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Simela
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Date Joined Aug 2010
Total Posts : 552
   Posted 9/16/2010 10:55 PM (GMT -6)   
I saw my LLMD for the first time today.  He gave me a script for
Biaxin 500mg 2x/day
and
Ceftin 500mg 2x/day

Did anyone take this combo?

I will post more about my meeting another day--to tired now!  He thinks I have Bartonella as well, but he can't treat it bec I am breastfeeding, so we'll have to hold on that.

Thanks!

Missy Joy
Regular Member


Date Joined Sep 2010
Total Posts : 53
   Posted 9/17/2010 4:36 AM (GMT -6)   
That's what I'm taking now, plus 300mg of Doxycycline a day.  I have herx days but that just tells me that it's working!

momtomonsters
Regular Member


Date Joined Aug 2009
Total Posts : 89
   Posted 9/17/2010 7:40 AM (GMT -6)   
This is my combo as well but also take plaquenil and tindamax. I had Herx days when starting the omnisef but didn't last long.


Momtomonsters

Mamyou
Regular Member


Date Joined Aug 2010
Total Posts : 317
   Posted 9/17/2010 8:47 AM (GMT -6)   
Missy Joy and momtomonsters - You're taking doxy, Biaxin and Ceftin, all 3 at the same time??? Are you treating lyme and co-infections?

Simela - Do you like your LLMD? How far do you have to travel to see him?

Simela
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Date Joined Aug 2010
Total Posts : 552
   Posted 9/17/2010 9:50 AM (GMT -6)   
Momyou:
I liked him, my first impression is that he is not as detailed as Dr. B. He had Dr. B's guidelines in his office. He believes it doesn't matter if co-infections are treated after Lyme is treated (Dr B says treat co-infections first). He thinks I have Bartonella based on my symptoms, but bec I am breatfeeding, he said we can't treat it for now. So he is only treating me for lyme. He just got bit and had the rocephin line in his arm. He will try to get my insurance company to pay for rocephin for me. He said that's the best. We'll see how it goes.

He did not talk about detoxing, but wanted to give me an IV for natural meds+detoxing (he said this IV does both). I opted out, bec it has magnesium and iron in it and I am already taking multivitamins and my lab work is fine--I do not have deficits in minerals and vitamins.

I brought up the adrenals and how I feel my thyroid med is not doing anything and how I have to keep switching doses bec it goes up and down like crazy, but he only asked me if my last blood tests were ok for thyroid and when I said they were ok, he left it at that and we started to talk about something else.

I asked him how many patients he has treated and he said he's treated thousands of people, the office is an hour away and although he is not accepting my insurance, he is the cheapest I could find AND he is Ilads member AND he will go to the conference in Oct.

Overall, I think he is good and I think that maybe bec it was just the first visit he can't do everything at once, so I will see how it goes down the line. It surprises me that he is not big on biofilms, his mind is not set that they exist; and if they do, he doesn't think they interfere with treatement the way I do and most of us here think of them.  Also, he does not think detoxing baths with sault work--he said massages are better and to drink a lot of water during them.
He wanted to give me some probiotics and I said I am doing well with the kefir so far, so we postponed that, I may decide to get them next time. So far, I do not feel like I needed them, the Kefir is doing enough for me and I have no GI problems--hopefully it will stay that way.  Not sure what to think and if I agree with him 100% on everything, but we shall see.  He did not push on me anything I didn't want, although he has tons of herbals in his office.

Post Edited (Simela) : 9/17/2010 11:31:38 AM (GMT-6)


Missy Joy
Regular Member


Date Joined Sep 2010
Total Posts : 53
   Posted 9/18/2010 3:46 PM (GMT -6)   
Yes, all 3 at the same time, 2 times a day.  The Biaxin switches with Flagyl every 7 days - so last week was Biaxin, and tomorrow I begin the 7 days of Flagyl instead.  I like Biaxin weeks better than Flagyl weeks - my tummy doesn't feel so bad as when I'm taking Flagyl.  Yuck!  It begins again tomorrow.  :(
Philippians 4:13 I can do all things through Christ which strengtheneth me.

Jeminij
Veteran Member


Date Joined Dec 2005
Total Posts : 1335
   Posted 9/18/2010 4:12 PM (GMT -6)   
I took Biaxin and it is what got me well. I didn't take the others, but I always made sure to take it with food. Other than the awful taste of metal, I tolerated pretty well for the 26 months I was on it.

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 9/19/2010 9:12 PM (GMT -6)   
Thanks for your responsesl.  I am taking the 2 abx only 1x/day for the first 3 days and then I will take  them 2x/day.  So far, I am not better or worse--pretty much the same, but I just started the 2.  I can't believe we have to take all this abxs for so long in order to get better from a tiny tick bite! 

Miss joy:
How are you tolerating the doxy?  I only took it last year for 10 days--after that I stopped and took cefuroxime instead.  It was making me feel sooo sick, and my stomach was on fire as soon as I would take it--I do not have any GI issues.  OR maybe I was herxing--my GP did not tell me about herx, so I knew nothing about that.

Post Edited (Simela) : 9/19/2010 8:17:56 PM (GMT-6)


Missy Joy
Regular Member


Date Joined Sep 2010
Total Posts : 53
   Posted 9/20/2010 8:27 AM (GMT -6)   
At first I had stomach trouble taking doxy - I was so nausous.  The bottle said to take it on an empty stomach so I did. 
 
But when I complained to my doctor, he said that I should be taking the pills with a meal - not too big or too small of a meal - and to take the pills almost when the meal is finished.  If I eat too much, I get sick.  If I eat too little, I get sick. 
 
Also, I learned that I am not to lie down or recline for at least an hour after taking doxy.  It can come back up the esophogus (sp?) and burn the lining.  Plus I must make sure to take it with enough water to get it down all the way.  So I usually take the doxy pills first and let all the other pills knock it down completely to my stomach, and then take the last few bites of food to finish the job.
 
So I have worked it out through trial and error, and now I don't have any problem at all taking doxy, and I'm taking 300 mg a day.  I've been taking this dose, along with Biaxin/Flagyl (switching them every 7 days) and Ceftin, for over 2 months now! 

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 9/20/2010 12:41 PM (GMT -6)   
Thanks, Missy--I guess it is worth another try for the doxy, I am more scared to take flagyl than doxy, although I never took it before.  This is getting harder than I thought (see above post about the taste).

Mamyou
Regular Member


Date Joined Aug 2010
Total Posts : 317
   Posted 9/20/2010 1:39 PM (GMT -6)   
I am on my 4th day of doxy. Missy Joy is right - trial and error. I am taking 200 mg. AM and PM, and 875 mg of amoxicillin 3 x day. Saturday I took the doxy on an empty stomach and looked like a cat trying to cough up a hairball. Lesson learned. The last two days I have eaten some plain boiled grits (it's not wheat and it's not dairy) then took the drugs. So far it's working. Overall, I'm not as sick yet as I thought I should be so maybe the critters are getting down to a mild roar??? Still don't know about co-infections and still haven't addressed the heavy metals.

Simela, on one of your posts you mentioned the doctor wanted you take probiotics and you said you drank Kefir. I am doing several probiotics since the antibiotics kill everything and there's more different strains of bacteria in the gut than kefir will cover. I'm doing plain kefir 4-6 ozs a day, plain organic yogourt a couple tablespoons a day, acidolpholus (sp?) liquid from the doctor about 3 or 4 teaspoons per day (this stuff is expensive), some kind of yeast strain unrelated to candida from the doctor, and then Vitamin Shoppe Ultimate Probiotic 10 1 or 2 a day. I also get some bacteria in the Green Vibrance than I try and get almost a tablespoon in a day. What I'm doing may be trying to kill a gnat with a sledgehammer, but I'm afraid of the yeast getting ahead of me.

Missy Joy
Regular Member


Date Joined Sep 2010
Total Posts : 53
   Posted 9/20/2010 2:14 PM (GMT -6)   
Yes we learn as we go! 
 
I also take lots of probiotics - but I have heard that it makes no sense to take probiotics within 3 hours before or after taking antibiotics because it will immediately kill the good bacteria that I just put in.  So timing is key for me - I take probiotic pills and a few swallows of Kefir at least 3 hours after my antibiotics. 
 
Since I take my antibiotics at 9 am and 9pm, that means I am doing the probiotics about 1pm and yes - 1 am.  I have to get up to go to the bathroom anyway....  so I just stumble on into the kitchen for a good dose of probiotics so that they can get settled in through the night.  smilewinkgrin

Simela
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Date Joined Aug 2010
Total Posts : 552
   Posted 9/20/2010 3:09 PM (GMT -6)   
Ok, thanks for the tips. i took kefir 2 hours prior to abx. So far so good, but I haven't been on abx for long enough to be a problem. I will try it 3 hours afterwards from now on. I will probably have to take the probiotic pills as well eventually--I just hate taking all this pills. I didn't even take a pill of tylenol for years!

Missy Joy
Regular Member


Date Joined Sep 2010
Total Posts : 53
   Posted 9/20/2010 3:31 PM (GMT -6)   
I know what you mean about all those pills!  Yuck!!! 
 
It's funny - I was taking one pill at a time at first, then I realized that I was drinking about 2 gallons of water a day!  That's a little much.  My husband pointed out that maybe that was the reason I felt so drained all the time - my blood was so diluted.  Well you know what, I cut back to only a gallon a day and my energy did get better!  I also wasn't as nauseous after meals as before - probably because my stomach wasn't so distorted by all that water.
 
My energy level could be a coincidence....  but now I try to take a few pills at a time and think happy thoughts while they go down.   

Mamyou
Regular Member


Date Joined Aug 2010
Total Posts : 317
   Posted 9/20/2010 5:09 PM (GMT -6)   
Missy Joy...How I relate! I'm up to bathroom every night and, like you, I do whatever probiotics I feel like doing at that hour. Seems like I'm taking some in 4 and 5 times a day.

And, yes....I time taking them so the abx isn't killing off as soon as they go in. In a perfect world, we should be able to take all the abx for however many months or years, THEN cram in the probiotics....but it just doesn't work that way.

Now, the question is, have you noticed much herxing on the doxy? This is Day #4 and I'm still not as sick as I should be?????? (I said that in my first post here).... I should be glad but not sure how to feel about it????

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 9/21/2010 10:55 AM (GMT -6)   
Momyou:
My sick days go in cycles, so I am not sure you should expect to feel sick so soon. I would wait a month or at least a few weeks. Week 2-3 I fell sick and then a few weeks after that. Right now I feel pretty good. A bit dizzy. I can't tollerate hights and I must watch for that. I went on a ramp with my kids and got so dizzy that I almost fell off! I am also really dizzy when I am in stores. It won't keep me away (I love shopping and it makes me happy and it is like terapy, but I get nauseated and confused). Still, if things stay this way, I can take it. I have had less pain also, so it is not bad--I expected a lot worse! I know you have a lot more "experience" in dealing with this, but this is my experience, so far.

Missy Joy
Regular Member


Date Joined Sep 2010
Total Posts : 53
   Posted 9/21/2010 11:32 AM (GMT -6)   
I am taking so many abx its hard to say which causes me to herx. I think at first it was the doxy, but when I added Flagyl and Biaxin (alternating) I noticed I felt more symptoms on the Biaxin days. 
 
I am feeling much better these last few days - but I wonder if a herx is right around the corner.  And that would be ok since I would know that the little bugs are dying.  I will cheer! 

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 9/21/2010 9:20 PM (GMT -6)   
I felt a lot worse today, the pain was not worse, it seems like it has been a little better, but really nauseated and confused. could this be herxing, also? I am so tired, I sleep at least 8 hours and I can't stay up at night and do things, as I used to. I can't get a lot done during the day bec. of the kids, esp the baby who does not like to stay in her crib, swing or high chair for long. She wants to be crawling on the floor, in which case I have to stay right next to her, bec she can get up on furniture, and hurt herself. I am soooooooooooo tired!

Mamyou
Regular Member


Date Joined Aug 2010
Total Posts : 317
   Posted 9/21/2010 9:47 PM (GMT -6)   
Thanks, Simela. I'll wait and see how the doxy cycles out. This whole mess is still a mystery to me. I, too, get terribly dizzy and disoriented in stores. I have a few theories but probably none are right. I wonder about the level of formaldehyde and other chemicals coming off the new stuff, I wonder about the fluorescent lights--whether it's the kind of lighting or if my body reacts to the mercury vapor. I do know I have the problem with standing for any period of time, so put all those together, and I'm not much of a shopper any more.

I'm sorry you're having a bad day...has to be a herx....so be sure and do whatever you do to detox. I'm wondering if one of the side effects of your abx is fatigue??? Might explain why you're feeling so tired???? You also have a lot of responsibility trying to keep up with a crawling baby...they're so quick.

Missy Joy - Hope you're doing ok on your abx...maybe you're gaining on the little bugs and the herx days won't be as bad.

Simela
Veteran Member


Date Joined Aug 2010
Total Posts : 552
   Posted 9/22/2010 3:38 PM (GMT -6)   
Mamyou:
I have no idea! Fatigue is my worst symptom right now. I woke up with back pain this morning, but it is bearable. Fatigue and brainfog are driving me crazy! I never know what to expect from one day to the next and even from one minute to the next. Yes, the kids are a handful, esp the baby bec I have to watch her non-stop.

A new symptom, started a week ago, my left little finger was hurting badly, now it is a little curved in towards the other. I have heard that some people get this from the L-type bacteria. I will have to see my Lyme dr and ask about this at next appointment. We had so much to cover, that I completely forgot. I will also get the probiatics, hopefully I will be Ok until then. Let me know how you feel, Ok?
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