I'm having issues with speech; what's up with that?

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worriedinvt
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Date Joined Aug 2011
Total Posts : 119
   Posted 12/29/2011 7:00 AM (GMT -6)   
Hello all,
 
So, I seem to be doing better with the motion issue but I have now become aware of a speech issue over the past several days.  Today it was obvious when I was speaking with someone and couldn't get out the name of a street.  I couldn't remember the word or fully pronounce it.  It is "Western" - I could get out the "We" but that was it.  They had to finish the sentance for me.  How embarrasing!  I have also been switching words around in a sentance.  Saying something like "Go to the door back" instead of "Go to the back door."
 
Thoughts?  Is this something to talk to the dr about now or wait till my appt at the end of January? 
 
Lyme?  Toxins?  Coinfection (which I haven't been tested for)?  What might be the cause?
 
Its freaking me out!

yazzer
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Date Joined Jun 2011
Total Posts : 898
   Posted 12/29/2011 7:11 AM (GMT -6)   
Yes, this is some I did and still do at times. At work, it is embarassing... I notice it more when I type - dysxlexia type of symptoms with transposed letters and transposed words. The cause might be a combination of one, two or all three of what you ask. But, I think it is more to do with the neurotoxins as I noticed it more when treating the disease (which, would cause neurotoxin increases). Even though I have been feeling better, I still notice that this is still present in my typing....it will decrease and go away with treatment....

springsjean
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   Posted 12/29/2011 8:39 AM (GMT -6)   
I believe this is common with lyme. I too would forget common words and reverse words all the time. The brain is an amazing thing and will certainly let you know when it's got something going on that it doesn't like.
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worriedinvt
Regular Member


Date Joined Aug 2011
Total Posts : 119
   Posted 12/29/2011 8:40 AM (GMT -6)   
Yazzer:

Thanks for your thoughts. I am now 9 months post bite and about 4 months post the start of abx. I feel like symptoms are getting worse and worse--perhaps it just means Doxy is doing its job. Its just worrisome--because you are always wondering--is the disease progressing? Is this bacteria taking over? Or am I killing it off and just "getting worse before it gets better?" How do you know? I am beginning to feel like the bacteria-meds-toxins-symptoms connection is getting so gray....how will you ever know what is causing what? How will you know the disease is killed off if all the stuff you take makes you feel so crummy?

My pill box is filling up and there are different sets of recommendations coming from all directions. The out of pocket expense of herbals and bath stuff is piling up and you have to wonder, is it worth it? Is it working? There is even information out there that says it doesn't work and that detox is a myth. How do you really know?

My symptoms began mostly musculoskelatal. Now they are more neurological. Its scary.

worriedinvt
Regular Member


Date Joined Aug 2011
Total Posts : 119
   Posted 12/29/2011 8:42 AM (GMT -6)   
Springsjean:

Thanks for the reply. Do you think this means there are toxins messing with your brain? Or lyme taking hold of it? Is it permanent or do you think it will go away with time?

I can deal with aches and pains but the thought of losing my cognitive abilities is overwhelming. As a self employed person, I don't have temporary disability to fall back on....

Traveler
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Date Joined May 2007
Total Posts : 12558
   Posted 12/29/2011 9:29 AM (GMT -6)   
First of all, I am soooo sorry that you are in this position, Worried! I know when I was in that position, I got very scared about a lot of things.

I believe it has everything to do with the neuro-toxins created by treatment. Back in '07, I used abx for a full year for treatment of my TBI's. Towards the end of that year, I started having horrible speech problems - you name it and I'm pretty sure I experienced it, up to and including losing the ability to follow both written and oral instructions. That scared me.

I wasn't detoxing at all, but had been on heavy doses of abx for almost a year - no wonder I had issues with neuro-toxins!! I begged my doc for help and got none, so I stopped my treatment. Once I did that and started concentrating on detoxing, my speech recovered, as well as finally reaching a point where I could leave the house without having to have to recover for a week.

I have since discovered that I - like many others- have issues with the detox pathways not working so well. Although that doesn't hold true for everyone, I believe that it should be carefully, thoughtfully considered when the cognitive function of the brain is being compromised.

BTW - with the right type of treatment for me and tons of detoxing, all areas of my cognition have improved dramatically!
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.

yazzer
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Date Joined Jun 2011
Total Posts : 898
   Posted 12/29/2011 9:32 AM (GMT -6)   
worried - almost all my symptoms have been neurological and I know what you mean when you say it can be overwhelming. I work for NASA and am used to thinking with a laser-focused ability. I lost a lot of that for a while but it comes back. For me now, it comes-and-goes. I do best when I don't let it get to me and just accpet it as a symptom - but I know, that is very difficult at times. I have been feeling a LOT better of late but late yesterday and today, I have had a flare of symptoms, probably caused by an increase in my Byron White protocols and GSE drops two days ago. Still, even these "setbacks" are not as bad as they were earlier in treatment. It's a balancing act with all the meds, supps and detox, etc.

On one hand, being self-employed may be a blessing because you do not have to stick to certain work hours (or do you?) I am lucky that I have been with NASA long enough to have accrued over 100 leave days - plus, I am allowed to telework - which I would think might equate somewhat to your self-employment - that way I can get my time in during the day, but maybe not 8 hours straight, you know?

I find that I try and titrate my meds, supps and detox to have lower symptoms so I can function while still trying to kill off the pathogen(s). Slowly and steadily, you should start to see improvements - but it will not happen without some setbacks and changes in symptoms - just try and adjust the best you can....easy to say but hard to realize, I know!

worriedinvt
Regular Member


Date Joined Aug 2011
Total Posts : 119
   Posted 12/29/2011 10:35 AM (GMT -6)   
@ Traveler

Thank you. Its just so frustrating--I'm sure you all know it! I do the detox baths...not as much lately...what would be the next detox avenue to add? Something relatively easy to do--and gentle?

@ Yazzer

I am a childcare provider. I work a 10 to 11 hour day five days a week with little in the name of breaks. I also have a child of my own. My son and my husband are in martial arts/gym stuff three evenings a week. I am the primary housekeeper (though my husband does a lot) and certainly the main cook of the family. I take care of all the finances, etc. It seems like I am always busy. With winter weather, I am dropping them off and picking them up from martial arts, leaving me little time to just sit. I have been trying to incorporate foot baths during that time but really, I should be making dinner and preparing for the following day. Unfortunately, reducing my hours would mean loosing my clients and my income. My income is what keeps our family afloat. I rarely take time off. I also provide a quality, structured program/curriculum for the children in my care (anywhere from 4 to 5 children under age 5 and 3 school age children before/after school) which takes a lot of time outside of work hours. Not to mention the cleaning. Kids are messy!

My stepfather just had a stroke, my son was dx with whooping cough, etc. There just seems to be NO TIME. I am trying to incorporate healthier meals for myself--usually I just go without or snack on stuff I shouldn't--and the cooking takes time out of my day with the kids. Its a difficult balancing act.

I am sure this is the case for everyone here.

Its hard to explain to my husband/clients because the symptoms aren't obvoius. In a way, I'd like them to understand, on the other hand--I'm afraid I will loose my clients if they ever feel that the care I provide will become inconsistent.

NASA, huh? I'm a lover of science--I created my curriculum this year around early science concepts. We just finished a month exploring concepts around motion. Amazing what you can do with preschoolers!

yazzer
Veteran Member


Date Joined Jun 2011
Total Posts : 898
   Posted 12/29/2011 11:19 AM (GMT -6)   
Worried - OT, but start those yung'ins off early with the science - NASA needs a new generation of kids interetsed in NASA - I do some outreaxch with my job - visiting 5th graders and such and discussing what we do and how they can become a NASA person (of course, at that age, they think that everyone at NASA is an astronaut!)...good work!

achievinggrace
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Date Joined Nov 2009
Total Posts : 2252
   Posted 12/29/2011 12:05 PM (GMT -6)   
Hi worriedinvt,

My doc had me take Bacopa and Vinpecotine when I was having a lot of language problems. They are herbs often given to Altzeimers patients to increase blood flow to the brain.

It really will go away with treatment. I rarely slip up nowadays, but there was a time when my family played the game, "Guess what Mummy is trying to say!"
Co-Moderator Lyme Disease Forum

worriedinvt
Regular Member


Date Joined Aug 2011
Total Posts : 119
   Posted 12/29/2011 12:40 PM (GMT -6)   
Thanks, AchievingGrace, for the ideas. I found a list of foods that improve circulation in general while I was searching for stuff related to stroke. And I was wondering about herbs.

I'm glad to hear it will finally go away at some point...

achievinggrace
Veteran Member


Date Joined Nov 2009
Total Posts : 2252
   Posted 12/29/2011 3:33 PM (GMT -6)   
Sorry to add more pills to your pill box!! smilewinkgrin
Co-Moderator Lyme Disease Forum

LymieAngel
Regular Member


Date Joined Sep 2011
Total Posts : 466
   Posted 12/29/2011 5:57 PM (GMT -6)   
@grace...lololol.."lets guess what mummy is trying to say".....
 
@ worried...my tongue swelled up about seven yrs ago and never went down to normal..so my speech always sounds like i have been tapping the wine....but i started having dislexic issues AFTER i started doxy...words and whole sentences written backwards like i wrote them through a mirror....it was amazing and somewhat scary...and thank the Lord for texting cause i dont like for people to hear me talk...people im around on a constant basis are used to it....

worriedinvt
Regular Member


Date Joined Aug 2011
Total Posts : 119
   Posted 12/29/2011 6:10 PM (GMT -6)   
@LymieAngel...sorry bout your tongue :( Do you think it has something to do with a Doxy? side effect Or just how well its ticking off the lyme? I'm also on Doxy. Since Ive started doxy, Ive had the dizziness and now the language issues. I am also beginning to feel more clumsy with my hands.

LymieAngel
Regular Member


Date Joined Sep 2011
Total Posts : 466
   Posted 12/29/2011 7:46 PM (GMT -6)   
i think my tongue swelling is just because all my muscles were affected so bad...and my writing my words and speaking backwards didnt start til doxy....im not sure where its coming from, but i have heard alot of people talk about their "speech and slurring and inverting their words".....so it must b normal to experience those things while treating.....
getting better.......

Traveler
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Date Joined May 2007
Total Posts : 12558
   Posted 12/30/2011 9:32 AM (GMT -6)   
Are you dry skin brushing? That would only take a few minutes each day -either at the end of the day for you or before you start your incredibly busy day.
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.

worriedinvt
Regular Member


Date Joined Aug 2011
Total Posts : 119
   Posted 12/30/2011 5:38 PM (GMT -6)   
@ Traveler

No...I don't do the dry brushing. Convince me that it would help by givin' me a little science? :) I was given a pedicure kit for Christmas, can I use that for the feet?

achievinggrace
Veteran Member


Date Joined Nov 2009
Total Posts : 2252
   Posted 12/30/2011 6:48 PM (GMT -6)   
Worried,

You know, I thought the dry skin brushing was a bit wiffty when I first read about it. Ridiculous even!

However, when I was really frustrated by not feeling good, I decided to try it. I felt mighty silly -- made worse by the fact that my skeptical science guy husband walked in as I was doing it!! (at least I hadn't decided to try the coffee enema!!!)

Anyway, I was surprised at how much better it made me feel. I was an immediate convert.

The general principle is that the skin is the largest organ in the body. Stimulating it can rid the body of a lot of toxins. Not so much actually scraping it off, but getting the lymphatic drainage moving.

Try it -- you'll find you actually look forward to it before you know it. If you don't have a brush, just use a dry wash cloth.
Co-Moderator Lyme Disease Forum

MysteryLyme
Regular Member


Date Joined Feb 2011
Total Posts : 137
   Posted 12/30/2011 8:40 PM (GMT -6)   
yup this happened to me and is a common symptom of late stage Lyme. its like your brain forgets how to talk and you have to force it. i compensated by talking slower overall so that way i could try to make sense. got better with treatment but still not as quick and witty as i used to be.

Traveler
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Date Joined May 2007
Total Posts : 12558
   Posted 12/31/2011 4:16 PM (GMT -6)   
Hi Worried!
No problem that you need a little science to go with that!! I think it's great that you want to see it for yourself!!

There aren't very many scientific any thing on dry skin brushing - I guess the right people haven't had any interest in this topic as of yet, but I did find one. The site says it's having maintenance done today, but here is the link:
Orato: Benefits of Dry Skin Brushing Detox and Fight Cellulite with ...
www.orato.com/health-science/benefits-of-dry-skin-brushing

The pumice stone for your feet is a lot rougher than is necessary, but it'll work!!! I go hog wild and use a loofa sponge to do my dry skin brushing - unless my skin is being extra sensitive or something, but all that's really needed is something rough enough to take off the very top layer (or two) of skin that's dead anyway. A softer natural bristle brush works great! Or if someone's skin is being really sensitive -like Achievinggrace has said, a wash cloth that has been wet, wrung out and left to dry will work to start off with! I had to start off with that myself.

Of course I like to have all the available science on things as well, but hearing personal experiences help as well. I can tell you that when I started dry skin brushing, I was a lot like you and what Achievinggrace said she thought, but I was desperate, so I did start it. I was amazed at the difference!! I also get really lazy sometimes about keeping up with my detoxing, so I let the dry skin brushing go -sometimes it's other things - and I really can tell that I've stopped doing something that my body needs to have done.

Something else that you can do - drink carrot juice! There's something about carrots that help the body detox, and with all of those little ones running around your place, maybe you have carrots there regularly?? I don't have a juicer, so I add a pound a week to my green smoothies, but I'll bet if you set out to eat a lot of carrots and can keep it up, even just eating enough carrots would help as well. This info came from my doc who is a Master Western Herbalist as well as having the equivalent to a PhD in Acupuncture and both Traditional and Modern Chinese Medicine, and had been in practice for over 30 years - so she knows what she's doing.

All of my speech issues, issues with following directions (both written and oral), word finding, having dyslexic type of issues with words and phrases, speaking, etc, etc were all because of not detoxing, and that is why I am suggesting to you that you detox more.
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.

Inhimwelive
Regular Member


Date Joined Oct 2011
Total Posts : 174
   Posted 12/31/2011 6:58 PM (GMT -6)   
I have this problem also, not all the time but when I have bad days like today it happens.. I usally have a headache all day feel dizzy and my vision is blurry during the days that its happening..

Tala3
Regular Member


Date Joined Sep 2009
Total Posts : 233
   Posted 1/2/2012 2:43 AM (GMT -6)   
The speeach thing happened to me too...I'm now a firm believer in detoxing. I thought it was a waste of money at one point and quit doing it. I learned very quickly just how much it helps and will probably just keep doing it even though I feel great at this point.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 12558
   Posted 1/2/2012 9:43 AM (GMT -6)   
I'm so glad to hear that you are feeling so well, Tala!! And thank you for coming here and helping out still!!! smilewinkgrin
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.
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