New Topic Post Reply Printable Version
31 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

BBRH
Regular Member


Date Joined Jan 2012
Total Posts : 41
   Posted 2/2/2012 10:52 PM (GMT -6)   
Hi Everyone,

My symptoms are fairly strong lately and I am very lethargic. Nerve and muscle symptoms seem to be the worst. I also have feet problem - mainly under big toes.

My first appointment with LLMD is getting closer - Feb 15.

In the meantime I was lucky enough to find Lyme friendly doctor and am taking doxycycline, flagyl, and have prescription for levaquin that I start tomorrow.

I am going to have glutathione IV therapy on Monday? I have read great things about it...was wanting feedback from anyone who takes it? Good results, not good, possible problems, etc?

I also started green Vibrance today and have started the salt and hydrogine peroxide baths.

Thanks

Summer3
Veteran Member


Date Joined Nov 2011
Total Posts : 1020
   Posted 2/2/2012 10:56 PM (GMT -6)   
I'm curious about this as well. Do you know the approximate cost? Is this covered by any insurance?

I have a lot of the same symptoms that you are describing. How did you know that you were deficient in glutathione? Did you have a test for it?

BBRH
Regular Member


Date Joined Jan 2012
Total Posts : 41
   Posted 2/2/2012 11:11 PM (GMT -6)   
I do not have price or if insurance covers it but will know Monday. If you like you can email and I will let you know. I do not know that I am deficient but have read that Many people are ...I am low on Vitamin D.

How is your treatment progressing? I have been on abx for almost two months. Seems like things are worse than when I started. Hoping for the best-I miss my pre-Lyme life. :(

Summer3
Veteran Member


Date Joined Nov 2011
Total Posts : 1020
   Posted 2/2/2012 11:41 PM (GMT -6)   
I can't say that my treatment is going great. I am also two months in with a LLMD and mainly going after babesia first. I'm also worse than when I started. The other day I couldn't even move my hand lol. It was kind of aggravating because like most people, I need my hands to move for the work that I do.

I'm willing to try some other more aggressive supplements if they will make a significant improvement. Glutathione was one of the ones I looked into along with magnesium, b complex, and vitamin c. Meyer's cocktails I think they are called.

I'm not sure if the effects wear off quickly though. I have heard some people say that it only lasted 2 days for them. Others say the effects were pretty long lasting (a week or so). I haven't heard anything super-negative about it other than the effects wearing off quickly.

I also miss my pre-Lyme life. I used to run 10 miles every day or jog up a mountain and back in 45 minutes. Now I don't feel like doing anything. It's like an endless flu.

I hope it goes well for you on Monday and you get some relief with it.

BBRH
Regular Member


Date Joined Jan 2012
Total Posts : 41
   Posted 2/2/2012 11:55 PM (GMT -6)   
Understand,

I used to exercise my dogs (4 Cow Dogs) daily, go to Jiu Jitsu 4 x 6 times a week, work outdoors on the property, and always busy doing some kind of activity.

Anyway, we will get back to normal!!

As for the Glutathione ...the place I am going, Lyme Friendly, recommends treatment once weekly. I was also prescribed Low Dose Naltrexone that you may look into....it bothered my sleep quality but I am told if you stick with it that your normal sleep habits will return.

Will let you know how it goes.

Thanks

bucci
Veteran Member


Date Joined May 2006
Total Posts : 1477
   Posted 2/3/2012 3:52 AM (GMT -6)   
BBRH,

can you let us know how the levequan goes for you too, please?

were you diagnosed with bartonella?

you seem to be on track medication wise.I have mixed feelings about the glutathione?

I was getting it at the end of my IV ozone and IV vitamin treatments.

I'm also curious if you doctor is pro or con magnesium.

mine was anti magnesium but many others use it.

have you done the metagenix labs parasite stool test?
That is one thing that helped me and the pharmacutical parasite treatment
was very effective.


good luck and please let us know about glutathione.

BBRH
Regular Member


Date Joined Jan 2012
Total Posts : 41
   Posted 2/3/2012 7:36 AM (GMT -6)   
Sure thing,

I will keep you posted.,I know that they do the IV ozone and IV vitamin treatments too. I do not know about magnesium but will ask.

This is the first I have heard of the metagenix labs stool test...I will look into that too.

As for the bartonella, my first lab showed negative. Was IGeneX Co-Infection Panel. However, I speak to someone who is extremely knowledgeable on Lyme from North East and he told me I am showing symptoms and the co-infections can be harder to detect than Lyme.

When I see my LLMD I will get his opinion and am going to ask if I should order PCR tests.

starbuxgal3
Regular Member


Date Joined Oct 2011
Total Posts : 79
   Posted 2/3/2012 9:29 AM (GMT -6)   
what is the glutathione supposed to do?

borderlyme
Forum Moderator


Date Joined Jul 2011
Total Posts : 1414
   Posted 2/3/2012 9:33 AM (GMT -6)   
I did weekly vitamin C drips for about a year, and they'd end it with a giant syringe of glutathione, which always made me feel instantly better. I can't remember how long it lasted - although I guess it couldn't have been longer than a week!

All I can say is that was the best I ever felt before finding out I had Lyme (my doc at the time was trying to treat CFS) - can't say for sure if it was the glut or the vit c helping the most, but I'd definitely give glutathione a thumb's up!

Just thought I'd also point out - someone mentioned on here a while ago that brazil nuts are an excellent source of glutathione - a pretty cost-effective alternative if you can't swing the IVs!
Co-Moderator, Lyme Disease Forum

Summer3
Veteran Member


Date Joined Nov 2011
Total Posts : 1020
   Posted 2/3/2012 10:34 AM (GMT -6)   
I've heard about the Brazil nuts and I was eating them like crazy for a while. I didn't notice much of a difference from eating them. I don't notice a difference on the vitamin C supplements I take either.

I wanted to try a Meyer's cocktail or glutathione, but for me, since I can't do it frequently, it might be worse to have short-term relief and then go back to feeling really badly again.

Purplegirl
Regular Member


Date Joined Dec 2011
Total Posts : 327
   Posted 2/3/2012 11:09 AM (GMT -6)   
Most Insurance Co's will not pay as they say it is Experimental .. I take Lypo-Spheric GSH Glutathione by LivOn... This stuff works and is cheaper then IV drip...
~Angie~

starbuxgal3
Regular Member


Date Joined Oct 2011
Total Posts : 79
   Posted 2/3/2012 11:19 PM (GMT -6)   
ok so is that a cream, pill.....should everyone with lyme take glutathione..thanks for the info!

Angie how does the lypo gsh stuff work for you...what difference do you notice? do you take it everyday?

it's pretty pricey for just a 30 days upply.

but if I do get this to try it...do I need to stop taking my b12 and vit. c?

Post Edited (starbuxgal3) : 2/3/2012 10:28:36 PM (GMT-7)


Purplegirl
Regular Member


Date Joined Dec 2011
Total Posts : 327
   Posted 2/4/2012 7:00 PM (GMT -6)   
Yes it is pricey... It helps your immune system to protect the body from germs and bacteria ..it's a good antioxidant and people like us with Lymes or any chronic Illness have lower levels of Glutathione ...there are glutathione creams also I'm just not sure how well they work and what brand is good .. There are patches also but they are like 77.00 for 30 patches ... Keep me posted on what you find out on this ... Thanks :)
~Angie~

yazzer
Veteran Member


Date Joined Jun 2011
Total Posts : 898
   Posted 2/5/2012 7:05 AM (GMT -6)   
There are now liposomal forms of glutathione that you can take orally that are practically as effective as I/Vs at getting the GSH to your bloodstream. Google it. Also, the much maligned coffee enemas - they increase your own liver's ability to manufacture by 600-700% . Research this as well. I have had the I/V GSH pushes. My doc says I could get them once per week as part of the Myers cocktail. I think you want to limit how much you do that however because, if done too often, then your body will get used to to and begin producing less on its own. As anything with this stuff, it's a balancing act.

yazzer
Veteran Member


Date Joined Jun 2011
Total Posts : 898
   Posted 2/7/2012 10:03 AM (GMT -6)   
Welcome Rhonda but you will have to excuse my skepticism here...your post and page look more like an advertsiement for a specific product...Plus, the fact that you show up on these pages and your first post is in this regard. Do you receive any financial compensation from this so-called product? Practically ALL scientific research that I have been able to locate on GSH is that it will not survive the transit through the digestive system to give benefit - absorbability is less than 5% when using oral capsule-based GSH. There has been some positive news on the oral front with liquid liposomal forms of GSH that can get up to 80%+ absorbability but these products are new and therefore, IMO, the verdict is still out on whether they're effective or not.

So, what is left is an I/V GSH push or trying to do something to help your liver produce GSH - these ranging from taking NAC supplements to doing things like coffee enemas. On your page, you never mention trying a GSH I/V for your son either - that seems strange that you would not try that first if you really thought GSH was the issue. I invite you to prove me wrong but it appears to me you have showed up here to sell a specific product. I hope I am wrong on this but experience leads me to think that I am not.

Moderators - what say ye?

yazzer
Veteran Member


Date Joined Jun 2011
Total Posts : 898
   Posted 2/7/2012 12:03 PM (GMT -6)   
Well, I am glad to hear your son is well now....that's not the complete point. It's my understanding that, on this forum, you are not allowed to advertise products in which you receive financial compensation. So that rule is broken. I understand if you want to try and recoup money spent due to your son's chronic illness - many here would like the same thing. But, that's not the nature of this forum and the rules are meant to help protect folks here from various people selling snake oil on the internet.

Plus, it seems that almost all the claims are anecdotal regarding the product. You even say that the product "accelerates your body's ability to produce more glutathione" but nowhere do I find HOW it does this. What specifically helps the body accelerate the production of GSH? In a coffee enema, it's the caffeine stimulating the nerves and blood vessels in the lower end of the large intestine and colon.

I'll let others weigh in here if they may but, I maintain my very healthy level of skepticism regarding the 'magic bullet' you claim this to be.

yazzer
Veteran Member


Date Joined Jun 2011
Total Posts : 898
   Posted 2/7/2012 12:14 PM (GMT -6)   
Rhonda - I could not find the link to download your free E-Book - can you post a link?

yazzer
Veteran Member


Date Joined Jun 2011
Total Posts : 898
   Posted 2/7/2012 12:45 PM (GMT -6)   
That's okay, I'll look forward to seeing the e-book posted on the Keller site next week!

Zeusy
Regular Member


Date Joined Jan 2012
Total Posts : 237
   Posted 2/7/2012 1:23 PM (GMT -6)   
My doctor at one point recommended I do a glutathione IV, but by the time I found someone in my city who did them, I didn't need it anymore.

All I know is that whey powder has similar stuff, but research looks like you don't really absorb it and you need IV to get the full benefit- but I never saw anything about cream pills.

BBRH
Regular Member


Date Joined Jan 2012
Total Posts : 41
   Posted 2/8/2012 6:13 PM (GMT -6)   
Ok...

I took an IV Lipid Exchange with Glutathione Pust yesterday.

I have a little literature on it but it is Phosphatidylcholine (PC) with Glutathione from process developed at Wellness Health Pharmacy.

It is not cheap and I do not know if my insurance covers it or not as I have not had time to mess with that. The Glutathione itself is 75 and the combo was 155. I do not know if there is an advantage to taking the combo or not.

I had to drive 90 miles (1 way) to get the treatment. So, yesterday was a rather long day for me that would normally taken a toll on me lately. I sort of felt like it bothered me on the drive back and seemed like my nervous system was a bit on edge. However, I was able to get up by 9 am this morning and help my friends (really I just kind of watched ) work the cattle. Vaccines?worming/ ear tags etc...

I think that it is helping in that from past experience ( after starting abx) I would have been totally worn out today and very lethargic..I am not saying I am not tired because I am about to nap but I do believe it is helpfull.

I will try to post something tomorrow on how I feel.

Also, if anyone knows of the Phosphatidylcholine and if there are any advantages to getting it with the Glutathione please post it.

I am counting down my days to first appointment with LLMD next Wed....I have been being helped by Lyme Friendly but they can are a bit limited to what they can help with.

Thanks

Summer3
Veteran Member


Date Joined Nov 2011
Total Posts : 1020
   Posted 2/8/2012 7:17 PM (GMT -6)   
Thanks for posting. I was looking forward to your update all week!! I'm glad that it helped you feel better somewhat. How long did it take start to finish?

borderlyme
Forum Moderator


Date Joined Jul 2011
Total Posts : 1414
   Posted 2/8/2012 10:27 PM (GMT -6)   
I'm sorry, Rhonda, but advertising, soliciting, promoting, etc. are not permitted on the forum, and links to personal pages are best to share in your profile or signature, not in posts themselves. I understand that you want to share information, but we have to follow the rules.

As this thread has gotten a bit off topic, I think it would be best to start a new thread to continue the original conversation. BBRH - I'm glad to hear you think the glutathione might be helping!
Co-Moderator, Lyme Disease Forum

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 18889
   Posted 2/9/2012 9:21 AM (GMT -6)   
Hi Rhonda,
Here's the problem - you know very little, or nothing of Lyme. I have had at least as many hours logged on Lyme as you claim to have on Glutathione. Believe me when I say, there is nothing on earth like Lyme and other tick-borne infections. There are similarities to other auto-immune diseases, but we have yet to get the recognition, research monies, or attention that other auto-immune diseases have and yet already - the number of Lyme Disease cases are growing each year faster than the number of AIDs cases. The repercussion of having this set of infections long term before getting the appropriate treatment, is a life long sentence - I have lived quite literally 40 years with an ongoing chronic infection and I have lost three organs, my teeth, and am left with a type of arthritis that no one knows about - Lyme Arthritis - that has twisted and turned my fingers and toes and has moderately affected my large joints.

The purpose of this forum is not to debate with others who don't understand what is entailed when living with Lyme and the other tick-borne infections. This site was set up to support those who are living with or a significant other who lives with someone who has the specified condition. It's a place where we come to be with others who understand our conditions. This was never supposed to be a debate area.

BTW - Did you know that Lyme regularly mimics Autism? Did you know that around 40% of children diagnosed with autism respond very well to a Lyme Disease protocol? That doesn't count all those that have been misdiagnosed with ALS, Parkinson's, MS .... and the list goes on.

So if you have concerns about you, your son, or someone else in your family having Lyme, then we would love to help you!!!! Otherwise, please respect us and our health issues. Please don't encourage anyone here to take a product that you haven't spent a bunch of time learning how it might affect someone who has a different health issue than your son.

I am truly sorry that I sound so harsh, but I saw that the only posts you have made here on this forum has been in this one thread. It sure makes it look fishy.
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.

Summer3
Veteran Member


Date Joined Nov 2011
Total Posts : 1020
   Posted 2/9/2012 10:08 AM (GMT -6)   
Rhonda, I agree with the moderators. You mentioned that you are an affiliate of the product and therefore, you have a vested interest in promoting it. This makes it very difficult for people to trust your word. You are new to this board and have not mentioned what your connection is to Lyme disease, or provided an introduction, history etc. Your posts are coming off as pure advertisements to me.

I can understand making a mistake and accidentally breaking the rules of a message board, but your subsequent posts continue to advertise for the product. It's great that glutathione helped your son with his autism, but perhaps next time just post your story and how the supplement helped your situation. If anyone wants any information about the brand you use or where to obtain it, they can PM you.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 18889
   Posted 2/9/2012 11:33 AM (GMT -6)   
I'm sorry Rhonda, but I had to edit your post due to our rules here.

** No advertising or links to advertising or "Spam" is permitted.

Advertising or spam is defined as posting a link for the purpose of selling, soliciting or promoting something.
Links promoting fundraising, advocacy, etc. are not permitted.
Links to personal blogs/homepages are allowed in member profiles and signatures
Sharing of links to helpful and relevant web sites and resources is allowed if they are not used for a promotional purpose.



**Stay on topic. Posts which are not relevant to the forum topic may be deleted.

The topic here is how Glutathione may help those with Lyme Disease and it seems that the purpose of your posts is to have someone buy something - it doesn't matter that you don't care if someone purchases this product from you or the manufacturer - the purpose of your posts were to promote a product.

If you have an issue with what I am saying, you are welcome to contact the site Administrator.
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.
New Topic Post Reply Printable Version
31 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Friday, May 29, 2015 10:07 AM (GMT -6)
There are a total of 2,428,568 posts in 268,580 threads.
View Active Threads


Who's Online
This forum has 160523 registered members. Please welcome our newest member, Ewokewok.
400 Guest(s), 15 Registered Member(s) are currently online.  Details
logoslidat, knotreel, Lyme sufferer, RunnerGirl82, Pirouette, Brudisdog, Sniogra, AngelLisa, stchristopher, getting by, Dancingbear*, blksteeda, InTheShop, Traveler, Myself 09


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2015 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer