To answer your last question, yes unfortunately it is very typical for Lyme infections to go undiagnosed for years. It took me literally 36 years from the time of infection with Rock Mountain Spotted Fever & who knows what else to get diagnosis and then another 4 years to find a treatment that I could handle because the infections had gone so long untreated.
Although I think I am one of the more extreme cases, there are a ton of members that have gone 10 - 15 years and even more that have gone for 3 -7 years before actually finding out that it was Lyme Disease and possibly other Tick-borne infections that were the root cause of their symptoms.
We actually have a fair amount of members using alternative healing and getting well! They don't seem to post much, but you can use the search function to find some info about
the different natural protocols. Here is a link to a list & descript
ions of some of the more popular natural protocols: www.lymediseaseresource.com/Protocols.html
There are a few others that use Byron Whites' formulas (just google Byron White Formulas), and some that use Naturopath's to heal and just a small handful of people (like me -
) that use Acupuncture and Chinese Medicine.
Have you read through the thread at the top of the forum titled "New to Lyme?...Start here!" yet? If not I would highly encourage you to do so. There is a whole lot of info there and some very informative links!!
I would suggest that you read through Dr. Joseph Burrascano's paper "Advanced Topics in Lyme Disease" (betterhealthguy.com/joomla/images/stories/PDF/lymdxrx2008-october.pdf
) and ILADS (International Lyme and Associated Diseases Society) treatment guidelines, which can be found here: www.ilads.org/lyme_disease/treatment_guidelines.html
Of course we are here for you -to help you locate info, answer some questions and just for a shoulder to lean on from time to time should you need it!!
Co-Moderator, Lyme Disease ;)
Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"
"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP
I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.