Muscle/Tissue Loss and Deterioration?

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AndyD81
Regular Member


Date Joined Aug 2012
Total Posts : 25
   Posted 8/1/2012 5:41 PM (GMT -6)   
Hi,
Can anyone tell me if muscle loss and tissue damage/loss could be a symptom of lyme? I am not talking about the kind of muscle loss from deconditioning or being inactive. But more so, rapid muscle and tissue deterioration that would be similar to some autoimmune attacks that destroys healthy tissues and even breakdown muscle? The kind that is visibly noticeable. Thanks

kds86
Regular Member


Date Joined Oct 2011
Total Posts : 278
   Posted 8/1/2012 6:42 PM (GMT -6)   
Good question..my question is...what is a good liquid supplement to take for bone/muscle health?

devia
New Member


Date Joined Jul 2012
Total Posts : 10
   Posted 8/2/2012 4:36 AM (GMT -6)   
I have had multiple rotator cuff tears, multiple knee tears, ankle tears, wrists recurrent cts, lots of muscle pain and breakdown all from lyme

teasci
New Member


Date Joined Jul 2012
Total Posts : 13
   Posted 8/2/2012 8:02 AM (GMT -6)   
Yes, that is one of the lyme issues I have. I have specialized physical therapy 2 times of week for muscle loss and connective tissue malfunctions

borderlyme
Forum Moderator


Date Joined Jul 2011
Total Posts : 1304
   Posted 8/2/2012 8:14 AM (GMT -6)   
The lyme bug loves collagenous tissues - anything that's easy to spiral through, so yeah unfortunately that means connective tissues (including brains). Glucosamine is a really good supplement to support collagen growth/repair, and so are certain vitamins that you may want to take anyway, such as vitamin C.
 
I do remember hearing of an herbal blend, muscle tone something-or-other - never tried it but it was recommended by a source that I usually trust, so if you do a little research you might be able to find/look into it.
 
 
Co-Moderator, Lyme Disease Forum

AndyD81
Regular Member


Date Joined Aug 2012
Total Posts : 25
   Posted 8/3/2012 12:26 PM (GMT -6)   
Thank you for your replies. The muscle loss has been the one symptom that has made me question whether or not this could be lyme so it is interesting to hear this feedback.

I have had some elevated CPK levels which would support muscle breakdown, but I have not had any elevated autoimmune markers. There is the possibility that I could have a myositis but to rule that out I guess i would need a muscle biopsy which I nervous about doing. With that said, I'm actually hoping I actually have Lyme at this point. Something that is treatable. It would be much better than a neuromuscular disease and probably better than an autoimmune of the muscles (myositis).

IF anyone else has actually had elevated CPK levels and/or experienced muscle loss I would be sorry and interested to hear. Thanks

teasci
New Member


Date Joined Jul 2012
Total Posts : 13
   Posted 8/4/2012 9:16 AM (GMT -6)   
My CPK test was normal 6 months after the rapid muscle loss and weakness, but even with therapy the regaining of the lost muscle mass is minimal, weakness is improving, burning is still the same.

Waterpain
New Member


Date Joined Aug 2012
Total Posts : 16
   Posted 10/21/2012 9:34 AM (GMT -6)   
Hi!
I am having the same issues! My PT told me I had connective tissue disorder bc I am so weak in scapula muscles and they wing out really bad. I have tons of knots in my tissues on scapula that burn and cause headaches, numbness, tingling. After 1 1/2 years of dying a slow death(pain, swollen knees, weight gain, headaches, numbness, headaches, edema, swollen knees, red pinprick dots, insomnia, depression) with a ton of doctors telling me I have fibromyalgia or CFS, I finally got a
WB and it's Lyme and babesia!

I'm on 4 antibiotics (cycling 2) and a ton of supplements. I keep hearing Lyme loves collagen, connective tissues...
Does anyone have lumps, dimples on front of their thighs? It's not cellulite (massage therapist said lumpy connective tissue) acupuncturist said Lyme attacking tissues. When I stand I have all these indents, bumps, pits on front of legs above knees but no bumps, pits on cellulite at all on back of legs or hips.

When I rub my legs (lying down or standing) it seems like there are little tracks, lines under my skin in my muscle, connective tissue. I know this sounds strange - hard to describe almost like an Ant farm is in there making tracks!

I'm on ABX from my llmd for 4 weeks now...having some good days but bad ones still. I've lost some weight and my mood has lifted...just wondering if this happened to anyone and if it will go away or can I do something for it!
Thx!

Waterpain
New Member


Date Joined Aug 2012
Total Posts : 16
   Posted 10/21/2012 9:36 AM (GMT -6)   
AndyD81 said...
Hi,
Can anyone tell me if muscle loss and tissue damage/loss could be a symptom of lyme? I am not talking about the kind of muscle loss from deconditioning or being inactive. But more so, rapid muscle and tissue deterioration that would be similar to some autoimmune attacks that destroys healthy tissues and even breakdown muscle? The kind that is visibly noticeable. Thanks


I am having the same problem! In my scapula and front inside part of legs above knees

kds86
Regular Member


Date Joined Oct 2011
Total Posts : 278
   Posted 10/21/2012 10:35 AM (GMT -6)   
See my recent post on Spirulina/Chlorella

LottaAnsy76
Regular Member


Date Joined Sep 2012
Total Posts : 200
   Posted 10/21/2012 4:58 PM (GMT -6)   
what brand spirulina and chlorella to purchase ?? link ?

Waterpain
New Member


Date Joined Aug 2012
Total Posts : 16
   Posted 10/21/2012 6:59 PM (GMT -6)   
teasci said...
Yes, that is one of the lyme issues I have. I have specialized physical therapy 2 times of week for muscle loss and connective tissue malfunctions


What type of PT do you do? Did your Dr just call your condition a connective tissue malfunction? Any info would begreat! What part
Or parts of your body has been affected?

kds86
Regular Member


Date Joined Oct 2011
Total Posts : 278
   Posted 10/22/2012 7:53 AM (GMT -6)   
LottaAnsy,


http://www.iherb.com/Now-Foods-Certified-Organic-Chlorella-500-mg-200-Tablets/21320

and either

http://www.iherb.com/Now-Foods-Certified-Organic-Spirulina-500-mg-180-Tablets/14477

or

http://www.iherb.com/Nutrex-Pure-Hawaiian-Spirulina-Pacifica-Nature-s-Multi-Vitamin-500-mg-400-Tablets/12641

all these brands are safe and tested to have the utmost quality. When taking these together,a 2:1 ratio is important. So,1000mg spirulina,500 mg chlorella.

http://chlorellafactor.com/ has all the info you need on both of them :)

CindisBack
New Member


Date Joined Apr 2013
Total Posts : 2
   Posted 4/29/2013 11:51 AM (GMT -6)   
Hi Andy D81! :)
I read your post and think we may have the same symptoms. 
I've been limping and in terrible pain for 1 1/2 yrs.  3 different Dr's diagnosed me with Lupus and Fibro.  (I was in denial and refused to believe it...I've always suspected lymes...I was mistreated 25 years ago. -My mother and twin sister also diagnosed with lymes but treated differently.)
It started with hip pain and limping and progressed to extremely sore to touch, dented tissue and unable to walk any real distance....no more than around house.  It was localized to a small area on right side of thigh/hip region.  I had a massage and the therapist said it felt like a torn muscle and she could feel the void in the tissue.  Dr's thought it was bursitis.  The only thing that came up on my MRI was Bone Marrow Edema and fluid.  The ortho's and Rhemie's didn't have any answers.
My ANA's were elevated and had some bands on the LabCorp WB IgM P23 Positive and IgG P 41 Positive.
I recently had my blood sent to IGenex. 
Negative on IGenex IGM and IGC but had the following bands
18kDa +
**23 IND
30 kDa +
**34 IND
**39 IND
**41 IND
**83-93 +
So my doc is treating me for lymes with Bactrim 800mg.  After 5 days I feel a little less pain in the hip. I'm hopeful for the first time in a year. I believe the spirochetes have attacked my hip/thigh muscle tissue.  I hope this antibiotic can kill it deep in the tissue.
I wanted to see if you or anyone else has had a similar experience and how it was treated.  It's been awhile since your post...I hope you are healthy and well and can share your experience and any helpful advice!
Thanks for listening!
Cindi :)
 

Heathersdad
Veteran Member


Date Joined Nov 2012
Total Posts : 761
   Posted 4/29/2013 7:18 PM (GMT -6)   
Andy,

I have read that the lyme consumes our soft tissues.

My daughter was becoming very skinny while she was sick during her 5 years of illness. It is important to have good nutrition while you are sick, and also that you are able to absorb your nutrition by insuring good GI tract health.

Don
We are older parents and Heather is our only child. She became so sick and debilitated that we thought that she was going to die, and everything looked so hopeless and bleak. However, God answered our prayers, and used the healing hands of Dr. J. at the Hansa Center to more than restore the health of our precious daughter. I have a moral obligation to help others that are likewise suffering!

MarieLS
Veteran Member


Date Joined Dec 2012
Total Posts : 1560
   Posted 4/30/2013 12:36 AM (GMT -6)   
Hi,

I lost literally all of my muscle power and a LOT of muscle tissue (I'm naturally muscular, so to say, runs in the family), my skin has become very thin, especially these lasts months. I'm not skinny because I'm bloating up because of inflammation, but I certainly feel a huge difference with before. I can't open bottles, can't lift something that's more than 5 kilos (even that is difficult on some days), can't do sports, walking is a challenge, some days I just can't lift my arm or get out of the sofa.
On my chins I have areas where I can feel the tissue loss, feels like a dent.
I'm not healed yet, so I can not say what helped me with that particular problem. I had reactions on previous post though, from members saying it'll all come back - I was happy to hear that.

Good luck!!

Marie
Diagnosed with Bartonella June 2012, Lyme+ too. Sick for 15-18 years (33 now). Started treatment August 2012 with antibiotics (ILADS protocol) + cyst busting essential oils + Buhner's Core Protocol. Leaky gut, heavy metals, EBV, XMRV, erythema nodosum, Hodgkin's Lymphoma at 15, arthritis, food allergies/intolerances, histamine/chemical intolerance and much more

AUS64
New Member


Date Joined Mar 2013
Total Posts : 9
   Posted 4/30/2013 6:00 PM (GMT -6)   
I'm continuing to lose both muscle strength and mass, particularly in my arms and shoulders, and have the thin skin MarieLS describes. I've also noticed a loss of muscle in my face and neck which has recently aged my appearance.

I've had a torn ACL, meniscus and shoulder tears in the last year. I thought this very strange since I've always been very active and the tears occurred during minimal exertion. Maybe Lyme related...

I tested pos for LD on IgM and am being treated for LD and Babesia but I agonize every single day on whether my symptoms are related to these or to something else/additional.

Cat53
Veteran Member


Date Joined Jul 2012
Total Posts : 510
   Posted 5/1/2013 3:55 PM (GMT -6)   
My husband has muscle atrophy and lost a lot of weight. It is one of the reasons the neurologist diagnosed him with ALS. It was verified through blood testing at Igenex that he has Lyme so the answer of course is yes.

1runner
Regular Member


Date Joined Mar 2013
Total Posts : 75
   Posted 5/1/2013 6:37 PM (GMT -6)   
I lost so much muscle and weight like you guys. I was really hardcore cardio girl fit light weights and running and swimming before I got sick. Muscle wasted away, lost weight all of it.

Strangely ate tons of protein and all the right food but it seems the bugs really take our nutrients from our cells like they say. Just this last couple of months put a "bit" back on thankfully eating more good fats coconut oil and olive oil and more protein, but muscle tone etc is gone, gone, gone. I could literally pull up and pull down my jeans not opening/unzipping them. I looked like a holocaust person and I was already lean.
Sida Acuta-babs/bart*Houttunyia-bart*Stephania-lyme/bart*Andrographis-lyme*Cat's Claw-lyme*Japanese Knotweed*lyme/bart*Artminisin-babs*Serrapeptese-biofilm* GSE-Cysts*Colonics-home/Strict diet/Sauna.Body/joints/nerve 95% healed. Body still flutters. Brain/head/eyeballs BAD. Infection/inflammation feel inside, wooshing, rage/rapid thoughts chronic. Apr "13" add abx conjunction. zith, rifam, tindim.
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