Band 41 - IgG West. Blot ?????

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Cat111
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Date Joined Nov 2010
Total Posts : 571
   Posted 7/5/2011 12:28 PM (GMT -7)   
I'm curious....
 
....if anyone has had a negative IgM and ONLY band 41 showing as 'abnormal' on IgG.....and, most definitely was diagnosed with Lyme? 
 
Yes or no answers will certainly suffice. 
 
I don't want to bog everyone down with detailed explanations.   But please be prolific if you feel like it! smilewinkgrin
 
 

springsjean
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Date Joined Mar 2009
Total Posts : 2150
   Posted 7/5/2011 2:17 PM (GMT -7)   
My husband had NO bands on lab corp. but tested positive with Igenex. Anything is possible with lyme.
Co-Moderator
Lyme, HME, HGE, bartonella. 4+ years undiag. despite 10 drs.
Current meds: roxythyroxine, bactrim, doryx, amanatadine, neurontin, xanax, cymbalta Prior meds: amox, minocycline, tetracy. IV refused by ins. Supplements: boluke, alpha lipoic acid, AG immune, magnesium, milk thistle, resistant microbes, coq10

Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 514
   Posted 7/5/2011 7:55 PM (GMT -7)   
It has been a number of years since my last blood test, however band 41 was the only band to show ++ on numerous test I have had. Did this give me a CDC positive Lyme test....no, thankfully I found a lyme literate doctor that clinically diagnosed me from my symptoms.
I am not a doctor, my posts are not medical advise.
Infected Memorial day weekend 2006.
Borrelia, Bartonella, Ehrlichiosis, GI parasites
Current status: 80% recovered

Cat111
Veteran Member


Date Joined Nov 2010
Total Posts : 571
   Posted 7/6/2011 5:41 AM (GMT -7)   
Band 41 IS the mystery band.  My research on this has turned up conflicting, inconclusive and truthful info. (or so it seems) all at the same time.  
 
Some is anectodal, some is from non lyme related study of bacteria + scientific Lyme study.  
 
Here is a smattering of the results I found-- various sources:
 
A.  Band 41 will be positve/abnormal ONLY when patient has either Relapsing Fever,  Syphilis  or Lyme. 
 
B.  Any bacterial infection-- even Gingivitis or yeast-- will give a band 41 positive/abnormal.
 
C.  Healthy individuals who do not have Lyme or any other infection  will test positive for 41 as many bacteria live in our bodies.  Everyone tests positive for 41. 
 
D. Anyone who has had Lyme in the past and was 'cured' with immediate treatment before symptoms started and has no evidence of an ongoing infection, will forever test pos/abnormal for band 41.
 
E. Band 41 indicates the protein for FLAGELLA-- the 'tail' that motorizes bacteria. 
 
But apparently, only pathenogenic bacteria have flagella.  If this statement is true....
 
....then something IS in the bloodstream if band 41 is abnormal. 
 
 Are there just 'tails' floating around?  Or are the 'tails' attached to living, moving bacteria?   ....and if so, which bacteria?
 
Supposedly, these are all the Flagella bacteria:
 
Anthrax, Lyme, Pneumonia, Brucellosis, Enteritis, Chlamydia, Candida, Botulism, C. Diff., Tetanus, Gangrene, Diptheria, E. Coli, Meningitis, H. Pylori, Legionaire's, Leptospirosis, Leprosy, Tuberculosis, Typhoid, Gonorrhea, Salmonilla, Rocky Mt. Spotted Fever, all Staphs, all Streps, Syphilis, Cholera, Bubonic Plague.
 
So, if a person does not have any of the above when they are tested specifically for Lyme, it makes sense (IMO) that Lyme is present-- in the blood-- in some form. 
 
But I can't imagine that just flagella 'tails' are cruising around by themselves.
 
The mystery then remains (IMO) that if band 41 is abnormal, is the flagella indicative of an active Lyme infection?   Yes, of course, when symptoms are present. 
 
But when there are no symptoms, and band 41 is present (all other bacterial infections ruled out) I suppose it's just a matter of time until symptoms appear.....???
 
.......or,  perhaps certain people's outstanding immmune systems indefinitely keep the bacteria from wreaking havoc.  Or....a certain harmony between the body and the Lyme bacteria has been reached. 
 
Again, just my opinion!  
 
Bottom line:  For doctors to dismiss an abnormal band 41 (the only band being positive on one's WB test) as NO LYME DISEASE,  just seems grossly remiss to me. 
 
This is what I faced with my first blood test-- NO LYME DISEASE because I only had band 41.    The doctors I saw at the time,  considered my sporadic, come and go, 'all over the place'  symptoms as...........something else.  The usual story.  
 
I believe-- as many of us probably do-- that band 41, even by itself, is pretty important !!!  
 

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2150
   Posted 7/6/2011 6:15 AM (GMT -7)   
I have a friend who only had band 41.  They told her she has metal toxicity.  She has had surgery on both elbows and is scheduling for shoulder surgery and has constant stiff neck.  She also has a constant tremor and cannot sleep.  Luckily she is pretty healthy otherwise but she has been told she does not have lyme.  I'm not so sure about that. 
Co-Moderator
Lyme, HME, HGE, bartonella. 4+ years undiag. despite 10 drs.
Current meds: roxythyroxine, bactrim, doryx, amanatadine, neurontin, xanax, cymbalta Prior meds: amox, minocycline, tetracy. IV refused by ins. Supplements: boluke, alpha lipoic acid, AG immune, magnesium, milk thistle, resistant microbes, coq10

Cat111
Veteran Member


Date Joined Nov 2010
Total Posts : 571
   Posted 7/6/2011 6:35 AM (GMT -7)   
I don't think metal has 'tails'....LOL.    But it's not funny about your friend. 
 
I'd be suspect of Lyme too.

Lyme14
Regular Member


Date Joined Jun 2011
Total Posts : 381
   Posted 7/6/2011 8:31 PM (GMT -7)   
 
Springsjean,
 
She may well have Lyme or another issue going on besides the metals.  Has your friend tried to detox from the metals?  Metals (esp. mercury) are extremely neurotoxic.  This video is from the Univ. of Calgary.  See: http://www.youtube.com/watch?v=BtFsy0rQsak  They contribute greatly to Autism, MS, and Alzheimer's, too.
 
 
 
 
I'm a music teacher, and not a doctor. Anything I post is based on my own experience and lay opinion.
Lyme, Babesiosis, Mycoplasma (Asthma), Fibromyalgia (Soft Tissue Injury), Costochondritis,
CFS (Mitochondrial Dysfunction), IBS (Candida & Leaky Gut), Hashimoto's Thyroiditis, Adrenal Fatigue,
ITP (Low Platelets), TMJ, Plantar Fasciitis, Schamberg Purpura, Tinnitis, Allergies, MCS

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2150
   Posted 10/14/2015 1:39 PM (GMT -7)   
Ironically she eventually found out she does have lyme
Prior moderator
Lyme, HME, HGE, bartonella. 4+ years undiag. despite 10 drs.
Current meds: neurontin, cymbalta, Prior meds: bactrim, doryx, amantadine, amox, minocycline, tetracy, roxithyromycin. IV refused by ins. Supplements: boluoke, alpha lipoic acid, AG immune, magnesium, milk thistle, resistant microbes, cats claw
FEELING GREAT THESE DAYS! Hang in there - it does get better.

Kate08
New Member


Date Joined Sep 2016
Total Posts : 9
   Posted 10/1/2016 6:36 AM (GMT -7)   
With regard to band 41, it appears that a study on lyme in FL and GA indicates lyme based on 41's presence.

Genetic variability among southern B. burgdorferi sensu lato strains may play a role in the lack of consistently detectable antibodies to specific proteins besides the 41-kDa flagellin, which was commonly observed among patients in this study and others conducted in the southern U.S.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 30073
   Posted 10/1/2016 7:35 AM (GMT -7)   
Actually, based solely on testing, it can't be concluded that a person has Lyme disease. Bands 18 & 41 (whether in IgM or IgG) are indicative of the tail of the bacteria, which can cross react with other Spirochetal bacteria such as Relapsing Fever, Pintas and Yaws, and Syphilis.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Lyme cure- lesions gone
New Member


Date Joined Oct 2016
Total Posts : 7
   Posted 10/2/2016 10:50 PM (GMT -7)   
I have Lyme disease (tested positive for band 41 only) and I was misdiagnosed with MS. That said, I strongly urge anyone who is diagnosed with MS because they have lesions on their brain or spine to seek a 2nd oppion from infectious disease Dr. (i.e: Dr. Jemsek, in Washington, DC). DO NOT TAKE THE $40k medication(pill) which ultimately paralyzes you and suppresses your immune system causing havoc on your body later on. Fortunately my husband uncle is a brilliant Neurologist, who has the most amazing mentor whom is the greatest infectious disease Dr. that practices cutting edge medicine. We are unfortunately in a place that is ruled by drug companies (CDC) and a government officials (congress) that seek personal gain for it's self interests, rather than to help people heal with the simple and inexpensive use of antibiotics. I have been able to treat my Lyme lesions and make a complete recovery and so can everyone else who's Interested in exploring the true and proven remedy to beating Lyme disease. The majority of mis-diagnosed MS patients, as myself can be helped. I hardly ever post anything, anywhere, however I felt the need to share my experience and success with not having to end up in a wheel chair, in hopes of helping others
that might be in the same boat that I was in. You can get better and you can walk again if you have been Mis-diagnosed like I was. Lesions on your brain or spine DO NOT automatically signify MS! After 4 1/2 months of being on ANTIBIOTIC IV THERAPY (Ceftin, Docy, raphamtin, Tindizol, Manuka honey , Vit D, VSL PROBOTICS LIVE (45 billion) and a bunch of supplements) all my lesions and aliments disappeared. I was strong, energetic, happy, smart, successful, full of life and felt beautiful again. I hope my post help someone else's out there who's feeling lost or helpless.Lyme is just a chronic infection and once you are able break through the brain blood barrier you will get better. Good luck to all! Warmly, a caring sole that is so great full to have the answers and wants to give back and share the gift I received.

P.S. Remember you will get worse before you get better. That's a sign that you are killing the lyme spirochetes that are infesting your brain, eyes, etc. When you're on Lyme kill cycle the spirochetes release toxins When they die and that what causes you to feel so sick. You need to flush the toxins out as much as possible. I have infared Sauna and tried to drink lots of water. Long and short of my story is that it worked and I want to help as many people out there that I can . I just wish it wasn't as expensive, so hopefully my insight and experience can help someone without them having to pay as much as I did to get this info. (Program regimn). Send me a personal message if you'd like more details. Ultimately my goal is to get congress to pass the bill to treat Lyme appropriately based on my imperical evidence of a successful treatment and control of my Lyme disease. We can not continue to have CDC control our Dr's treatment routine based on their incorrect standardized treatment for Lyme that just touches the surface and doesn't allow them to profit as much as they do when there are people chasing their tales trying to figure out why they are still so sick. We can all win this fight together and be the healties, happiest and most impactful we have ever been. Hope to be part of helping you all heal.

Kate08
New Member


Date Joined Sep 2016
Total Posts : 9
   Posted 10/10/2016 3:09 PM (GMT -7)   
Lyme cure-Lesions gone

How do I contact you? I tested positive for 41 and 66 over a year ago. Have felt miserable lately. Recently sent my doc a research article I came across from the University of North Florida about band 41 and Southern Lyme. Says he would prescribe Doxy, but I have been suffering almost two years and I don't think he has a clue about how to treat lyme or look for coinfections. At this point I can't afford any mistakes. Thanks! Let me know how I can message you.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 15948
   Posted 10/10/2016 3:14 PM (GMT -7)   
Kate - have you considered seeking out a LLMD and having a consultation?

It could very well be lyme disease...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

Kate08
New Member


Date Joined Sep 2016
Total Posts : 9
   Posted 10/10/2016 3:35 PM (GMT -7)   
Lyme cure-Lesions gone

How do I contact you? I tested positive for 41 and 66 over a year ago. Have felt miserable lately. Recently sent my doc a research article I came across from the University of North Florida about band 41 and Southern Lyme. Says he would prescribe Doxy, but I have been suffering almost two years and I don't think he has a clue about how to treat lyme or look for coinfections. At this point I can't afford any mistakes. Thanks! Let me know how I can message you.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 5825
   Posted 10/10/2016 3:48 PM (GMT -7)   
Kate, unless they have their email address enable to receive an email, you just are waiting to see if they come back and find this thread.

What I would do is make a new thread with their name as the title to get their attention.

And then hope they come back and see their name in the list of threads. We can help bump it every once in awhile to help get their attention.

Sorry..... this is the best advice I could think of.

Kate08
New Member


Date Joined Sep 2016
Total Posts : 9
   Posted 10/10/2016 3:48 PM (GMT -7)   
Thanks, Girlie! I have spent a small fortune since getting sick. I have considered an llmd but did not see any nearby in Fl. I am from Michigan originally and I made an appointment with an llmd there but there is a bit of a wait. Any suggestions would be appreciated. I have been to neurologists, gastroenterologists, ent's, bone doctors, the Mayo in Jacksonville, endocrinologists, rheumatalogists, er's, primary care doctors, allergists. Since January they have been trying to tell me it is anxiety and depression. When I have taken ssri's for a period of time I felt worse and could not sleep at all. And I know that is not healthy.

Kate08
New Member


Date Joined Sep 2016
Total Posts : 9
   Posted 10/10/2016 3:49 PM (GMT -7)   
Thanks Pete!

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 5825
   Posted 10/10/2016 3:53 PM (GMT -7)   
Kate you have done the doctor rounds as so many lyme patients end up doing. And you probably will get told it is all in your head at some point.

Only a Lyme Literate Medical Doctor or Naturopath will be helpful.

Good luck. It sucks being sick and you know something is wrong and yet you get told "all the tests say normal." URGH!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 15948
   Posted 10/10/2016 4:00 PM (GMT -7)   
Kate08 said...
Thanks, Girlie! I have spent a small fortune since getting sick. I have considered an llmd but did not see any nearby in Fl. I am from Michigan originally and I made an appointment with an llmd there but there is a bit of a wait. Any suggestions would be appreciated. I have been to neurologists, gastroenterologists, ent's, bone doctors, the Mayo in Jacksonville, endocrinologists, rheumatalogists, er's, primary care doctors, allergists. Since January they have been trying to tell me it is anxiety and depression. When I have taken ssri's for a period of time I felt worse and could not sleep at all. And I know that is not healthy.


Kate - you could start a new thread titled: "Looking for LLMD in Florida" (you could also add the nearest larger city to you). There may be some members who know of one.

Also, have you tried the ILADS Physician Referral system?

ilads.org/ilads_media/physician-referral/
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 15948
   Posted 10/10/2016 4:04 PM (GMT -7)   
You can also email me...click on the envelope below my name on the left.

I do have some options for Florida listed.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

Kate08
New Member


Date Joined Sep 2016
Total Posts : 9
   Posted 10/10/2016 4:10 PM (GMT -7)   
Pete, you are so right! And it is really bad when your family starts doubting you as well. I have always been a bit of a workhorse, seldom turning anyone down if they needed assistance, always trying hard to make things right, but not necessarily perfect, probably always had a bit of anxiety, but nothing that ever impaired my functioning. What I have been going through is ridiculous. Medical doctors have been no help. ER visits a waste. I especially like when they tell me they can't do particular bloodwork in ER. You show them what is happening to your body and they say they aren't going to treat you for a metabolic disease. I am certain this has to do with changes since Obamacare. They will quickly pass out drugs. One made me take something before I was released and told my husband it would make me sleep 8 hrs. I was up 3 hrs later. Crazy!

Post Edited (Kate08) : 10/10/2016 5:13:29 PM (GMT-6)

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