What are some symptoms i should expect when starting IV Rocephin?

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Lymie20
Regular Member


Date Joined Apr 2011
Total Posts : 65
   Posted 4/4/2011 8:10 PM (GMT -6)   
 I just want to know what should i expect, So when i start it i dont think im going crazy if i start to feel weird... Am i going to feel worse mentally? Like more out of body? Feel more unlike myself? Dizzy? ect...

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14784
   Posted 4/5/2011 10:59 AM (GMT -6)   
I'm sorry that I have nothing that I can share, but I wanted to 'bump' this back up to the top - maybe someone out there will see this & be able to help!!
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, which makes long paragraphs very hard to read.

Lymie20
Regular Member


Date Joined Apr 2011
Total Posts : 65
   Posted 4/5/2011 11:06 AM (GMT -6)   
thank you

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14784
   Posted 4/5/2011 11:11 AM (GMT -6)   
You are very welcome! smilewinkgrin
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, which makes long paragraphs very hard to read.

MyTwoSons
New Member


Date Joined Mar 2011
Total Posts : 17
   Posted 4/5/2011 4:52 PM (GMT -6)   
It's been awhile since I've done IV Rocephin, but I'll give you my two-cents' worth in random bullet order...

* I have mainly neurological Lyme, not much of a pain issue, so if you're the opposite you may have a different experience.

* Rocephin did *wonders* for me...but it worked *so* well that I couldn't tolerate it for long and had to stop it. I think I only did the treatments for two or three weeks.

* I immediately felt much *better* across the board on all of the wierd neurological and emotional symptoms I had had.

* The reason I had to stop wasn't because of an exacerbation of my usual symptoms as you might expect from a herx. I.e., I didn't begin to feel *more* depressed, more neurologically blasted, etc. On the contrary, I actually felt those things delightfully retreating even when I couldn't tolerate the Rocephin.

* What became intolerable is that I began to feel very -- very -- "heavy-headed," as if the weight of the world was trying to drain out of my head through a drinking straw. It got to the point where I felt like a 300 pound man was trying to press me down into the ground with his work boot. I stopped the treatment out of a sheer feeling of needing to come up for air. That treatment was ordered by a wonderful local doc who knew the basics of what to do but probably didn't have the finesse to discern that my liver just couldn't handle all of the toxins that were being released. One problem I've had throughout Lyme treatment -- and gradually gotten smarter about dealing with -- is that I've had a problem tolerating things and have had to often start with small doses of antibiotics and build up. Also, I've discovered that I have a slow Phase II liver metabolism and a relatively fast Phase I metabolism. That can cause a train wreck of sorts where toxins pile up and can't get processed through Phase II fast enough. A supplement called Calcium D-Glucarate has really helped with that. So, I'm hoping that when/if I ever do IV Rocephin again I'll be able to a) be more strategic about starting at a smaller dose and building up and b) have a liver that's more capable of processing the issues that it creates because of taking and having taken D-Glucarate.

* I'm pleased to report that after stopping the Rocephin and "getting the man's boot off my head" I felt wonderfully better...for several months! I went back to a lesser, oral antibiotic, so that several-month-long state of success wasn't just held on its own, but it seems the Rocephin did hit the nail on the head in a big way. My doc and I just didn't have the finesse at the time to know how to navigate the dosing, nor did I have the liver to be able to handle it very well.

* I've also recently learned that my blood is hypercoagulated (too thick) which could have been part of the problem, too.

I wish you all the best if you're about to embark on IV Rocephin treatment. I imagine it will do you a world of good, and I hope you'll be able to tolerate it and navigate the dosing and usage of it to its full benefit. I hope this helps you to do so. :)

Shelly71
Regular Member


Date Joined Sep 2013
Total Posts : 373
   Posted 2/13/2014 12:31 AM (GMT -6)   
mytwosons,

what dose of c D glucarate did you take?
My unknown future is in the hands of an all knowing God.
Abnormal is my new norm.
**********************
5/13 Quest showed 1 band positive. #41 only!
9/13 IgeneX showed 6 bands positive.
11/13 Blood Smear showed Babs & Bart
Vitamin A deficient.


Meds: flagyl, ceftin, curcumin, vitamins

Humboldtgrl
Regular Member


Date Joined Nov 2013
Total Posts : 43
   Posted 2/13/2014 9:26 AM (GMT -6)   
I am on my forth week. I am not feeling improvement that I notice, but many other people are telling me I look a lot better. The herx hasn't bbeen bad at all. I did have flat feelings at first with random crying but that seems to have subsided. My pain is worse in my feet and legs but it was pointed out that Bart probably has more room to do its thing now. My extreme shaking is subsiding so that is cool. I barely notice that ive taken it when I do!

I wish you tons of success....also don't forget to take the Actigall.

vcast
Regular Member


Date Joined Apr 2013
Total Posts : 370
   Posted 2/13/2014 5:24 PM (GMT -6)   
I was on IV Rocephin TWICE for over 9 months. After some minor Herxing during the first few weeks, I got dramatically better and then plateau'd. My neuro issues like brain fog, nightmares, shaking took a lot longer to disappear than my physical issues. On and off I got "flares" and I found out it was either Candida, parasites or adult virus issues. Treating all of these, I then progressed to stage Im at right now. I can exercise everyday now and 100% of my fatigue is gone. However, I still even after all of this have some neuro issues.

One last thing: IV Rocephin is very very strong stuff. Its critically important you detox with enemas and take a massive amount of probiotics (specifically Saccharomyces boulardii to control the Candida). Its also important that your vitamin levels be constantly monitored. I almost died when my liver stopped working on this drug. If your fatigue increases dramatically (more so than usual) be mindful something might be wrong.
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