DOES ANYONE ELSE HAVE AN ON AND OFF RUNNY NOSE WITH NO COLD?

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willie0521
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Date Joined Dec 2010
Total Posts : 59
   Posted 1/26/2011 1:22 PM (GMT -6)   
For the past few weeks I've had this one nostril at a time runny nose with no cold.  It comes and goes and I have no idea why. 
 
I mentioned it to the neurologist yesterday and he diagnosed me with Fibromyalgia.  I never saw this coming.  I don't even know what it means.
 
Is the runny nose normal?  Should I be worried?..............Willie

HorseHelper
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Date Joined Jan 2011
Total Posts : 182
   Posted 1/26/2011 1:40 PM (GMT -6)   
Willie,

Get this! For a year I wondered why my nose never stopped running. I felt like maybe a "cold" all the time. Was diagnose with Lyme last wk. It's immune system oriented. My friend kept believe sinuses. NOT!

I never had this before and along with horrible headaches , body aches, neck aches etc...... All these relate to Lyme.

I'm a new member, but learning quickly about this booger (HA) of a disease,

Hang in!

willie0521
Regular Member


Date Joined Dec 2010
Total Posts : 59
   Posted 1/26/2011 3:35 PM (GMT -6)   
Thanks HorseHelper for your response.

Do you still have this problem? Is there anything I can do about it?

I was just diagnosed in early December '2010. I'm still learning too. Take Care............Willie

Tala3
Regular Member


Date Joined Sep 2009
Total Posts : 233
   Posted 1/26/2011 6:24 PM (GMT -6)   
You could try to do nasal rinses. You can get a neti-pot or squeeze bottle - lool up Neil Med Sinus Rinse on-line and it explains it all. I have horrible allergies and this is the only thing that actually works!

HorseHelper
Regular Member


Date Joined Jan 2011
Total Posts : 182
   Posted 1/26/2011 9:21 PM (GMT -6)   
willie,

I don't have a clue, sorry. I go through tissues though. I'm sure it's the weakened immune system. On top of it all I have Herpes II and I'm really feeling sick all the time. Bummer!

I did good with the nose about a wk or so, it's back along with achy legs and fatigue.

Dr. tells me full story tomorrow.

worrypot
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Date Joined Jan 2011
Total Posts : 151
   Posted 1/27/2011 1:23 PM (GMT -6)   
Willie,

I spent months waking up at night with trouble breathing, and finding myself having to swallow lots of mucus. I also had problems climbing hills or doing too much exercise, and my nose was constantly running. I mistakenly thought I had a problem with persistant colds or allergies but now know it was probably an early Lyme symptom.

I found propping myself up on pillows at night helped my sleep, and Sudafed tablets are good short-term too.

My runny nose has now vanished and been replaced with other symptoms instead. Just a bit short of breath now... Have you had breathing tests and immune tests?

Kirsty

willie0521
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Date Joined Dec 2010
Total Posts : 59
   Posted 1/27/2011 2:15 PM (GMT -6)   
Hello Kirsty, Thanks for your response.

I have not had any breathing or immune test done as of yet. How is the immune system tested?

I do get out of breath easily. I always thought it was strange that when I walk my little boy to school I'm out of breath as soon as I start walking. After a while I attributed it to being overweight.

I've just recently noticed that I'm not breathing well at night. ..................Willie

bauhaus
Regular Member


Date Joined Nov 2010
Total Posts : 40
   Posted 1/27/2011 2:19 PM (GMT -6)   
hi willie, and all...
me too. i would not worry...
i wonder if it is seasonal... not allergies, but winter.
i am learning that high pressure weather systems make my sinuses sore! and runny. when it's dry, i have to use mentholatum.
 
 i do use a neti pot most  mornings. it is a regular AYUERVEDIC detox thing.
my constitution is very dry, i don't get allot of mucus, but the neti helps just clean out ? dust, polution, pollen, dander...? chemicals! perfumes......

worrypot
Regular Member


Date Joined Jan 2011
Total Posts : 151
   Posted 1/27/2011 3:56 PM (GMT -6)   
Willie,

A simple blood test can check your immune system, and see if there are any problems there. If nothing else it will reassure you.

I also had a spirometry test for my lungs, which tests levels of oxygen/CO2 etc, and checks for things like asthma. Incidently, I do know one man who developed asthma at the age of 32, so it can come on as an adult (I didn't know that!).

Have you been diagnosed with Lymes? Can certainly cause shortness of breath.

Hope you get an answer soon...

Kirsty

willie0521
Regular Member


Date Joined Dec 2010
Total Posts : 59
   Posted 1/27/2011 6:21 PM (GMT -6)   
Kirsty,

I was diagnosed with Lyme early December '2010. I was put on doxy for approximately one month by my pcp and referred to a Neurologist who diagnosed me a few days ago with Fibromyalgia. That's the extent of my treatment. Initially I felt worse than ever and then I felt really good and thought maybe I was healed. But now my symptoms are back again.

I've learned so much from my fellow "lymies" on this forum. It's almost as though some of their stories are a prediction of my own. My doctor acted as though the lyme is now over but from what I've learned on this forum it's really quite common for the symptoms to dissapear for a few weeks and then return. I thank God for this knowledge because I would have been very distraught at the onset of my symptoms after being dismissed by my pcp.

I had more blood work ordered by my Neurologist. I'm currently awaiting the results. Perhaps he is checking my immune system. He told me he wants to see a more detailed breakdown of my blood work result.

Take Care.......Willie

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14858
   Posted 1/27/2011 6:34 PM (GMT -6)   
Frequently we Lymies are diagnosed with Fibro - I have been with 18 out of 18 trigger points positive. I believe it is just Lyme pain.

Willie,
Please get your own copies of these blood tests. Docs don't know what they are actually looking at. I consider my gp to be quite good for a gp and he never has seen that I have trouble absorbing the Vit. B-12.
We can help you figure out some of what those blood tests are saying.
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, which makes long paragraphs very hard to read.

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1489
   Posted 1/27/2011 6:42 PM (GMT -6)   
willie.. what is a PCP ? and why aren't they refering you to a tick borne specialist or a LLMD or a naturopath that psecializes in lyme?

fibromyalgia is the joke diagnosis for lyme. what are they thinking your treatment will be for fibro?

Is there treatment for fibro? antidepressants and pain meds? I forget?

what are they treating your lyme with and where are the tests results for all the coinfections.

Neurologists don't treat lyme.

I hope you find a real lyme doctor soon before these doctors keep sending you around the mulberry bush like they did with me for 20 yrs.

I don't know of anyone who gets JUST lyme. We all are coming up with coinfections and parasites.

some where I read that people should be treated 3 months (?) AFTER symptoms stop to make sure.

Did the neurologist use IGENEX labs? any idea what he was looking for? CD57??

I personally believe that every lyme diagnosis no matter how thorough or lame it is should also have serious stol testing for parasites. Parasites cand get into the nasal cavities and lungs as well as gutt.

Please read the thread on IVERMECTIN and strongylides.

I can see tht you are taking charge of your situation and clearly seeing that your doctors are not exactly on target here....keep it up. keep asking every question and get copies off internet about issues like parasites and lyme. strongylides and lyme. coinfections and lyme, chlamadial pneumonia and lyme.


and never stop looking for the best doctor untill you KNOW you have him.

xxxx
after over 20 yrs of doctors . DEC. 2009 tested positive for lyme, bartonella, ehrichiosis, HHPV6, chlamadyal pneumonia .
parasites :strongylides, diaoebia fragialis, hook worm.

Hep C ....fibro, rhumatoidal,depression,

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14858
   Posted 1/27/2011 7:10 PM (GMT -6)   
Bucci,
We really need to be careful not to say that any type of MD doesn't/won't treat Lyme.

There are Infectious Disease docs that treat Lyme & I was 1st diagnosed with Lyme by my Neuro - I just couldn't stick around for the treatment that he wanted me to start.

With that being said - LLMD's are almost always the better choice when using Western Medicine.
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, which makes long paragraphs very hard to read.

willie0521
Regular Member


Date Joined Dec 2010
Total Posts : 59
   Posted 1/27/2011 7:46 PM (GMT -6)   
Thanks Traveler for the advice. I will make it a point to get the copies and post them for further understanding. I was not aware that being diagnosed with Fibro was common with Lyme patients.

Bucci, by pcp I mean primary care physician. I'm having trouble concentrating and thought abbreviating might be a good idea:) I agree with you about the Fibro.

I was really frustrated after being diagnosed because I know that I need more treatment for Lyme and that time is of the essense and yet I'm being sent on a "wild goose chase". My Neurologist referred me to a Fibro specialist (whatever that is) and yes, he did mention that anti-depressents would be recommended as part of my treatment.

I have no idea what the Neuro is looking for. He simply said he wanted a more detailed breakdown and he wanted to see bands. Does the bands test detect co-infections?

I was hopeful that I'd be referred to a LLMD after the Neuro but instead I got another diagnosis. Traveler stated that it's commom so that does help me feel better. I guess it's all a part of the unfortunate Lyme journey.

Thanks for your help and encouragement...........Willie

HorseHelper
Regular Member


Date Joined Jan 2011
Total Posts : 182
   Posted 1/29/2011 1:44 PM (GMT -6)   
I asked Dr. about runny nose. She said it's probably something else.

Really? I am run down, when I feel like this (lyme symptom, I believe) then nose runs and it seems almost like I'm getting a cold. This just isn't sometimes! It's all the time.

willie0521
Regular Member


Date Joined Dec 2010
Total Posts : 59
   Posted 1/29/2011 4:13 PM (GMT -6)   
Hello HorseHelper,

Thanks for asking your doctor. I'm with you. I absolutely do not believe it's something else. This is a new symptom that began after a month on doxy. My symptoms went away for a few weeks and now they're back with a vengeance.

What's really weird to me is that my nose runs one nostril at a time. Out of nowhere one nostril will start to run and then stop. Nothing in particular seems to bring it on.

Take Care.......................Willie

Traveler
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Date Joined May 2007
Total Posts : 14858
   Posted 1/29/2011 5:23 PM (GMT -6)   
smilewinkgrin I've learned to always - well almost always eyes - have tissues around!!! scool

idea I figure these poor docs can't explain a lot of things we go through, this is just one more!
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, which makes long paragraphs very hard to read.

willie0521
Regular Member


Date Joined Dec 2010
Total Posts : 59
   Posted 1/29/2011 7:13 PM (GMT -6)   
Hello Traveler,

I read that Lyme can cause Bells Palsy. I'm really concerned that my runny nose micht be a symptom. Should I be concerned or is it just another annoying symptom of Lyme?

Willie

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14858
   Posted 1/29/2011 7:54 PM (GMT -6)   
Hi Wilie,
Lyme can cause such an amazing array of symptoms!! LD can cause either or both- a runny nose and Bell's Palsey. I have both of these things as well.
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, which makes long paragraphs very hard to read.

HorseHelper
Regular Member


Date Joined Jan 2011
Total Posts : 182
   Posted 1/30/2011 7:39 AM (GMT -6)   
We all will need to be Doctors soon! Well, we know our stuff! HA. We're experienced, right?

Runny Noses:

Now, here's what I really do about the tissue episodes: you take one tissue at a time and stuff it in your nose LOL LOL LOL , leave it there!!!!! It works! Or (LOL LOL) you make a "Nose Bucket). You can hang it on the top of your nose with velcrow or tape, whatever suits your fancy!

Any other problems? Let Dr. HorseHelper assist you in my modern techniques of Lyme healing!!!!!

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14858
   Posted 1/30/2011 2:14 PM (GMT -6)   
My hubby already tells others that I know more about tick-borne infections than any gp!! smilewinkgrin I don't know about that, but his point is well taken - like yours Horse Helper!!! After all of the research reading we all are forced to do, we probably do know more than a lot of docs!! smilewinkgrin
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, which makes long paragraphs very hard to read.
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