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beachlover89
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Date Joined Nov 2011
Total Posts : 265
   Posted 4/5/2012 8:34 AM (GMT -6)   
I dropped 20 lbs in between dec-jan...now down 30.  Can anyone relate?

Summer3
Veteran Member


Date Joined Nov 2011
Total Posts : 1020
   Posted 4/5/2012 8:42 AM (GMT -6)   
Me too. Exactly the same as you. I lost 20 lbs quickly when I first got sick and now I've lost about 30 and continue to drop slowly. I can't gain anything back and I was a normal BMI to start with.

I have heard babesia can contribute to weight loss.

beachlover89
Regular Member


Date Joined Nov 2011
Total Posts : 265
   Posted 4/5/2012 11:19 AM (GMT -6)   
I was a normal BMI too! I will read into that...thx

Hopeful Maxine
Regular Member


Date Joined Sep 2011
Total Posts : 184
   Posted 4/5/2012 1:48 PM (GMT -6)   
I dropped about the same, 20 pounds between Feb and March 2011, and then further lost another 25 pounds. I have since gained back about 6 pounds. I really don't know how to get it back while being on this no carb diet. I was a total carb girl, loved my bread and pasta. Not so much sweets though. My LLMD told me to add back a bit of carbs up to tolerance as he didn't want me to lose any more. I have done that without causing any digestive problems. I am 5' 7" and currently weigh 132 pounds on a good day. I was down to 126. Way too low for me. I eat brown rice gluten free pastas and crackers occasionally. Some sprouted wheat bread, although I know that probably isn't a good choice, but I can't handle the gluten free bread. I also make myself a protein shake using Vega at night now to have with my abx. I put in a small amount of frozen berries, Vega, I mill some flax seed, almond butter and unsweetened almond milk. Very tastie. It is my hope that it will help me put some weight on.

Does anyone have any suggestions for adding good calories to help get some weight on???? I would love, love, love to hear them as I am sure beachlover89 and Summer3. Any suggestions would be greatly appreciated!!
Thanks in advance!

Hopeful Maxine
Regular Member


Date Joined Sep 2011
Total Posts : 184
   Posted 4/7/2012 12:18 PM (GMT -6)   
Anyone have any suggestions for weight gain???? ( I never in my wildest dreams thought this would be a question I would have to ask a group on a forum!!!) But HELP!!

Summer3
Veteran Member


Date Joined Nov 2011
Total Posts : 1020
   Posted 4/7/2012 1:20 PM (GMT -6)   
I don't have too many suggestions. I'm having a similar problem and was told by my doctor to be less restrictive with what I was trying to eliminate for inflammation and Lyme. I'm definitely not dangerously thin yet, my BMI is still in the normal range, but he doesn't want me dropping anymore weight (not that I was trying to intentionally lol).

I was eliminating gluten, dairy and sugar. He claims gluten is the primary one to be concerned about.

Obviously, he doesn't suggest going out and eating hamburgers, fries and cookies lol. More like larabars, coconut milk products (milk, no-sugar added ice cream, yogurt), nut butters and gluten free pastas.

I was not advised to eliminate fruit or fruit based sugars (like those found in larabars from the dates and figs).

I'm either starving all the time and massive amounts of food, or don't feel like eating whatsoever. Even during weeks that I'm starving, I never gain anything. I continue to maintain or drop weight.

Hopeful Maxine
Regular Member


Date Joined Sep 2011
Total Posts : 184
   Posted 4/7/2012 1:31 PM (GMT -6)   
What types of fruit is eveyone eating? Reading Dr. B.'s guidelines, I am only eating apples and have added a few berries to my protein shakes. I would love to eat more fruit. What other fruits can I eat??? I know bananas are too sweet, but what about oranges, plums etc. Anyone???

SleeplessNJ
Regular Member


Date Joined Jan 2012
Total Posts : 371
   Posted 4/7/2012 1:56 PM (GMT -6)   
I would stay away from fruit as much as possible. They still have sugar. I am also very tiny, only about 90 pounds and 5'1/5'2.

I eat a lot of almond butter, lots of protein (abx/hormone free as much as possible) lots of olive oil, coconut oil, coconut/almond milk, spaghetti squash (low starch) broccoli, asparagus, zucchini both yellow and green, onion, garlic, coconut unsweetened, a few organic berries occasionally, organic eggs daily.......that's about it LOL
Dx Lyme 08, 28 days doxy, never got bettter, only worse. 1st LLMD appt 3/12. Confirmed Lyme+, heart murmur, Candida, suspect bart.. 200 mg doxy per day to start +probiodic. 4/12 switch to Bactrim. CLEAN diet for Lyme/Candida (no sugar, starch, dairy, processed foods) Many holistic supplements added from LLNP.

waverunner
Regular Member


Date Joined Feb 2012
Total Posts : 123
   Posted 4/7/2012 3:44 PM (GMT -6)   
If you google plums and oranges they are high sugar :(.

The Atkins or South Beach Diet has a good list of low, medium and high sugar fruits. Raspberries and one other are the lowest by their measure.

I do an apple a few times a week, strawberries same as they are med. Drag huh.

I hate to say it but figs and dates are high sugar and they'll feed the bugs. I looked at the Larabar site and soooo delicious. Even though they're more natural and healthy, I think their bars are food for the lymes. And dairy turns into lactose which turns into sugar.

:( -so restrictive. I'm starving....... xo

Post Edited (waverunner) : 4/7/2012 2:58:04 PM (GMT-6)


Hopeful Maxine
Regular Member


Date Joined Sep 2011
Total Posts : 184
   Posted 4/7/2012 6:33 PM (GMT -6)   
Yes, I just read the ingrediants of the Larabar at Choices, and it seemed to high in sugar so I put it back. 18 grams. I figured there were no other fruits to eat. Like I said, I do put a few frozen blue berries, raspberries and black berries in my protien shake. I really do miss fruit. I crave peanut butter too. A toasted peanute butter and banana sandwich would be really good right now. One day I am going to have one of those!!
Your list of food looks like mine SleeplessNJ. I guess I am doing all I can. I do eat brown rice pasta as well. I have heard contradicting things about tomatoes. I have been eating them, but somewhere I read I shouldn't be. What is a no no about tomatoes, or are the ok . . . anyone??

Garfield48
Regular Member


Date Joined Feb 2012
Total Posts : 143
   Posted 4/8/2012 8:50 AM (GMT -6)   
I have lost 10 lbs on the Lyme Diet (which is a lot for me - hypothyrodism meant that I normally practically gained weight just looking at food). Anyways - the diet by Dr. Nicola McFadzean doesn't sound quite as restrictive as what others are following. I eat any fruits I like (just not too much), also veggies that have more carbs such as sweet potatoes & carrots as well as limited amount of brown rice, quinoa & some buckwheat & millet. This seems to be okay carb-wise, I have been doing this since January and don't seem to be having any yeast issues. Also protein at most every meal and using almond milk, almond butter, kefir and have some walnuts & almonds every day.
I plan to experiment with making gluten free crackers today - I'll post back if they work out with the recipie

('Dr. Nicola McFadzean's book is called The Lyme Diet: Nutritional Strategies for Healing from Lyme Disease.)
Healing since Jan 5 2012

Amoxicillian, Azithromyacin, Bactrim, HH, Artemesia, Nattokinase, lyme tincture, adrenal tincture, probiotics, L-glutamine

Summer3
Veteran Member


Date Joined Nov 2011
Total Posts : 1020
   Posted 4/8/2012 9:07 AM (GMT -6)   
I go more by the Lyme Diet book as well. That's where I originally saw the suggestion of Larabars. There are so many different diet plans for Lyme lately it's hard to pick one!

I find that I can't be too restrictive or I drastically drop weight. It won't be healthy for me to lose much more especially since I'm already losing by eating Larabars and fruit lol. If I cut those out, I'm in trouble!

I've had Candida/severe oral thrush in the past and I eliminated fruit and fruit-based sugar for a for a while on my own without my doctor suggesting it because Nystatin wasn't working and I can't take diflucan.

For some people, eliminating fruit helps a lot with Candida, but it didn't help me at all. It just made me feel weaker and drop more weight. When I added fruit back in, the Candida ended up improving on it's own. For now anyway. I am very strict with not eating gluten, fried foods or refined sugars though. I NEVER stray from that plan.

Hopeful Maxine
Regular Member


Date Joined Sep 2011
Total Posts : 184
   Posted 4/8/2012 4:04 PM (GMT -6)   
What kind of fruit do you eat?? I have not had any yeast issues and have been on abx for 14 months, so maybe I can tolerate some. I just eat apples at the moment, but would love to try some others. I too can't afford to lose any more weight. I am also hypothyroid and normally had trouble losing wieight, but not so now. 45 pounds down and trying to get some of that back. Not all of it, about 15 would be nice!!

Summer3
Veteran Member


Date Joined Nov 2011
Total Posts : 1020
   Posted 4/8/2012 7:34 PM (GMT -6)   
This probably will not work for everyone. I'm not suggesting that everyone eat fruit especially if they have been advised otherwise.

I eat all fruit. All the bad fruits lol. I eat bananas, apples, grapes, strawberries, oranges, pineapple. Others sometimes too. I eat about 1-3 servings a day.

waverunner
Regular Member


Date Joined Feb 2012
Total Posts : 123
   Posted 4/8/2012 9:17 PM (GMT -6)   
Isn't that weird summer? Where I read about lymes, they say no sugar, through fruit nothing. And it's not said regarding Candida. They say it to do with not feeding lymes.

That's why I though Larabars would be bad. I pretty much ate for lymes before I had it. The ND I saw, to see what she knew laughed passing me a sheet as I do it already.

On hers, no sugar through fruit either except low sugar like apples and a few berries very occasionally. I think these docs are very individual, regardless of their qualifications no?

It seems to fall into what their personal belief system is on the bugs regarding food.

If you can get away with it well, go for it. Our bodies respond individually right?

I'm not eating sugar though. That's my advice to myself lol. I don't want them eating anything they're going to like. I'm starving them with alkaline food and habitat only. lol

But it was sooooo hard today being milk chocolate and cupcake day with the bunnies. :(

Summer3
Veteran Member


Date Joined Nov 2011
Total Posts : 1020
   Posted 4/8/2012 10:01 PM (GMT -6)   
I know, some doctors seem to really believe in diet changes and others don't advise much on that.

My LLMD primarily focuses on diet/lifestyle changes for conditions other than Lyme in his practice. Yet he didn't tell me to avoid ANY foods. When he found out I was still restricting dairy, sugar and gluten he just told me to avoid gluten if I can, and to stop restricting so much with the other stuff. So I added fruit back in.

One time when I had an issue during a doctor's appointment (an out of the blue hypoglycemic incident that lead to a seizure) they actually made me eat a food loaded with sugar! I REALLY hesitated lol! I was sitting there after waking up scanning the label. I'm definitely obsessed.

I don't know if the fruit is helping or harming me. I feel pretty bad today. I felt bad when I wasn't eating fruit too lol.

waverunner
Regular Member


Date Joined Feb 2012
Total Posts : 123
   Posted 4/9/2012 12:05 AM (GMT -6)   
Gosh you're kind of darned if you do and darned if you don't with the hypoglycemic deal. Ouch. Seizures aren't good. Scary for you I'm sure.

He's addressing inflammation with the no gluten I guess. Well, all we can do in this is kind of be our own science experiments it seems doesn't it?

If I eat sugar the feeling of bugs traveling through my arms, chest, legs, body gets so so strong. I start to twitch laying down. I feel the movement sitting, laying down, it's awful. Like bugs in my blood lol. No kidding.

I feel sugar huge. Less, the pulses through my veins and everything slows down. Just me with that I guess. I sure hope you can find something, just something you know (?) that gives you some kind of relief somewhere. I do.

And hopefully be able to avoid problems with your blood sugar. Sorry to hear that you. That's no fun. xo

Summer3
Veteran Member


Date Joined Nov 2011
Total Posts : 1020
   Posted 4/9/2012 3:44 AM (GMT -6)   
I was trying to figure out what the rationale was for gluten being the worst (according to my Dr.) too. I think your right about it being to avoid inflammation. Does everyone get that from gluten? Even those that aren't allergic?

It's funny that you mention the twitching. I've had a big increase in that recently. Do you also get a lot of numbness or paralysis in your limbs? Sometimes I wonder if mine is from blood sugar or neuro Lyme stuff.

I don't know why I have blood sugar issues. I am not diabetic and have no risk factors so it must be from Lyme. I never had any blood sugar problems prior. The seizures were really weird. I wouldn't have known that's what they were if they hadn't witnessed it. It had happened a few times prior and I thought I was just fainting. It felt almost the same except I had no warning and when I came to, I was much more disoriented. It took a while to realize where I was and who people were that I should have recognized. Other than that it was no big deal. I don't think mine were extremely serious ones luckily.

Garfield48
Regular Member


Date Joined Feb 2012
Total Posts : 143
   Posted 4/9/2012 4:56 PM (GMT -6)   
I guess we are all part of this great Lyme experiment, right?

@summer - i used to have some pretty severe hypoglycemic type symptoms years ago before discovering that I had hypothyroidism. Still need to be mindful but the severe issues stopped once the thyroid was treated. When I did the fasting blood sugar - it always showed my sugar was fine but I'd get shaky & dizzy between meals.

@ Maxine - I pretty much eat all fruit though mostly apples, bananas & grapes because they are easy to grab for work. Also sometimes raisins or pears in my oatmeal. I avoid cantelope & honeydew melons because of molds.
Healing since Jan 5 2012

Amoxicillian, Azithromyacin, Bactrim, HH, Artemesia, Nattokinase, lyme tincture, adrenal tincture, probiotics, L-glutamine

randompains
Regular Member


Date Joined Apr 2012
Total Posts : 137
   Posted 5/4/2012 10:39 AM (GMT -6)   
Hi all

I just searched this topic as I am loosing weight and can't eat. Most of you talk about low carb (btw this is all news to me) I need those carbs. Its the only thing I dont throw up and I need food in my stomach to take my meds. I love fruit but usually leaves acid in my stomach. Any suggestions on what to slowly switch to that will still help absorb my stomach acid but isnt too heavy.

Since Ive been getting sick I live on oatmeal, water& crackers.

TIA

nomad943
New Member


Date Joined May 2012
Total Posts : 2
   Posted 5/4/2012 10:54 AM (GMT -6)   
To me, carbs will always equal sugar sooner or later.
That leaves proteins as the odd one out (or in).
Have you tried going heavy on the proteins? Powders or even just tuna and such?

Lyme14
Regular Member


Date Joined Jun 2011
Total Posts : 381
   Posted 5/4/2012 1:03 PM (GMT -6)   
 
I dropped 30 lbs. in two months when I was taken off a high-fat raw food diet and placed on a more conventional diet by a doctor and dietician.  The only way I have been able to gain weight is by eating lots of fat and protein (large amounts of protein are not the best thing for Lyme due to the ammonia they cause in the body).  Sally Fallon & Mary Enig have several books out on healthy fats (no affiliation).  Fats not only protect the body, but also are necessary for proper cell comunication.
 
 
 
 
I'm a music teacher, and not a doctor. Anything I post is based on my own experience and lay opinion.
Lyme, Babesiosis, Mycoplasma (Asthma), Fibromyalgia (Soft Tissue Injury), Costochondritis,
CFS (Mitochondrial Dysfunction), IBS (Candida), Hashimoto's Thyroiditis, Adrenal Fatigue,
ITP (Low Platelets), TMJ, Plantar Fasciitis, Schamberg Purpura, Tinnitis, Allergies, MCS

Garfield48
Regular Member


Date Joined Feb 2012
Total Posts : 143
   Posted 5/6/2012 2:06 PM (GMT -6)   
Dear Random Pains - I was having severe nausea and like you found myself able to eat little. My LLMD gave me Stomach Ease by Wild Harvest which helped but also took me off all but one medication and then we slowly added them back in one at a time - for 3 days before adding the next. Found one of the antibiotics was making me nauseous so we switched to a different one. Am still slowly adding back in the other meds to make sure they weren't also contributing to nausea too. After clearing the nausea was able to eat better and my weight loss slowed.

I hope you get it figured it out and start feeling better soon.
Healing since Jan 5 2012

Amoxicillian, Azithromyacin, Bactrim, HH, Artemesia, Nattokinase, lyme tincture, adrenal tincture, probiotics, L-glutamine
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