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wisconsinmom
New Member


Date Joined Sep 2010
Total Posts : 6
   Posted 9/13/2010 11:03 AM (GMT -6)   
My question is...my daugther who is eleven was bit by a tick with lymes in fourth grade.  We have been dealing with the disease since then.  She mostly gets sick during her weeks of school and seems to get better on weekends.  Is this familiar for anyone else???  Thanks!

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 9/13/2010 2:41 PM (GMT -6)   
Hi Wisconsinmom!!!
Welcome to our forum!!! I am terribly sorry that you daughter has to deal with this disease at such a young age, but you have come to a great place to learn, share, and get support!!! It would really, really help you if you would read the thread at the top of our forum titled "New to Lyme?...Start here".

What you are noticing with your daughter fits right in with tick-borne illnesses, as this insidious disease takes advantage of the body being under any kind of stress. The best thing you can do is to help her learn how to de-stress & to detox to help alleviate some of her symptoms.

How long has your daughter been infected? Have you been able to get her in to see a Lyme Literate Medical Doc? (LLMD) Is she on any kind of treatment?

Just a couple of my little thoughts!!!
May you & your family find peace along the path to healing...
Trav
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 9/13/2010 2:41 PM (GMT -6)   
Yes! I have been dealing with lyme for 5 years and I definitely feel better on weekends than when I am at work. Before I knew it was lyme, I thought maybe something in the building making me sick. At this point, I chalk it up to any of the following: stress, no rest period, fresh air, keeping moving (not just sitting), etc. This disease is just so baffling that i don't think we'll ever figure it out but keep asking questions, you will no doubt find someone with a similar experience.
Lyme, erlichosis, bartonella, herpes, EBV. 4 years undiagnosed despite 10 drs.
Current meds: tetracycline, amanatadine, neurontin, xanax, valtrex
Prior meds: amoxicillin, probenecid, doxy. IV refused by insurance.
THERE ARE ROUGH DAYS, TOUGH DAYS BUT ALSO GOOD DAYS. MY BOYS GET ME THROUGH THE BAD AND I SO ENJOY THE GOOD DAYS WITH THEM!

wisconsinmom
New Member


Date Joined Sep 2010
Total Posts : 6
   Posted 9/13/2010 5:33 PM (GMT -6)   
Thank you for your comments.  We have seen a Lyme's Specialist and she has been on anitbiotic treatments.  She is currently on one right now.  Sometimes, although I hate to admit it, we just begin to wonder why are weekends better.  Is there something she isn't telling us at school.  But...then we asked her and she says nothing is wrong with friends, school work, teachers...but sometimes my mind gets the better of me and I begin to think maybe I am missing something or...maybe she just doesn't want to be at school.  I know better than that but sometimes it is so frustrating.  Thanks for letting me know that her cycle is normal.  Sometimes you just need to know that you are not alone in it and that what you are dealing with is not abnormal.  Thanks so much! 

madrivergirl30
Regular Member


Date Joined Aug 2010
Total Posts : 205
   Posted 9/13/2010 9:20 PM (GMT -6)   
I get severe paranoia about the fact that I have "good days," particularly when they happen on weekends! I always think people are going to judge me and think, "she's supposed to be sick - isn't it convenient she feels so good when it's Saturday and the sun is out and her friends are spending the day on the lake" (or doing whatever). But Lyme can be cyclical (some people have a week a month when they feel better, or worse. And the truth is, I've been sick for so long now that most days I honestly don't know whether it's Monday or Saturday! I'm home, on the couch or in bed, 99% of the time.

I've also noticed that adrenalin usually makes me feel better (it's like our body's natural morphine). If something really good (or really bad) happens in my life, I go into auto-pilot and usually am good enough to be able to do what I need to do or take care of the crisis or whatever... The same is probably true for your daughter when she gets excited about doing fun stuff over the weekend...or maybe just the little extra rest from being able to sleep a few more hours might help her tremendously. School can be stressful for kids, and stress can be hard on our health. I know for me, some days I'm "fine"...BUT I'm only fine while I'm laying on the couch watching tv... Had I needed to get dressed, get into a car to go to school (or work or wherever) and then sit in a hard chair most of the day, or be on my feet, I would be one unhappy Lyme disease patient!

I hope your daughter feels better and the antibiotics do her well...

Rachel

wisconsinmom
New Member


Date Joined Sep 2010
Total Posts : 6
   Posted 9/14/2010 11:20 AM (GMT -6)   

Thanks Rachel for your thoughts.  We are sorry to hear of your suffering.  The longer we go on with this disease we realize the pain that so many endure.  We have two friends that are also suffering with lymes and it is so difficult to watch.  We appreciate you taking the time to give your input and to validate what we already know to be true...our daughter is just sick and it is not a logical disease. (ie. good on weekend, bad during week)  Thank you for the encouragement.  We will be praying for you.  We will pray that the good days bring you much encouragement and happiness so that you can endure the harder days, and that you will find peace in the midst of this physical trial you are going through.  Thank you.

 


Hippie Hiker Chick
Regular Member


Date Joined Aug 2010
Total Posts : 77
   Posted 9/14/2010 12:07 PM (GMT -6)   
I agree with what others have said about adrenaline - sometimes being busy keeps my mind off things whereas being asked how I'm feeling or having too much free time to contemplate how I'm feeling I can end up feeling worse than if I'd stayed busy.

Brain fog may be another HUGE factor for her at school. I work in IT and it can be so diffucult/frustrating when you're trying to do intellectual things and you just can't quite get a grip on it.

I'm in WI too - am curious whereabouts you are from and would love to chat sometime - you can email me off board. My mom has asked a lot about local support groups and I haven't heard of any really.

Will definitely pray for your daughter and your friends!

gorbybelle
Regular Member


Date Joined May 2009
Total Posts : 147
   Posted 9/14/2010 3:08 PM (GMT -6)   
I know exactly what people here are saying - it must seem like I am pretending to be ill sometimes - I can say 'I feel awful' one day and then the next spend the whole day cleaning my house etc; - I have often wondered if it is something to do with 'adrenalin' - there are some very interseting comments here.

Yesterday it was as much as I could do to take a shower - today I am 'normal'ish' ? who knows what tommorrow will bring.

I do know certain types of lighting can bring on my symptoms - very bright flouresent lights especially.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 35853
   Posted 9/14/2010 3:37 PM (GMT -6)   
Ditto Madrivergirl!!


Wisconsinmom,
Please do continue to come here & ask any questions you may have!!! We can definitely help you to understand at least some of what your daughter may be going through.

Glorybelle,
I have the same thing happen to me with lights of different types, although I have always been sensitive to flouescent lighting. I got to the point that I had to start wearing a hat inside the stores because of the lighting. Boy, did I get some strange looks when I had to also wear my sunglasses in!!!
Blessed are we who can laugh at ourselves, for we will never cease to be amused!!!! :)
May we all find peace along the journey to find healing.
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
Trav
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