Are sore feet/toes always Bartonella?

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Summer3
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Date Joined Nov 2011
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   Posted 1/15/2012 9:38 AM (GMT -7)   
In the morning and sometimes at night I have really sore feet up near my toe area and back up to my arch. I also have throbbing in the soles of my feet. My feet are always cold as well.

Two of my toes are very swollen and red. Almost impossible to bend like they are infected. I don't typically get a lot of joint swelling frequently. The pain is in the joints and muscles.

Can babesia and lyme also cause this? I tested negative on all co-infection tests. Are the co-infection tests as unreliable as the Lyme test?

I also have just started having a problem with Candida, although the feet problem started several weeks before that.

MeGoSun
Regular Member


Date Joined Nov 2010
Total Posts : 389
   Posted 1/15/2012 10:47 AM (GMT -7)   
I too have problems with my feet. It's mostly my big toes that hurt. I sleep with a heating pad at the foot of my bed due to my cold feet.

To date I haven't had problems with Candida. Knock on wood.

I tested positive to Lyme but no co-infections. Thou my IDMD said that the tests are not reliable.

I'm finding there is a lot of trial and error with Lyme.
Hypothyroidism
Lyme
Fibromyalgia
Raynauds
Hypokalemia
Hemochromatosis

May the sun shine on you and warm your heart.

Summer3
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Date Joined Nov 2011
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   Posted 1/15/2012 12:33 PM (GMT -7)   
I thought about trying a heating pad, but sometimes I'm so out of it I don't think I'd notice if it started a fire while I was sleeping lol.

bucci
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Date Joined May 2006
Total Posts : 1489
   Posted 1/15/2012 12:42 PM (GMT -7)   
Are the toes getting inflamed?

is there any time you notice it happens specifically more after eating
something paticular or a medication??

are you feet cold or burning up with pain?

Mediation and food used to effect this for me but two of my toes were also
burning and blistering. It went on for years. I tried all kinds of topicals.

after I was treated for parasites this never happened again but the two toe nails are damaged from tall the years.

I saw on you tube European lyme a video that starts out about the nerve endings going to the feet and toes effecting you and that it is symptom of late stage lyme.

if you go to you tube..european lyme

not sure if this is the case with either of you.
The big toe story usually heard is about gout. but may not be the case here either.
20 yrs of doctors . DEC. 2009 tested positive for lyme, bartonella, ehrichiosis, HHPV6, chlamadyal pneumonia .
parasites :strongylides, diaoebia fragialis, hook worm.

Hep C ....fibro, rhumatoidal,depression,

Summer3
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Date Joined Nov 2011
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   Posted 1/15/2012 12:50 PM (GMT -7)   
The nails are fine so far. Two of the toes are red and inflamed right under the nail. It doesn't hurt to press on them, but they are swollen/stiff with limited range of motion. The rest are also stiff but not swollen. It mainly hurts when I walk. My toes aren't bending correctly.

My hands and feet are always freezing. That's one of the first things every doctor notices when I shake their hand, but they never mention a reason.

Post Edited (Summer3) : 1/20/2012 7:13:51 PM (GMT-7)


MeGoSun
Regular Member


Date Joined Nov 2010
Total Posts : 389
   Posted 1/15/2012 1:02 PM (GMT -7)   
I believe it's the late stage lyme in my case.

I have really bad lyme arthritis in my ankles and other joints.

I don't know how long I've had lyme. Never had the rash nor do I remember having a tick bite me.

I do live on the east coast in a high lyme area. Grew up being outside and still like to spend a lot of time there.

Right now one of my abx is for treating bacteria that attacks the nerve endings.

My feet are always cold and my fingers are sensitive to hot and cold. Kinda bad when you cook. lol
Hypothyroidism
Lyme
Fibromyalgia
Raynauds
Hypokalemia
Hemochromatosis

May the sun shine on you and warm your heart.

borderlyme
Forum Moderator


Date Joined Jul 2011
Total Posts : 1347
   Posted 1/15/2012 10:12 PM (GMT -7)   
I've had a lot of foot pain, but I'm not sure if it's from Lyme or Bartonella. I've tested negative for bartonella, though I'm under the impression that the FISH test that I did doesn't test all the strains, so I don't know quite how reliable testing is. The toe pain and redness sounds like arthritis, which can definitely be Lyme.

Personally I've found that the higher my toxin load is, the colder my hands and feet get - I still don't really understand why, although I'm guessing it has something to do with circulation. I've been trying to raise my core body temperature to see if that gets rid of some of the coldness - it's getting pretty bothersome!

How do you know that your toes are infected? Is it like a skin infection, or do you mean infected with Lyme? While 9 times out of 10 our symptoms are Lyme-related, other things do go awry. Have you seen a podiatrist? Have you talked to your LLMD about this?
Co-Moderator, Lyme Disease Forum

Summer3
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Date Joined Nov 2011
Total Posts : 1020
   Posted 1/15/2012 11:33 PM (GMT -7)   
Thanks for the responses. I think I found that video.

I'm not sure if they are infected with a skin infection or not. I don't see how they could be all of a sudden. They kind of look and feel like it, but if I press on the red area, it doesn't hurt so that doesn't match up. I haven't brought it up with the LLMD yet.

It started to get really bad today, but the redness, swelling and moderate pain first began around the time I started taking antibiotics. I had prior throbbing pain in the morning for months.

Today, along with the continued redness and swelling, I had pretty severe stabbing joint pain in my toes and burning/itching for a short time at night.

For the past several days (since re-starting antibiotics after a 4 day break) it has been really painful to walk in the morning. My toes feel like walking on open blisters. The skin is so sensitive. Plus I have virtually no range of motion or flexibility all of a sudden in my toes and my feet feel like they're falling asleep/pins and needles quite often.

I ended up soaking them in really hot water tonight and I put some antiseptic in the water. That seemed to help a little bit with the pain for now.

bucci
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Date Joined May 2006
Total Posts : 1489
   Posted 1/16/2012 2:36 PM (GMT -7)   
Feet flare ups are torture and for me I think the only reason my nerve ending are ok is because i am on low dose pain meds now.

I am definitely addicted to 1mg every 24 hours but it keep it at bay
and i am able to put my feet on the floor.

I think I had two things going on.

One was parasite reaction that went on for almost 15 yrs.
that stopped after parasite meds. the blistering and burning of the
two toes. It was madness though like a burning itch.

but the other buring of the feet so bad like sore. It hurt to step on the brake of the car and I would walk like cripple. like my feet were stumps.

the pain meds is what has that all under control. I guess it is nerve pain.

If I get any other terrible pains though I would need to take roxy. percocet without the tylenol. 5 or 10 mg.

Origionally one of my doctors said I would need a fentynol patch all the time......no way. what a horrible drug.

so I am grateful to take 1 mg or less of buprenorphine. It's my miracle pain drug.

I am wondering now about taking antibiotics for what ever is going on but it seems more to me like damage is done and this may be best way to go.

the only other thing is that I am still to viral like sick and just don't know how to knock that part out.

I never can say what I will be like tomorrow. If someone gives me an RSVP i panic.

the brain fog is too much and the wrong enviorment or air will put me in a tail spin. I'm afraid to get too far from my base.
20 yrs of doctors . DEC. 2009 tested positive for lyme, bartonella, ehrichiosis, HHPV6, chlamadyal pneumonia .
parasites :strongylides, diaoebia fragialis, hook worm.

Hep C ....fibro, rhumatoidal,depression,

LymieAngel
Regular Member


Date Joined Sep 2011
Total Posts : 466
   Posted 1/16/2012 4:47 PM (GMT -7)   
i have started feeling pain in my feet about a mth ago...it feels like im stepping on something sharp...but its under my skin right in my heels....and my pinky toe and toe next to that one..always feels like i have a freezer burnt feeling.....its hard to explain....its like when u get pain from being cold but only worse...its like an allergic reaction to ben-gay..*laughing at myself*....i just dont know how to explain it...i told my doc about it...and she asked me if my feet were ever red...but i told her i dont take off my big fluffy socks for nothing unless its to take a bath..and then i dont really notice....my feet are really pale except around the tips of my toes
getting better.......

Zeusy
Regular Member


Date Joined Jan 2012
Total Posts : 237
   Posted 1/16/2012 9:34 PM (GMT -7)   
Hey guys,

I'm really sorry- I don't have the focus to read through all of this. But I did have/might still have bartonella, and I can tell you about my symptoms, and what my doctor is looking for.

The first symptom I had were shin splints (not actual ones, because I didn't run, or injure myself. But that is what they felt like). Those lasted for something like 2 years, with no relief from anything. My LLMD in the US thought this was very indicative of bart. However, the shin pain is back this time, and my doc here thinks maybe it is just part of the general muscoskeletal pain I have.

As for my feet: I felt exactly like I was getting plantar fascitis. Pain, and a bruised feeling in the bottoms of my heels. My feet would also sometimes just ache, or feel bruised. My new doc thinks this is more telling of bart than the shin pain.

Do you have other symptoms of bart? Like excessive neurological symptoms compared to the rest? Or lots of anxiety?

Summer3
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Date Joined Nov 2011
Total Posts : 1020
   Posted 1/16/2012 9:59 PM (GMT -7)   
I have always had a lot of anxiety. I'm not sure if I could call that a symptom of anything though. It may just be my personality. I also had OCD-like behavior that came on about 8 years ago. However, I've always had obsessive tendencies, so that may just be personality as well.

As for neurological symptoms, I'm still not positive which of my overall symptoms are considered neurological. I'm having a lot of symptoms right now unfortunately. I know that over the past few weeks after starting antibiotics, I had a lot of eye twitching, I had a numb left arm that I couldn't move easily, and very numb and cold hands and feet. I've had lots of dizziness and lightheadedness since I first got sick as well. I've been annoyed more often with things that shouldn't bother me. I generally have had a lot of joint pain, but now I'm getting muscle and bone pain as well especially in my ribs and toes.

I don't have the typical red stretch mark rash, but I do have purple dots in a rash-type pattern on my legs. They are clustered together and come and go. They are new over the past 4 months. They came after I got really sick in September.

borderlyme
Forum Moderator


Date Joined Jul 2011
Total Posts : 1347
   Posted 1/16/2012 10:13 PM (GMT -7)   
"I never can say what I will be like tomorrow. If someone gives me an RSVP i panic." Bucci I feel the same way! Oh, the pressure! I almost always RSVP with a yes and an additional warning that I'm prone to cancelling!

Summer, if it helps at all, in the beginning of my treatment I had a good couple of months of nonstop symptoms like I've never experienced - tons of lightheadedness, numbness, tingling, twitching everywhere - and so many symptoms I couldn't even describe! Treatment certainly hit me hard, but now many months into it, the crazy nonstop symptoms have stopped, and thankfully the lightheadedness is gone! Just saying - it does get better!

Also regarding the foot pain, I'm honestly not sure what caused it - Lyme, Bartonella, or legitimate plantar fasciitis (plus arthritis from a small fracture it took me a few years to find out I had), but that's feeling much better as well! Sometimes these symptoms disappear as quickly as they appear - I hope that's the case for you!
Co-Moderator, Lyme Disease Forum

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1489
   Posted 1/17/2012 7:32 AM (GMT -7)   
Zeusy, let me ask you.

If you knew it was BARTONELLA . what would you use for treatment.??
20 yrs of doctors . DEC. 2009 tested positive for lyme, bartonella, ehrichiosis, HHPV6, chlamadyal pneumonia .
parasites :strongylides, diaoebia fragialis, hook worm.

Hep C ....fibro, rhumatoidal,depression,

baylor47
New Member


Date Joined Nov 2011
Total Posts : 12
   Posted 1/17/2012 11:31 AM (GMT -7)   
I tested positive for Babesis but seem to have the symptoms of bartonella. Burning in hands and feet, feet feel like they are bruised and can hardly walk, anywhere I go, always looking for chair, severe weak spells, headaches when I wake up. Any suggestions? 

Morti81
Regular Member


Date Joined Sep 2011
Total Posts : 186
   Posted 1/17/2012 11:35 AM (GMT -7)   
Yes please tell me what the answer to Bart is?

achievinggrace
Veteran Member


Date Joined Nov 2009
Total Posts : 2534
   Posted 1/17/2012 11:38 AM (GMT -7)   
Hi baylor,

Best thing to do is to keep your Lyme Literate doctor updated on your symptoms. If he thinks that it is bartonella, he will either retest for it or treat it anyway.

Hope you get some relief soon.
Co-Moderator Lyme Disease Forum

Mylyme
Regular Member


Date Joined Jun 2013
Total Posts : 23
   Posted 9/3/2013 2:45 AM (GMT -7)   
Hi Everyone,

I know these posts are older: I found them because I too have swelling/pain in the toe with Lyme Disease complex, and it may be because I have a European strain of borrelia. How are all of you doing now? Have you made any progress in the last year or so?

Best,
Mylyme
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