Undiagnosed Lyme symptom, chronic anemia

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Hopehere
Regular Member


Date Joined Sep 2011
Total Posts : 58
   Posted 9/16/2011 6:14 PM (GMT -6)   
I was diagnosed with Lyme last month and wondered if anyone else out there experienced 'unexplained' chronic anemia as one of there symptoms? I've had over 50+ blood transfusions during the time I was sick (over 6 years) has there been anyone else who's had to go through similar thing?? I am truly hoping that treating my Lyme will 'fix' this 'issue' over time.
 
Thanks for reading and for the support you all provide on this site! I'm going to love it here!

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2049
   Posted 9/16/2011 7:01 PM (GMT -6)   
Ugh. My husband was battling "minor" anemia and every doctor said not to worry about it. He was finally diagnosed with babesia (and lyme) which commonly causes anemia. So glad I didn't wait for him to need blood transfusions. How did you finally get diagnosed and were you tested for babesia??
Co-Moderator
Lyme, HME, HGE, bartonella. 4+ years undiag. despite 10 drs.
Current meds: roxythyromycin, bactrim, doryx, amanatadine, neurontin, cymbalta Prior meds: amox, minocycline, tetracy. IV refused by ins. Supplements: boluoke, alpha lipoic acid, AG immune, magnesium, milk thistle, resistant microbes

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 13816
   Posted 9/16/2011 7:13 PM (GMT -6)   
HI Tammy!
Welcome to our forum! I am so sorry to hear that you have a need to be here. but I am very happy that you found us!! I'm sure you will find us to be very caring, understanding and helpful!

If you haven't already, it would be beneficial for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of relevant information and informative links that have been put together by our members here! Most of those who have read through it have said that it was very helpful!! We also have a pretty good search function on this forum to help you narrow down your search for information from past posts. We must be our own health advocates now and the best thing to arm yourself with is knowledge!

Are you seeing a LLMD (Lyme Literate Medical Doctor)? It's always advisable to see a specialist when dealing with these infections. Do you k now if you have any of the co-infections? If you are not seeing a LLMD, would you like us to provide some links for places you can go to get a referral to a LLMD? You can also start a new post asking for one in your area, our members are our greatest resource!

We are glad that you are here!! I'm sure we will gt to know you soon! Please feel free to post your questions and answer some posts as well! smilewinkgrin
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.

Hopehere
Regular Member


Date Joined Sep 2011
Total Posts : 58
   Posted 9/16/2011 7:37 PM (GMT -6)   
I went to an alternative MD dr who treats Lyme in our area. I'm on my 2nd month of Doxy right now. I was diagnosed via IgenEx lab. I am not aware of any co-infections. The more I hear about co-infection, babesia, it makes me wonder. I will check with the office next week if there was any evidence from the urine test of any co-infections.

Thank you for the warm welcome! I did have a chance earlier to look at the beginning forum and it was extremely helpful!

I am my own health advocate, I learned that many years ago when the traditional doctors were not helping me with answers I kept demanding! I researched, searched, researched and searched over and over for answers... just when I felt like giving up and 'throwing in the towel' sort of speak, I had a friend on FB who asked me one question that has forever changed my life... "have you ever heard of Lyme Disease?" I hadn't, and I watched Under our Skin a couple of days later and knew right then that's what I've been dealing with!

Thank you again!

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 13816
   Posted 9/17/2011 7:02 AM (GMT -6)   
Unfortunately, you have walked down a well-worn path that a lot of us here have traveled as well. I'm sorry to hear that you had to go through the same frustrations as we have had, but I'm happy you found us!!

I hate to even say this, but simply because you have had so many blood transfusions, you should be checked for Babesia. The Red Cross and the CDC have admitted that Babesia is in our blood supply.
www.cdc.gov/parasites/features/babesia_article_9-5-11.html

Unfortunately, none of the tick-borne infection tests are very accurate, so your doc would do best to a clinical evaluation to decide if this is an issue for you.
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.

Post Edited (Traveler) : 9/17/2011 10:46:19 AM (GMT-6)


springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2049
   Posted 9/17/2011 9:10 AM (GMT -6)   
Wonderful to hear you are a researcher as it will help you get well. Be sure and get copies of your labs and research what is off on them. I sat in teh hospital and figured it out when my hsuband was battling anemia. Look forward to hearing about your progress. Hope today is a good day for you.
Co-Moderator
Lyme, HME, HGE, bartonella. 4+ years undiag. despite 10 drs.
Current meds: roxythyromycin, bactrim, doryx, amanatadine, neurontin, cymbalta Prior meds: amox, minocycline, tetracy. IV refused by ins. Supplements: boluoke, alpha lipoic acid, AG immune, magnesium, milk thistle, resistant microbes
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