can get the actual infection if a live vaccine is used.
 
Homeopathic nosodes can be used in lieu of vaccines.  These are homeopathic remedies made from the infectious agent (such as flu virus, etc.), and they teach the body to make antibodies without causing nasty side-effects.
 
Just my $.02...

scorpio1960
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Date Joined Jan 2009
Total Posts : 914
   Posted 9/12/2010 11:05 AM (GMT -6)   
Kayla, I'm so sorry you're feeling so bad but am glad you posted. I was just wondering this morning if I should schedule getting my annual flu vaccine.

I've been getting flu shots for the past 10 years at least and up until now swore by them. The doctor who was treating me for CFS/Fibro always advised against getting it but said it was up to me. Last year after being diagnosed with LD my llmd also advised against it but after listening to my reasons for wanting it said it was ultimately up to me but his office did not give them. This is the first year that I'm considering not getting it but am worried what would happen if I did come down with the flu. My body just cannot handle much more and I'm afraid of what the flu would do to me but I'm now questioning for the first time whether the vaccines may have been doing some sort of harm all along.

Sorry for rambling! I'm just in my usual state of confusion and will re-read this thread when I'm feeling a little better, hopefully in time to make a decision...lol!

madrivergirl30
Regular Member


Date Joined Aug 2010
Total Posts : 205
   Posted 9/12/2010 2:22 PM (GMT -6)   
Scoprio,

As with anything, you really have to weigh the risks and benefits. There is a HUGE movement (most of which has started in the northwest) against vaccinations, and people seem to be extremely opinionated one way or the other.

I personally would never trade the risks of getting a vaccine for any serious illness.

Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 3646
   Posted 9/12/2010 3:22 PM (GMT -6)   
Hi all,
 
I never had a flu shot and I never will because of what could be in these shots.  I'm with Razzle as far as keeping one's immune system strong using natural medicine. 
 
Found this interesting link:
 
 
And this is about Tetanus Vaccines:
 
 
And the only movement I'm part of has to do with my toilet bowl.. rolleyes
Denise
It's all about Detoxing Daily, strengthening the Immune System mixed with a dose of Positive Thinking!
 
This song is about my years with chronic lyme since 1995 and being symptom free for over 4 years:  http://www.youtube.com/watch?v=ds81S61UvPA
 
Currently taking Estrovera, ProgX (progesterone), Adrenotone Plus, CoQ10, Vitamin B Total, C, Green Vibrance, CALM (Magnesium/Calcium)

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/13/2010 8:20 AM (GMT -6)   
Razzle,

The problem with taking Vitamin D3 is that alot of us are already extrmely low. If we are already low, there is no way that taking it now would ever help keep the flu away. Now, if you are normal in Vitamin D, then I say go for it. I, myself do not want to risk it. What I worry about the most is someone not getting the flu shot and suffering or actually dying from the flu because their immune system wasn't strong enough to fight it off. I guess I am just extra cautious. We all have to way the risks here. I agree with Tala 100% here.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis
Prescription Meds: Cymbalta, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, CMK, Folic Acid, Fish Oil, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement


Co-Moderator Lyme Disease Forum

Razzle
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Date Joined Aug 2007
Total Posts : 3775
   Posted 9/13/2010 8:28 AM (GMT -6)   
I don't understand how taking Vitamin D could be a bad thing if one is already deficient...I guess I'm confused...

CajunGrl
Veteran Member


Date Joined Mar 2009
Total Posts : 4717
   Posted 9/13/2010 8:32 AM (GMT -6)   
Sorry...what I meant was that if someone is already low, it takes so long for your levels to get back to normal, that in my opinion, I don't think that Vitamin D would be enough at the time to keep the flu away. I didn't mean not to take it. We all need it. I hope I explained it better this time.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis
Prescription Meds: Cymbalta, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, CMK, Folic Acid, Fish Oil, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement


Co-Moderator Lyme Disease Forum

Razzle
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Date Joined Aug 2007
Total Posts : 3775
   Posted 9/13/2010 9:07 AM (GMT -6)   
From personal experience, I do believe taking Vitamin D while deficient can impact one's ability to fight off acute infections more easily fairly quickly after begining the supplement. Everyone's experience may vary, however...
-Razzle
Chronic Lyme & Bartonella, Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, etc.; G-Tube; TPN via PICC (trying again to wean off the TPN).
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver, probiotics, digestive enzymes, Milk Thistle & other liver support herbs, Magnesium, Progessence+ (wild yam + essential oils), Moducare, homeopathy.

CajunGrl
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Date Joined Mar 2009
Total Posts : 4717
   Posted 9/13/2010 11:04 AM (GMT -6)   
Yes, I agree that we are all different. My vitamin D is terribly low and I seem to get sick alot. I don't even leave my house since being bedridden and I still get sick. Of course, I'm getting it from my husband and daughter but it seems like it never ends sometimes and I'm on 50,000IU of Vitamin D a week. I just cannot fathom getting the flu. I had it once when I was healthy and I felt like I was dying. It was horrible.
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis
Prescription Meds: Cymbalta, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, CMK, Folic Acid, Fish Oil, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement


Co-Moderator Lyme Disease Forum

scorpio1960
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Date Joined Jan 2009
Total Posts : 914
   Posted 9/13/2010 11:18 AM (GMT -6)   
Oh CG, I'm so sorry to hear you're still not doing well. It seems from the start, we've both been in the same boat much of the time. I also can't fathom getting the flu and am not sure why I'm hesitating so much this year when it comes to the vaccine when I've never had a problem before. I understood the risks all along and never second-guessed my decision....might be the lyme messing with me or maybe my gut is trying to tell me something...ugh!

I agree that we all need to do what we think is best for us and no two people are the same. I just wish things were a little more clear cut when it comes to all that we're dealing with.

Mamyou
Regular Member


Date Joined Aug 2010
Total Posts : 317
   Posted 9/13/2010 11:28 AM (GMT -6)   
One of my other fears of the flu shot is the high incidence of Guillian-Barre syndrome(ok..may be spelled wrong....). It's a disease that destroys the nerve coverings. My sister in law got it shortly after a flu shot and the doctor told her that's what caused it. Are there other things the flu shot causes. Probably.

allieann
Regular Member


Date Joined May 2010
Total Posts : 115
   Posted 9/13/2010 5:29 PM (GMT -6)   
+Lyme---great answer to vaccines. Thank You!

nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 9/13/2010 10:40 PM (GMT -6)   
I have to say that I'm with CajunGrl and Tala on this one. I do hear what everyone else is saying about the risks of getting vaccines, and I absolutely respect your opinions.....I want you to respect mine, too, of course! :)

One good thing is that the last few years I've been very successful at getting thimerosol-free versions of the flu shots.

I never used to get the flu shot until one year (like Tala) I got the flu. I have asthma and this bug went straight to my lungs....first bronchitis, then pneumonia! I was bedridden for literally weeks, I was a single mom of four teenagers at that time AND in graduate school. I missed almost a month of classes. After I started to get better and went back to class, one of my professors asked me if I ever got flu shots and then spent 1/2 hour chewing me out for being "irresponsible" because I said no. He was my microbiology professor, BTW!

I started getting the flu shot every year after that experience, and I've never had a bad reaction (other than big red bumps at the site of the shot). I also get a pneumonia vaccine every so often (5 years?). I have not had pneumonia since...in fact, I haven't gotten the flu since that time in grad school, for the past 15 years.

I understand that there are risks involved with vaccines, but there are risks for me if I catch the flu, too, particularly now when I'm so ill with Lyme and all of my autoimmune diseases....I'm on immunosuppressants so my immune system is NOT working well at all.

So I will get the flu shot, because I don't want to die from pneumonia. So far, the flu shot has worked well for me.

I do like to hear what else works for other people though! So thank you all for sharing!!
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Mepron, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

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