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BBRH
Regular Member


Date Joined Jan 2012
Total Posts : 41
   Posted 2/2/2012 11:52 PM (GMT -6)   
Hi Everyone,

My symptoms are fairly strong lately and I am very lethargic. Nerve and muscle symptoms seem to be the worst. I also have feet problem - mainly under big toes.

My first appointment with LLMD is getting closer - Feb 15.

In the meantime I was lucky enough to find Lyme friendly doctor and am taking doxycycline, flagyl, and have prescription for levaquin that I start tomorrow.

I am going to have glutathione IV therapy on Monday? I have read great things about it...was wanting feedback from anyone who takes it? Good results, not good, possible problems, etc?

I also started green Vibrance today and have started the salt and hydrogine peroxide baths.

Thanks

Summer3
Veteran Member


Date Joined Nov 2011
Total Posts : 1017
   Posted 2/2/2012 11:56 PM (GMT -6)   
I'm curious about this as well. Do you know the approximate cost? Is this covered by any insurance?

I have a lot of the same symptoms that you are describing. How did you know that you were deficient in glutathione? Did you have a test for it?

BBRH
Regular Member


Date Joined Jan 2012
Total Posts : 41
   Posted 2/3/2012 12:11 AM (GMT -6)   
I do not have price or if insurance covers it but will know Monday. If you like you can email and I will let you know. I do not know that I am deficient but have read that Many people are ...I am low on Vitamin D.

How is your treatment progressing? I have been on abx for almost two months. Seems like things are worse than when I started. Hoping for the best-I miss my pre-Lyme life. :(

Summer3
Veteran Member


Date Joined Nov 2011
Total Posts : 1017
   Posted 2/3/2012 12:41 AM (GMT -6)   
I can't say that my treatment is going great. I am also two months in with a LLMD and mainly going after babesia first. I'm also worse than when I started. The other day I couldn't even move my hand lol. It was kind of aggravating because like most people, I need my hands to move for the work that I do.

I'm willing to try some other more aggressive supplements if they will make a significant improvement. Glutathione was one of the ones I looked into along with magnesium, b complex, and vitamin c. Meyer's cocktails I think they are called.

I'm not sure if the effects wear off quickly though. I have heard some people say that it only lasted 2 days for them. Others say the effects were pretty long lasting (a week or so). I haven't heard anything super-negative about it other than the effects wearing off quickly.

I also miss my pre-Lyme life. I used to run 10 miles every day or jog up a mountain and back in 45 minutes. Now I don't feel like doing anything. It's like an endless flu.

I hope it goes well for you on Monday and you get some relief with it.

BBRH
Regular Member


Date Joined Jan 2012
Total Posts : 41
   Posted 2/3/2012 12:55 AM (GMT -6)   
Understand,

I used to exercise my dogs (4 Cow Dogs) daily, go to Jiu Jitsu 4 x 6 times a week, work outdoors on the property, and always busy doing some kind of activity.

Anyway, we will get back to normal!!

As for the Glutathione ...the place I am going, Lyme Friendly, recommends treatment once weekly. I was also prescribed Low Dose Naltrexone that you may look into....it bothered my sleep quality but I am told if you stick with it that your normal sleep habits will return.

Will let you know how it goes.

Thanks

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1489
   Posted 2/3/2012 4:52 AM (GMT -6)   
BBRH,

can you let us know how the levequan goes for you too, please?

were you diagnosed with bartonella?

you seem to be on track medication wise.I have mixed feelings about the glutathione?

I was getting it at the end of my IV ozone and IV vitamin treatments.

I'm also curious if you doctor is pro or con magnesium.

mine was anti magnesium but many others use it.

have you done the metagenix labs parasite stool test?
That is one thing that helped me and the pharmacutical parasite treatment
was very effective.


good luck and please let us know about glutathione.

BBRH
Regular Member


Date Joined Jan 2012
Total Posts : 41
   Posted 2/3/2012 8:36 AM (GMT -6)   
Sure thing,

I will keep you posted.,I know that they do the IV ozone and IV vitamin treatments too. I do not know about magnesium but will ask.

This is the first I have heard of the metagenix labs stool test...I will look into that too.

As for the bartonella, my first lab showed negative. Was IGeneX Co-Infection Panel. However, I speak to someone who is extremely knowledgeable on Lyme from North East and he told me I am showing symptoms and the co-infections can be harder to detect than Lyme.

When I see my LLMD I will get his opinion and am going to ask if I should order PCR tests.

starbuxgal3
Regular Member


Date Joined Oct 2011
Total Posts : 76
   Posted 2/3/2012 10:29 AM (GMT -6)   
what is the glutathione supposed to do?

borderlyme
Forum Moderator


Date Joined Jul 2011
Total Posts : 1344
   Posted 2/3/2012 10:33 AM (GMT -6)   
I did weekly vitamin C drips for about a year, and they'd end it with a giant syringe of glutathione, which always made me feel instantly better. I can't remember how long it lasted - although I guess it couldn't have been longer than a week!

All I can say is that was the best I ever felt before finding out I had Lyme (my doc at the time was trying to treat CFS) - can't say for sure if it was the glut or the vit c helping the most, but I'd definitely give glutathione a thumb's up!

Just thought I'd also point out - someone mentioned on here a while ago that brazil nuts are an excellent source of glutathione - a pretty cost-effective alternative if you can't swing the IVs!
Co-Moderator, Lyme Disease Forum

Summer3
Veteran Member


Date Joined Nov 2011
Total Posts : 1017
   Posted 2/3/2012 11:34 AM (GMT -6)   
I've heard about the Brazil nuts and I was eating them like crazy for a while. I didn't notice much of a difference from eating them. I don't notice a difference on the vitamin C supplements I take either.

I wanted to try a Meyer's cocktail or glutathione, but for me, since I can't do it frequently, it might be worse to have short-term relief and then go back to feeling really badly again.

Purplegirl
Regular Member


Date Joined Dec 2011
Total Posts : 327
   Posted 2/3/2012 12:09 PM (GMT -6)   
Most Insurance Co's will not pay as they say it is Experimental .. I take Lypo-Spheric GSH Glutathione by LivOn... This stuff works and is cheaper then IV drip...
~Angie~

starbuxgal3
Regular Member


Date Joined Oct 2011
Total Posts : 76
   Posted 2/4/2012 12:19 AM (GMT -6)   
ok so is that a cream, pill.....should everyone with lyme take glutathione..thanks for the info!

Angie how does the lypo gsh stuff work for you...what difference do you notice? do you take it everyday?

it's pretty pricey for just a 30 days upply.

but if I do get this to try it...do I need to stop taking my b12 and vit. c?

Post Edited (starbuxgal3) : 2/3/2012 10:28:36 PM (GMT-7)


Purplegirl
Regular Member


Date Joined Dec 2011
Total Posts : 327
   Posted 2/4/2012 8:00 PM (GMT -6)   
Yes it is pricey... It helps your immune system to protect the body from germs and bacteria ..it's a good antioxidant and people like us with Lymes or any chronic Illness have lower levels of Glutathione ...there are glutathione creams also I'm just not sure how well they work and what brand is good .. There are patches also but they are like 77.00 for 30 patches ... Keep me posted on what you find out on this ... Thanks :)
~Angie~

yazzer
Veteran Member


Date Joined Jun 2011
Total Posts : 898
   Posted 2/5/2012 8:05 AM (GMT -6)   
There are now liposomal forms of glutathione that you can take orally that are practically as effective as I/Vs at getting the GSH to your bloodstream. Google it. Also, the much maligned coffee enemas - they increase your own liver's ability to manufacture by 600-700% . Research this as well. I have had the I/V GSH pushes. My doc says I could get them once per week as part of the Myers cocktail. I think you want to limit how much you do that however because, if done too often, then your body will get used to to and begin producing less on its own. As anything with this stuff, it's a balancing act.

RhondaWriter
New Member


Date Joined Feb 2012
Total Posts : 8
   Posted 2/7/2012 8:26 AM (GMT -6)   
Hi Everyone,

When I saw the glutathione posts I just had to share that glutathione - literally - restored my son's health. The $40 product we take is natural, has no side affects and is money-back guaranteed. I would say that we owe our life to the doctor who created it.

Here's the story of my research on glutathione and more about the product: http://autismwithrhonda.com/glutathione/

Many blessings,
~Rhonda

yazzer
Veteran Member


Date Joined Jun 2011
Total Posts : 898
   Posted 2/7/2012 11:03 AM (GMT -6)   
Welcome Rhonda but you will have to excuse my skepticism here...your post and page look more like an advertsiement for a specific product...Plus, the fact that you show up on these pages and your first post is in this regard. Do you receive any financial compensation from this so-called product? Practically ALL scientific research that I have been able to locate on GSH is that it will not survive the transit through the digestive system to give benefit - absorbability is less than 5% when using oral capsule-based GSH. There has been some positive news on the oral front with liquid liposomal forms of GSH that can get up to 80%+ absorbability but these products are new and therefore, IMO, the verdict is still out on whether they're effective or not.

So, what is left is an I/V GSH push or trying to do something to help your liver produce GSH - these ranging from taking NAC supplements to doing things like coffee enemas. On your page, you never mention trying a GSH I/V for your son either - that seems strange that you would not try that first if you really thought GSH was the issue. I invite you to prove me wrong but it appears to me you have showed up here to sell a specific product. I hope I am wrong on this but experience leads me to think that I am not.

Moderators - what say ye?

RhondaWriter
New Member


Date Joined Feb 2012
Total Posts : 8
   Posted 2/7/2012 11:36 AM (GMT -6)   
Hi Yazzer - I TOTALLY understand your skepticism!!! When I discovered the glutathione accelerator created by Dr. Keller I was VERY skeptical - how could it work with nothing else seemed to...??? I gave my son over 40 different products to try and help him after he was mercury poisoned by an immunization in 2001. He was non-verbal for 2 1/2 years and the only thing 18 doctors could tell me was "Don't get your hopes up" and recommend psychotropic drugs. I joined every support group I could find to see what others were doing.

I got to know others who were doing IVIG treatments with MINIMAL success. ONE had pretty awesome results (after the 6th month) but the thought of my son being hooked up to an IV for 4 hours EVERY month - for life sealed that deal. Plus - they were costing an average of $300 per treatment (out of my budget) and there were NO guarantees. Several other friends of mine used the creams - (more affordable) but again - with MINIMAL success. I researched until I was turning blue (over 10,000 documented hours now) and I kept coming back to glutathione supporting the immune system. My 3rd book is based on my research and experience with my son: 'The Journey Home from Autism'. Soon you can download my entire book - FREE - from the site where we purchase the glutathione accelerator. *Partly because I give so much credit to how this product helped my son SO much!

Also, my son was diagnosed with PANDAS in October 2008. The doctor told me that there was "No cure". My son started taking the glutathione accelerator in December 2008 (when he was 100% modified at school). In seven weeks he NO longer had ANY signs of PANDAS. *My doctor takes it now. In September, 2009 my son no longer qualified for services at school. Today he is in the gifted and talented program (after scoring 100% on the entrance exam). The ONLY thing that changed: adding the glutathione accelerator. He takes it every day. He is also on a gluten-free diet.

For the bottom of my heart I am telling you this: If this product would have been available when my son was screaming, having meltdowns, struggling to talk, etc... I would have wanted to know about it. I want to tell EVERYONE about it now. You have nothing to lose: try it for $40. If you don't think it helped the company will give you your money back. And - yes - I am an affiliate. If I can receive a few dollars from helping others to have a better life it will help me recoup the over $100,000 I spent from 2001 - 2007. I'm not telling you - or anyone else - so that I can make a few dollars. Life is too short for that.

I hope this answers your questions. I have many more details on my website: http://AutismWithRhonda.com
Sincerely,

Rhonda Spellman

RhondaWriter
New Member


Date Joined Feb 2012
Total Posts : 8
   Posted 2/7/2012 11:43 AM (GMT -6)   
Oh Yazzer,

I forgot to mention - you are SO right about the GSH molecule not being survive the transit through the digestive system! The molecule is so big and the digestive track recognizes it as food. Typically, about 3 - 5% will make it. NOT good enough odds for me. Funny how a person learns all of this data when presented with a life-changing situation. I had never even heard of glutathione until my son...

Anyway - that is why this glutathione accelerator works: it accelerates your body's ability to produce more glutathione.

*By-the-way - we did blood tests in October 2008 when my son was diagnoses with PANDAS. His mercury levels were still off the chart and I have been doing a gazillion things to try and lower this for years.

In March, 2009 his mercury levels were "normal" according to the FDA "safe" levels. (A neuro-toxin "safe" ) yeah, right.

In January 2010 his mercury levels: ZERO.

Hope this helps,
~Rhonda

yazzer
Veteran Member


Date Joined Jun 2011
Total Posts : 898
   Posted 2/7/2012 1:03 PM (GMT -6)   
Well, I am glad to hear your son is well now....that's not the complete point. It's my understanding that, on this forum, you are not allowed to advertise products in which you receive financial compensation. So that rule is broken. I understand if you want to try and recoup money spent due to your son's chronic illness - many here would like the same thing. But, that's not the nature of this forum and the rules are meant to help protect folks here from various people selling snake oil on the internet.

Plus, it seems that almost all the claims are anecdotal regarding the product. You even say that the product "accelerates your body's ability to produce more glutathione" but nowhere do I find HOW it does this. What specifically helps the body accelerate the production of GSH? In a coffee enema, it's the caffeine stimulating the nerves and blood vessels in the lower end of the large intestine and colon.

I'll let others weigh in here if they may but, I maintain my very healthy level of skepticism regarding the 'magic bullet' you claim this to be.

yazzer
Veteran Member


Date Joined Jun 2011
Total Posts : 898
   Posted 2/7/2012 1:14 PM (GMT -6)   
Rhonda - I could not find the link to download your free E-Book - can you post a link?

RhondaWriter
New Member


Date Joined Feb 2012
Total Posts : 8
   Posted 2/7/2012 1:27 PM (GMT -6)   
Hi Yazzer,

My eBook link hasn't been posted yet. I have the eBook (292 pages) and would be happy to sent it to you but don't know how to post a link to something not posted anywhere yet. I think it will be posted on the Dr. Keller site next week. If you want to send me an email: Rhonda@AutismWithRhonda.com I will send you my book as a PDF.

In the meantime, you might want to download Dr. Keller's eBook on glutathione - it will answer your questions on the glutathione better than I can I'm sure. On snake oils, you are SO right... he ha. My husband used to ask me what "the snake oil of the month" was. When Tanner began with this product we never looked back and haven't tried anything else since then. We all take it.

Here's the link to Dr. Keller's book: http://www.robkellermd.com/?a_aid=76458. You'll see Free eBook on the upper right. It's an 83 page book and one of the best books I've ever read. I think you'll enjoy it.

If I've broken a rule I completely apologize - I am only trying to help others as we've been helped so greatly.

Sincerely,
~Rhonda

yazzer
Veteran Member


Date Joined Jun 2011
Total Posts : 898
   Posted 2/7/2012 1:45 PM (GMT -6)   
That's okay, I'll look forward to seeing the e-book posted on the Keller site next week!

RhondaWriter
New Member


Date Joined Feb 2012
Total Posts : 8
   Posted 2/7/2012 1:48 PM (GMT -6)   
Hi Yazzer,

Super! Thank you.

Have an awesome day!

~Rhonda

Zeusy
Regular Member


Date Joined Jan 2012
Total Posts : 237
   Posted 2/7/2012 2:23 PM (GMT -6)   
My doctor at one point recommended I do a glutathione IV, but by the time I found someone in my city who did them, I didn't need it anymore.

All I know is that whey powder has similar stuff, but research looks like you don't really absorb it and you need IV to get the full benefit- but I never saw anything about cream pills.

BBRH
Regular Member


Date Joined Jan 2012
Total Posts : 41
   Posted 2/8/2012 7:13 PM (GMT -6)   
Ok...

I took an IV Lipid Exchange with Glutathione Pust yesterday.

I have a little literature on it but it is Phosphatidylcholine (PC) with Glutathione from process developed at Wellness Health Pharmacy.

It is not cheap and I do not know if my insurance covers it or not as I have not had time to mess with that. The Glutathione itself is 75 and the combo was 155. I do not know if there is an advantage to taking the combo or not.

I had to drive 90 miles (1 way) to get the treatment. So, yesterday was a rather long day for me that would normally taken a toll on me lately. I sort of felt like it bothered me on the drive back and seemed like my nervous system was a bit on edge. However, I was able to get up by 9 am this morning and help my friends (really I just kind of watched ) work the cattle. Vaccines?worming/ ear tags etc...

I think that it is helping in that from past experience ( after starting abx) I would have been totally worn out today and very lethargic..I am not saying I am not tired because I am about to nap but I do believe it is helpfull.

I will try to post something tomorrow on how I feel.

Also, if anyone knows of the Phosphatidylcholine and if there are any advantages to getting it with the Glutathione please post it.

I am counting down my days to first appointment with LLMD next Wed....I have been being helped by Lyme Friendly but they can are a bit limited to what they can help with.

Thanks
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