Breathing and Head Problems with Lyme

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Toboein
Regular Member


Date Joined Nov 2010
Total Posts : 23
   Posted 11/20/2010 5:19 PM (GMT -7)   
Hello friends, this is just an informative post.

I was just wondering, How many of you have had breathing problems and strange head pressure feelings with Lyme?

the so called "Air Hunger" problem seems to come and go as it pleases, one hour im fine, the next im not. It feels like my lungs literally REFUSE to expand all the way, and it leaves me, well, hungry for air and straining to get a satisfying breath. Does this sound like anyone else?

Also, the head problem. I have this annoying hot feeling pressure in my head. Mostly around and under my ears, and the lower back portion of my head. Sometimes when its bad, i feel like im very hot, but only in my head and behind my eyes. Moving around tends to make it worse and sometimes laying down makes it feel like its throbbing! Usually its gone by morning and comes on stronger as the day goes on. Does anyone else get this? And has anyone else found any ways to relieve or treat this?

Thanks for any comments and replies.

Wishing everyone healing and happiness.

rosesinjanuary
Veteran Member


Date Joined Oct 2007
Total Posts : 748
   Posted 11/20/2010 7:27 PM (GMT -7)   
When the breathing problems occur are you symptomatic? I am breathing hard now because I am symptomatic today with phenomenol fatigue. I gasp for air sometimes but it is always when i am symptomatic. bodies get tired of fighting illness I imagine, kinda like one is in a heated boxing match but the opponent is a form of borrelia. I am going to go back on abx, i don't see i have a choice, didn't want to ever go back but my bad days are more commonplace than good, so?

Toboein
Regular Member


Date Joined Nov 2010
Total Posts : 23
   Posted 11/20/2010 9:54 PM (GMT -7)   
My body is weird, as is my infection.

If I am having the head symptoms - i dont have any other symptoms.
If i am having the breathing symptoms, its only that and no other symptoms.

My symptoms seem to be bundled together and they occur seperately. I could develope a headache later and the breathing symptom will vanish mysteriously. Its like rotation.

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 11/22/2010 8:57 PM (GMT -7)   
I have air hunger all the time, but it varies in intensity. I was told that it's a symptom of Babesiosis, not Lyme (Babesiosis is one of the Lyme coinfections). My blood test was just borderline positive, but I have the typical air hunger and drenching sweats. Anti-Babesia medications give me "herxes" which involve severe air hunger.

However, this air hunger is not caused by my lungs not expanding; it feels as though no matter how much my lungs do expand, there is just not enough oxygen in the air to breathe.

Occasionally I also have "hot flashes" in my face and/or entire body. My face flushes a bright, beet red when this occurs. I have headaches that hit when I stand up and it feels like the top of my head is going to blow off. I have weird pressure on both sides of my neck which feels like a headache (but it's in my neck) and I can feel my heartbeat in my neck. Does this sound at all like your "throbbing" feeling?
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Malarone, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

http://forty-two-joann.blogspot.com/

Toboein
Regular Member


Date Joined Nov 2010
Total Posts : 23
   Posted 11/22/2010 9:00 PM (GMT -7)   
Yes, especially the neck thing.

I feel a tightness, achy pressure on either side of my neck. Sometimes it does feel like a headache, and sometimes i feel like turning my head or sleepign with my neck turned a certain way can make the pressure feeling worse.

The air hunger is the worst. If i could alleviate the air hunger, and head pressure, id be much happier.

wacko woman
Regular Member


Date Joined Mar 2008
Total Posts : 182
   Posted 11/24/2010 6:43 PM (GMT -7)   
Toboein,

I know exactly what you mean by air hunger and head pressure. I suffered with this for a long time, even after having been treated for the Lymes (by Dr. Jernigan) and was doing well.

It didn't turn out to be Lymes' at all (though was probably effected by the Lymes.) I remember telling Dr.'s that I didn't think I was getting enough oxygen (turns out I was correct). Not one Dr. thought (or knew) to look in my mouth to figure out why I wasn't getting enough air!

Air hunger - literally not being able to draw in a breath - was caused by problems in my mouth (oral function). I had a front tooth pulled when I was a little girl, then had braces to complicate the damage. Every tooth in my mouth no longer 'resided' in the place it was originally created to be in. My mouth had changed shape and my tongue literally did not have enough room and was backing up in my throat and causing breathing difficulties and terrible head pressure. It is all related to the autonomic system run by the mouth.

I have been treated by a Dr. in Tacoma (Dr. Robson) He is a TMJ specialist who uses appliances to change the mouth. I am a work in progress, but when the head pressure returns he adjusts the appliance and it goes away. (That is the simplified version of course).

But it is a relief to be able to breath again (it is awful to not be able to draw a good breath) and not have that awful pressure. If you are interested in more I will try and answer any questions you have.

wacko woman

lindaca
Regular Member


Date Joined Oct 2010
Total Posts : 54
   Posted 11/24/2010 6:57 PM (GMT -7)   
I have the same as nasalady, it feels like my lungs are expanding, but not filling with air.

Head pressure, hot/cold feelings come and go. Lots more of the red spots (cherry angiomas) than before, as well as severe MS-type symptoms (no MRI activity in brain, is all in spinal cord). All typical of Babesia, although no way to know for sure if that's all that is involved.

Doc is treating primarily for Babesia now, will see what happens. Is too soon after meds change to make any determinations yet.

ancient trees
New Member


Date Joined Dec 2010
Total Posts : 4
   Posted 12/13/2010 1:48 PM (GMT -7)   
Besides fatigue my main symptom is shortness of breath. I have lyme, babesia, ehrlichia, amoebiasis, possibly Qfever and a host of viruses like Epstein Barr all of which I am sure came from the some tick(which I never saw) and my immune system being down with the lyme etc. Has anyone found the cause of the shortness of breath and how to treat? It is not candidiasis and does not respond to asthma inhalers which just make it worse. I have had all kinds of pulmonary and heart workups before we finally realized that is was caused by tick borne infections. I am on a lot of meds for the various infections for over 3 months but the shortness of breath is wearing me out. My blood oxygen is actually good at 98 at 6800 ft of elevation so my lungs must be working harder to compensate????? Any feedback greatly appreciated. My doctor just did some blood work to see if it is fluid in the sac around the lungs.

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/13/2010 2:47 PM (GMT -7)   
Dear AT,

Welcome to the forum!

All I know is that for me, the Babesiosis is the cause of the "air hunger". My doctor says that it won't go away until we get rid of the Babesia, and that could take a year or more. I've been on meds for Babs for about 9 months now, and still have intermittent problems with those symptoms: air hunger, sweats, etc.. I expect to continue to fight it for a few more months, at least.

I wish you well in your fight, and hope to hear more from you! Please keep us updated on how you're doing!

JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Malarone, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

http://forty-two-joann.blogspot.com/

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 15353
   Posted 12/13/2010 5:29 PM (GMT -7)   
Hi Ancient trees!
Welcome to our forum! I am sorry that you have a need to be here. I think you will find us a helpful, kind & caring group!!

In my opinion, it would be best to let your doc run the tests he/she may think is necessary, but it is a good chance that tick-borne infections could be the cause of your air hunger. I believe JoAnn is correct in the thought that it is Babesia that is the culprit, especially since your blood oxygen levels are so high.

Why don't you start a new thread and introduce yourself? You could tell us a little about your in a place where more members are sure to see it. Also, it would be best if you would read the thread at the top of the forum titled "New to Lyme?...Start here". It's full of a bunch of info that members here thought would be important to those first coming to this forum.

I look forward to getting to know you through your posts!!
Co-Moderator, Lyme Disease ;)
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Treating with Acupuncture, Traditional & Modern Chinese Herbs & Western Herbs.

ancient trees
New Member


Date Joined Dec 2010
Total Posts : 4
   Posted 12/13/2010 6:51 PM (GMT -7)   
Thanks Nasalady. My doctor was listening to my breathing today and thought she heard fluvesence sp? in the lower right and left lung so we are doing CT scans of heart and lungs to make sure it isn't pleurisy or pericarditis altho we know the infections are causing it. My symptoms have been somewhat worsening and she felt they shouldn't be on the meds. Has your doctor seen it take as long as it is for you before with the shortness of breath? Are your blood oxygen levels good? as mine are very good.....which I find interesting given the symptoms.

ancient trees
New Member


Date Joined Dec 2010
Total Posts : 4
   Posted 12/13/2010 6:56 PM (GMT -7)   
Hi Traveler, being new to chat groups should I post new topic to start a new thread not having done chat rooms before? I did read some of the New to Lyme section......Ancient Trees

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/13/2010 6:57 PM (GMT -7)   
Hi AT,

I'm glad your doctor is taking it seriously and is checking everything out!

I have lupus too so am prone to pleurisy myself. Every time they check my blood oxygen levels they're fine (98-99%).

Please keep us posted on what your test results show!
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Malarone, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

http://forty-two-joann.blogspot.com/

lindaca
Regular Member


Date Joined Oct 2010
Total Posts : 54
   Posted 12/13/2010 8:20 PM (GMT -7)   
I have the same as nasalady, with the lungs expanding but feeling like they're not filling with air. My LLMD is also a pulmonary specialist (his primary specialty) and hasn't expressed any concern over this. My lungs are fine, my O2 always checks out fine, it's just the babesia making the breathing seem unnatural.

I'm definitely getting more sweats now that I'm on heavy-duty babesia treatment. I've also managed to get my body temp up to the 98+ range, where before it was always between 96-97, so could be that's helping with bug-kill.

Only trouble now is fitting 3 iv's a day into my schedule... ugh...

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 15353
   Posted 12/13/2010 11:35 PM (GMT -7)   
ancient trees said...
Hi Traveler, being new to chat groups should I post new topic to start a new thread not having done chat rooms before? I did read some of the New to Lyme section......Ancient Trees


Hi Ancient Trees!
All you need to do is to click on the "Post New Topic" button at the top & bottom of the forum topics page, or they can be found at the top & bottom of any thread.

Glad to hear that you have already started reading!! I believe that we all need to be our own health advocates, and in order to do that we must educate ourselves to a much higher level than we may have been used to.

I would also like to suggest that you get copies of all blood tests & any other tests or procedures and keep a file with these in it. I have discovered several things in the print outs I have kept from docs offices that should have been checked on, but were overlooked instead.

Please let me know if I can be of any more help.
Trav
Co-Moderator, Lyme Disease ;)
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Treating with Acupuncture, Traditional & Modern Chinese Herbs & Western Herbs.

healingpower
New Member


Date Joined Dec 2010
Total Posts : 5
   Posted 4/6/2011 5:12 AM (GMT -7)   
Ï've had the airhunger and headpressure for over a year, it mostly went away with serrapeptase.(cleaning all the bio film)..I have heartproblems too, very extreme, it is always accompanied by a feeling of fried nerves at the back of the head, than nausea and than severe palpetations...the heart would beat faster and faster until the body would cool of to an extreme, first in the head...
 
 I guess that the heart had difficulty pomping when it was beating so fast and that would explain the extreme hypothermia...
I am in the netherlands and even though I had a near death experience and all the neurological symptoms and i was IGG positive etc...they still won't give more than a month of doxycycline...it is incredible...be thankful you don't live in the netherlands..they won't do anything at all for lymepatients and you are fighting for a bit of care here..I feel for all of you lymepatients, what a horrible disease...but I do remain positive that it can be cured..believe!.I idea

ancient trees
New Member


Date Joined Dec 2010
Total Posts : 4
   Posted 4/6/2011 11:28 AM (GMT -7)   
Dear Healing Well, That is absolutely scandalous that they will only give you a month of doxy. I have been on drugs for 7 months and am finally having good days with the energy to do my work. You most likely also have other tick co-infections that need to be treated as they are like 'dirty bombs'and it is difficult to defeat the lyme without all the treatments. If you email me at franhardy@earthlink.net I can give you contact info for my doctor. Even in the US there is persecution from the AMA etc for doctors who treat long and well enough. My doctor does do phone consults and is very effective with them and will guide to where to be tested. I don't know if they have done overseas but it is worth talking to the office. There is a book written by a medical science writer called Cure Unknown. I forget her first name but her last name is Steinberg and she went through all of this with her whole family even as plugged in as she is to the medical community. The politics are enormous but the important thing is for you to find someone who will really treat you adequately.
Best, Ancient Trees aka Fran Hardy

Cat111
Veteran Member


Date Joined Nov 2010
Total Posts : 571
   Posted 4/6/2011 8:29 PM (GMT -7)   
I absolutely can relate to the head pressure....hot head....weirdo head....fried nerves in head....vertigo head, heavy head, light head, all things head! Moving around made it worse.

Finally, after five months+ of antibiotics, this nasty symptom seems to be clearing up--- but just in the last few days.

Nothing really alleviated it. I think it just had to run its course. But if I didn't get a good nights sleep---and I mean at least 8 hours-- it would be worse. And yes it seemed to progress through the day.

I only had air hunger when I first started taking Doxy way back when and only in the morning for some reason. I don't know what that was. I don't have Bab. just Lyme.

Funny thing, I didn't get the bad head pressure etc. until I had been on antibiotics for about three months.

Hope you feel better soon!
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, November 26, 2014 9:59 AM (GMT -7)
There are a total of 2,278,390 posts in 253,241 threads.
View Active Threads


Who's Online
This forum has 158697 registered members. Please welcome our newest member, lizard318.
349 Guest(s), 24 Registered Member(s) are currently online.  Details
flameboy, ShutterGy, ColoradoUC-er, pictureofhealth, PeterDisAbelard., sidharth16, THE HAPPY TURTLE, Motmot liz, Bambi bear, Guardian7, SethRollinsGirl, Serenity Now, UserANONYMOUS, w0hll, BSchoolGuy, Tom1, ks1905, Old Mike, soystud, bibleman04, wampuscats, LupronJim, Sunny13, Clovis47


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer