Seriously...What is there to eat when we have lyme???

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scorp7
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Date Joined Jul 2011
Total Posts : 205
   Posted 7/27/2011 10:31 AM (GMT -6)   
This is a terribly confusing issue for me.  What do we eat when we have lyme so as not to aggravate our symptoms?  I heard we should never ever eat sugar or sugar free foods.  No sodas.  No juices. Limited fruits. Lots raw veggies.  Gluten free.  No dairy.  No grains?  High fiber.  No processed foods.  Low carbs. etc etc
 
The drinks are not a problem with me.  I  drink lots of water and recently began adding lemon to it.  I drink some green tea and I also still do my coffee with a tad bit of milk.  That's it.
 
But I wake up in the morning and I am hungry but have no idea what I can be eating.   I dread mealtimes.  I have been eating egg beaters with raw veggies, garlic and maybe a slice of fat free cheese for breakfast.  I like quino for breakfast but I only  like it with splenda and cinnamon and I guess splenda is a no no.  I don't know what else to eat for breakfast.  I miss oatmeal and cream of wheat and toast etc.
 
Lunch I eat tuna on romaine or salads.  I am craving a sandwich or soup or anything else.
Suppers are dreadful.  One day I just had a plate of raw veggies.  Still hungry.  I sneak in fruits but feel like I am feeding the dang things with the sugar in them. 
 
Speaking of sugar, what do you all use for a sweetener?  Is stevia ok?  I really do not like the idea of the sugar I eat making those things multiply rapidly.  Is that even true?
 
Sometimes I have fried polenta in Pam.  Sometimes quinoa.  I have been making that then frying it with black beans and chicken broth, garlic and raw veggies slightly sauteed. yummy but what else is there?  I am trying to do the right thing so as not to make matters worse.
 
Other than the above and chicken and brown rice - what else do you eat?  Do you really avoid all dairy and how about good caarbs?
 
I was complaining this morning of not knowing what to eat and hubby says well what do the people on the internet eat?  So I'm asking....
Any ideas out there?

yazzer
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Date Joined Jun 2011
Total Posts : 898
   Posted 7/27/2011 10:45 AM (GMT -6)   
I know! My wife and I were looking at a Lyme Diet book last night - it seems as if we cannot eat anything! I was already on a healthy diet but even a lot of those things I cannot eat anymore. I still have my salmon/fish to fall back on. And veggies. I do not eat red meat or any meat except seafood anyway. I get the protein from fish and nuts and beans usually - sometimes tofu. Love greek yogurt but it'sobviously NOT dairy-freeThe Lyme Diet book I have says NO SUGAR or sugar subs - it recommends Stevia or Xylitol. I cannot give up fruits - fresh and frozen - they are too much of a staple for me and they have a lot of fiber to offset the sugars (and the sugars are natural and not refined so I think much better). I cut back on but not completely off coffee too. I LOVE qunioa too - and gravitated to eating that last year before all this lyme mess! The gluten free part is what kills me in trying to find edible things!

Traveler
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Date Joined May 2007
Total Posts : 14779
   Posted 7/27/2011 12:42 PM (GMT -6)   
There seems to be a ton of "Lyme Diets" out there. I say that you need to eat as healthy as you can afford to. Not eating because you have run out of ideas and just can't face one more day of _______ is not an option either. Why not just try reducing the amount of wheat and dairy in your diet? Remember a healthy diet is what you are after.

I use stevia solely for a sweetener. I have a rather sensitive intestine, so it's absolutely no sugar for me. I do believe that no sugar is a pretty standard thing that most docs will agree on - especially when a person has a TBI.

I have had to leave many foods alone because my body has objected quite loudly when I eat them - things like meats and highly processed foods, but I believe this needs to be a decision that needs to be made on an individual basis.

Since you have already eliminated a lot of foods from your diet, why don't you do an elimination diet backwards?! By carefully adding only one thing back into your diet every 3 or 4 days, you'll know what you are reacting to and can then avoid it!

My Acupuncture Doctor has me drinking only 2 cups of "half-caff" coffee as well, because I suffer with adrenal exhaustion. Something to keep in mind, as many of us suffer from this.
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, which makes long paragraphs very hard to read.

springsjean
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Date Joined Mar 2009
Total Posts : 2050
   Posted 7/27/2011 12:56 PM (GMT -6)   
Diet has definitely been my weak point but the way I look at it is I refuse to stop living.  If I want a dessert now and then I am going to have it.  I believe anything in moderation.  I know I could never give up sugar totally.  I have cut back and still have my moments, but giving it up I could never do.  It would just cause me to be miserable.  I have found that dairy "appears" to have been giving me problems so I have cut out the cheese, milk and ice cream for now but will reintroduce down the road to see how I do.  I think depending on, like Traveler says, your digestive system and how your body reacts to certain foods is what you have to pay attention to.  But IMO don't make your life more miserable or get more depressed by not eating or depriving yourself totally of something you enjoy. 
Co-Moderator
Lyme, HME, HGE, bartonella. 4+ years undiag. despite 10 drs.
Current meds: roxythyroxine, bactrim, doryx, amanatadine, neurontin, xanax, cymbalta Prior meds: amox, minocycline, tetracy. IV refused by ins. Supplements: boluke, alpha lipoic acid, AG immune, magnesium, milk thistle, resistant microbes, coq10

CycleVancouver
Regular Member


Date Joined Apr 2011
Total Posts : 175
   Posted 7/27/2011 3:12 PM (GMT -6)   
I've been down this road over the past couple of months. I think the key is to slowly grow into the diet, not jump in head-first. My first crack at it lasted about a month, and god was I angry and hungry all the time! I'm pretty close now. There are always some food that these diets disagree on, so don't get too stressed if you can follow the diet most of the way.

I posted last week about he book Crazy Sexy Diet, which isn't terribly different than the Lyme diet. One of the differences is that the CSD book asks you to aim for an 80/20 (or even just 60/40) ratio of alkalizing foods vs acidic foods. She states simply enough, as long as your plate is a bit more than half veggies (preferably raw or lightly steamed), then you're doing OK.

I still eat oats for breakfast, an occasional egg, and gluten free bread. And if I go over to friends' houses, then if they cook white rice, so be it. If I crack and eat a granola bar once a week, I don't feel like it's the end of the world, since I know my meals are so much healthier. What has changed for me is that I have a lot more greens in my diet, either as smoothies or as juice, and I really do feel more energetic as a result.

So maybe step back from the, "Lyme diet or die!" attitude that some of the books espouse, and just start by getting rid of sugar, unrefined carbs (white flour and rice), and add a green smoothie a day to your early AM diet. From there you'll grow into it. I can give you a bunch of smoothie recipes if you like, though the 'Net is full of them as well.

It took me a while, but if a sugarholic like myself can get there, you can too!

Traveler
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Date Joined May 2007
Total Posts : 14779
   Posted 7/27/2011 5:42 PM (GMT -6)   
Mmmmmm, I love quinoa!!! I use either quinoa or brown rice when I do a stir fry!
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs.

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, which makes long paragraphs very hard to read.

yazzer
Veteran Member


Date Joined Jun 2011
Total Posts : 898
   Posted 7/27/2011 7:06 PM (GMT -6)   
Miss C - all nuts are okay except peanuts believe it or not - supposedly thay have some type of fungus that can be problemmatic. To me, peanut butter was like an addictive DRUG, But, I like cashew and almond butters as well.

I suscribe to the folks here who don't go all the way on the diet. I had adopted a nice healthy diet about 9 years ago and have stuck with it since. I will adjust more while in the Lyme-acute stage but will retreat once things get better in a few months or so.

CycleVancouver
Regular Member


Date Joined Apr 2011
Total Posts : 175
   Posted 7/27/2011 9:19 PM (GMT -6)   
In terms of immediate, practical advice, I'd say that I've found on this diet that I can and need to increase my fat content. Avocados are great, nuts rock too, and if you're just having quinoa and veggies, you may want to put a tablespoon of olive oil, Udo's, or some other healthy oil.

scorp7
Regular Member


Date Joined Jul 2011
Total Posts : 205
   Posted 7/27/2011 10:12 PM (GMT -6)   
Well it sure is good to know that all of you aren't on the 'all or nothing '  diet and it apparently isn't hurting you.  So that is a relief.  I like the idea of adding some foods back in to see what happens...in moderation.   I just wish it was SUGAR that I was adding back in.  I love SUGAR.
 
But I will be happy with stevia or xlitrol.
Actually I feel fine eating other stuff it's just that I thought it was doing more damage inside like making the parasites worse? 
 
I jumped on the polenta and quinoa bandwagon last year and use it at different mealtimes.  It is delicious sweetened in the morning but also in a savory dish.  But after awhile it gets old and so do veggies.  So when you say you add a dessert if you feel like it, well then I like that attitude and it might make all this easier and bearable.
 
I have a question tho on the bread.  I am craving bread and want a sandwich in the worst way or even toast.  Is it more important to have a gluten free bread or a sugar free bread?  It is hard to find both so it's one or the other it seems.
 
And I love smoothies but mine used to be made with frozen fruit, fat free yogurt, whey protein and spenda.  That's sugary and dairy tho.  What are your smoothies made with?
 
Tonight I guess I didn't do well tho - but my belly sure feels good for a change  yeah
I had breaded fish, baked potato, peas, creamed corn.  I will stick to what I can but won't beat myself up if I can't always do it.
Most times I am an all or nothing person too but that is what I need to work on.
 
I can't believe I got to the point where I can't wait to wake up to eat OATMEAL for gosh sakes! lol
 
Thanks for all your inputs.

Cat111
Veteran Member


Date Joined Nov 2010
Total Posts : 571
   Posted 7/28/2011 7:11 AM (GMT -6)   
 I think depending on, like Traveler says, your digestive system and how your body reacts to certain foods is what you have to pay attention to.  But IMO don't make your life more miserable or get more depressed by not eating or depriving yourself totally of something you enjoy.
 
I'm with springsjean on this whole diet dilemma.  You  can drive yourself crazy by trying to eat the diet that is perfect for Lyme healing.  
 
All of us are different and some of us have food intollerances to begin with (sans Lyme) and must eat a certain diet.....
 
.....but to just assume you now have intollerances or will develop them simply because you have Lyme, and/or will destroy your chances of getting better if you don't completely adhere to a strict Lyme diet, is IMHO, rather extreme. 
 
A healty diet is very important but stressing out over every single thing you eat or don't eat isn't good for the mind or body. 
 
A diabetic, or a person who has Celiac or has a bonifide intollerance or allergy to certain foods--- AND has Lyme disease-- must be very careful with diet. 
 
But if you are healthy--- were eating healthy BEFORE you got Lyme, then why change EVERYTHING  to soley accommodate a Lyme infection? 
 
I tried the Lyme diet for a while and lost way too much weight.  My energy level dropped and I actually felt worse.  I usually weigh 120 lbs.  On the diet I went down to 114 lbs.   Not a good weight for me. I looked terrible and felt terrible.   And none of my clothes fit me!  LOL
 
I've never been a fan of sugar...so I limit that anyway....but just as some people can gain weight just by looking at food (lol) others can lose weight by just looking at food too.  
 
Now I'm facing a battle to gain my weight back (in a healthy way) so I can feel better.  This is not an easy task!  
 
I think the idea is to boost the immune system when you have Lyme. Being underweight and underfed does not serve that end.   
 
 
 
 
 
  
 
 
 
 
 

CycleVancouver
Regular Member


Date Joined Apr 2011
Total Posts : 175
   Posted 7/28/2011 10:31 AM (GMT -6)   
The sugar cravings do go away, believe it or not.

Here are two simple smoothies that I make. Generally when you're newer to green smoothies you'll want more fruit/sweet taste, but as you go forward you'll find you want more greens (which is the goal of them). I don't have a fancy blender, just a food processor, works fine. And these are a great way to get a dessert feeling after dinner, but still add a bunch of raw greens to your diet. Both are from "Green Smoothie Revolution" though I've adapted both of them.

"Turkish Grove"
1 cup kale
1/2 pear or one peach
1-2 figs
1/2-1 cup water

Any basic green smoothie: from trial and error I've found that if you have:
1 cup greens (spinach, dandelion greens, kale, salad greens)
1 stalk celery
1 peach or 1 apple or 1/2 mango or 1/2 pear
1-2 pineapple pieces (optional), I use canned
dash of powdered ginger (1/4 inch fresh)
1/2-1 cup water

If you want thicker smoothies, you can add less water, or add 1/2 banana or 1/2 avocado (which I like as the healthy fat gives it some heft).

The key for me is to increase the raw greens in my diet. Raw veg has WAY more health than cooked veg, so if you don't get much of this in your diet, this is a good way to drink your greens without having to eat them! And these recipes don't require any fancy ingredients, though it is a good idea to mix everything up to balance your diet.

Have fun!

CycleVancouver
Regular Member


Date Joined Apr 2011
Total Posts : 175
   Posted 7/28/2011 10:47 AM (GMT -6)   
scorp10 said...


Actually I feel fine eating other stuff it's just that I thought it was doing more damage inside like making the parasites worse?

I have a question tho on the bread. I am craving bread and want a sandwich in the worst way or even toast. Is it more important to have a gluten free bread or a sugar free bread? It is hard to find both so it's one or the other it seems.


The way that sugar harms us is that, if I understand it correctly, Lyme bacteria hang out in sugar and breed there. So eliminating sugar eliminates some of their breeding grounds. I think of it like how standing water is a haven for breeding mosquitoes. I don't think sugars make us worse off, it just gets in the way of us getting better. (I could be wrong on this, but that's how I understand it.) High-sugar diets can also lead to yeast problems, which for those of us on abx, can be a concern.

And carbs are just complex sugars, but in the end it all breaks down to sugar. So even though brown rice bread has no gluten, it is still a carb, and I use it but try to limit it. The actual added sugar in store bread is there, but really, I can't think that it's the sugar that is the problem, it's the bread itself.

Fruit is loaded with fibre and other goodies, so that's why we need some, just not too much. There are some fruit that are better than others in regards to the sugar content, but that may be a lesson for another day. Juice is bad since there's no fibre left, it's just the concentrated sugars.

Gluten is supposed to cause inflammation in some (many?) people, so that is why we're told to avoid it, though to be honest, I haven't found gluten to make a difference for me (and I have severe arthritis symptoms), but I try and avoid it just to be a good Lymie.

I think oats are fine, some charts list them as an alkalizing food. They're technically not gluten-free due to the way they are processed, but unless you actually have celiac disease it shouldn't matter for our purposes. My breakfast is usually 2/3 cup oats soaked overnight with unsweetened almond milk, followed by a green smoothie or a green juice. That's healthy enough for me to start the day!

scorp7
Regular Member


Date Joined Jul 2011
Total Posts : 205
   Posted 7/28/2011 12:10 PM (GMT -6)   
CycleVancouver - You are right about the adding oil to the diet. I just started adding a little olive oil (when I use garlic) and I can see a difference already...nuff said lol

And thank you for the smoothie recipes. I actually think I can handle that and am going to try one today. I won't ever add ginger to them tho as I am allergic. (no ginger, nutmeg, allspice & cloves)

I heard someone say that the parasites do not like oxygen and that they breathe thru gluten? Either way what you all say about the sugar is enough for it to never be in my body again. I will work on the gluten. I do not want to be enabling those things to thrive.

I never tried almond milk but perhaps I will give it a try today as well. oh this is such a learning experience. The reason behind it is awful but I bet it will be for the best in the end. healthwise.

CycleVancouver
Regular Member


Date Joined Apr 2011
Total Posts : 175
   Posted 7/28/2011 7:12 PM (GMT -6)   
I read it and it wasn't helpful to me. It is informative, but it didn't inspire me to move forward. I preferred the Crazy Sexy Diet book. Fortunately for me, my library had them both, so I didn't buy either one. Miss C, is there a library or an online library you can use where you live?

Lyme14
Regular Member


Date Joined Jun 2011
Total Posts : 381
   Posted 7/28/2011 10:45 PM (GMT -6)   
 
CycleV,
 
If you're really looking to cut down on inflammation (esp. re: arthritis symptoms), you might want to consider cutting out nightshades.  For some reason, they keep getting overlooked by docs.  Nightshades contain solanine, which causes inflammation in the body.  It's neurotoxic, and it is specifically involved in arthritis symptoms.  See books by Norman Childers and Michael Fowler.  Nightshades are tomatoes, white potatoes, eggplant, and all peppers (except for black pepper).  GMO soy also becomes a nightshade when the petunia gene is added.
 
 
I'm a music teacher, and not a doctor. Anything I post is based on my own experience and lay opinion.
Lyme, Babesiosis, Mycoplasma (Asthma), Fibromyalgia (Soft Tissue Injury), Costochondritis,
CFS (Mitochondrial Dysfunction), IBS (Candida & Leaky Gut), Hashimoto's Thyroiditis, Adrenal Fatigue,
ITP (Low Platelets), TMJ, Plantar Fasciitis, Schamberg Purpura, Tinnitis, Allergies, MCS

scorp7
Regular Member


Date Joined Jul 2011
Total Posts : 205
   Posted 7/29/2011 9:52 AM (GMT -6)   
Miss C. - I feel for you having to deal with that mess in your basement.  But that's a good attitude, deal with it when it dries,  it'll wait.  Where are you that you had all that rain and flooding?  We are in need of some rain here in PA...minus the flooding.
 
Lyme 14 says-    "Nightshades contain solanine, which causes inflammation in the body.  It's neurotoxic, and it is specifically involved in arthritis symptoms.  See books by Norman Childers and Michael Fowler.  Nightshades are tomatoes, white potatoes, eggplant, and all peppers (except for black pepper).  GMO soy also becomes a nightshade when the petunia gene is added"
 
I just learned something there.  I had been wondering what nightshades were, I've only ever heard of them a few times before.  I did not know peppers were bad too.  Darn, I have been eating green peppers raw and cooked almost every day.  And white potatoes too? 
I am thinking what GMO stands for .
 
Jessica - I think you will enjoy quinoa (keen-wa).   If you search it will tell you all about it.  I use it alot so it can get expensive in those small packages.  I buy 25 lbs bulk on line, organic and pre rinsed.  I still rinse mine tho (need a fine mesh strainer). 
Costco is a great place to get it  if you have one near you.   
 
Remember, you can use it as you would any oats, rices, pastas or do searches to come up with ideas.  I always keep it made up ahead of time and in the frig so it is handy for whatever I am making.
 
I stumbled on a quinoa recipe that was to be for stuffed peppers but it is so good that I use it plain.  Extremely healthy.  I think it should be very lyme friendly too.   I had forgotten about it til now. 
 
Hey, we should have a 'healthy food idea and/or recipe thread here.

scorp7
Regular Member


Date Joined Jul 2011
Total Posts : 205
   Posted 7/29/2011 10:41 AM (GMT -6)   
"I just read somethin about how consuming a lot of lemon juice, or eating lemons in general destroys your teeth enamel. Did not know this!! I will be buying some straws here pretty soon"
I didn't know that!  Oh dear but I hear straws give you wrinkles above the lip!!!  LOL  But you might be young enough not to worry about that.
 
"I was saying queen-Oh-uh "
LOL well you might still have to pronounce it like that if you go in a store.  I ran out so had to get some at Giant Foods and asked where (keen wa) was.  She had no idea.  I said how about 'queen-oh-uh'?  And she said OHHHH and took me right to it in the natural food section! 
(She thought I was mispronouncing it so I let her go) wink

CycleVancouver
Regular Member


Date Joined Apr 2011
Total Posts : 175
   Posted 7/29/2011 1:42 PM (GMT -6)   
Quinoa is technically a seed, I believe, which is why it is OK on our diets, even though we tend to think of it as a grain.
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