A mother seeking help.

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nicolevanhaaren
New Member


Date Joined Jun 2011
Total Posts : 4
   Posted 6/3/2011 8:34 AM (GMT -6)   
I believe my son may have been bitten by a tick or some other bug that could of been carrying lyme disease. Over memorial day weekend my son complained of having what looked like mosquito bites and said they hurt and itched. Because I could not get him into his doctor, I took him to the E.R. The e.r. doc said that he had cellulitis because the spots were rock hard and hot to the touch and presribed cephalexin. Well as the day progressed the bites got bigger and turned into what looked like a bullseye appearence. So from May 28th through May 31st, his rash progressed into a bulls eye rash.
 
His pediatrician said it looked like a spider bite or another type of bug bite and wasn't sure. After my son was taken home from the doctors office, this was on June 1st, his ankle started swelling pretty bad and because his pediatrician only wanted to start him on benedryl stated just keep his ankle propped and he will be fine. I took back up to the E.R and the e.r. doc then said oh yes looks like bug bite, and gave him prednisone. I asked for blood work to be done and mentioned lyme disease and he told me it did not look like it and said to talk with his pediatrician.
 
I got upset and on june 2nd, took him back to his pediatrican and told her I wanted blood work done and to have something done incase if it was lyme, but she said it will heal up and does not look like a tick bite and said antibiotics should only be for infections and they could have bad side effects.
 
I will attach some pictures of his leg and the progession it has taken. I just want to know what this is because my son is suppose to have eye surgery and is also disabled and it would kill me if I did not take the proper action to seek treatment for him if this is lyme.....
I talked to the lyme association in michigan and they said it looked very suspicious of lyme cause of the rash.
 

achievinggrace
Veteran Member


Date Joined Nov 2009
Total Posts : 2477
   Posted 6/3/2011 9:34 AM (GMT -6)   
Hi Nicole,

Welcome to the forum. You are very right to want to address this as early as possible. Lyme is quite curable when treated early.

You will probably have to insist that your doctor treat your son. If your primary care physician refuses to treat this as Lyme, you should really seek out a Lyme Literate Doctor. Don't wait on blood test results as they are often inaccurate and very rarely come up positive so soon after a bite.

Prednisone is not recommended for Lyme as it lowers the immune system.

The sticky, "New to Lyme...", at the top of this forum has a lot of info and resources.

Good luck! Let us know how it goes.
Co-Moderator Lyme Disease Forum

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14746
   Posted 6/3/2011 3:15 PM (GMT -6)   
Hi Nicole,
Welcome to our forum! I am so sorry that your son is possibly infected with tick-borne infections (tbi's), but you have come to a great place!, I'm sure you will find us to be a helpful, caring and understanding group.

Achievinggrace shared some very important info, and I wanted to share a little more. First of all, Good for you!!! You didn't let anyone push you around when it came to your son's health!!!

Unfortunately, ticks are no longer the only insect that can spread Lyme and other tbi's. It has become so prevalent that most any biting insect has the potential to infect a person. Mosquitoes, biting flies, fleas, and spiders to name some.

Please do read the thread at the top of the forum titled "New to Lyme?...Start here!" - as Achievinggrace said - has a ton of great info and really informative links. One, for Dr. Burrascano's "Advanced Topics on Lyme Disease" is one I recommend often, as it has a ton of info not only about Lyme Disease and it's treatment, but the more common co-infections (such as Babeosia, Bartonella, & Rocky Mountain Spotted Fever to name a few) and their treatments as well.

Another thing I would like to suggest is to do some reading on Dr. Jones' site (www.drjoneskids.com/), as his practices' focus is on children with Lyme.

It will be incredibly helpful to not have to train a doctor on how to treat your son while trying to be sure your son is getting the right treatment. Do you need to find a Lyme Literate Medical Doctor for your son? We can help with that as well. I don't want to overwhelm you, so if you would like some links to places that can help you locate a LLMD, just ask!! :-)

And one last thing...for now. smilewinkgrin I would also like to suggest -rather heavily- that you have your son start detoxing right away. A well-known and well respected LLMD - Dr. David Jernigan - wrote an article titled "Lyme Toxins The Primary Cause of Your Symptoms". It can be found here:
findarticles.com/p/articles/mi_m0ISW/is_285/ai_n19170382/?tag=content;col1

In the "New to Lyme?" thread, we have a few really great 'recipes' for detoxing and dry skin brushing, and don't forget to have him drink plenty of water with lemon.

Please let us know how your son is doing and how you are as well. We can also help you understand some of what he is going through, as we have been there ourselves most likely.
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, which makes long paragraphs very hard to read.

daisyrlb
Regular Member


Date Joined Jan 2010
Total Posts : 277
   Posted 6/3/2011 10:53 PM (GMT -6)   
Nicole,

So sorry your child is suffering. That has to be one of the hardest things a parent can walk through.

There is a narrow window of time––I've read from various sources it's 3 weeks ––for treatment of Lyme Disease to be started, thereby, providing the optimum chance for cure, usually, within several months.

That's quick compared to what can happen if the "window of opportunity" is lost and it turns into Second Stage Lyme Disease.

You are still within that window. I strongly encourage you to take your child to a Lyme Literate Doctor, who is not just familiar with Lyme Disease, but treats it day in and day out. If it's not Lyme...GREAT! However, better to be safe than sorry.

May God give you wisdom,
Rhonda

nicolevanhaaren
New Member


Date Joined Jun 2011
Total Posts : 4
   Posted 6/4/2011 8:14 AM (GMT -6)   
Nicole: Thank you all so much for the information you have provided. I have set up an appointment with a lyme specialist here in Michigan. Yesterday I noticed that the swelling went down on my son's ankle and now he has the same rash on his ankle now, so I am not going to wait and watch and have my son tested for lyme in four weeks like his pediatrican suggested.
I have a gut feeling that something bit him and gave him lyme. I am so glad for that movie "under your skin," for educating me more on this scary disease.

daisyrlb
Regular Member


Date Joined Jan 2010
Total Posts : 277
   Posted 6/4/2011 8:21 AM (GMT -6)   
Good Morning Nicole,

You are a wise mom. Be sure and continue to take pictures for documentation.

Peace.

nicolevanhaaren
New Member


Date Joined Jun 2011
Total Posts : 4
   Posted 6/5/2011 9:01 AM (GMT -6)   
I cannot wait until monday to get my boy in, mine and my boyfriends families are very worried about the mysterious rash on my son's leg, no one has seen anything like it and my son's ankle is looking more and more like the rash on his leg and he complained of pain when walking.
 
I am really trying to wrap my mind around lyme disease it just scares me to pieces if it is not caught in time. What kind of stress relieve does anyone do when dealing with this? I cannot imagine this is an easy thing to deal with.
 
 

Post Edited (nicolevanhaaren) : 6/5/2011 8:04:16 AM (GMT-6)


Deejavu
Veteran Member


Date Joined Aug 2005
Total Posts : 3797
   Posted 6/5/2011 10:00 AM (GMT -6)   
Hi Nicole,
 
I also had a mysterious rash that first looked like your son's rash and then as time went on my rash turned all different colors.   My skin biopsies showed that I was bit by a spider yet it took 5 years until I had a diagnosis of lyme.   From what I understand, spiders and ticks are in the same family.  
 
Knowing what I know now (and being well for over 5 years), the first thing I would do is buy a bag of epsom salts and large bottles of hydrogen peroxide, run a bath for your son (using warm water) and put 4 cups of salts and 1 entire bottle of the hydrogen peroxide (food grade, 3%) and your son should soak in this for 20 to 30 minutes to start drawing out the poisons.   If your son feels he can handle a 2nd bath later on tonight, I would highly recommend he do so.    Also, meanwhile he is in the tub he should be drinking water (fresh lemon is good to put in the water).
 
If you read "New to Lyme.. Start Here!" in the sticky thread on top you can read all the benefits of these baths. 
 
I really believe this would help your son tremendously as well as relieve the pain.  There are poisons inside of him and they must come out...
 
Hang in there and let us know how he is doing okay?
Denise
It's all about the Immune System mixed with Daily Detoxing and a dose of Positive Thinking!

nicolevanhaaren
New Member


Date Joined Jun 2011
Total Posts : 4
   Posted 6/6/2011 6:23 AM (GMT -6)   
I have a question about lyme disease and if anyone else experiences this? My son over the weekend woke up at 4am saturday night and sunday having nightmares about tornadoes. My son has never had dreams so bad to the point to where he is crying out for me and screaming. I will be reporting this to his doctor but I am not sure if that could be a symptom of lyme or not, I feel like I am going crazy right now confused

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14746
   Posted 6/6/2011 10:25 AM (GMT -6)   
Actually, yes, very vivid nightmares can be a symptom of a tick-borne infection. I have had some nightmares that have scared the daylights out of me before!! Once your son gets into a good treatment, this symptom along with others will go away.

Let us know what the doc has to say!
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, which makes long paragraphs very hard to read.
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