How long do your Herx symptoms last?

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SickMan
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Date Joined Dec 2011
Total Posts : 73
   Posted 12/10/2011 7:35 AM (GMT -7)   
I recently took a round of treatments, 1 ketoconazole, 1 azithromycin, 1 InterFase Plus / day for 7 days, then 1 keto, 1 azithro for another 3 days (I would have taken more, but I was on the verge of not being able to function after 10 days).

For me it has taken two-three weeks before I start feeling well again.

How long does it take you guys to recover?

SM

achievinggrace
Veteran Member


Date Joined Nov 2009
Total Posts : 2538
   Posted 12/10/2011 10:08 AM (GMT -7)   
Wow, Sickman what a barrage! Way to blast those bacteria.

It really depends on what I've been taking, what I've been doing, how much rest I can get, whether I catch a cold on top of everything, and how much detoxing I can do and where I am in my treatment cycle. I am at the end of my treatment so recovery is like half a day or over night now.

Keep up the good fight!
Co-Moderator Lyme Disease Forum

Traveler
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Date Joined May 2007
Total Posts : 15295
   Posted 12/10/2011 12:54 PM (GMT -7)   
Hi Sickman,
It really does depend on your exact situation that is going on in your body. Some one who has trouble with detoxing will take longer to recover than someone who has well functioning detox pathways and is actively helping their body to detox, as one example.

And, of course, I used that example on purpose!! Giggle! Be sure you are detoxing as much as your body will allow when hitting these infections that hard! Also be sure to schedule in naps and extra rest times -it really will make a difference!!!
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.

borderlyme
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Date Joined Jul 2011
Total Posts : 1347
   Posted 12/10/2011 1:22 PM (GMT -7)   
I...don't recover. Are you pulsing or continuously taking abx? I take them continuously so the only time I feel a little better is when I forget to take them!!

SickMan
Regular Member


Date Joined Dec 2011
Total Posts : 73
   Posted 12/10/2011 3:14 PM (GMT -7)   
Thanks folks. I'm pulsing, because after a week or so of even a single abx I get to the point where I can barely get out of my chair. But I look at it as if it where chemo. It makes me sick for a time, but if I don't I'll never get better. (though the consequences of not taking chemo when it's needed is probably worse). If I didn't have to work I would continue even when I was immobile, but alas, I have to work.

When I'm herxing I get exhausted and depressed and my cognitive function approaches nil, but I as often as I get discouraged, I hold on to the belief that if I continue, I'll get better, and if I don't I won't. I do take frequent naps and long hot showers, soak my feet, milk thistle, L-Glutamine and apple pectin and lots of probiotics.

BTW - I _do_ like coffee, but there are limits to where I'll put it :)

SM
I don't know what disease I have, and neither do the Doctors. Take my comments with a grain of salt. I am NOT a doctor (but I did play one in elementary school!)

LymieAngel
Regular Member


Date Joined Sep 2011
Total Posts : 466
   Posted 12/10/2011 4:01 PM (GMT -7)   
@sickman...LOLOLOLOLOLOL....my thoughts exactly....on the coffee remark.....
getting better.......

Missyouall
Regular Member


Date Joined Apr 2012
Total Posts : 65
   Posted 4/9/2012 7:56 PM (GMT -7)   
I'm still new at this and would like to know what is meant by "pulsing." Also, someone wrote that they were at the "end of their treatment." What does the treatment usually consist of, just abx and maybe some supplements? And who determines the length of a person's treatment? How would someone know they were coming to the end?

borderlyme
Forum Moderator


Date Joined Jul 2011
Total Posts : 1347
   Posted 4/9/2012 8:18 PM (GMT -7)   
I'm not sure what the specifics are as I don't pulse my antibiotics, but it means not taking them every day. I'm sure the topic has come up on here in the past so you might find a little more information if you use the search function.

Treatment is usually a little bit different for everyone - there's sort of a spectrum. Some people use more traditional medicines, some people do completely natural/holistic approaches, and plenty of us (myself included) are somewhere in the middle. In general it's usually something - either abx, herbs, rifing, etc., to kill the bacteria/prevent it from growing plus supportive therapies, depending on individual needs.

The general rule of thumb is to treat for 2 months after all symptoms are gone. Hope this helps!
Co-Moderator, Lyme Disease Forum

Summer3
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Date Joined Nov 2011
Total Posts : 1020
   Posted 4/9/2012 8:22 PM (GMT -7)   
I don't recover either. Sometimes I think I'm in a herx, but it turns out to be a new symptom that has come to stay or part of a steady decline lol.

When I was on Mepron for two months, I was "herxing" for two months. Then I had to stop everything for liver issues and I felt just as bad if not worse. So far the only time I get where I feel recovered is for a few hours after a vitamin IV.


Missyouall, I'm pretty new to treatment, only about 6 months in, but my LLMD uses the CD57 combined with symptoms to determine the end of treatment and then goes to "maintenance" which is usually natural lifestyle modifications and herbs. He will treat again though if there's a relapse. I know that I'm nowhere's near the end of my treatment. I'm hoping it will be clear to me when I'm getting to the end.

Pulsing is where you take a medication for a shorter amount of time and then stop. A lot of people do this with Flagyl and IV's too. For example, they'll do 4 days in a row of IV rocephin and then 3 days "off" per week.

Missyouall
Regular Member


Date Joined Apr 2012
Total Posts : 65
   Posted 4/9/2012 8:29 PM (GMT -7)   
Thank you for your explanations, borderline and Summer3. There is so much to learn about this disease. Someone recommended a book to me called "Cure Unknown: Inside the Lyme Epidemic" by Pamela Weintraub. I would guess that most of you have read this already as it's supposed to be excellent. I'm picking it up at the library tomorrow.

Summer3
Veteran Member


Date Joined Nov 2011
Total Posts : 1020
   Posted 4/9/2012 8:34 PM (GMT -7)   
Cure Unknown is great. It really helped me in the beginning to understand the controversy which I was skeptical of. A lot of stories of families affected by Lyme are featured and tons of scientific studies and research is discussed.

Another book I like is The Lyme Disease Solution. It's great to have as a reference. I refer to it almost every day when I want to check about a specific medication, supplement, diet change, detox method etc.

I also like Insights Into Lyme Disease Treatment. It gives 13 different doctor's protocols which I find helpful so I can compare what I'm doing with what some of the other LLMD's from around the country and world are doing for their patients.

borderlyme
Forum Moderator


Date Joined Jul 2011
Total Posts : 1347
   Posted 4/9/2012 8:45 PM (GMT -7)   
Cure unknown was great - very well-researched/well-written IMO. A bit overwhelming though!

Just my 2 cents - be careful not to get too wrapped up in researching/learning about lyme. Sometimes I struggle with this - while we have every right and reason to be upset by the controversy surrounding this whole thing, it's easy to get sucked up in the frustration and to let it bring you down. Don't forget to remind yourself of all the positive stuff, as well!
Co-Moderator, Lyme Disease Forum

Missyouall
Regular Member


Date Joined Apr 2012
Total Posts : 65
   Posted 4/10/2012 7:49 AM (GMT -7)   
More good info and sound advise from all of you. Thank you.
Feeling quite a bit better today. Please God it lasts, at least for a while.
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