oldie but newbie here

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ewford
New Member


Date Joined Aug 2011
Total Posts : 8
   Posted 8/24/2011 6:58 AM (GMT -6)   
Hi My name is Brian. I am a question answerer on Medhelp. org. 14 months of missdiagnosis. Being told it's in my head, my labs were fine, 3 neg by CDC Lyme Western blots. All the symptoms, crushing fatigue, stiff neck, sore throat, joints, muscles, etc.
It wasn't until I contacted Prof Dr Garth Nicolson at IMMED and he told me "No standard med Dr is gonna figure this out." He suggested ILADS and I found a Dr close to my area who believed me and my symptoms. Took the IGENEX for Borrelia, Bartonella, Babesia and coinfection test. Pos for Lyme Borrelia, Babs and Bart. Only prob is dr uses Marshall Protocol, 50mg Mino and supps. Nicolson told me 90% of Marshall protocol patients will not recover because of the Infectious Mycoplasmas and other underlying chronic viral and intracellular bacterial infections.





So, off I go to Dr J in Washington. He writes up labs for 19 vials of blood. Just got labs back. Complement C4a test norm is 0-650. Mine was 4050. Yes, 4050. Also my HHV6 reading for IgG was 14.73. pos is >.99.



Now, I had seen the HEAD INFECTIOUS DISEASE Dr at Medical College of Virginia MCV/VCU. He said that there was nothing wrong with me when I complained of encephalitis, CFS symptoms. Do you not think he would have done further tests on me LAST YEAR considering I have Lyme, Bart, Babe, HHV6 and a probable Myco Fermentans or Myco Genitalium diag from tests. Why did he dissmiss me when I asked to get further testing?



Anyway, if anyone here has NOT looked at IMMED and the Mycoplasmas causing chronic illness ( or at least contributing severely), you might want to look into it.

Post Edited By Moderator (achievinggrace) : 8/24/2011 6:09:15 PM (GMT-6)


achievinggrace
Veteran Member


Date Joined Nov 2009
Total Posts : 2379
   Posted 8/24/2011 7:12 AM (GMT -6)   
Hi Brian,

Welcome to the forum. So glad you finally got a diagnosis.

And thank you for sharing something that helped you.

Now, help me out here. This forum has a policy of not allowing advertisements. Often when someone new comes on the forum with something they want to share, it turns out they are advertising or spamming.

Can you assure me that you have no chance to gain from promoting IMMED?

Also, I removed the name of your doctor -- we do that to protect them from those that would stop them from treating Lyme Disease.

Thanks.
Co-Moderator Lyme Disease Forum

Post Edited (achievinggrace) : 8/24/2011 6:10:46 PM (GMT-6)


ewford
New Member


Date Joined Aug 2011
Total Posts : 8
   Posted 8/24/2011 10:43 PM (GMT -6)   
Prof Dr Garth Nicolson is the head researcher/owner of IMMED. I have nothing to do with him other than I contacted him as my symptoms were of CFS/Gulf War Illness and not showing up on any standard medical test. He told me of the Lyme/Mycoplasma Fermentans coinfections. I am surprised you are not aware of that.

Dr Jemsek is the Dr in Under Our Skin (that treated Mandy) who now practices in Washington DC. He has no worries about being attacked by the Med Boards, they know better now. Very thorough. He's not a fly by nighter. And his reputation is well known. Besides, the treatment paradigm is shifting to more immune supplements and less ABX, pulsed, but NOT the Marshal protocol. marshall protocol will not kill mycoplasmas nor put HHV6 into submission.

I am a plain ole Ford mechanic in Va, but learned alot in my past 2 years. I might have knowlege of things you have not heard of. (mycos, chronic intracellular bacterial infections coupled with viral and fungal infection) and the similarities of GWI/CFS.But I digress.

I will say 99% of the 300 Lymes patients that are women, or spouses have had ovarian cysts, uterine cancer, or Hysterectomies. this bacteria causes a reproduction disorder/infertillity.

ewford
New Member


Date Joined Aug 2011
Total Posts : 8
   Posted 8/24/2011 10:48 PM (GMT -6)   
BTW, the only gain for me would be for all the people missdiagnosed with Lupus, Fibro, ALS, MS, Dementia, Alzheimers to finally get an answer as to what they actually have since these autoimmune diseases have no known etiology, but Lymes borrelia has been found ( DNA not antibodies) in tissue and brain samples of these people.

ewford
New Member


Date Joined Aug 2011
Total Posts : 8
   Posted 8/24/2011 10:52 PM (GMT -6)   
Lymester, look into www.immed.org as to treatment reccomendations. They are finding out the Mycos need a longer amped up course of ABX, but Mycoplasma Fermentans Incognitus is much more difficult to eradicate.

achievinggrace
Veteran Member


Date Joined Nov 2009
Total Posts : 2379
   Posted 8/25/2011 12:36 AM (GMT -6)   
Thanks for responding to my questions, ewford!
Co-Moderator Lyme Disease Forum

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4027
   Posted 8/25/2011 7:01 AM (GMT -6)   
Ovarian cysts went away with a gluten-free diet in my case...so I guess I'm a trend-bucker, LOL!!!
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube
Meds: Ceftazidime, Flagyl, Zofran, Domperidone, Claritin, Singulair, Prednisone, herbs, homeopathy, supplements, etc.
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