Lyme and Narcolepsy?

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whenallelsefails
Regular Member


Date Joined Aug 2011
Total Posts : 163
   Posted 11/1/2011 9:28 PM (GMT -6)   
Well, I really wouldn't be surprised if you could link lyme or some other TBI to just about any other disease, especially ones with unknown causes. I've been studying for my quiz and thinking back to my talk about the EEG, it's pretty clear to me that I probably have narcolepsy.

I was just wondering if any of you guys have it or at the very least have symptoms.

vish24
New Member


Date Joined Oct 2011
Total Posts : 17
   Posted 11/2/2011 10:27 AM (GMT -6)   
I have unusual sleeping patterns, my body usually gives out around 9 pm every night, but sometime around 2 am in the morning I wake up with horrible panic attacks and headaches (the sleep from 9 pm to 2 am is weird, its almost tiring), if I can shake it off I usually wake up around 10 am (2 am - 10 am sleep is bit more satisfying).

However I do have moments in the day (random ones) where I feel like I'm almost going to pass out from the fatigue. So my narcolepticness (its not a word I know) could be due to the weird sleeping pattern....

Post Edited (vish24) : 11/2/2011 9:31:04 AM (GMT-6)


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14773
   Posted 11/2/2011 10:49 AM (GMT -6)   
Hi Whenall,
I went through a pretty bad period of narcolepsy during my senior year in high school - that was - e-hem!blush - 30 years ago though. None of the docs that I was seeing at the time could figure it out or why it was happening - of course no one ever suspected a TBI could be the source.
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.

whenallelsefails
Regular Member


Date Joined Aug 2011
Total Posts : 163
   Posted 11/2/2011 8:57 PM (GMT -6)   
So, if it's cause by a TBI, then can you actually get rid of it or is it you need to keep it under control (as TBI's never fully leave the system)?

Inhimwelive
Regular Member


Date Joined Oct 2011
Total Posts : 174
   Posted 11/2/2011 9:15 PM (GMT -6)   
During the 1st few months after I was diagnosed it was pretty bad. I would be deep in REM sleep and I would just wake up fully awake. Then during the day my eyes would just close without me being drousy at all. It was especially bad if I drove, for some reason this was an almost immediate trigger.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14773
   Posted 11/3/2011 5:47 PM (GMT -6)   
It is my belief that something like narcolepsy should be treated (as it can be dangerous) -especially for those of us with TBI's as our bodies can't fight off what they need to - until they resolve - which they will as our bodies get healthier and better equipped to handle these things on their own. Some times that means just medicating in some form until the body can function well enough to regulate this or that again.

I figured I would have to live with a whole list of issues, but I'm finding out that as my body heals, some things are actually returning to "normal functioning" without any medication. The key is to get the healing started, as you heal things will correct themselves - unless too much damage has been done.

Here's an example to what I'm trying to say~
I have Lyme arthritis. My fingers and toes are twisted and the knuckles are huge and I have a lot of pain in them. I started my Lyme treatment back in March of this year (7 months ago) and I am seeing a lot of improvement in my hands. My fingers and toes will never straighten out again, but the swelling and even a bit of the twisting is gone and my pain has been reduced significantly - because I got treatment. There are things that go haywire and can be undone - I'm having my memory improve greatly and am even getting memories back - and things that will just never be the same - like my hands and feet. It's all about damage control in a way.

So have I confused the issue enough? smilewinkgrin
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.

whenallelsefails
Regular Member


Date Joined Aug 2011
Total Posts : 163
   Posted 11/3/2011 7:58 PM (GMT -6)   
Somehow, I don't know how, but I actually managed to follow that O.o
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