How long will it take?

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079
Regular Member


Date Joined Jan 2011
Total Posts : 44
   Posted 3/7/2011 8:48 AM (GMT -7)   
Just wondering if anyone can tell me how long it take for Lyme to clear up, I've ad Lyme disease 8 months an have just started on my abx which I'm a week in to them an not feeling any affect, I'm not expecting miracles but have not got any idea how long it takes to clear up. I just wish I could have a full day where I'm on the go an not have to have a lay down because I'm going dizzy or feel weak, is there anyone else that feels like they can't get on with everyday life because they don't no how there going to feel from 1 hour to the next, all I want to do is feel normal and happy again but this disease is really getting me down at the minute.

achievinggrace
Veteran Member


Date Joined Nov 2009
Total Posts : 2547
   Posted 3/7/2011 9:05 AM (GMT -7)   
People might try, but no one can really give you an accurate answer to your question, 079. Recovery is such an individual thing, there is no way to know how your body is going to react to the treatment and how easy it will be to get the bacteria under control.

My experience has been that slow and steady wins the race. Take care of yourself, get plenty of rest. Keep as active as you can. Do everything you can to boost your immune system and be sure to take your medication as instructed. And, very important, be patient with yourself and the healing process. That does not mean just lie back and expect it all to just get better -- you have to actively strive to get better.

Some days are harder than others. It is very easy to get frustrated, especially when you have some good days and then you find you cannot do what you could just a couple of days ago. And if the fight goes on for a while, you can experience battle fatigue -- that's where "ve been for the last couple of weeks. Today is a better day, and I am convinced tomorrow will be good, too.

What has helped me in the past is to take great pride and a sense of accomplishment from what ever it is I am able to do on a given day. Sometimes it's a little, sometimes a lot.

Here's to better days!

079
Regular Member


Date Joined Jan 2011
Total Posts : 44
   Posted 3/7/2011 10:11 AM (GMT -7)   
Thanks very much for that post achievinggrace I'm just feeling a little guilty at the minute as well as I can't really do much with the family as I don't no how I'm going to feel, I'm trying to do a little bit more everyday then I get bad again an feel like I'm back to square 1. I get dizziness really bad as well so that's getting me down a lot just want to get my life back but then again i bet everyone on here does, we are all in the same boat an it's nice to no everyone is here for eachother. Hope you have a good day x

Tala3
Regular Member


Date Joined Sep 2009
Total Posts : 233
   Posted 3/7/2011 11:03 AM (GMT -7)   
Well, 079, at least you know what you are fighting. I know exactly how you feel, and for me that went for four years before I even knew what I was fighting! Now that I know, it makes it so much easier to deal with mentally because I was not being treated for anything and was getting so discouraged with the medical community. It's a long road and people who have not dealt with it just don't "get it", so don't be surprised if there is a lack of support from other people. People "get" cancer, diabetes, and broken bones, they don't 'get" Lyme Disease...

achievinggrace
Veteran Member


Date Joined Nov 2009
Total Posts : 2547
   Posted 3/7/2011 11:17 AM (GMT -7)   
When I was feeling badly that I couldn't do things with the family, I found something I could do. I went through all the family photos, sorted them and got them ready for albums and to scan onto CD's for everybody. Maybe there is something small and quiet you could do for them.

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2057
   Posted 3/7/2011 2:36 PM (GMT -7)   
You have to be patient and easy on yourself. I learned the hard way. I beat myself up until I couldn't take it anymore. I insisted I could act "normal" and no one would notice and it came back and hit me in the face HARD. You really have to give this thing time. I am two years on antibiotics and just recently came upon a new acceptance and calm because I felt like I was giving in or losing the battle. Fight it hard but not bitterly or angrily cause you will lose yourself.
Lyme, HME, HGE, bartonella. 4 years undiagnosed despite 10 drs.
Current meds: roxythyroxine, bactrim, doryx, amanatadine, neurontin, xanax, valtrex, cymbalta
Prior meds: amoxicillin, probenecid, minocycline, tetracycline, doxy. IV refused by insurance. Supplements: potassium, boluke, alpha lipoic acid, ag immune, magnesium, milk thistle, garlic, grapefruit seed extract

aviva143
Regular Member


Date Joined Mar 2011
Total Posts : 22
   Posted 3/7/2011 4:19 PM (GMT -7)   
I was diagnosed with Lyme a month after a tick bite and have been on antibiotics for 6.5 weeks. After initially feeling better, I'm starting to feel worse again. My entire social life is pretty much based around rock climbing and swing dancing, so it's been really tough not being able to do either. Like achievinggrace, I've also started making photo albums recently and find it's a good, low-key activity. I'm glad you posted, since it helps to know I'm not alone and others feel the same way. I hope tomorrow is a better day for you (and everyone else)!

Cat111
Veteran Member


Date Joined Nov 2010
Total Posts : 571
   Posted 3/11/2011 10:10 PM (GMT -7)   
Hi 079,
 
I just had a great visit with my LLMD--who now has me on Zithromax as well as Amox. I've been on antibiotics for going on 5 months now.
 
My doc said that the ups and downs are to be expected, and that slowly the good days will lengthen and the bad ones will shorten. 
 
I recently had two full weeks where I felt absolutely wonderful....and then two bad days of brain fog, ear ringing and back stiffness. These are the three symptoms that keep hanging around.
 
Now I'm feeling better again and hope that MAYBE I'll start having more than two weeks of feeling great.  
 
Hang in there!     

MysteryLyme
Regular Member


Date Joined Feb 2011
Total Posts : 137
   Posted 3/12/2011 1:01 AM (GMT -7)   
2 years undiagnosed. diagnosed exactly 1 year ago march 2010. id say im about 70% healthy now. my lingering symptoms are fatigue, anxiety, and brain fog. sometimes a little... sometimes alot.

i tried the sit and wait approach at first... that will get you nowhere fast. it wasnt until i changed my diet and became a borderline health nut that i started feeling better. its been a year since treatment. and im getting better. slowly.

you can think of your current health in two ways...

do you feel better now than you did before lyme? of course not

but... do you feel better than you did a month ago? hopefully yes.

i think thats a more positive way to look at things. and since improvement is slow... you really do have to think in months instead of days.

-MysteryLyme

luvbugg137
Regular Member


Date Joined Jan 2011
Total Posts : 129
   Posted 3/12/2011 8:57 AM (GMT -7)   
    "Fight it hard but not bitterly or angrily cause you will lose yourself."  Springsjean, I love that saying....oh so true! 
 
I had a WONDERFUL day yesterday.....first time in a month I had NO nausea or vomiting.  I even got up and exercised some and did my hair and makeup (which I havent done in a month) and it felt great.  I think I over did it a little because I am feeling horrible now....but I had ONE GREAT DAY!! 
 
Y'all are amazing people here.  I have been so down and out for so many years trying to find out what is wrong with me and have been down in the dumps and not loving the medical community too much.  Finally being diagnosed was a relief but it is so hard to believe that Im not dying from something else because how I feel and all the crazy things that are going on with my body on a daily basis.   Seeing how alot of people on here handle things and refuse to let this disease dampen their spirits is an inspiration.  I just hope that one day I will be one of the people giving advice and inspiring people to keeping plugging along when you feel like you cant.
 
Thanks for all the help and advice you guys give.  It makes it so much easier knowing youre not alone!
 
L
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