Lyme testing results. Went from one marker on PCR to many after months of antibiotics.

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Donjoe
Regular Member


Date Joined Dec 2010
Total Posts : 59
   Posted 1/26/2011 8:42 PM (GMT -7)   
I have been seeing a lyme specialist for the last 4 months for my symptoms. My husband has had testing and is positive. He tested me for lyme with marker 41 showing up. I have been on doxycycline for four months. My doctor recently got my third test back and found that my IgM PCR test came back with 4 markers showing but not at a high enough percentage to be considered positive. The markers on the IgM are the ones indicative of lyme disease.The IgG PCR test showed 4 markers positive and 1 marker at 75%. My testing is still considered negative. Clearly the antibiotics have helped show that I have lyme disease. I went from only one marker showing to many markers showing. I decided to start I.V. antibiotic treatment and orals with out help from insurance. I am hoping that 3 weeks after treatment my testing will come back positive so that insurance can pay for the second round. I believe I have chronic lyme and I think it unlikely that 1 course of I.V. antibiotics (rocephin) will cure me. My lyme doctor agrees this is the best thing to do. Does anyone have any input on this.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 15366
   Posted 1/27/2011 6:35 PM (GMT -7)   
Hi Donjoe!
Welcome to our forum!!! I am so sorry to hear that both you & your hubby have been infected with tick-borne infections! I am, however happy that you found us!! I'm sure you will find us to be a helpful, caring & understanding group!!

I very much agree with you on the possibility that abx treatment will at least sometimes help to bring about a positive LD test for some people. It did for me. I was on 600 mgs of oral Minocycline for a full year before I was able to test positive.

You said that you believe you have chronic LD. How long ago do you believe you were infected? A lot of us here have been infected for many years as well.

If you haven't already, please read the thread at the top of the forum titled, "New to Lyme?...Start Here!" as it is full of helpful info that the members here helped to put together, as well as many great links for even more information!!

I hope this helps a bit.
Once again, Welcome!!!
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, which makes long paragraphs very hard to read.

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1489
   Posted 1/27/2011 6:54 PM (GMT -7)   
YES YES, I think that especially doxcycline will bring out your lyme symptoms even more and if you are not prepared to go through to the bitter end don't try to just dip and dab with the antibiotics. My lyme symptoms got 1000 times worse after starting the doxy. especially in brain and pain and depression. all my gut , gallbladder, pancreas issues got solved with parasite medicine and candida meds, nyastatn.

but the neuro and pain and depression........and brain fog is worse. I am not on antibiotics for 6 months now.

I'm trying to figure out an isnurance set up first before attempting at it again.

But I notice that there are people who did a month of doxcy and are showing no signs of lyme and getting turned down for more treatment. are they being given the same blood tests as Donjoe?
after over 20 yrs of doctors . DEC. 2009 tested positive for lyme, bartonella, ehrichiosis, HHPV6, chlamadyal pneumonia .
parasites :strongylides, diaoebia fragialis, hook worm.

Hep C ....fibro, rhumatoidal,depression,

Donjoe
Regular Member


Date Joined Dec 2010
Total Posts : 59
   Posted 1/28/2011 7:56 PM (GMT -7)   
I first started showing signs around 10+ years ago. I complained to my doctors back then of symptoms. I had developed all of a sudden terrible migraines, heart tachycardia, irregular rhythm at times that would cause me to feel faint, ovarian cysts, stiff tight neck, and swollen lymph node under right armpit. My doctor couldn't find anything wrong with my armpit, he adjusted my neck and said that everything was caused by stress. Back then I did notice a large egg shape lump on my forearm. I didn't have any pain or fever that I could remember. It went away in about a week. I lived in TX at the time at joked that the mosquitoes sure are big down here. We always had lots of problems with mosquitoes and no see-ums in TX. Every insect was nasty and bites.

I lost my gall bladder to inflammation in 2008. That year was when things got really bad. In June of 2009 I developed fibromyalgia and an elevated rheumatoid factor. I was told by my rheumy that I would likely get rheumatoid arthritis. I turned down all his immune suppressants and anti-depressants and went looking for another doctor for this cause. This is how I came to find a lyme specialist. So far so good. I am just concerned about my gut issues and taking I.V. antibiotics. I have terrible abdominal pain sometimes that travels into my right shoulder blade and into my neck then head. This is how I get migraines. I believe lyme has effected my vegus nerve in some way and caused the killing of my gall bladder. I don't always have abdominal pain but, when I do it is bad. I also suffer from frequent constipation and mid back pain with bladder spasms. I have had everything checked out with my gastro doc and urologist and they couldn't find anything wrong.

Bucci you mentioned that people did a month of doxy and aren't showing any signs of lyme. Their doctors shouldn't be going by testing. They should be going by their symptoms. My doc said that he will keep me on doxy for a while to see if it made any difference in my health and with my antibodies. I did notice a difference in my foot pain. It has almost completely gone. I couldn't get out of bed in the morning with out complaining of the terrible feet pain. He could see it was helping and kept me on it. I could have had a co-infection that didn't show up on testing. My husband was negative the first time and retested a month later and showed positive. Everyone is different. My son (who we believe has lyme) has CFS and didn't get any change on his testing after being on doxy for 3 months. I sometimes think he suffers from a co-infection that can't be seen on testing. We don't know just yet.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 15366
   Posted 1/29/2011 8:59 AM (GMT -7)   
Hi Donjoe!
I too suffered from gall bladder issues just last year (Or maybe the year before?? confused ). My gb had to be removed by the time I went in to see a doc about it. I was told after surgery that it was worse than the doc had realized, as my gb was not only diseased, but full of 'gunk' (docs' words not mine!) and a ton of gallstones of different sizes!!

Oh and let's not forget those bladder issues!!! Aren't they fun?!?! smhair It seems that I am now able to find the bathroom - if there is one - in less than 2 minutes!!! eyes

As far as the constipation goes, we are full of little tips to help get things 'moving along' again should you wish help with that!! Constipation definitely works against us, as the longer that waste is in us, the more poisons we re-absorb.

Although I have never had any IV meds (long story), I do believe that when using them, the issues with a patients' stomach get bypassed since the abx are going straight into the bloodstream.

Someone please correct me if I am wrong!!
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, which makes long paragraphs very hard to read.

Donjoe
Regular Member


Date Joined Dec 2010
Total Posts : 59
   Posted 1/30/2011 7:16 AM (GMT -7)   
I believe my constipation happens because of herxing and I believe inflammation is caused by lyme and made worse by herxing. My husband is going through this right now. The scary thing is that I herx on 100mg of doxy 2 times a day and I am supposed to start Rocephin I.V. next week. I think I may delay this until my husband is done his I.V. treatment. I lost my gall bladder due to inflammation, no stones. When I look back now, I know that lyme destroyed it. I never suffered with typical diarrhea. I was always having problems with constipation on and off. My body is desperately trying to get rid of toxins and in the process I develop terrible inflammation. I follow the detox instructions and it helps some. I told my husband I am going to go and try a sauna to see if it helps before I get the I.V. PICC linel.
Fibromyalgia, rheumatoid arthritis
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