lab results / with referral to infectious disease doctor

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

chicksinger
Regular Member


Date Joined Jan 2011
Total Posts : 56
   Posted 1/14/2011 6:09 PM (GMT -7)   
How to interpret???

Test: Bb antibody screening test (blood drawn on 12/14; results given on 12/30)
Titer/Antibody: PRESENT/Value: 1.18
Positive >1.09

The above are, what I assume, taken from the ELISA results. This is on a CDC reporting form, she did not give him the actual ELISA test result.

--------------
WESTERN BLOT result, not in a form I expected: blood drawn on 1/3 - results obtained 1/14

Pages 2 and 3 of 7:

Lyme Ab/Western Blot Reflex
Lyme IgG/IgM Ab RESULT <0.91 paper criteria reads that NEGATIVE

Lyme Disease Ab, Quant, IgM RESULT: FLAGGED HIGH 1.13 - paper criteria POSITIVE >1.09 being POSITIVE

Under the heading
Lyme Ab, IgM, Interp., EIA Positive Abnormal
All IgG P93, P66, P58, P45,
P41, P39, P30, P28 P23
and P18 All are ABSENT under the Positive header

Lyme IgG WB Interp. - NEGATIVE

Lyme Ab IgM by WB
Igm P41 Ab, P39, P23 All are ABSENT under the Positive header

Lyme IgM WB Interp. NEGATIVE


POSITIVE: 5 of the following
Borrelia-specific bands: 18, 23, 28, 30, 39, 41, 45, 58, 66 and 93
NEGATIVE: No bands or banding patterns that do not meet positive criteria.

BASED ON THE CRITERIA ABOVE we are clueless

----------------------

PAGE 1 of 2

Lyme Ab/Western Blot Reflex
Lyme Disease Ab, Quant, IgM 1.13 result high/ Flag
Note: IgM levels may peak at 3-6 weeks post infection, then gradually decline. FDA currently advises that Western Blot testing be performed following all equivocal or positive EIA results. Final diagnosis should include appropriate clinical findings and a psitive EIA which is also psitive by Western Blot.
Lyme Ab IgM Interp., EIA Positive Abnormal

---------------------

GP has referred hubby to an infectious disease specialist. I am concerned this doctor may not be lyme "friendly" - is this a step in the right direction or should I go looking for an LLMD right away now? Could this referral actually be an LLMD?

This Infec. Dis. specialist is in northern new jersey - if someone would like to PM me if they have compiled a list I would like to give you the doctor's name and see if the doctor is on the list. Thanks.

Post Edited (chicksinger) : 1/14/2011 5:27:12 PM (GMT-7)


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 15320
   Posted 1/14/2011 9:19 PM (GMT -7)   
HI Chicksinger,
I sure wish I could be of some help with interpreting those test results. Hopefully someone has seen results reported like this before can help you.

What you can do your self is to call that Infectious Disease Docs office and ask what their approach is to Lyme Disease. Please keep in mind that there are a whole lot of Infectious Disease docs that are not Lyme-literate.
Co-Moderator, Lyme Disease ;)

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

Treating with Acupuncture, Traditional & Modern Chinese Herbs & Western Herbs.

I break my posts up so that I can read them easier. I have neuro LD & the print actually dances around if the paragraphs are very long. Thank you for understanding.

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/14/2011 10:38 PM (GMT -7)   
Hi Chicksinger,

Those results ARE confusing! I think I know what might be going on.....but someone please correct me if I'm wrong!

Lyme IgG/IgM Ab RESULT <0.91 paper criteria reads that NEGATIVE

Lyme Disease Ab, Quant, IgM RESULT: FLAGGED HIGH 1.13 - paper criteria POSITIVE >1.09 being POSITIVE

Lyme Ab, IgM, Interp., EIA Positive Abnormal


The result above is the EIA (enzyme immunoassay), which was positive for IgM, but negative for IgG.

The Western Blot results were negative by CDC criteria:

Lyme IgG WB Interp. - NEGATIVE

Lyme IgM WB Interp. NEGATIVE


Unfortunately the lab only reported that certain bands required by CDC criteria were absent; they did NOT report whether or not any of the OTHER bands showed up.

I hope this helps!
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Malarone, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

http://forty-two-joann.blogspot.com/

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/14/2011 10:42 PM (GMT -7)   
P.S. Ask your infectious disease specialist if he/she belongs to the IDSA and/or ILADS. You want to have a doctor who belongs to ILADS, if at all possible! Those are the good guys! smilewinkgrin
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Malarone, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

http://forty-two-joann.blogspot.com/

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4151
   Posted 1/15/2011 2:27 AM (GMT -7)   
If I were you, I'd be looking for a Lyme-Literate MD right away instead of waiting.
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, UCTD, Osteoporosis, etc.; G-Tube
Meds: Ceftin, Singulair, Claritin, Domperidone, Milk Thistle, homeopathy, probiotics, etc.

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2057
   Posted 1/15/2011 9:02 AM (GMT -7)   
I went to infectious disease dr. in my plan and recommended by one of the lyme organizations. Wrong move. He was extremely nice and treated me but in the long run, he knew nothing about lyme. I got worse. Everything he told me turned out to be wrong. Told me you could only herx for a day at most, never heard of a CD-57, and ran tests for bizarre other ailments, claiming that it could not be lyme making me as sick as I was.

Please get to an LLMD. You will be wasting your time and your health. This doctor is a well known, well respected doctor but does not know lyme and in my opinion, not many doctors do.
Lyme, erlichosis, bartonella. 4 years undiagnosed despite 10 drs.
Current meds: roxythyroxine, bactrim, amanatadine, neurontin, xanax, valtrex, cymbalta
Prior meds: amoxicillin, probenecid, minocycline, tetracycline, doxy. IV refused by insurance. Supplements: boluke, alpha lipoic acid, ag immune, magnesium, milk thistle
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, November 22, 2014 8:05 PM (GMT -7)
There are a total of 2,275,621 posts in 252,940 threads.
View Active Threads


Who's Online
This forum has 158664 registered members. Please welcome our newest member, Thoronymous.
294 Guest(s), 21 Registered Member(s) are currently online.  Details
achievinggrace, Ludwig64, notsosicklygirl, JamesBW, stefanschultze, Pirouette, CandyS, Revive, Almost a 10, pd Baxter, Dolph ziggler fan, Acheybody, BillyBob@388, IHL, lgm1942, nvrthesame98, Kitkate, Goldengirl2014, Big Mac, wearyRAsufferer, Mister Mike


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer