Self Treatment?

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Mike55178
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Date Joined Sep 2006
Total Posts : 638
   Posted 11/18/2011 11:03 AM (GMT -6)   
Anyone here treat themselves at all? Obviously you can't prescribe yourself ABX but in any other ways?

I had just saved up money to start seeing the LLMD again and just got informed I have to move from my current place and get my own place which is going to take all the money i saved and then I will also barely be getting by so I won't have any money to see a LLMD on a consistent basis... cry
Lyme, Bart & Babs

achievinggrace
Veteran Member


Date Joined Nov 2009
Total Posts : 2425
   Posted 11/18/2011 2:01 PM (GMT -6)   
Hi Mike,

So sorry to hear you are in such a difficult situation.

Dr Jernigan has an at home protocol. I haven't done it and don't know your health situation, so I can't really say whether it is a good idea. I think one of our long-time members Deejavu has done it. You could e-mail her for more information.
Co-Moderator Lyme Disease Forum

yazzer
Veteran Member


Date Joined Jun 2011
Total Posts : 898
   Posted 11/18/2011 2:10 PM (GMT -6)   
Yeah - there's Jerigan's (who seems overtly popular on here these days!), Cowden, Buhner, Marshall, Byron White and others. Expense of each, I am not sure. Buhner appears not too expensive. Cowden's samento and banderol aren't bad either, I do not think, and a recent Townsend Letter showed high levels of efficay for these. Byron White might need a doc to order for you....do some sleuthing on the internet. Plus, there's teasel which I don't think is part of any formal protocol - it takes out the cell wall deficient form of Lyme (the L-form) and grapeFRUIT seed extract which is supposed to attack the cyst form and even some of the biofilms. Being on your own, it will be important to titrate the amounts of whatever you try so as not to overload your detox pathways and or cause overly extensive herxing. Good luck and be positive!

Yazzer

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14369
   Posted 11/19/2011 12:38 PM (GMT -6)   
You could also look into Holistic healing. I know that it's not for everyone, but they are generally a little less expensive I think, and you wouldn't be "on your own".
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.

Mike55178
Veteran Member


Date Joined Sep 2006
Total Posts : 638
   Posted 11/20/2011 8:54 AM (GMT -6)   
Thanks guys. I've read about the Marshall, Cowden and Buhner protocols. I heard the Byron White is fairly new. Is there anyone on the forums currently using this? My other problem is a lot of these protocols treat mainly Lyme. I'm really looking to treat my Bart first. I feel like me and my LLMD never hit it really hard and most of my problems are Bart type symptoms. Eyes, cognitive problems, stuff like that.

Trying to stay positive but it's tough when there's so much negativity around you...
Lyme, Bart & Babs

yazzer
Veteran Member


Date Joined Jun 2011
Total Posts : 898
   Posted 11/20/2011 9:51 AM (GMT -6)   
Mike - (BTW, my name is Mike too!)

I am slowly incorporating the Byron White protocol. He has formulas called A-L, A-Bab and A-Bart among others. The first addresses the larger spectrum of lyme and related stuff. Bab addresses mainly babesia and Bart, well, that's for Bartonella. I am doing the first too but I have never tested positive for anything except Bb. My symptoms are purely neuro as it seems yours might be - that doesn't necessarily means you have Bart. Lyme (Bb) can and does do affect like this all by itself too. It just depends - I suspected, even w/o a positive test I might have Babs too because of some night sweats I had but still do not know for sure. Mt doc today me to take 1 drop of the A-L and A-Bab 2x per WEEK! I do one drop every other day of each. (But I am taking Ceftin and Biaxin as well). I see my LLMD on Weds to discuss where I go from here on it.

It seems that the BW protocol is in vogue these days - dunno why but it is. It's about $90 for a little bottle but it goes a long way. If I were in your shoes and had to choose a treatment, I would try samento and banderol. Look at the Townswend Letter on these - it seems to attack Bb even through biofilms...but I do not know its effectiveness against Bart/Babs and others.

Mike55178
Veteran Member


Date Joined Sep 2006
Total Posts : 638
   Posted 11/20/2011 10:12 AM (GMT -6)   
Thanks Yazzer. Yeah I have Bart for sure. Had the Rash also confirmed by 2 LLMD's and also Babs which is still kicking around a bit. Air hunger, night sweats but not as bad as before I treated that. My Bart I only took Levaquin for about a month and had a side effect that made my tendons so sore I couldn;t get out of bed so we stopped that and then hit Babs with Mepron/Zith/Art for a while.

Thanks for the info I'm going to look into the Banderol and Samento.
Lyme, Bart & Babs

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 14369
   Posted 11/20/2011 11:58 AM (GMT -6)   
Any time that the CNS symptoms are very acute, Burrascano and a few others say it's most likely because of a Bart infection.

You can also use the search function here on HW to see what others have been saying about using those products, I know that even my herb for Bart has even been discussed a bit here!
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.
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