Lyme Disease? LLMD in Ohio?

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Mystery Illness
Veteran Member


Date Joined Dec 2011
Total Posts : 767
   Posted 1/6/2012 7:26 PM (GMT -6)   
Hello Everyone,

I had a little girl 6 months ago and have been ill since with overall malaise and these symptoms: GI problems of nausea, rumbling and abdominal cramping and spasm, pressure and tingling in head, burning sensation in head, muscle spasm, tingling and burning in body, visual changes including appearance that things are shaking/shimmering and a cloudiness, neck stiffness and "cracking", and extreme fatigue. I was having a week or so where I felt okay and then everything would start back up again. Now, I'm having a day or two at a time when I feel a little better (though not 100%) and then start to get very ill again. Some days I will feel fairly well in the morning and then start to get very ill again in the middle of the day. I have been so ill that I can barely function, having to have my husband get up with my daughter at night and hire help with her and my son during the day. I have been to many doctors including a neurologist, GI, and ENT Specialist and the only possible diagnosis I have is PPD and anxiety or migraine activity.
I keep telling the doctors that I AM having anxiety and depression, but that it comes AFTER I get very ill physically. I've always been a very active person and my quality of life is really suffering right now. I do feel that if I wasn't postpartum, I would be taken more seriously by the doctors. I definitely know that there is something wrong.

I was bit by a tick as a child and I was at a park w/ my son 2 years ago and found a tick on me.

I have had back pain and stiffness, muscle soreness, and fatigue since I was about 12-14 years old.

Also, I have had a mild sore throat in the evenings for the past year to year and a half.

My question is, does this sound like it could possibly be Lyme Disease and is there a LLMD in Ohio?

Thanks!

achievinggrace
Veteran Member


Date Joined Nov 2009
Total Posts : 2372
   Posted 1/6/2012 8:27 PM (GMT -6)   
Hi again, Mystery Illness,

Were you able to follow up on those links I gave you when you posted before?

Here they are again, if you didn't get them:

For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, please email our long time member, Dan's Mother at:
phassan@optonline.net
If you'd like more doctor suggestions, you can email stephanie at: stephanie@turnthecorner.org You can also go to: www.turnthecorner.org/bod.htm if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link: www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

You will want to find an ILADS (International Lyme And Associated Diseases Society) doctor. The ILADS site is a great place to read to get you started on your Lyme journey.
www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html


Hope you can find some help soon!
Co-Moderator Lyme Disease Forum

Post Edited (achievinggrace) : 1/6/2012 6:39:37 PM (GMT-7)


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 13764
   Posted 1/7/2012 9:35 AM (GMT -6)   
Hi Mystery Illness!
Welcome to our forum! I am so sorry that you have been feeling so poorly! I realize that it's got to be terribly frustrating, to say the least!

Let's clear something up for you - Although ticks are the most likely one to pass these infections, mosquitoes, biting flies, fleas and the like can also. It's possible that you have had your infection(s) either since childhood or when you were in the park with your son two years ago and the stress of childbirth "brought out" the infection. It's actually not all that uncommon for women who carry these infections to go through a period where their symptoms increase a lot after the birth of a child because it's so strenuous on the body.

Unfortunately with these infections, not being postpartum wouldn't get doctors to listen to you any more - not many docs even recognize these symptoms! Even if they did, these infections are so very complicated that a simple round of abx usually isn't enough to get rid of them.

If you haven't already, it would be beneficial for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of relevant information, symptom lists and informative links that have been put together by our members here! Most of those who have read through it have said that it was very helpful!!

We also have a pretty good search function on this forum to help you narrow down your search for information from past posts. We must be our own health advocates now and the best thing to arm yourself with is knowledge about our infections and the different ways to treat them!

In my opinion, based on the symptoms that you have listed, you definitely need to be evaluated by a knowledgeable LLMD. Achievinggrace gave you some great links to follow for finding a LLMD! We also have a thread that explains what kind of questions one should be asking potential LLMD's as they are not all created equal! It would be helpful if you listed where in the state you are will to travel to in order to see a doctor. We wouldn't want to send you to the other side of the state unless it was necessary!

I would also recommend that you spend some time reading on another site, as well - www.drjoneskids.org There you will find some very helpful info about Lyme and pregnancy, as Dr. Charles Jones is a very knowledgeable Lyme Doc that specializes in treating children and pregnant women.

Kind of a personal question, but are you breast feeding your daughter? We usually suggest that member start detoxing right away, as toxins are -at minimum -a large part of the reason for the symptoms we have. Although, not knowing if you are breast feeding your daughter, I hesitate in doing so. If you are breast feeding, I'm not sure how that would affect your daughter, so it would be best to talk with someone much more knowledgeable than me! :-)

If you aren't breast feeding her, then I would definitely suggest that you start detoxing - slowly. We have a great post on detoxing (second post down in the "New to Lyme?" thread) that explains what it takes and how to get started. Don't forget to dry skin brush and drink lots of lemon water too though!!
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.

Mystery Illness
Veteran Member


Date Joined Dec 2011
Total Posts : 767
   Posted 1/7/2012 11:34 AM (GMT -6)   
Thank you so much for the info. Achieving Grace and Traveler! I will begin my search!

Traveler, I am not breastfeeding, as I unfortunately had to stop at 3 weeks postpartum because I was so ill. I am in Columbus Ohio, but willing to travel anywhere in the state. Also, can Lyme Disease be passed to the infant during pregnancy? My daughter is a happy, healthy little one. So, if this is Lyme, hopefully it was not passed to her?

Thanks again! I really appreciate it!

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 13764
   Posted 1/7/2012 3:30 PM (GMT -6)   
Hi Mystery Illness,
Yes, you most certainly could have passed this to your child. It's been well documented that Lyme can be passed through the placenta as well as through breast milk. It's a good thing though that neither of your children are showing any symptoms. I would highly encourage you to read up on the subject though! The site I posted above - Dr. Jones Kids - is the place to go to do some reading about Lyme, pregnancy, and children not only if you choose to use abx - but even if you don't - it's still got a ton of very good info there!

Definitely get started detoxing, and be sure to keep up with it through out your treatments. The more knowledgeable LLMD's believe that our symptoms are mainly caused by die-off. As the bacteria dies off, they produce toxins like ammonia into our bodies. We have to help our body detox because usually it gets overwhelmed and just can't keep up - and that's when we have what is known as a Herxheimer reaction or a Herx - a worsening of symptoms or new symptoms showing up. This is a healing crisis that happens when our bodies are over loaded by toxins. The body can't heal while in any kind of crisis, and so it can't heal while in a healing crisis either - so we have a tendency to push detoxing here. As I said though, please be sure to start slowly - detoxing alone can cause a herx!!

I would suggest that you start a new thread asking for help in finding a LLMD as close to Columbus, Oh. as possible, but you will need to enable your email option here. You can do this by going to your profile (a button at the top of the page) and then go to edit profile. Also would you be so kind as to email me? I have a thought. smhair giggle!

We don't allow the posting of info about LLMD's unless they are already well-known and open advertise that they treat Lyme and other tick-borne infections, as they are under attack by the AMA as well as others. If you don't want to use the email address you already use, Healing Well has an email address you can use, free of charge - just click on the button at the top of the page that says "email", and follow the instructions.

You do need to get your treatment started, but be sure to do both of your children a favor by not excluding them from getting their own evaluations. These infections can stay dormant, only popping up every time there is significant stress in a person's life to lower their immune system.

We are hear to help you get through this!!
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.

Cheezhead
Veteran Member


Date Joined May 2007
Total Posts : 510
   Posted 1/7/2012 4:18 PM (GMT -6)   
Mystery Illness said...
Thank you so much for the info. Achieving Grace and Traveler! I will begin my search!

Traveler, I am not breastfeeding, as I unfortunately had to stop at 3 weeks postpartum because I was so ill. I am in Columbus Ohio, but willing to travel anywhere in the state. Also, can Lyme Disease be passed to the infant during pregnancy? My daughter is a happy, healthy little one. So, if this is Lyme, hopefully it was not passed to her?

Thanks again! I really appreciate it!


Hi Mystery Illness,
If you have a NetFlix account order the movie Under Our Skin. You can also check with your public library. This is a Lyme disease documentary and is a must see.

http://www.underourskin.com/videos/theatrical-trailer
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