Anyone heard of/tried UltraViolet Blood Irridation?

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BustaLymes
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Date Joined Jan 2012
Total Posts : 49
   Posted 2/7/2012 6:20 PM (GMT -7)   
Recently I spoke to an ND who recommended UVBI (UltraViolet Blood Irridation) for lyme, co-infections, etc.  Has anyone heard of this or tried it?

bucci
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Date Joined May 2006
Total Posts : 1489
   Posted 2/7/2012 10:31 PM (GMT -7)   
was that recomended as a cure or somethng to add to your treatment?
20 yrs of doctors . DEC. 2009 tested positive for lyme, bartonella, ehrichiosis, HHPV6, chlamadyal pneumonia .
parasites :strongylides, diaoebia fragialis, hook worm.

Hep C ....fibro, rhumatoidal,depression,

BustaLymes
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Date Joined Jan 2012
Total Posts : 49
   Posted 2/8/2012 2:52 PM (GMT -7)   
I asked him (the ND) what he would do if he had late stage lyme and bartonella. He replied UVBI. I guess your blood runs under/through an ultaviolet light that kills all bacteria, parasites, virus, etc. Then the blood is returned to the body. It's sounds logical, but would take a lot of treatments!

Traveler
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Date Joined May 2007
Total Posts : 15360
   Posted 2/8/2012 3:44 PM (GMT -7)   
I read just a little bit about it, and I would recommend that you investigate this thoroughly before agreeing to use this treatment. Although it is said that it can help heal Lyme by helping to oxygenate the blood, it continues to emit "secondary radiation" even after the treatment. Too much radiation isn't good for us no matter how we get it, so please be sure to thoroughly check this out.
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.

SleeplessNJ
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Date Joined Jan 2012
Total Posts : 371
   Posted 2/8/2012 5:22 PM (GMT -7)   
VERY interesting!! I would love to hear more. Anything to get this **** out of me!!!!

Traveler
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Date Joined May 2007
Total Posts : 15360
   Posted 2/9/2012 12:47 PM (GMT -7)   
I know the desperation of finding something - anything - that would heal me and kill off those buggars as quickly as possible!! It's a horrible thing to live with! Although we must be careful not to do more harm than good.

I would caution you though to be careful to not do anything that will cause other issues or another long-term condition. Radiation isn't good for us, so doing something that would bring more radiation into my body would give me serious pause.

I'm not saying that this does or doesn't work, just please do all kinds of research on your own to find out if this is a dangerous procedure or if it has some risky side effects. Usually the slow progress we can make on abx and/or herbals/homeopathy is the best way to ensure less relapses.

Please be careful!
Co-Moderator, Lyme Disease ;)

Treating with Acupuncture, Traditional & Modern Chinese Medicine & Western Herbs. Before tx, I had all but 20 of the symptoms on the "Master Symptom List"

"Absence of proof is not proof of absence" - Dr. Edwin Masters, great LLMD & researcher -RIP

I break up my post because my eyes have been effected by TBI's as well, making long paragraphs very hard to read.

BustaLymes
Regular Member


Date Joined Jan 2012
Total Posts : 49
   Posted 2/9/2012 4:24 PM (GMT -7)   
I am not doing it.  I was just wondering if anyone heard of it or
tried it.  I think it's only available in a couple states and mine is not one of them.

SleeplessNJ
Regular Member


Date Joined Jan 2012
Total Posts : 371
   Posted 2/9/2012 8:31 PM (GMT -7)   
Traveler-- exactly!! Yucky!! Makes me totally grossed out

Razzle
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Date Joined Aug 2007
Total Posts : 4151
   Posted 2/10/2012 11:32 AM (GMT -7)   
I've heard of it.

I don't think it would work for Lyme because Lyme does not like to stay only in the blood - it prefers the tissues where it can hide from the immune system and abx. So irradiating the blood won't really get at the Lyme that is in hiding...
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube
Meds: Flagyl, Domperidone, Claritin, Singulair, Andrographis & other herbs, homeopathy, supplements, etc.

BustaLymes
Regular Member


Date Joined Jan 2012
Total Posts : 49
   Posted 2/10/2012 2:01 PM (GMT -7)   
I was reading about it and there is radiation- the amount of an x-ray.  However, it you need 20-30 treatments, that adds up!

SelahGrace
New Member


Date Joined Oct 2011
Total Posts : 6
   Posted 4/26/2012 7:16 PM (GMT -7)   
I just recently started UVBI ... I have only had two treatments.

I have done my research and have talked to all of my doctors ... it is something I really wanted to do and am anxious to see what/if any response I will have.

The best thing I could recommend ... if you are interested ... find a doctor that provides UVBI as a therapy option and make an appointment (or call their clinic) to ask questions. They may be able to provide you with materials to make a choice that is right for you.

Spall
Regular Member


Date Joined Sep 2011
Total Posts : 111
   Posted 4/28/2012 1:57 PM (GMT -7)   
SelahGrace what research indicated that this would be effective for lyme? I looked into this when I first got diagnosed ~6 months ago, but can't remember seeing even preliminary evidence to support the application. I'd be curious to see what information is out there now.

SelahGrace
New Member


Date Joined Oct 2011
Total Posts : 6
   Posted 4/28/2012 8:21 PM (GMT -7)   
The information I have is printed material that was given to me by my doctor ... that is why I recommend speaking directly to a physician or clinic that provides the therapy. I feel they are a much better resource than I can be.

I am not doing the treatment because I have lyme ... I have been diagnosed with two autoimmune conditions, and that is why I started considering my options ... I am on antibiotic protocol per my LLMD recommendations and have tried integrative approaches along the way. Some have helped, and some have not.

I just wanted to pop in and let others know I have heard of it, and just recently started ... once I see any response (one way or the other) I will be happy to share :)

PositiveLymie
Regular Member


Date Joined Mar 2012
Total Posts : 83
   Posted 4/29/2012 1:32 AM (GMT -7)   
I have tried it :)! I think that it is a great idea to try it. They pull your blood through a glass tube and uv light. It did give me a few good days. It's not scary as long as the person doing it is well qualified. It is a slow pull of the blood and a slow push back in. Before antibiotics it was used to kill bacterial and viral infections that were deadly. Let me know if you do try it and how it makes you feel :).

peggster
Regular Member


Date Joined Aug 2011
Total Posts : 73
   Posted 9/23/2012 12:53 PM (GMT -7)   
I did UVB treatments about 4 years ago for Ebstein Barr with a Doctor in Atlanta.  Treatments cost $55 each, affordable.  Living a couple hours away, I opted to do them closer together & was on the couch for a month...knocked me for a loop!  I also have longterm mold exposure/illness....at the time I did not know I had lyme (just diagnosed but have had it for years apparently).  I had been so dysfunctional with fatigue that I had to try something & my doctor recommended it.  I did 5 treatments and truly credit UVB to a HUGE change in my quality of life!  I don't know if I was sick from the EBV, lyme or mold or ALL COMBINED but this truly turned my health around to where I was functional.  I had been so sick & fatigued that I felt I was slowly dying.  I wouldn't hesitate to do them again, in fact am thinking of that as the recent tick bites have really got me dysfunctional with fatigue once again.  I also know of another top Atlanta doc who is privvy to UVB.  I, myself, am more concerned with using abx as I have severe candida issues from mold illness.  Good luck.  Do your homework, I just wanted to add my experience. 

Shabbychic
Regular Member


Date Joined Jul 2012
Total Posts : 395
   Posted 9/23/2012 7:04 PM (GMT -7)   
I'm so glad we are talking about this! I read a post on here a couple of months ago and I believe it was a gentleman that said he had it done in Germany. It's all very interesting. I agree with Traveler in that the radiation is a concern, but I wonder if after or during treatments you could take something to counteract the radiation exposure? Weren't the people in Japan taking something after the tsunami to counteract radiation exposure? Hmm... Interesting. I'll have to look more into it. It the people who are currently in treatment could please keep us informed, it would be very much appreciated and good luck!

Henry7891
New Member


Date Joined Sep 2012
Total Posts : 6
   Posted 9/23/2012 9:28 PM (GMT -7)   
It's different thing, UV is bad in general, it causes hardening or shading(I don't remember) of the lens that is in your eyes. It also causes skin problems but kills germs. I always thought that whatever is in the blood is killed by ABx anyways. What about those that are in the tissue, between the cells? In Japan they were taking iodine. If not taken in time and in high enough dosage your thyroid would accumulate radioactive isotope. I'm not 100% sure

colette123
New Member


Date Joined May 2013
Total Posts : 1
   Posted 5/4/2013 7:25 PM (GMT -7)   
I have been doing the UVBI for latent lyme and bartonella....i have had over 20 IV's now in the past year, and they have helped more than anything else...as it is a blood treatment, I don't know if it is possible to completely eradicate lymes (because it is tissue, bone and brain at late stages), but it has really helped my brain fog, energy, overall pain too..it is very expensive unfortunately and insurance doesn't cover it...but if you have the means, I highly recommend it!!
Blessings!

Chances
New Member


Date Joined May 2013
Total Posts : 6
   Posted 5/21/2013 11:05 AM (GMT -7)   
about UVBI... I asked my ND about this and he said not something he would use for spirochete
as someone else posted, they aren't in the blood.
He said it would be good for other issues which weren't a concern for me.
But... if someone does it, and it makes them feel better... I say enjoy the benefits!
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